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My son is actually very thin. He is 19 yrs old and about 116 lbs. soaking

wet. The docs were a bit confused at this for the fact that a lot of Down's

teens are usually short and stout, well he is an exception I guess, he is 5'7''

and thin, he stands taller than me. LOL. Not hard to do.

Jodie

**************Get the scoop on last night's hottest shows and the live music

scene in your area - Check out TourTracker.com!

(http://www.tourtracker.com?NCID=aolmus00050000000112)

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Kristy:

Karlee is not overweight, but we do eat a healthy diet.? She does love chicken

and ff, which is her weakness.? She exercises alot and swims alot.? She also

does gymnastics which I think has always helped.

Beets

Is your child overweight?

Hi Everyone

I have a question for you all.

We know that being overweight can be an issue for those with Down syndrome. This

can also be an issue for those with mosaic Down syndrome depending on where the

affected cells are located in the body.

So here is my question....well....several.....

Is your child overweight?

Was your child overweight but you changed some things and now they are not (or

they are losing weight)

Is your child NOT overweight, but you watch what they eat and how much exercise

they get?

If any of these questions pertain to you, PLEASE email me at Kristy@... or

at @...

In our upcoming newsletter MOSAIC WORLD our feature article is about Metabolism

for Down syndrome and watching exercise and foods we eat. If you receive this

newsletter, you know that we always write a feature article and follow that up

with 'A Parent's Perspective'. This is where you come in! We need " A Parent's

Perspective " It doesn't have to be long but it does have to be in the next 2

weeks!

So, please email one of us and tell us your story!

Thanks!!!

Kristy

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH:

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

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Chase is not overweight. He's always fallen in around 50-70% on the weight

chart. At times think he weighs too much, but that's me getting tired, :). It

was very easy in the beginning with food to watch what he ate with the baby food

products, but now it's a little harder since he doesn't have all his teeth in to

chew the tough items. But he pretty much eats everything that we do, and we try

really hard to eat a well balanced diet. My husband and I have our weakness for

soda, but only keep 1 two liter bottle at once in the house and it has to last a

week before we get another one. Chase hasn't had soda, and I don't plan on him

having any until he's much older.

As far as exercise goes, we noticed that he started slimming down when the

crawling picked up. We've noticed that he is getting hungry more often and

wanting more at a sitting since he's no longer army crawling and does a speed

crawl (it seems) and is pulling up and trying to climb too. We try to make sure

to give him healthy snacks and this helps us to eat healthy too.

LyndsayThe most wasted day of all is one in which we have not laughed. :)

Linakalani

To: mosaicds ; imdsa_teenplus ;

imdsa_member_forum@...: kristy@...: Thu, 10 Jul 2008

19:18:26 -0700Subject: Is your child overweight?

Hi EveryoneI have a question for you all. We know that being overweight can be

an issue for those with Down syndrome. This can also be an issue for those with

mosaic Down syndrome depending on where the affected cells are located in the

body.So here is my question....well....several.....Is your child overweight?Was

your child overweight but you changed some things and now they are not (or they

are losing weight)Is your child NOT overweight, but you watch what they eat and

how much exercise they get?If any of these questions pertain to you, PLEASE

email me at Kristy@... or at @... In our upcoming

newsletter MOSAIC WORLD our feature article is about Metabolism for Down

syndrome and watching exercise and foods we eat. If you receive this newsletter,

you know that we always write a feature article and follow that up with 'A

Parent's Perspective'. This is where you come in! We need " A Parent's

Perspective " It doesn't have to be long but it does have to be in the next 2

weeks! So, please email one of us and tell us your story!Thanks!!!KristyKristy

Colvin IMDSA

President~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~International Mosaic Down

Syndrome AssociationPH: Toll Free:

1-888-MDS-LINKhttp://www.imdsa.orghttp://www.mosaicmoments.today.com [Non-text

portions of this message have been removed]

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Hi Lyndsay

It is great that you are starting Chase out with healthy foods. I think the

main key is to begin with healthy eating habits and then as they grow older and

have the possibility of being overweight then they have a better chance of it

not happening.

All of my kids began to loose that baby fat once they started crawling and

walking. Which makes sense because without exercise you are going to gain

weight!

It sounds like Chase is doing great! :)

Kristy

Lyndsay wrote:

Chase is not overweight. He's always fallen in around 50-70% on the weight

chart. At times think he weighs too much, but that's me getting tired, :). It

was very easy in the beginning with food to watch what he ate with the baby food

products, but now it's a little harder since he doesn't have all his teeth in to

chew the tough items. But he pretty much eats everything that we do, and we try

really hard to eat a well balanced diet. My husband and I have our weakness for

soda, but only keep 1 two liter bottle at once in the house and it has to last a

week before we get another one. Chase hasn't had soda, and I don't plan on him

having any until he's much older.

As far as exercise goes, we noticed that he started slimming down when the

crawling picked up. We've noticed that he is getting hungry more often and

wanting more at a sitting since he's no longer army crawling and does a speed

crawl (it seems) and is pulling up and trying to climb too. We try to make sure

to give him healthy snacks and this helps us to eat healthy too.

LyndsayThe most wasted day of all is one in which we have not laughed. :)

Linakalani

To: mosaicds ; imdsa_teenplus ;

imdsa_member_forum@...: kristy@...: Thu, 10 Jul 2008

19:18:26 -0700Subject: Is your child overweight?

Hi EveryoneI have a question for you all. We know that being overweight can be

an issue for those with Down syndrome. This can also be an issue for those with

mosaic Down syndrome depending on where the affected cells are located in the

body.So here is my question....well....several.....Is your child overweight?Was

your child overweight but you changed some things and now they are not (or they

are losing weight)Is your child NOT overweight, but you watch what they eat and

how much exercise they get?If any of these questions pertain to you, PLEASE

email me at Kristy@... or at @... In our upcoming

newsletter MOSAIC WORLD our feature article is about Metabolism for Down

syndrome and watching exercise and foods we eat. If you receive this newsletter,

you know that we always write a feature article and follow that up with 'A

Parent's Perspective'. This is where you come in! We need " A Parent's

Perspective " It doesn't have to be long but it does

have to be in the next 2 weeks! So, please email one of us and tell us your

story!Thanks!!!KristyKristy Colvin IMDSA

President~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~International Mosaic Down

Syndrome AssociationPH: Toll Free:

1-888-MDS-LINKhttp://www.imdsa.orghttp://www.mosaicmoments.today.com [Non-text

portions of this message have been removed]

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Hi Jodie

Most people with mosaic Down syndrome do not have the short stocky build. This

goes back to if those chromosomes are in that area of the body.

Tim is very short (about 5'2 " ) and a bit overweight but that is just lack of

exercise. However, in his case he has a few cons against him. 1st: I am only

5'1 " on a good day! 2nd: Tim had an undected thyroid problem for many years and

it stunted his growth.

Thanks for sharing!

Kristy

prncessdrgnfly30@... wrote:

My son is actually very thin. He is 19 yrs old and about 116 lbs.

soaking

wet. The docs were a bit confused at this for the fact that a lot of Down's

teens are usually short and stout, well he is an exception I guess, he is 5'7''

and thin, he stands taller than me. LOL. Not hard to do.

Jodie

**************Get the scoop on last night's hottest shows and the live music

scene in your area - Check out TourTracker.com!

(http://www.tourtracker.com?NCID=aolmus00050000000112)

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Guest guest

5'2 " isn't short !!!!!!!!!! guess I'm short huh?

Re: Is your child overweight?

Hi Jodie

Most people with mosaic Down syndrome do not have the short stocky build. This

goes back to if those chromosomes are in that area of the body.

Tim is very short (about 5'2 " ) and a bit overweight but that is just lack of

exercise. However, in his case he has a few cons against him. 1st: I am only

5'1 " on a good day! 2nd: Tim had an undected thyroid problem for many years and

it stunted his growth.

Thanks for sharing!

Kristy

prncessdrgnfly30@... wrote:

My son is actually very thin. He is 19 yrs old and about 116 lbs. soaking

wet. The docs were a bit confused at this for the fact that a lot of Down's

teens are usually short and stout, well he is an exception I guess, he is

5'7''

and thin, he stands taller than me. LOL. Not hard to do.

Jodie

**************Get the scoop on last night's hottest shows and the live music

scene in your area - Check out TourTracker.com!

(http://www.tourtracker.com?NCID=aolmus00050000000112)

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lol well...it depends if you are a male or female LOL. Most males would like to

be taller than 5'2 " ! It doesn't bother Tim though. However, his 12 yr old

brother is now the same height as him, so it may bother him once Garrett gets

taller! lol

Kristy

Bolduc wrote:

5'2 " isn't short !!!!!!!!!! guess I'm short huh?

Re: Is your child overweight?

Hi Jodie

Most people with mosaic Down syndrome do not have the short stocky build. This

goes back to if those chromosomes are in that area of the body.

Tim is very short (about 5'2 " ) and a bit overweight but that is just lack of

exercise. However, in his case he has a few cons against him. 1st: I am only

5'1 " on a good day! 2nd: Tim had an undected thyroid problem for many years and

it stunted his growth.

Thanks for sharing!

Kristy

prncessdrgnfly30@... wrote:

My son is actually very thin. He is 19 yrs old and about 116 lbs. soaking

wet. The docs were a bit confused at this for the fact that a lot of Down's

teens are usually short and stout, well he is an exception I guess, he is 5'7''

and thin, he stands taller than me. LOL. Not hard to do.

Jodie

**************Get the scoop on last night's hottest shows and the live music

scene in your area - Check out TourTracker.com!

(http://www.tourtracker.com?NCID=aolmus00050000000112)

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Share on other sites

Guest guest

well , I am with you at 5'2 " - The genestic said that may be

5 feet! I said NO - she has tall genes in her! (Her father is 6'6 " ?!?!)

And while they never measured my husband when he took her to her

appointments - they measured me! I guess I don't fit the norm.

Darlene

On Fri, Jul 11, 2008 at 2:46 PM, Bolduc

wrote:

> 5'2 " isn't short !!!!!!!!!! guess I'm short huh?

>

> Re: Is your child overweight?

>

> Hi Jodie

> Most people with mosaic Down syndrome do not have the short stocky build.

> This goes back to if those chromosomes are in that area of the body.

>

> Tim is very short (about 5'2 " ) and a bit overweight but that is just lack

> of exercise. However, in his case he has a few cons against him. 1st: I am

> only 5'1 " on a good day! 2nd: Tim had an undected thyroid problem for many

> years and it stunted his growth.

>

> Thanks for sharing!

> Kristy

>

> prncessdrgnfly30@... <prncessdrgnfly30%40aol.com> wrote:

> My son is actually very thin. He is 19 yrs old and about 116 lbs. soaking

> wet. The docs were a bit confused at this for the fact that a lot of Down's

>

> teens are usually short and stout, well he is an exception I guess, he is

> 5'7''

> and thin, he stands taller than me. LOL. Not hard to do.

>

> Jodie

>

> **************Get the scoop on last night's hottest shows and the live

> music

> scene in your area - Check out TourTracker.com!

>

(http://www.tourtracker.com?NCID=aolmus00050000000112<http://www.tourtracker.com\

/?NCID=aolmus00050000000112>

> )

>

>

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Guest guest

Mahrya is average height, and thin.  I am about 5 ft 7 and my husband is 5 ft

11.  We are both the shortest in our famlies.  Our adult children stand tall our

22 year old daughter is 5 ft 9, and our sons are 6' 1 " , 6'2 " , and 6' 4 " .  Mahrya

may not reach the height of her siblings, but she will not be short, she has

legs on her up to her arm pits!!

Luanne

> My son is actually very thin. He is 19 yrs old and about 116 lbs. soaking

> wet. The docs were a bit confused at this for the fact that a lot of Down's

>

> teens are usually short and stout, well he is an exception I guess, he is

> 5'7''

> and thin, he stands taller than me. LOL. Not hard to do.

>

> Jodie

>

> ************ **Get the scoop on last night's hottest shows and the live

> music

> scene in your area - Check out TourTracker. com!

> (http://www.tourtrac ker.com?NCID= aolmus0005000000 0112<http://www.tourtrac

ker.com/? NCID=aolmus00050 000000112>

> )

>

>

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Guest guest

Hi

I do think that the biggest key is exercise. Thanks for sharing!

We have someone who has agreed to write the Parent's Perspective for our

upcoming MOSAIC WORLD. This is a great article with some really good tips on

excercise, diet and why people with Ds tend to be overweight.

If for some reason this family decides they can not write the Parent's

Perspective, I will contact another one of our respondents.

We do put A Parent's Perspective in every MOSAIC WORLD edition. This article

follows our " feature article " and the " feature article " always pertains to

something about mDs. So, by October, we will be looking again for another

Parent's Perspective!

Thank you all who replied.

Kristy

Mommy706@... wrote:

Kristy:

Karlee is not overweight, but we do eat a healthy diet.? She does love chicken

and ff, which is her weakness.? She exercises alot and swims alot.? She also

does gymnastics which I think has always helped.

Beets

Is your child overweight?

Hi Everyone

I have a question for you all.

We know that being overweight can be an issue for those with Down syndrome. This

can also be an issue for those with mosaic Down syndrome depending on where the

affected cells are located in the body.

So here is my question....well....several.....

Is your child overweight?

Was your child overweight but you changed some things and now they are not (or

they are losing weight)

Is your child NOT overweight, but you watch what they eat and how much exercise

they get?

If any of these questions pertain to you, PLEASE email me at Kristy@... or

at @...

In our upcoming newsletter MOSAIC WORLD our feature article is about Metabolism

for Down syndrome and watching exercise and foods we eat. If you receive this

newsletter, you know that we always write a feature article and follow that up

with 'A Parent's Perspective'. This is where you come in! We need " A Parent's

Perspective " It doesn't have to be long but it does have to be in the next 2

weeks!

So, please email one of us and tell us your story!

Thanks!!!

Kristy

Kristy Colvin

IMDSA President

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

International Mosaic Down Syndrome Association

PH:

Toll Free: 1-888-MDS-LINK

http://www.imdsa.org

http://www.mosaicmoments.today.com

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Share on other sites

Guest guest

Although my little guy is only 3, he is very skinny and tall. He is

only a head shorter than his 5 1/2 year old sister. His little legs

are short though, so it's his upper body that is long.

When we found out while I was pregnant with him about the MDS, we

also found out that he is Mosaic XYY. The geneticists are not sure

what that extra Y chromosome will do. They think it might counteract

some of the MDS, namely the height and weight. Studies show that

males with an extra Y chromosome tend to be tall and skinny!

We shall see! Needless to say, he's a very rare little boy!

Wouldn't change him for nothin'!

Suzanne

mom to Jordan 5 and Dalton 3 (MDS)

>

> My son is actually very thin. He is 19 yrs old and about 116 lbs.

soaking

> wet. The docs were a bit confused at this for the fact that a lot

of Down's

> teens are usually short and stout, well he is an exception I guess,

he is 5'7''

> and thin, he stands taller than me. LOL. Not hard to do.

>

> Jodie

>

>

>

> **************Get the scoop on last night's hottest shows and the

live music

> scene in your area - Check out TourTracker.com!

> (http://www.tourtracker.com?NCID=aolmus00050000000112)

>

>

>

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