Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Namenda might help, because it's slightly " activating " , and there's evidence that it can protect brain cells in the biochemical conditions caused by chronic disease. The best bet to stop the hallucinations cold is Provigil/Alertec, aka modafinil. The theory is that the hallucinations are dreams intruding into the wakeful state, and this drug fixes the neuropeptide imbalance that causes this to happen. In a day or two, you'll know if it will work for your dad. If not, try another approach, but given the safety and rapid action, it's worth a try. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 Ann, What I have heard is some people love it and for some it doesn't work. Just like all the meds! Has she tried it? I couldn't tell. It sounds like he needs something for his lungs, not dementia meds. But I couldn't give Mom much in the way of meds so can't help much. Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. My Dad Hi, I haven't been very active or chatty, but my dad's health has gotten worse. His lings are filled with stuff and his hallucinations bad for my Mom's health. They went to a third neurologist ( They live in Mexico) and he prescribed Euterbrol aka Namenda. My dad is currently on Aricept. My mom asks for my opinion. I say no to Namenda from what I have read, but again I am not an expert. Anybody has a LO that has been taken Namenda. My dad's hallucinations are non stop. Thanks, Ann --------------------------------- Choose the right car based on your needs. Check out Yahoo! Autos new Car Finder tool. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 The combo of Aricept, Namenda and Zyprexa work well for my Dad. Debbie in SoCal _____ From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of ann orth Sent: Thursday, June 07, 2007 12:07 AM To: LBDcaregivers Subject: My Dad Hi, I haven't been very active or chatty, but my dad's health has gotten worse. His lings are filled with stuff and his hallucinations bad for my Mom's health. They went to a third neurologist ( They live in Mexico) and he prescribed Euterbrol aka Namenda. My dad is currently on Aricept. My mom asks for my opinion. I say no to Namenda from what I have read, but again I am not an expert. Anybody has a LO that has been taken Namenda. My dad's hallucinations are non stop. Thanks, Ann --------------------------------- Choose the right car based on your needs. Check out Yahoo! Autos new Car Finder tool. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 My husband says he feels much clearer mentally now that he is taking Namenda. The dosage was increased slowly minimize side effects, but he has had no problems. Aricept reduced his hallucinations and Namenda has reduced them further. People react differently, but it is worth a try. My Dad > Hi, > > I haven't been very active or chatty, but my dad's health has gotten > worse. > His lings are filled with stuff and his hallucinations bad for my Mom's > health. > They went to a third neurologist ( They live in Mexico) and he prescribed > Euterbrol > aka Namenda. My dad is currently on Aricept. > My mom asks for my opinion. I say no to Namenda from what I have read, but > again I am not an expert. > Anybody has a LO that has been taken Namenda. > My dad's hallucinations are non stop. > > Thanks, > Ann > > > --------------------------------- > Choose the right car based on your needs. Check out Yahoo! Autos new Car > Finder tool. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 7, 2007 Report Share Posted June 7, 2007 I think Donna is on to something regarding getting treatment for his lungs. As with UTI's, any type of infection will cause cognitive decline and could be contributing to his hallucinations. It's easy to overlook the possibility of infections when things seem to be getting worse. Hope things improve for your mom, dad & you. Daughter of Bill, 91 > > Ann, > > What I have heard is some people love it and for some it doesn't work. Just like all the meds! Has she tried it? I couldn't tell. It sounds like he needs something for his lungs, not dementia meds. But I couldn't give Mom much in the way of meds so can't help much. > > Donna R > > Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. > She was almost 89 when she died in '02. No dx other than mine. > > > My Dad > > Hi, > > I haven't been very active or chatty, but my dad's health has gotten worse. > His lings are filled with stuff and his hallucinations bad for my Mom's health. > They went to a third neurologist ( They live in Mexico) and he prescribed Euterbrol > aka Namenda. My dad is currently on Aricept. > My mom asks for my opinion. I say no to Namenda from what I have read, but again I am not an expert. > Anybody has a LO that has been taken Namenda. > My dad's hallucinations are non stop. > > Thanks, > Ann > > > --------------------------------- > Choose the right car based on your needs. Check out Yahoo! Autos new Car Finder tool. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 1, 2007 Report Share Posted July 1, 2007 Dear Mirka, I am sorry to hear of our young father's progression with LBD and your obvious concern about passing it on. I had my children years before PDD showed up in my mom, and I am thankful I did not have to make the decisions you are faced with. You mention your father in diapers, not recognizing the urge to go until it is too late, of frequency. If he is suffering urgency and frequency I would suggest testing for a UTI. If he has one that is then treated, you could find him come back a bit cognitively and toiletting might not be the issue it is now. Good luck. , Oakville Ont. Mother, age 92, died Aug. 12/06 after 13 year decline from PDD > > My 57-year-old dad's LBD has progressed to the point where he's no > longer able to go alone to toilet but needs someone to assist him. He > either doesn't find the bathroom or doesn't see the toilet seat or > doesn't believe it's there. He needs to wear diapers because many > times he recognizes the need to go far too late if at all... He's no > longer able to take a shower alone, many times he needs help with > getting up from the bed or sofa, most of the times he doesn't know > how to sit down on a chair or lay down on his bed. Last time his > physiotherapist used almost the whole appointment teaching him how to > sit down. > > He suffers from hallucinations, delusions and insomnia, keeps > wandering around the house at night (for some reason at night he is > able to get up without nobody assisting). He was prescribed Seroquel > but it was dropped because it made him aggressive. He blamed my mom > (didn't recognize her) for not letting him go home to his family (he > was at home), said she was a really evil person and started to > threaten her with some garden tools... > > Usually he sleeps from 8pm until midnight, then gets up and wanders > around aimlessly, waking my mom up several times during the night. > According to him something just forces him to get up and walk... > Finally his physiotherapist was able to arrange for him a 2-weeks > stay at the local hospital for to get his medication checked and to > address some issues that his neurologist didn't seem to be interested > in, eg. his low blood pressure and frequent urge to go to toilet... > And of course this was also a way to give a chance to my mom to get > some rest too. Now they are considering the possibility to admit my > dad to a nursing home, so that he would spend there a week or so > every 3-4 weeks. > > I feel somewhat guilty for not being there for my parents, for not > being able to help them as I live so far away, in another country... > I can visit them only 2-3 times a year but I try to call them at > least twice a week. I try to follow LBDcaregivers group as often as > possible to learn more about this sickness and to keep my mom > informed as well. So thank you all for sharing your stories and > experiences! > > I'm waging here my own little battles too: my less than one year old > dog has a mysterious episodic falling syndrome, a bit like epilepsy, > that we're trying to keep under control giving him Clonazepam 3 times > a day... It's losing its effect far too quick, the crises get more > frequent and we need to increase the dose. Without it I couldn't even > take him for a walk. Poor little thing... > > I got married just last year and I know that my husband would like to > have children sooner or later... I always wanted to become a mom too > but now, after seeing my dad get sick with this horrible disease I'm > not so sure if it's the right thing to do. What are the chances that > I or my possible children could get sick in the future? I've read > that in some Scandinavian and Italian families every generation gets > sick one decade younger than the previous generation... How can I > find out if this is the case in my family? My family is not exactly > Scandinavian (geographically Scandinavia is comprised of Sweden and > Norway only) but falls close enough as we are from Finland. > > My grandfather died in his 80s, officially because of heart failure, > supposedly as a consequence of cancer treatments, although after the > autopsy we were told that his heart and veins were in excellent shape > for a man of his age. During his last weeks he was in another world, > a bit like my dad now, seeing people that were not there and feeling > like if he was left behind a curtain that didn't let him see us. > Surprisingly enough, my dad has used this same expression at times to > describe how he experiences LBD... The cause of death of my great > grandfather (grandpa's father) is not very clear, he passed away in > his 50s a long time ago... Also two of my grandmother's sisters have > been recently diagnosed with Alzheimer and we are afraid that there > is now even a third one that is showing early signs of possible > Alzheimer, if not LBD... With this kind of family history I really > don't know what I should do or expect from the future... > > Thank you all for letting me share! > > Mirka > Quote Link to comment Share on other sites More sharing options...
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