Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 For generic health info , I usually go to Merck first. I was going to post some info, but I don't know if my links are ever read or not (no offense). http://www.merck.com/mmhe/index.html - I found some of this information on the > Internet, but I don't know the degree or how this information > relates to my condition. I wish they would put it in laymen's terms! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Hi , The bad news is you've got MS. You are in tune with your body and are doing good, better than most, looking after yourself. Why put yourself through the stress of an MRI just so your Neuro's can diagnose another " symptom " call it another complaint and send you for more tests making more money on the way. Knowing there is nothing they can do about it. If they had offered you a drug that " might " help would you have taken it? I've never had an MRI or Lumber Puncture, don't take drugs, don't have a Neuro now, but I've still got the dreaded MS. Not worth beating yourself up about. Keep up your good work. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Dear , Don't get bent out of shape over your MRI results. In my opinion, what appears on the readings might account for some mild back pain, but probably has little or nothing to do with your ability to walk. With best wishes, Dudley http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 >mild facet degenerative changes???!!! In other words, arthritis :-). Nothing to worry about. Pretty much everyone over 40 has it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Hi Allsion, It sure seems to be taking alot of testing to determine what the cause of your pain is. I did not think back things were so hard to figure out. I want my husband to go and get his back looked at and would love if he had an xray but he won't. He is convinced its bone on bone and no one is going to tell him different. I think accupuncture would help him and that its mostly muscle spasm related but he thinks differently. He is going to be increasing somem of his supplements to 3x what he normally takes to see if things will change. He was actualy doing well until he fell from a ladder severl months ago. I hope you can get some answers, I know that you are not going to do surgery or drugs but its good to know for sure what is going on with the spine. Pugh wrote: > I had a series of MRIs taken yesterday (of my head and neck) and I > got copies of the readings from the last series. Here are the > results. I don't have the results from yesterday yet. One of them > talked about a calcium deposit at the 12th rib on the right. It > said it could be in the kidneys or bowel and that a CT scan would > show a better picture. That could be a kidney stone and no one > told me! I'm glad I got copies of the readings because I'm going to > ask what they mean next week. There are several joints that > are " slightly compromised " , whatever that means. One report said > there were no discernable compressions but that there are some mild > facet degenerative changes???!!! What does that mean in terms of my > ability to walk? There was also nothing remarkable! (I think not > walking is pretty remarkable.) There were 4 MRIs , one of each > section of the spine. Where I feel back pain is where there were > some mild facet degenerations. The report said they were compatible > with my history of MS, but there were no discernable " outlined " > lesions. There was mild discogenic change in the superior endplate > of L-4 and subtle patchy increase of signal intensity. It goes on a > little bit about a sequela of demyelination, but I don't have > stenosis. I'm anxious to talk with the spine specialist and MS > specialist next week. I found some of this information on the > Internet, but I don't know the degree or how this information > relates to my condition. I wish they would put it in laymen's terms! > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Hi , I too have been suffering from back problems for the last 2 1/2yrs. Herniated L5 disk and sciatica in the right leg. After two rounds of PT, acupuncture, and two diff chiro's I found a PT who within a month helped me get rid of the sciatica, and have made good progress on the lumbar pain---still have periodic bad pain filled days but I'm getting better. Once again two docs including a neuro surgeon said these back problem could not be fixed w/o surgery, or a very least steroid shots in the back. They were wrong!! My back problems have slowed my MS healing, there are so many exercises to help with learning to walk again and helping with balance issues. Strengthening the core is the key to helping both minor low back pain and also learning to walk again. Here is a good website which really explains back problems and provides some solutions. http://orthoinfo.aaos.org/category.cfm?topcategory=Spine Also, I would recommend this book " healing back pain naturally " Art Brownstein MD... He says in most cases you should never have surgery for lower back problems.. Good luck with the pending results and your doc consult. You have such a great attitude towards life. Doug > > I had a series of MRIs taken yesterday (of my head and neck) and I > got copies of the readings from the last series. Here are the > results. I don't have the results from yesterday yet. One of them > talked about a calcium deposit at the 12th rib on the right. It > said it could be in the kidneys or bowel and that a CT scan would > show a better picture. That could be a kidney stone and no one > told me! I'm glad I got copies of the readings because I'm going to > ask what they mean next week. There are several joints that > are " slightly compromised " , whatever that means. One report said > there were no discernable compressions but that there are some mild > facet degenerative changes???!!! What does that mean in terms of my > ability to walk? There was also nothing remarkable! (I think not > walking is pretty remarkable.) There were 4 MRIs , one of each > section of the spine. Where I feel back pain is where there were > some mild facet degenerations. The report said they were compatible > with my history of MS, but there were no discernable " outlined " > lesions. There was mild discogenic change in the superior endplate > of L-4 and subtle patchy increase of signal intensity. It goes on a > little bit about a sequela of demyelination, but I don't have > stenosis. I'm anxious to talk with the spine specialist and MS > specialist next week. I found some of this information on the > Internet, but I don't know the degree or how this information > relates to my condition. I wish they would put it in laymen's terms! > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 hi all, another good book on back pain is " healing back pain, the mind-body connection " by dr. john sarno. he talks about non-surgical treatments for many ailments. check it out! michelle Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 Well by the time you get qualified for a mobilized scooter you will already be mobilized and scooting around on your own 2 legs!!You can always give the scooter away to someone who needs it more when you are done with it. Everything is so specialized these day which is good and bad. Once you know whats wrong you want a specialist, but unfortunately the GP's are way behind in knowing about what to look for in all the disease now days. There is just too much and they cannot keep up, so diagnosis is really hard. Look at cancer you have to be 6 months from dying before they can tell you that you have it, something wrong with the diagnostics we have. I think way to much effort time and money is being spent on new magical drugs and it should be spent on helping people prevent and then if necessary diagnose them better. Pugh wrote: > Thanks . It seems like I've only ever been to the doctors for > diagnosis. I've never used any medications. It seems like I only go > to be approved for financial assistance or a referral for physical > therapy. I haven't gotten any clear answers from allopathic doctors. > I've only been for MRIs three times in three years, but the last > couple were for several pics of my lower spine. The one I went for > yesterday was to be able to get films for comparison to see if I have > any new lesions or any cervical issues. I agreed to do this for my > parents. I may also qualify for a mobilized scooter so I can get > around outside. To do this, it has to be approved by a neurologist. > They all get a piece of the pie. > > " Gin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 I agree about preventative med, but big pharma has spent decades developing the current business model, radically changing would be to costly---besides sickly people are more profitable in their eyes..We as consumers have to demand change. I see it happening here is St Louis, the major hospitals are realizing their losing money to alternative medical, so they've started incorporating alternatives as options for paients. It will take time but change is happening. Doug > > > Thanks . It seems like I've only ever been to the doctors for > > diagnosis. I've never used any medications. It seems like I only go > > to be approved for financial assistance or a referral for physical > > therapy. I haven't gotten any clear answers from allopathic doctors. > > I've only been for MRIs three times in three years, but the last > > couple were for several pics of my lower spine. The one I went for > > yesterday was to be able to get films for comparison to see if I have > > any new lesions or any cervical issues. I agreed to do this for my > > parents. I may also qualify for a mobilized scooter so I can get > > around outside. To do this, it has to be approved by a neurologist. > > They all get a piece of the pie. > > > > " Gin > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 , very good point.... Doug > > > I agree about preventative med, but big pharma has spent decades > > developing the current business model, radically changing would be to > > costly---besides sickly people are more profitable in their eyes..We > > as consumers have to demand change. I see it happening here is St > > Louis, the major hospitals are realizing their losing money to > > alternative medical, so they've started incorporating alternatives as > > options for paients. It will take time but change is happening. > > > > Doug > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 7, 2006 Report Share Posted May 7, 2006 Hi Debbie. There are exercises you can do that don't require standing. Doug sent a link to a site that might help you. http://orthoinfo.aaos.org/fact/thr_report.cfm?Thread_ID=17 & topcategory=Spine debbie Walter wrote: HI, MYNAME IS DEBBIE. I AM 5ft 155 LBS. I CAN'Y WALK BECAUSE I'M SHORT * & FAT. SO I CAN'T RXCERISE. --------------------------------- Love cheap thrills? Enjoy PC-to-Phone calls to 30+ countries for just 2¢/min with Yahoo! Messenger with Voice. Quote Link to comment Share on other sites More sharing options...
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