Guest guest Posted February 2, 2010 Report Share Posted February 2, 2010 My daughter Maddy has Chiari Malformation and Hydrocephalus.She also has been having the following symptoms: leg pain in both legs at the back between her hips and knees,she refuses to walk alot of the time. neck pain lower back pain,right around tailbone she walks on her toes half the time most recently arm pain in both arms between her shoulder and elbow she will pee then go again a few minutes later or will say she has to go but doesnt,she has been doing this for a couple months she said her legs dont hurt when she is curled up she has always had a problem with constipation her headaches are frontal at the forehead. She has been having these symptoms since about may but they didnt appear at once,they came one at a time. I feel in my heart she has this. She was discharged from the hospital toda,they didnt even address my concerns other then saying to have her see a urologist for urodynamic testing (which appt is in 3 months) and if she has a spastic bladder he will look into a tc. She is always in pain and her doc wont give her anything but tylenol and motrin. Quote Link to comment Share on other sites More sharing options...
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