Guest guest Posted June 12, 2000 Report Share Posted June 12, 2000 Dear , So glad this list could be of help. That is my biggest hope for the list. It's great that you are testing--that's the most important. The exercise shows you are positively dealing with this disease. There are some products you can get to help. It's so good to know even without medical help you are able to deal with this. -list owner Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2000 Report Share Posted June 12, 2000 , I'm glad you are doing so well. I'll tell you what is probably happening, you may not beeating anything after dinner, and chances are you get a low in the night, say 2-3 am. The liver kicks out emergency sugar to keep you from going low, and it is hard to stop, gives you a dawn effect. One way to tell is make a middle of the night test. The cure is to eat more evenly through the day. The principal thing that raises sugars are starches, breakfast cereals, breads, pancakes, pasta pizza crust, wheat, corn rice potato. To see what is happening check an hour after a meal, that shows how the meal affects your sugars. 2 hours after meal tells you how well you are dealing with it. Try eating more evenly through the day, up until night and see what happens to your sugars, Sam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 12, 2000 Report Share Posted June 12, 2000 Hi , Welcome to our club :)n Why don't you give us a sample day's menu, that might help with figuring out your morning highs. How long have you been following the diet and having the good daytime numbers? I can tell you that the morning high is the last to leave If you keep your daytime numbers in that wonderful range, your morning numbers will start to fall into line. Your body isn't used to it yet and during the longer fast at night it gets worried - cause it still sees a normal level as being too low - and the liver kicks out glucose. It sounds like you're doing a great job! Meenie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 thank you sharon, for the welcome. hmmmmmmm, that's interesting, that a lot of MS patients also have FMS (all these dang initials!!!!!!!!!!!) lol well i spoke with my doctor's nurse yesterday about his questioning family history of MS and she told me it's a standard question, when someone complains of the type of pain i'm having in my head and i should go on as planned -- take the penicillin and if in 2 weeks, no better, call, or it the pain gets worse, call for an appt. i have an appt. in 6 weeks. i guess i can wait that long, since i've waited all my life, so far. lol the restless leg syndrome drives me nuts. it mostly happens in the evenings, but lately, it can happen any time of the day. my legs feel nervous and i have to shake them for them to feel better. restless is a good description -- they feel restless, like things are crawling around inside (i know, weird, but that's kinda how it is). i take neurontin for it and it helps some, but not entirely. okey dokey then, i'm going to check out the links from the web site. thanks again, Sharon. luv 'n hugz . . . linda lou la londe L Hi : Welcome to our group. I know there are several of us MSers who have been diagnosed with Fibromyalgia. I don't know if it goes along with MS, or if the MS is mis-diagnosed as FM but I have wondered about it before. I think I would pursue the MS diagnosis if I were you. Most of us can't get a doctor to say anything about MS but you have had several. If it's not MS then hopefully they can find out what is going on and treat it! So what is your restless leg syndrome like? I know there are several on this group who have RLS. A lot of us have MS leg problems--pain, cramping, spasms, jumpy muscles, tingling... that kind of thing. There are some good web sites that you should check out. There's a list of the links in our group page. If you can't get to it please let me know and I'll find it and email it to you. Again, welcome! Sharon Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 27, 2004 Report Share Posted July 27, 2004 thanks Shirley and this is a good idea -- keep a list of my symptoms and when i go back to my doctor in 6 weeks, read them to him . . . i've been to so many neurologists in my time. i remember one laughing at me when i told him my symptoms and told him another neurologist had told me i might have MS. he laughed at me. i was so mad, i wanted to slap his face. luv 'n hugz . . . linda lou la londe L , welcome! I say the first thing you need to do is to get an appointment with a neurologist and discuss these problems with that dr. Keep a journal of symptoms to take to this doc too. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2004 Report Share Posted July 29, 2004 hi bill, i'm glad advil helps you. i can't take any of the aspirin type or anti-inflamatory drugs -- they wreck my stomach. lindy Hi I often get the spasms also and usually at night also, mine always seems mild and have found taking 2 Advils always helps me out. Just as I am writing this my legs spasm in my right leg started. Advil here I come. Bill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 4, 2006 Report Share Posted February 4, 2006 Hello, My name is Daica (Dana), 21. I have Secondary-Progressive MS. It was diagnosed fve years ago, but seems I have it for ten years or so, but I didn't know. It begun with short periods of muscle spams and weaknes in my legs, and return to nearly normal ability. But later, my legs become more and more weak, so for last four years I walk on crutches most time. However, I still can stand and walk for few minutes on my own, but sometimes with very poor ballance. I did not use chair fr longer periods, only in the hospital for few days. But seems that before or later I will ned one. I am under therapy, and long-term prognosis is not bad, but short term doesn't sound good. My doctor told me that I have to be prepared to use wheelchair more or less permanently, as this year will be crtical. After that, he hopes process will be nearly stopped, ie, very sloww progression will happen. So, if I do not come to total leg paralysis till the end of this year, there is good chance they will not be completely paralyzed before next 20-25 years. In any case, I have to be prepared to use wheelchair at least part time. To be honest, I would just buy one now, even I can walk on crutches quite good, and I enjoy it, but after half an hour my legs begun to sore and I am sure weelchair will be much more comfortable. However, my doctor do not recommend using wheelchair before I really need it, because he is affraid I will become lazy what is not good for my therapy. He recommend me braces to help my legs while walking, but I found them very uncomfortable so I abandoned them. Dana God bless you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2006 Report Share Posted February 5, 2006 In a message dated 2/5/2006 11:36:07 A.M. Eastern Standard Time, danicak84@... writes: My doctor told me that I have to be prepared to use wheelchair more or less permanently, as this year will be crtical. After that, he hopes process will be nearly stopped, ie, very sloww progression will happen. So, if I do not come to total It's really a shame that doctors tell folks this. One of the women on one of my other forums was told a couple years ago to wrap her mind around using the chair for the rest of her life. She has been using diet, supplements and other natural therapies and is now walking with parallel bars over an hour a day. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2009 Report Share Posted April 28, 2009 Hi ! I use Neurontin (but it does cause weight gain) and it really helps me. I'm also on a muscle relaxer. I'm on celexa for the depression. I'm also on Percocet. For general pain I am a big advocate for White Flower Oil - it is an oil made from a white flower and I have to get it on the web. It's just like an aspercream only oil and it is very long lasting. If you order it in bulk it cuts down on the shipping and makes it cheaper than anything I found at the store. The link is: http://www.asiachi.com/whitefloweroil.html I also do vitamins but ONLY from a health food store since they are whole food suppliments and when you buy them at a grocery store they can have metals in them and that is NOT good. I take vitamin B and D to help with mood and stress. I take magnesium to make sure they all obsorb and then a food-based multi vitamin. I also take ginger for my stomach problems and digestive enzymes. I hope that helps and I'm so sorry that you're going through this. It's really scary and there's not a lot of help out there. You are welcome to contact me any time - I'm looking for pen pals since I'm ond disability an lonely a lot. I also am open to new information and learning. Take care! Jodi > > hello. i live in southern cali. i was diagnosed with fibromyalgia in 2000. i am now on disability. i am off all of the pain pills and muscle relaxants due to the fact i overdosed and was in a coma in 2007. now i have all the pain and no relief. i saw that this group is more into curing the disease than treating it. amen. i have an appt friday w the neurologist so any suggestions??? i am on cymbalta 60mg and thats it for the treatment. please help. thank you. > > kelly > Quote Link to comment Share on other sites More sharing options...
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