Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 I am relatively new to this list. I have MS, and I am a massage therapist, there as, working on many people with MS. I joined this group because the subject line is: Main Focus: Eliminating MS Cofactors; MS Alternative therapies and Beating MS. I think we should always be forward thinking and as open as possible to any and all therapies to help/cure MS. I'm sure everyone on this list believes in the same cause. No matter what path it takes, the final and best result is that. Most people are willing to try almost anything to cure cancer, survive or prolong their life. MS should be treated this way. We all cannot agree what is best at this point, because one treatment doesn't work for all. I DO use one of the CRAB drugs, and at this point in my life and the stability of my condition, I will not switch to anything else-I would not tell anyone this will work for them, it's what I use. If any or all of the methods of treatment were rated at 100% for a cure, we would all be flocking to that doctor, or using that althernative, regardless of what our physicians want. That is why there is such a widespread opinion on treatment, because not one thing works! That is the same with almost anything in life, other diseases, religion, and politics. Nothing is set in stone for us, yet. Hopefully one day. I agree that all therapies should be listed, referenced and allow one to read and research on their own. We are not here to diagnose, we are here to share, research, and link information. I believe that any and all therapies are open for discussion on this list according to the Main Focus subject line. I have researched many links on here, some I can really relate to, others are just not for me. We can agree to disagree, but don't shut the door. Many amazing discoveries in medicine and alternative therapies have been discovered by accident. We could have the answer one day on this list! I think the links are helpful, warnings are necessary when studies go bad, and side effects reported are in need for anyone newly diagnosed. We were all new once, we are here to help and share. Everyone is entitled to his/her opinion. That is what an open forum is. Thus, that is why many use alternative therapies, others use drugs. It's your own choice. I have a friend who has MS and we went many rounds on My choice of drugs. She felt and documented her drug was better verses mine. I went with my heart and chose what I wanted based on my needs and condition. We are still friends. We talk about alternative therapies, she blows me off, she feels she knows it all, has had the disease longer, but we are still friends. I hope my point is coming through. Sorry so long, but I felt I had to post this for Adam. I read all e-mails and I see everyone posting their progress, therapies and life stories. If anyones post is not sent through or moderated due to the fact of their choice then the subject line at the home page needs to be changed to something other than what it is. Eliminating MS- That is our goal, one way or another. If my post would be eliminated or altered, then I would know as well. Thanks for letting me rant, I feel better already, and now my stress level has dropped and I can help my clients for the best and upmost good! Take Care, White Light of Healing to You All-Patty Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 Hi Patty Thanks for your post. I will still be posting the articles to the list (as and when I see them), but what I will do is put something like *Non Alt. Articles* etc, something like that. This way, those who do not want to see articles on 'non alt.' things i.e. drugs etc, can skip past or delete it. However, those who are interested in the post can also read it and research themselves if they want to use the post/article as a starting point. Hopefully this will suit everyone. Thanks, Adam > > I am relatively new to this list. I have MS, and I am a massage > therapist, there as, working on many people with MS. I joined this > group because the subject line is: Main Focus: Eliminating MS > Cofactors; MS Alternative therapies and Beating MS. I think we > should always be forward thinking and as open as possible to any and > all therapies to help/cure MS. I'm sure everyone on this list > believes in the same cause. No matter what path it takes, the final > and best result is that. Most people are willing to try almost > anything to cure cancer, survive or prolong their life. MS should > be treated this way. We all cannot agree what is best at this > point, because one treatment doesn't work for all. I DO use one of > the CRAB drugs, and at this point in my life and the stability of my > condition, I will not switch to anything else-I would not tell > anyone this will work for them, it's what I use. If any or all of > the methods of treatment were rated at 100% for a cure, we would all > be flocking to that doctor, or using that althernative, regardless > of what our physicians want. That is why there is such a widespread > opinion on treatment, because not one thing works! That is the same > with almost anything in life, other diseases, religion, and > politics. Nothing is set in stone for us, yet. Hopefully one day. > I agree that all therapies should be listed, referenced and allow > one to read and research on their own. We are not here to diagnose, > we are here to share, research, and link information. I believe > that any and all therapies are open for discussion on this list > according to the Main Focus subject line. I have researched many > links on here, some I can really relate to, others are just not for > me. We can agree to disagree, but don't shut the door. Many > amazing discoveries in medicine and alternative therapies have been > discovered by accident. We could have the answer one day on this > list! I think the links are helpful, warnings are necessary when > studies go bad, and side effects reported are in need for anyone > newly diagnosed. We were all new once, we are here to help and > share. Everyone is entitled to his/her opinion. That is what an > open forum is. Thus, that is why many use alternative therapies, > others use drugs. It's your own choice. I have a friend who has MS > and we went many rounds on My choice of drugs. She felt and > documented her drug was better verses mine. I went with my heart > and chose what I wanted based on my needs and condition. We are > still friends. We talk about alternative therapies, she blows me > off, she feels she knows it all, has had the disease longer, but we > are still friends. I hope my point is coming through. Sorry so > long, but I felt I had to post this for Adam. I read all e-mails > and I see everyone posting their progress, therapies and life > stories. If anyones post is not sent through or moderated due to > the fact of their choice then the subject line at the home page > needs to be changed to something other than what it is. Eliminating > MS- That is our goal, one way or another. If my post would be > eliminated or altered, then I would know as well. > Thanks for letting me rant, I feel better already, and now my stress > level has dropped and I can help my clients for the best and upmost > good! Take Care, White Light of Healing to You All-Patty > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2006 Report Share Posted April 18, 2006 hi patty, i wanted to say exactly the same thing, just never got around to it, yet. glad someone else feels the same way! i am also on a CRAB drug, have been for years, but still want to try other methods for improvement. newly diagnosed people need and deserve to hear everything! i think this is the place for that. " why can't we all just get along? " michelle > > I am relatively new to this list. I have MS, and I am a massage > therapist, there as, working on many people with MS. I joined this > group because the subject line is: Main Focus: Eliminating MS > Cofactors; MS Alternative therapies and Beating MS. I think we > should always be forward thinking and as open as possible to any and > all therapies to help/cure MS. I'm sure everyone on this list > believes in the same cause. No matter what path it takes, the final > and best result is that. Most people are willing to try almost > anything to cure cancer, survive or prolong their life. MS should > be treated this way. We all cannot agree what is best at this > point, because one treatment doesn't work for all. I DO use one of > the CRAB drugs, and at this point in my life and the stability of my > condition, I will not switch to anything else-I would not tell > anyone this will work for them, it's what I use. If any or all of > the methods of treatment were rated at 100% for a cure, we would all > be flocking to that doctor, or using that althernative, regardless > of what our physicians want. That is why there is such a widespread > opinion on treatment, because not one thing works! That is the same > with almost anything in life, other diseases, religion, and > politics. Nothing is set in stone for us, yet. Hopefully one day. > I agree that all therapies should be listed, referenced and allow > one to read and research on their own. We are not here to diagnose, > we are here to share, research, and link information. I believe > that any and all therapies are open for discussion on this list > according to the Main Focus subject line. I have researched many > links on here, some I can really relate to, others are just not for > me. We can agree to disagree, but don't shut the door. Many > amazing discoveries in medicine and alternative therapies have been > discovered by accident. We could have the answer one day on this > list! I think the links are helpful, warnings are necessary when > studies go bad, and side effects reported are in need for anyone > newly diagnosed. We were all new once, we are here to help and > share. Everyone is entitled to his/her opinion. That is what an > open forum is. Thus, that is why many use alternative therapies, > others use drugs. It's your own choice. I have a friend who has MS > and we went many rounds on My choice of drugs. She felt and > documented her drug was better verses mine. I went with my heart > and chose what I wanted based on my needs and condition. We are > still friends. We talk about alternative therapies, she blows me > off, she feels she knows it all, has had the disease longer, but we > are still friends. I hope my point is coming through. Sorry so > long, but I felt I had to post this for Adam. I read all e-mails > and I see everyone posting their progress, therapies and life > stories. If anyones post is not sent through or moderated due to > the fact of their choice then the subject line at the home page > needs to be changed to something other than what it is. Eliminating > MS- That is our goal, one way or another. If my post would be > eliminated or altered, then I would know as well. > Thanks for letting me rant, I feel better already, and now my stress > level has dropped and I can help my clients for the best and upmost > good! Take Care, White Light of Healing to You All-Patty > Quote Link to comment Share on other sites More sharing options...
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