Long days with mom...........

[Guest guest]

Boy! DLB is a strange disease.

One hour ago, Mom looked at me and said " I haven't been as confused

today " and I agreed. Five minutes later, she asked me a question 'out-

of-nowhere.' She is having trouble with finding the 'right' word(s),

as if she runs into a stop sign.

I am trying to be patient but I have not been out of the house for

three days (12 inches of snow and 20 degrees). I adore my Mom but

no 'real' conversation.

Her hands have not been blue today, I wonder if she isn't just cold.

She complains of chills and has the thermostat on 80. I feel sorry

for her but I am not sure that I am capable of caring for her. The

thought of her in a Alzheimer's unit makes my skin crawl. She

asks 'what is wrong with me?' and I do not know if I should attempt

to explain DLB, ignore her or lie.

My brother wants me to sell my home in Va. and move here permanently.

My sister is in total denial and will not even read the research. She

has no patience with Mom and accuses her of 'faking it.' I am being

compensated but is it worth it? Should I jepordize my 'lively-hood',

family, church and freedom for the MONEY we would save? This is the

hardest decision I have ever had to make and it tears at my heart

strings because my Mom has always been my savior.

Just needed to vent because I really do not have anyone to talk to

about this. I cannot even get everyone together to talk about what we

should do..........

Thanks for listening,

Jan