Re: If things get critical/ H.

[Guest guest]

Dear Karin, I agree that this is a miracle and was wonderful news on CTV. I was very happy for this young woman and her young family and husband. Unfortunately, respirologists in Toronto never did a thing to help me and its exceedingly frustrating. It seems like they pick and choose whom they want to help. I hate to sound bitter, but after flying to Toronto for appointments on four occasions and never getting anywhere and having worsening lung function its extremely frustrating. Always promises to follow up, but once back in Nova Scotia they choose not to follow up. Always promises for a treatment plan, but that too never happened. I'm stuck between a rock and a stone with my lungs and with lung transplant. Everyone says that I should be on the transplant list now according to my FEV1 and worsening CT-scans, but nothing ever gets done. Dr. Singer of the Toronto Lung Transplant program had the nerve to

tell my father and I that lung infections were no big deal! Yeah, right. These infections have lead to respiratory failure, O2 24/7, and have landed me in the ICU , and now I'm on IV antibiotics monthly. This was the only reason we were given that I'm not on and the lung transplant list. During my transplant assessment in Toronto my FEV1 was 26% and FVC was at 27%, my CT-scans were awful, and some other tests were far from normal. the team more or less acted as though these numbers, etc were of no concern. Toronto has never ever done anything to help me. Wasted trips. Promises broken. Treatment plans never stared by the doctors that promised to create them. One disappointment after another. If it were not for Dr. Haase and my family doctor Doran, I'd likely not be sending this message. They are doing their best to keep me alive with little help from respirologist in Toronto or Halifax Toronto might have

the largest lung transplant program in Canada, but this team certainly does not help everyone. My family and I have spent a mint trying to get me to and from Toronto, for in flight 02, for 02 during my stay in Toronto, etc and not to mention cost of flying elsewhere in Canada. If it were not for The service groups and church it would have been much harder to make these trips. Every time, I go and have to come back and with no new information I feel that I’m letting down everyone who has tried to help me to Toronto, etc. I'm hoping to give Edmonton a try ad hope to get the new lungs that I desperately need in Alberta or at least have a fair chancw of being listed. Hoping for good communication, as well, as this was lacking amongst St.Mike’s and Toronton General. Anyhow, sorry for the vent, but its certainly sums up how I feel about my treatment. Hugs:0)

Liz Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here."

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[Guest guest]

Dear Karin, I agree that this is a miracle and was wonderful news on CTV. I was very happy for this young woman and her young family and husband. Unfortunately, respirologists in Toronto never did a thing to help me and its exceedingly frustrating. It seems like they pick and choose whom they want to help. I hate to sound bitter, but after flying to Toronto for appointments on four occasions and never getting anywhere and having worsening lung function its extremely frustrating. Always promises to follow up, but once back in Nova Scotia they choose not to follow up. Always promises for a treatment plan, but that too never happened. I'm stuck between a rock and a stone with my lungs and with lung transplant. Everyone says that I should be on the transplant list now according to my FEV1 and worsening CT-scans, but nothing ever gets done. Dr. Singer of the Toronto Lung Transplant program had the nerve to

tell my father and I that lung infections were no big deal! Yeah, right. These infections have lead to respiratory failure, O2 24/7, and have landed me in the ICU , and now I'm on IV antibiotics monthly. This was the only reason we were given that I'm not on and the lung transplant list. During my transplant assessment in Toronto my FEV1 was 26% and FVC was at 27%, my CT-scans were awful, and some other tests were far from normal. the team more or less acted as though these numbers, etc were of no concern. Toronto has never ever done anything to help me. Wasted trips. Promises broken. Treatment plans never stared by the doctors that promised to create them. One disappointment after another. If it were not for Dr. Haase and my family doctor Doran, I'd likely not be sending this message. They are doing their best to keep me alive with little help from respirologist in Toronto or Halifax Toronto might have

the largest lung transplant program in Canada, but this team certainly does not help everyone. My family and I have spent a mint trying to get me to and from Toronto, for in flight 02, for 02 during my stay in Toronto, etc and not to mention cost of flying elsewhere in Canada. If it were not for The service groups and church it would have been much harder to make these trips. Every time, I go and have to come back and with no new information I feel that I’m letting down everyone who has tried to help me to Toronto, etc. I'm hoping to give Edmonton a try ad hope to get the new lungs that I desperately need in Alberta or at least have a fair chancw of being listed. Hoping for good communication, as well, as this was lacking amongst St.Mike’s and Toronton General. Anyhow, sorry for the vent, but its certainly sums up how I feel about my treatment. Hugs:0)

Liz Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here."

Now you can have a huge leap forward in email: get the new Yahoo! Mail.

[Guest guest]

, I am saddened to learn of all you're experiencing.

Is there anyway you could come to the U.S. for treatment?

There are excellent doctors in the Detroit & Ann Arbor, MI areas.

I know there are waiting lists for organs but perhaps another doctor's evaluation could hasten the process. I shall pray specifically for God to open a door so that you might receive the lung transplant.

May God bless you as you go through this. My doctor has talked of lung resectioning, but said that for me, it would be last option due to my other health issues. God knows and for that I am thankful.

I have a question also. Do you or any of the other ladies deal with on-going pain in the lung area? Mine began almost a year ago when I was hospitalized with asthma & pneumonia and hasn't left. It worsens when I'm in a full blown infection, but never goes completely away. My doctor has told me this is something I will most likely have to learn to live with.

Thank you for listening.

Louise

Re: If things get critical/ H.

Dear Karin,

I agree that this is a miracle and was wonderful news on CTV. I was very happy for this young woman and her young family and husband.

Unfortunately, respirologists in Toronto never did a thing to help me and its exceedingly frustrating. It seems like they pick and choose whom they want to help. I hate to sound bitter, but after flying to Toronto for appointments on four occasions and never getting anywhere and having worsening lung function its extremely frustrating. Always promises to follow up, but once back in Nova Scotia they choose not to follow up. Always promises for a treatment plan, but that too never happened. I'm stuck between a rock and a stone with my lungs and with lung transplant. Everyone says that I should be on the transplant list now according to my FEV1 and worsening CT-scans, but nothing ever gets done. Dr. Singer of the Toronto Lung Transplant program had the nerve to tell my father and I that lung infections were no big deal! Yeah, right. These infections have lead to respiratory failure, O2 24/7, and have landed me in the ICU , and now I'm on IV antibiotics monthly. This was the only reason we were given that I'm not on and the lung transplant list. During my transplant assessment in Toronto my FEV1 was 26% and FVC was at 27%, my CT-scans were awful, and some other tests were far from normal. the team more or less acted as though these numbers, etc were of no concern. Toronto has never ever done anything to help me. Wasted trips. Promises broken. Treatment plans never stared by the doctors that promised to create them. One disappointment after another. If it were not for Dr. Haase and my family doctor Doran, I'd likely not be sending this message. They are doing their best to keep me alive with little help from respirologist in Toronto or Halifax

Toronto might have the largest lung transplant program in Canada, but this team certainly does not help everyone. My family and I have spent a mint trying to get me to and from Toronto, for in flight 02, for 02 during my stay in Toronto, etc and not to mention cost of flying elsewhere in Canada. If it were not for The service groups and church it would have been much harder to make these trips. Every time, I go and have to come back and with no new information I feel that I’m letting down everyone who has tried to help me to Toronto, etc.

I'm hoping to give Edmonton a try ad hope to get the new lungs that I desperately need in Alberta or at least have a fair chancw of being listed. Hoping for good communication, as well, as this was lacking amongst St.Mike’s and Toronton General.

Anyhow, sorry for the vent, but its certainly sums up how I feel about my treatment.

Hugs:0)

Liz

Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! )

carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ.

"Don't take your organs to Heaven, heaven knows we need them here."

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[Guest guest]

Hi ,

Do you have private health insurance? Does the NS health care pay for

your care in Ontario? OHIP pays for most health care. The Ontario

taxpayers pay for it. If you are from out of province, they don't

make the same effort as if you were living here in Ontario. If I were

to go to another province, I would not be covered for any healthcare.

BC for example has a three month waiting period. OHIP would have to

pay for my hospital stay if I were to get sick in BC. OHIP would

expect me to return to Ontario ASAP. Unless of course I had travel

insurance, travel ins. does not pay for health care if the patient has

a predisposed chronical illness.

It's harsh, but that's the way it is. I don't think most US residence

could get health care in another state. As far as I know, they have

to pay out of their own pocket.

The woman who received the life saving device and the lung/heart

transplant is a residence of Ontario.

Have you ever tried Montreal or Ottawa hospitals, doctors?

Karin

>

> Dear Karin,

>

> I agree that this is a miracle and was wonderful news on CTV. I

was very happy for this young woman and her young family and husband.

>

> Unfortunately, respirologists in Toronto never did a thing to help

me and its exceedingly frustrating. It seems like they pick and choose

whom they want to help. I hate to sound bitter, but after flying to

Toronto for appointments on four occasions and never getting anywhere

and having worsening lung function its extremely frustrating.

[Guest guest]

Hi Karin, Nova Scotia paid for my care in Ontario. Your home province pays for your ace for three months until you are a resident of another province. My doctor told me this is so and a retired cardiologist friend of the family told me that my hospital and doctor visits would be provided. I've heard that Quebec is a question mark , however in other provinces there are no problems. I know of people who have moved to Toronto for transplants and their care has been provided, because Nova Scotia has a contract with Ontario. Hugs:0) LizKarin wrote: Hi ,Do you have private health insurance? Does the NS health care pay foryour care in Ontario? OHIP pays for most health care. The Ontariotaxpayers pay for it. If you are from out of province, they don'tmake the same effort as if you were living here in Ontario. If I wereto go to another province, I would not be covered for any healthcare.BC for example has a three month waiting period. OHIP would have topay for my hospital stay if I were to get sick in BC. OHIP wouldexpect me to return to Ontario ASAP. Unless of course I had travelinsurance, travel ins. does not pay for health care if the patient hasa predisposed chronical illness.It's harsh, but that's the way it is. I don't think most US residencecould get health care in another state. As far as I know, they haveto

pay out of their own pocket.The woman who received the life saving device and the lung/hearttransplant is a residence of Ontario.Have you ever tried Montreal or Ottawa hospitals, doctors?Karin>> Dear Karin,> > I agree that this is a miracle and was wonderful news on CTV. Iwas very happy for this young woman and her young family and husband.> > Unfortunately, respirologists in Toronto never did a thing to helpme and its exceedingly frustrating. It seems like they pick and choosewhom they want to help. I hate to sound bitter, but after flying toToronto for appointments on four occasions and never getting anywhereand having worsening lung function its extremely frustrating. Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here."

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[Guest guest]

Dear Karin, Dad and I flew to Montreal in November 2004 to see a specialist. This appointment took place on November 30, 2004. We never heard back from him again. He promised us that he would get back to us within a week and a half to two weeks. He did not. I phoned Notre Dame Hospital in Montreal on countless occasions for more information, because we had been assured that the doctor would call. My family doctor heard nothing. Even he did not receive any reports from Montreal. when I flew to Montreal my family and I had been under the impression that more would be done. The only test ordered was a PFT (pulmonary function test). We really did not learn anything new or helpful. In the spring a new family doctor took over my care. My new GP finally phoned the Montreal doctor in August. He really got no where with this specialist. The respirologist in Montreal was defensive. He is a good friend of the transplant respirologist in Toronto

which went against helping me. Apparently, bronchiectasis along with atypical forms of CF are not handled as seriously it seems by some specialists even though these can cause serious illness that lead to severely damaged lungs. We were no impressed with this doctor. This is not to say that all Montreal doctors are terrible, because I know there are many who likely are fantastic given the McGill Lung Centre. At any rate we have yet to find the right lung specialist and one with an interest in "rare" diseases, as I have never fit the medical textbooks. This in a large part has lead to problems in obtaining care. Its been a frustrating experience to receive the run around since childhood. My wish is for bronchiectasis and recurrent lung infections to be taken seriously by all or at least many more respirologists. Hugs, :0) Liz Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here."

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[Guest guest]

Dear Louise, Thank you for your kind post. Your compassionate words mean a lot and it was very thoughtful of you to write to me. I have considered coming to the US for care, but it seems very expensive. Its something that is always in the back of my mind. I do have a brother living in Chico, California, but he has his own financial issues. Anyhow, maybe one day! If I did come and visit hom I’d likely see a doctor at Stanford Hospital. Some of my CF friends living in California feel that Stanford is number one in their books. When I was 18, and had a severe asthma attack, I had a good experience at Sutter Hospita. Although, Sutter does not do lung transplants, they have some great doctors and nurses, very caring, and I think they do their best for the patients. If I really hit the lottery Mayo Clinic would likely be my choice. Thank you for thinking of me, Hugs,:0) Liz Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here."

Ask a question on any topic and get answers from real people. Go to Yahoo! Answers.

[Guest guest]

Hi ,

One country, different rules, nuts to that. If NS pays for your out

of province health care then you are entitled to care as well as

anyone else.

Are you on the transplant list at the TO Gnl. H.?

Remember a woman, in her 50's W., also bronchiectasis, received

a lung transplant some years ago. She did well, she lived in

Kissimee, FL.

One of my cheshire-med friends was in contact with her for many years.

I don't know how she is doing now.

Karin

>

> Hi ,

>

> Do you have private health insurance? Does the NS health care pay for

> your care in Ontario?

[Guest guest]

Hi ,

I lived in Nontreal, my son was born at the Montreal Gnl. H. That was

in 1969 before you were born.

My respirologist Dr. Balter is a graduate of McGill. He was opposed

for me to move to wstern Canada, Kelowna, BC. He says I may not be

able to find a good respirologist and may have to go to Seattle if

ever I need a bronchoscopy.

When I told him last November that I have been thinking of moving to

borough, Ontario, he was all for it. P.borough is a tiny town of

a pop. of 65,000, a 2 hour drive north east of Toronto. He says he

has two collegues at the local hospital and they are excellent.

Isn't that strange? A little town with two respirologists.

Quebec is a poorer province than Ontario. I never thought to go there

for my lung troubles. Half of Quebec moved here, why bother? Have you

ever tried Ottawa? They have the heart institute, they do many heart

transplants. I don't know if they do lung transplants, might be worth

it to check out.

Karin

>

> Dear Karin,

>

> Dad and I flew to Montreal in November 2004 to see a specialist.

This appointment took place on November 30, 2004. We never heard back

from him again. He promised us that he would get back to us within a

week and a half to two weeks. He did not. I phoned Notre Dame Hospital

in Montreal on countless occasions for more information, because we

had been assured that the doctor would call. My family doctor heard

nothing. Even he did not receive any reports from Montreal. when I

flew to Montreal my family and I had been under the impression that

more would be done. The only test ordered was a PFT (pulmonary

function test). We really did not learn anything new or helpful. In

the spring a new family doctor took over my care. My new GP finally

phoned the Montreal doctor in August. He really got no where with this

specialist. The respirologist in Montreal was defensive. He is a good

friend of the transplant respirologist in Toronto which went against

helping me.

[Guest guest]

Hi Karin, November 30, 2004, my father and I had an appointment with the lung transplant respirologist at Notre Dame Hospital. He had promised dad and I that he would get back to use within a week and a-half to two weeks. We anticipated hearing form him. Every time the telepohone range, I eager picked it up hoping to hear his voice. After the two week period, I began telephoning the hospital and would speak to his receptionist. She always told me that she would pass the message on. This went on for months. After obtaining numbers foe the transplant co-ordinator and a social worker, I called and left messages for them. All of this was going on when I was changing to a new family doctor. He officially became my doctor in June. Finally, in August after no word from Notre Dame to ether of us and not even a letter or any explanation to my GP, he too was distressed. He phoned the respirologist in question on my behalf. Keep in mind that it had

been months since I had been to Montreal. My father and I had only spoken to the doctor, had not met the coordinator, and had only seen a nurse. During the appointment I had basic vitals like blood pressure and temperature taken by the nurse and a quick pulmonary function test done by a respiratory therapist. Generally potential transplant candidates have a complete set of PFTs, as well as other pertain tests. There are many that most be undertaken to get an idea of a person’s lung condition and to rule out any other conditions that might preclude transplant. Anyhow, dad and I had spoken to the physician. At that time he was not quite sure if I was ready for transplant, but thought I was close to that point given lung function, increasing infections, previous tests, etc. He had suggested following me every six months and more closely as I became sicker. He told me once listed that I could live in Nova Scotia until I moved up closer on the list. This all sounded like great

news to my dad and I. The transplant housing was also helpful and only $15.00 per night with all meals and snacks included. We could not go wrong. We never did receive an explanation as to why I was not followed up or what had changed the doctor’s mind. Nor has my family doctor ever received a letter from the Montreal doctor. This is what I mean. Its frustrating to go through all the time and expense, and at the time finding a caregiver for my mom, so much to be arranged and re-arranged, and then to not receive any satisfactory explanations and in this case no letters is unacceptable. Staff at the Maison des greffés- transplant housing were however wonderful. They went out of their way for everyone. We had the chance to meet some wonderful individuals (patients) and staff and that will always leave a great impression. Overall we were disanointed in this particular physician. Staff we ran into at the hospital seemed kind, although meetings

were brief. Actually, this doctor’s reactionist was nice. I did learn that my French is not up to par. The hospital is French, although many of the staff do speak English well I still my dad and I got lost in this hospital and it was a bit of an experience. LOL ... All French signs. Ottawa does not do lung transplants. We met some people from Ottawa in Montreal waiting for lungs. One lady had been turned down by Toronto, but accepted to the list in Montreal. I’ve been encouraged by others who were turned down to keep trying until eventually I’m accepted for transplant. They have told me not to give up and so, I won’t, as giving up is not part of my stubborn nature. Currently, Canada has five lung transplant centres located in Montreal, Toronto, Winnipeg, Edmonton, and Vancouver. My ID specialist is working with a team that is hoping to develop a lung transplant centre in Halifax. Money is likely

one of the main hold ups. QEII in Halifax laready does most transplants and now has a liver program up and running again, does hearts, kidneys, pancreas, corneas, bone marrow, etc, I think small bowel has even been done in Halifax. It would be good if Halifax could one day offer lung transplants, because many of us would be able to stay closer to home where we would have the support of our families and friends (intact social network), so important to healing. Thanks and Hugs, :0) LizKarin wrote: Hi ,I lived in Nontreal, my son was born at the Montreal Gnl. H. That wasin 1969 before you were born.My respirologist Dr. Balter is a graduate of McGill. He was opposedfor me to move to wstern Canada, Kelowna, BC. He says I may not beable to find a good respirologist and may have to go to Seattle ifever I need a bronchoscopy. When I told him last November that I have been thinking of moving toborough, Ontario, he was all for it. P.borough is a tiny town ofa pop. of 65,000, a 2 hour drive north east of Toronto. He says hehas two collegues at the local hospital and they are excellent. Isn't that strange? A little town with two respirologists.Quebec is a poorer province than Ontario. I never thought to go therefor my lung troubles. Half of Quebec moved here, why bother? Have youever tried Ottawa? They have the

heart institute, they do many hearttransplants. I don't know if they do lung transplants, might be worthit to check out.Karin>> Dear Karin,> > Dad and I flew to Montreal in November 2004 to see a specialist.This appointment took place on November 30, 2004. We never heard backfrom him again. He promised us that he would get back to us within aweek and a half to two weeks. He did not. I phoned Notre Dame Hospitalin Montreal on countless occasions for more information, because wehad been assured that the doctor would call. My family doctor heardnothing. Even he did not receive any reports from Montreal. when Iflew to Montreal my family and I had been under the impression thatmore would be done. The only test ordered was a PFT (pulmonaryfunction

test). We really did not learn anything new or helpful. Inthe spring a new family doctor took over my care. My new GP finallyphoned the Montreal doctor in August. He really got no where with thisspecialist. The respirologist in Montreal was defensive. He is a goodfriend of the transplant respirologist in Toronto which went againsthelping me. Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here."

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[Guest guest]

Liz-

I am so sorry that you are getting the run around by the

respirologists in Canada.

You talk about the Mayo Clinic, but the leading lung hospital in the

US is National Jewish in Denver. It might be worth while to talk to

them on the phone, since they have a group of specialist nurses that

answer telephone queries. At least you should be able to know the

cost factors, waiting time etc. If they recommend a visit at least

you can be sure of getting a treatment plan. They have a web site

that gives information on how to contact them.

Good luck and best wishes

Tolly

[Guest guest]

Just like you, I never did anything to cause the bronchiectasis. I

had the measles as a 9 months old, no medical help, no doctor available.

My brother and father were non stop smokers, I had pneumonia three

times during one year, I was 19.

Everyone at the office smoked. I quit the job at 22. Another bout of

pneumonia at 27 when my son was two. I moved out of my parents home.

While growing up, I participated in sports. I did notice I could

never run as far as the others, wasn't able to swim the distances

other kids my age could. I noticed way back then that something

wasn't right.

I never smoked either.

>

> Hi Karin,

>

> We may not have enough organs, but I am still young and have not

yet had the opportunities experienced by older patients on the list

and I have never been a smoker. Not that I want to judge those that

do, as some of my own relatives are smokers, however when you have

never done anything to damage your life its frustrating to see people

inflicting harm to their body. I'm not just going to give up and hide

another a rock. Fighting for my life is is important for my family

and for me. I'm surprised that you think its fine for that doctor to

never contact us.

where did I write that I think it's fine your doctor never

contacted you? Please send the message # if I did.

I am old but not senile yet, I hope not. If I did write that, I

apologize, I guess I must have dementia. I will be more careful in

the future how I word my replies.

Karin

He broke a promise. If a doctor says he will call he should call. I

waited, my family waited, we were all waiting for this phone call.

This was not for a minor problem. Its a life altering issue in every

way. Its about life and living and having a fighting chance. I'm only

34 and want to " live " in every possible way. Yes, there is an organ

shortage, but this doesn't mean we should give up. We need to fight

all the

> harder for life!

>

> Hugs,:0)

>

>

>

> Pre-Lung Transplant Journey - For updates please visit my carepage

and leave a message. Thank you! )

> carepages.com name: maryelizabethholt

>

> Please watch: Live Life Then Give Life! - UK

> http://www.youtube.com/watch?v=Nz33i6prkuQ.

>

> " Don't take your organs to Heaven, heaven knows we need them here. "

>

>

> ---------------------------------

> Share your photos with the people who matter at Yahoo! Canada Photos

>

[Guest guest]

Dear Tolly, I agree that National Jewish is wonderful (amazing work done there) and number one when it comes ot lungs, but sometimes for multi-system illnesses Mayo is more helpful, and also does lung transplants. Several of my bronch. friends found they received more help from Mayo than National Jewish. They tried both hospitals. Hugs:0) Lizabrowde@... wrote: Liz-I am so sorry that you are getting the run

around by the respirologists in Canada.You talk about the Mayo Clinic, but the leading lung hospital in the US is National Jewish in Denver. It might be worth while to talk to them on the phone, since they have a group of specialist nurses that answer telephone queries. At least you should be able to know the cost factors, waiting time etc. If they recommend a visit at least you can be sure of getting a treatment plan. They have a web site that gives information on how to contact them.Good luck and best wishesTolly Pre-Lung Transplant Journey - For updates please visit my carepage and leave a message. Thank you! ) carepages.com name: maryelizabethholt Please watch: Live Life Then Give Life! - UK http://www.youtube.com/watch?v=Nz33i6prkuQ. "Don't take your organs to Heaven, heaven knows we need them here."

Ask a question on any topic and get answers from real people. Go to Yahoo! Answers.