Re: False Home Delusion Problems

[Guest guest]

One of the things we always check for when behavior changes is a Urinary Track

Infection. Does he have a GP you can check with.

There are also other meds that can be given to calm the aggression. But it

certainly can be a problem. Make sure without his knowledge to hide any thing

that can be used as a weapon. Knives, guns, etc.

This is not not unheard of. Maybe Jan C can help as she has had some of these

problems with Jim. She should be on later.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

False Home Delusion Problems

Today 's delusion that we have another home, and we need to go

there, is causing very serious problems. This has recently become an

almost daily problem. Yesterday we went and did some xeroxing at a

copy place, and when we returned home he seemed satisfied that we were

indeed home.

This morning after breakfast he said he wanted to go shopping, so I

got us ready. Just before we were ready to leave he said he wanted to

go home and check on his things before going to the store. I tried

reminding him that we came home yesterday, but he was adamant that we

needed to go home. I suggested going shopping first, and going home

afterward. That was not acceptable. Finally, rather than argue, I

drove to a nearby landmark he would recognize and drove back here,

showing him the street names as we passed them. When we reached our

driveway he grabbed the wheel and would not allow me to proceed. He

insisted I take him to the real home, our other home.

I tried repeating the process, but that didn't work. He became angry,

abusive and threatening. He even threatened to kill me and made

menacing gestures but obviously did not act upon his threats.

I parked in a university parking lot near home and offered to follow

his directions to go where he wanted. He didn't know the way. I

offered to call his son in CT and have him provide directions " home "

or give the address. He didn't agree to that. I offered to call or

take him to an old and trusted friend who would know where he lived.

He finally agreed to that, but his friend was not home. His second

choice for a friend to consult was at home but his phone was busy. I

asked if he would be able to recognize his friend's house. I

knew he lived near the university football stadium. So when we got

there, was unable to direct me to his friend's house. I drove

to the law school and found a phone book and got his friend's address.

I tried phoning but the line was still busy. I couldn't find the

street, and tried calling again and got through. We got directions and

visited his friend who helped me calm . could not be

convinced, naturally who can argue with someone deep in the throes of

a delusion, but finally agreed to return here, even if he won't admit

it's home.

He let me help him urinate, and make him lunch, but he's still angry

with me. He's fallen three times, and barely lets me help him stand

up. He has fortunately not injured himself, at least not yet. I know

he doesn't want to be hospitalized, and I hope I won't have to call

the paramedics.

I already had planned to try to make an appointment for him with a

neuro-psychiatrist recommended by Geri Hall, and will make that my

first priority for Monday. I just hope I can get him to an appointment.

I've sent an email to his son asking him to call, and say something

loving and supportive.

I hope he snaps out of his present state soon. It's not good.

Kathy

[Guest guest]

Kathy, you have written the way my husband has been. I sure hope he doesn't

go back to that.

I told the Doctor and he upped Don's Zoloft. It has done wonders. My darling

is his old self again. He doesn't fight me in the car, nor argue about my

driving. He is calm most of the time.

I am sure you read my other letter about how dangerous they can be to the

caregiver, so I am especially glad that you are going to contact a doctor

tomorrow.

Be sure to tell the doctor how agitated your husband is. He will be more

likely to want to see him soon.

Best wishes dear, you need it with all our love too,

Imogene

Caregiver for my true Texas Gentleman Husband of 37 years. First diagnosed

with Alzheimer's by a Neurologist OCT, 2005. But, on May 2, 2006 Dr.

Schillerstrom, Geriatric/Psychiatrist diagnosed LBD with Parkinsonism.

My precious husband, Don, is taking Zoloft and Razadyne.

A happy personality is contagious. Infect someone today.

In a message dated 3/8/2008 3:51:08 PM Central Standard Time,

kathymjacobs@... writes:

Today 's delusion that we have another home, and we need to go

there, is causing very serious problems. This has recently become an

almost daily problem. Yesterday we went and did some xeroxing at a

copy place, and when we returned home he seemed satisfied that we were

indeed home.

This morning after breakfast he said he wanted to go shopping, so I

got us ready. Just before we were ready to leave he said he wanted to

go home and check on his things before going to the store. I tried

reminding him that we came home yesterday, but he was adamant that we

needed to go home. I suggested going shopping first, and going home

afterward. That was not acceptable. Finally, rather than argue, I

drove to a nearby landmark he would recognize and drove back here,

showing him the street names as we passed them. When we reached our

driveway he grabbed the wheel and would not allow me to proceed. He

insisted I take him to the real home, our other home.

I tried repeating the process, but that didn't work. He became angry,

abusive and threatening. He even threatened to kill me and made

menacing gestures but obviously did not act upon his threats.

I parked in a university parking lot near home and offered to follow

his directions to go where he wanted. He didn't know the way. I

offered to call his son in CT and have him provide directions " home "

or give the address. He didn't agree to that. I offered to call or

take him to an old and trusted friend who would know where he lived.

He finally agreed to that, but his friend was not home. His second

choice for a friend to consult was at home but his phone was busy. I

asked if he would be able to recognize his friend's house. I

knew he lived near the university football stadium. So when we got

there, was unable to direct me to his friend's house. I drove

to the law school and found a phone book and got his friend's address.

I tried phoning but the line was still busy. I couldn't find the

street, and tried calling again and got through. We got directions and

visited his friend who helped me calm . could not be

convinced, naturally who can argue with someone deep in the throes of

a delusion, but finally agreed to return here, even if he won't admit

it's home.

He let me help him urinate, and make him lunch, but he's still angry

with me. He's fallen three times, and barely lets me help him stand

up. He has fortunately not injured himself, at least not yet. I know

he doesn't want to be hospitalized, and I hope I won't have to call

the paramedics.

I already had planned to try to make an appointment for him with a

neuro-psychiatrist recommended by Geri Hall, and will make that my

first priority for Monday. I just hope I can get him to an appointment.

I've sent an email to his son asking him to call, and say something

loving and supportive.

I hope he snaps out of his present state soon. It's not good.

Kathy

Welcome to LBDcaregivers.

[Guest guest]

Kathy,

Oh so been there, done that!

Mom went through a major phase of this - to the point that she would

sometimes get up and out of bed in the middle of the night and leave the

house (it took her a while to figure out the locks, but she was

persistent!), and then go door to door looking for her " real " home - you

know, the " other one " - she'd say to me. It got to the point that I would

sleep on the floor in front of her bedroom door to make sure I wasn't

missing hearing her getting up during the night.

It wasn't much longer after this stage that we realized that we just

couldn't keep her safe here at home any longer. It wasn't just this - there

were a number of factors involved. But long story short was that her

ability to be safe at home basically went away - even with my essential 24/7

supervision and intervention. We ended up moving her into a Memory Care

assisted living facility - with coded locked doors - series of them,

actually. It was such a good thing. Of course, she was young, and spry,

and when she would allow me to get her hair done and get her dressed up -

folks who were coming to visit other residents would not realize Mom was a

resident - and on more than one occasion she slipped out the door seeking

" home, " too. Never boring, Lewyville!

Blessings,

Dina

Care Manager to Mom, aged 67

dx'd with LBD 10/2006

Home with the Lord 9/15/07

[Guest guest]

there are several theories of the 'home delusions' one is that your loved one

is looking for a home of younger times, he is not his current age is not where

he is in his mind it might be 5, 10, 15, or more years ago. this also will cause

him not r ecognizing you, he is a dapper man of 30 again and doesnt realize he

has spent a life time with you riaising children and possibly grandchildrn, he

may even call his gandkids by your childrens names,again he is younger in his

mind.

there is also a theory that when dementia patients talk about giong home may

be following their religious beliefs that heaven is home and they are starting

to find teh path to heaven.

both theoies are hard on the family, but you need to remember he is just as

confused as you are but he doesnt undestand it it his disease.

good luck and hugs, sharon

p108nky wrote:

Today 's delusion that we have another home, and we need to go

there, is causing very serious problems. This has recently become an

almost daily problem. Yesterday we went and did some xeroxing at a

copy place, and when we returned home he seemed satisfied that we were

indeed home.

This morning after breakfast he said he wanted to go shopping, so I

got us ready. Just before we were ready to leave he said he wanted to

go home and check on his things before going to the store. I tried

reminding him that we came home yesterday, but he was adamant that we

needed to go home. I suggested going shopping first, and going home

afterward. That was not acceptable. Finally, rather than argue, I

drove to a nearby landmark he would recognize and drove back here,

showing him the street names as we passed them. When we reached our

driveway he grabbed the wheel and would not allow me to proceed. He

insisted I take him to the real home, our other home.

I tried repeating the process, but that didn't work. He became angry,

abusive and threatening. He even threatened to kill me and made

menacing gestures but obviously did not act upon his threats.

I parked in a university parking lot near home and offered to follow

his directions to go where he wanted. He didn't know the way. I

offered to call his son in CT and have him provide directions " home "

or give the address. He didn't agree to that. I offered to call or

take him to an old and trusted friend who would know where he lived.

He finally agreed to that, but his friend was not home. His second

choice for a friend to consult was at home but his phone was busy. I

asked if he would be able to recognize his friend's house. I

knew he lived near the university football stadium. So when we got

there, was unable to direct me to his friend's house. I drove

to the law school and found a phone book and got his friend's address.

I tried phoning but the line was still busy. I couldn't find the

street, and tried calling again and got through. We got directions and

visited his friend who helped me calm . could not be

convinced, naturally who can argue with someone deep in the throes of

a delusion, but finally agreed to return here, even if he won't admit

it's home.

He let me help him urinate, and make him lunch, but he's still angry

with me. He's fallen three times, and barely lets me help him stand

up. He has fortunately not injured himself, at least not yet. I know

he doesn't want to be hospitalized, and I hope I won't have to call

the paramedics.

I already had planned to try to make an appointment for him with a

neuro-psychiatrist recommended by Geri Hall, and will make that my

first priority for Monday. I just hope I can get him to an appointment.

I've sent an email to his son asking him to call, and say something

loving and supportive.

I hope he snaps out of his present state soon. It's not good.

Kathy

---------------------------------

Never miss a thing. Make Yahoo your homepage.

[Guest guest]

Kathy,

If you think that is going to fight you on going to the Neuro appt. then

I would suggest that you don't tell him till the day arrives and then maybe say

that the " doctors " appointment is for you and that you need his support. I know

its a tremendous lie but we do what we have to do to get them to where we can

find some help. I had to tell my mom many, many fiblets when she was in the

beginning/middle stages of this damned disease.

Courage

False Home Delusion Problems

Today 's delusion that we have another home, and we need to go

there, is causing very serious problems. This has recently become an

almost daily problem. Yesterday we went and did some xeroxing at a

copy place, and when we returned home he seemed satisfied that we were

indeed home.

This morning after breakfast he said he wanted to go shopping, so I

got us ready. Just before we were ready to leave he said he wanted to

go home and check on his things before going to the store. I tried

reminding him that we came home yesterday, but he was adamant that we

needed to go home. I suggested going shopping first, and going home

afterward. That was not acceptable. Finally, rather than argue, I

drove to a nearby landmark he would recognize and drove back here,

showing him the street names as we passed them. When we reached our

driveway he grabbed the wheel and would not allow me to proceed. He

insisted I take him to the real home, our other home.

I tried repeating the process, but that didn't work. He became angry,

abusive and threatening. He even threatened to kill me and made

menacing gestures but obviously did not act upon his threats.

I parked in a university parking lot near home and offered to follow

his directions to go where he wanted. He didn't know the way. I

offered to call his son in CT and have him provide directions " home "

or give the address. He didn't agree to that. I offered to call or

take him to an old and trusted friend who would know where he lived.

He finally agreed to that, but his friend was not home. His second

choice for a friend to consult was at home but his phone was busy. I

asked if he would be able to recognize his friend's house. I

knew he lived near the university football stadium. So when we got

there, was unable to direct me to his friend's house. I drove

to the law school and found a phone book and got his friend's address.

I tried phoning but the line was still busy. I couldn't find the

street, and tried calling again and got through. We got directions and

visited his friend who helped me calm . could not be

convinced, naturally who can argue with someone deep in the throes of

a delusion, but finally agreed to return here, even if he won't admit

it's home.

He let me help him urinate, and make him lunch, but he's still angry

with me. He's fallen three times, and barely lets me help him stand

up. He has fortunately not injured himself, at least not yet. I know

he doesn't want to be hospitalized, and I hope I won't have to call

the paramedics.

I already had planned to try to make an appointment for him with a

neuro-psychiatrist recommended by Geri Hall, and will make that my

first priority for Monday. I just hope I can get him to an appointment.

I've sent an email to his son asking him to call, and say something

loving and supportive.

I hope he snaps out of his present state soon. It's not good.

Kathy

[Guest guest]

>

>

> Kathy, you have written the way my husband has been. I sure hope he

doesn't

> go back to that.

>

> I told the Doctor and he upped Don's Zoloft. It has done wonders.

My darling

> is his old self again. He doesn't fight me in the car, nor argue

about my

> driving. <snip>

Imogene,

Thank you. Your posts always give me hope and courage. I believe

senses his growing loss of control and his fear drives the

delusions. When he has his most lucid moments, he tells me how much he

loves me and appreciates me, and that he'd be long " gone " if he

didn't have me in his life. I see the current situation as a

fear-driven transition that we will either get through and able to

keep him at home, or will end with institutionalization and all that

implies in his case. He says he would rather die.

The fact that your husband weathered the transition gives me hope that

with the right medical and geriatric nursing assistance we can also

make it past this current phase.

To all the group members who have read of this problem and provided

valuable insight, I left to himself much of yesterday,

delivering meds on time, helping with urination, and bringing him

dinner. By bedtime he was fine. Today he slept late and is doing well.

Thank you all. I'll let you know how consulting with doctors and the

elder care nurse go.

Kathy

Kathy

[Guest guest]

>Hello Kathy,

My name is Joanne and I am knew to this group, but not new to LBD. I

care for my Mother who has this terrible illness.

I have been through the I want to go home thing for a lot of years

but it seems to have subsided in her current stage of progression.

I think what I learned from this experience is that Mom was regressed

into her past, thinking of her home in where she grew up with

her Parents.

She was sundowning and wanting to go home, find her parents, etc.

I usually can head this off by keeping her in a lot of light. I play

music instead from her past I give her familiar pictures of family

and friends from this time period. Because Mom believed the picture

was the person. She began to not be able to separate a picture from

a person, a movie actress from a person in the room. She felt they

were right there talking to her.

I found ways to distract her and keep her thinking about something

else.

I would take her for an ice cream cone, something pleasant.

I also took her to a psychiatrist that specializes in dementia he was

the one that explained the LBD to me. Mom has frequent

hallucinations where she sees little children and angels, dogs etc.

I don't make a big deal out of it but instead I give her a baby doll

to hold, a stuffed dog animal, we have a dog too and we have her lay

by Mom and it calms her down.

Many of these things were very troublesome in the beginning. But I

have since learned not to play into her anxiety but instead I just

agree with her and I do what I think is best for her.

WE have her father and mothers pictures in the hallway and all her

childrens pictures and so when she says she wants her mom and dad I

walk her down the hallway with her walker, and she feels very content

with that.

I hope my sharing my experiences, help you to know you are not alone,

and to know that this too shall pass.

Medication management does help a great deal with the anger and

anxiety.

Best to you

Joanne P

> Today 's delusion that we have another home, and we need to

go

> there, is causing very serious problems. This has recently become an

> almost daily problem.

[Guest guest]

HI Lin,

Of course. I got it from someone here years ago. Wish I could remember who

now.

Courage

False Home Delusion Problems

Today 's delusion that we have another home, and we need to go

there, is causing very serious problems. This has recently become an

almost daily problem. Yesterday we went and did some xeroxing at a

copy place, and when we returned home he seemed satisfied that we were

indeed home.

This morning after breakfast he said he wanted to go shopping, so I

got us ready. Just before we were ready to leave he said he wanted to

go home and check on his things before going to the store. I tried

reminding him that we came home yesterday, but he was adamant that we

needed to go home. I suggested going shopping first, and going home

afterward. That was not acceptable. Finally, rather than argue, I

drove to a nearby landmark he would recognize and drove back here,

showing him the street names as we passed them. When we reached our

driveway he grabbed the wheel and would not allow me to proceed. He

insisted I take him to the real home, our other home.

I tried repeating the process, but that didn't work. He became angry,

abusive and threatening. He even threatened to kill me and made

menacing gestures but obviously did not act upon his threats.

I parked in a university parking lot near home and offered to follow

his directions to go where he wanted. He didn't know the way. I

offered to call his son in CT and have him provide directions " home "

or give the address. He didn't agree to that. I offered to call or

take him to an old and trusted friend who would know where he lived.

He finally agreed to that, but his friend was not home. His second

choice for a friend to consult was at home but his phone was busy. I

asked if he would be able to recognize his friend's house. I

knew he lived near the university football stadium. So when we got

there, was unable to direct me to his friend's house. I drove

to the law school and found a phone book and got his friend's address.

I tried phoning but the line was still busy. I couldn't find the

street, and tried calling again and got through. We got directions and

visited his friend who helped me calm . could not be

convinced, naturally who can argue with someone deep in the throes of

a delusion, but finally agreed to return here, even if he won't admit

it's home.

He let me help him urinate, and make him lunch, but he's still angry

with me. He's fallen three times, and barely lets me help him stand

up. He has fortunately not injured himself, at least not yet. I know

he doesn't want to be hospitalized, and I hope I won't have to call

the paramedics.

I already had planned to try to make an appointment for him with a

neuro-psychiatrist recommended by Geri Hall, and will make that my

first priority for Monday. I just hope I can get him to an appointment.

I've sent an email to his son asking him to call, and say something

loving and supportive.

I hope he snaps out of his present state soon. It's not good.

Kathy

[Guest guest]

Oh thank you Dianne but I'm afraid I can't take credit for it. Someone here

came up with it years ago but I can't remember who it was. (Sandie, I think

we'll have to get that room at Gunthers ready sooner than we originally

thought!)

Courage

False Home Delusion Problems

Today 's delusion that we have another home, and we need to go

there, is causing very serious problems. This has recently become an

almost daily problem. Yesterday we went and did some xeroxing at a

copy place, and when we returned home he seemed satisfied that we were

indeed home.

This morning after breakfast he said he wanted to go shopping, so I

got us ready. Just before we were ready to leave he said he wanted to

go home and check on his things before going to the store. I tried

reminding him that we came home yesterday, but he was adamant that we

needed to go home. I suggested going shopping first, and going home

afterward. That was not acceptable. Finally, rather than argue, I

drove to a nearby landmark he would recognize and drove back here,

showing him the street names as we passed them. When we reached our

driveway he grabbed the wheel and would not allow me to proceed. He

insisted I take him to the real home, our other home.

I tried repeating the process, but that didn't work. He became angry,

abusive and threatening. He even threatened to kill me and made

menacing gestures but obviously did not act upon his threats.

I parked in a university parking lot near home and offered to follow

his directions to go where he wanted. He didn't know the way. I

offered to call his son in CT and have him provide directions " home "

or give the address. He didn't agree to that. I offered to call or

take him to an old and trusted friend who would know where he lived.

He finally agreed to that, but his friend was not home. His second

choice for a friend to consult was at home but his phone was busy. I

asked if he would be able to recognize his friend's house. I

knew he lived near the university football stadium. So when we got

there, was unable to direct me to his friend's house. I drove

to the law school and found a phone book and got his friend's address.

I tried phoning but the line was still busy. I couldn't find the

street, and tried calling again and got through. We got directions and

visited his friend who helped me calm . could not be

convinced, naturally who can argue with someone deep in the throes of

a delusion, but finally agreed to return here, even if he won't admit

it's home.

He let me help him urinate, and make him lunch, but he's still angry

with me. He's fallen three times, and barely lets me help him stand

up. He has fortunately not injured himself, at least not yet. I know

he doesn't want to be hospitalized, and I hope I won't have to call

the paramedics.

I already had planned to try to make an appointment for him with a

neuro-psychiatrist recommended by Geri Hall, and will make that my

first priority for Monday. I just hope I can get him to an appointment.

I've sent an email to his son asking him to call, and say something

loving and supportive.

I hope he snaps out of his present state soon. It's not good.

Kathy

[Guest guest]

What a touching story with great insight on your part Kathy.

, Oakville Ont.

Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

>

> People have offered different possible " meanings " behind the false

> home delusion. I suspect it may mean different things in different

> cases, but I'd like to share some observations about my husband's

> experience.

>

> He started having this delusion as he began to have difficulties with

> every day life. It first appeared last fall when he failed his driving

> test at license renewal time. As he lost the ability to write checks

> and had to ask my assistance to write them to pay bills he began to

> talk more about the other " real " home.

>

> When they revoked his license after the third failure to pass the

> driving test he wandered out of the house one night. A neighbor found

> him laying in the road and called the paramedics. He insisted that

> home was around the block and looked for it in our neighborhood over

> several days.

>

> Visits to his internist and neurologist did not turn up any physical

> stressors.

>

> In January he had his first bad fall. Visits to his doctors again

> failed to turn up any ailments, but provided the diagnosis " Lewy Body

> Dementia " from his neurologist. This time both doctors gave him the

> choice, get home health aides for the time I am away from work, or I

> could quit work to care for him, but he should no longer be home

> alone. I began working entirely from home, meeting via telephone,

> although my company prefers I meet in person.

>

> At this point the false home problem really got worse. Every time I

> discussed quitting work, or getting HHAs he'd have an episode. The

> Zombies he hallucinates got worse too.

>

> The more his life threatened to go out of his control the worse the

> delusion became until two days before he fell and broke his neck the

> delusion reached crisis level. Taking him for a drive and bringing him

> back home didn't solve the problem, it just made him furious. He

> didn't know where home was, but he just was not home.

>

> is a holocaust survivor. He escaped from the Warsaw ghetto as

> a teenager the day after his mother was taken away in a boxcar. He

> lived under a false identity and by his wits. As a result, it's very

> important for him to be in control. As he finds it harder to be in

> control of his day to day affairs, he feels more alienated and less at

> home.

>

> I think that for , being home is being in control.

>

> Kathy

>

[Guest guest]

Kathy,

Thanks for your story. I'm watching my husband

deteriorate and feel very helpless and hopeless. We

have reached the point were we have no relationship

and I'm not hopeful that things will ever get any

better. His neurologist feels that he's " fine " , but

I'm concerned about his driving. I don't know how to

get him tested by DOT, without making him very angry.

Our primary care doctor wants him to have some more

neurological tests, but I'm afraid he'll be resistant.

I'm at such a total loss as to what to do and how to

do it. My 37 year old diabetic son is also in the

home and he recently was released from the hospital

with his third heart attack and a collapsed trachea.

He also has new bleeding in one of his eyes and just

had basal carcinoma removed from his back. My husband

blames my son for everything. I don't know where to

turn.

Thanks for listening.

jane

--- stimtimminss wrote:

> What a touching story with great insight on your

> part Kathy.

>

> , Oakville Ont.

>

> Mother, age 92, died Aug. 12/06 after 13 year

> decline from PDD

>

>

> >

> > People have offered different possible " meanings "

> behind the false

> > home delusion. I suspect it may mean different

> things in different

> > cases, but I'd like to share some observations

> about my husband's

> > experience.

> >

> > He started having this delusion as he began to

> have difficulties with

> > every day life. It first appeared last fall when

> he failed his driving

> > test at license renewal time. As he lost the

> ability to write checks

> > and had to ask my assistance to write them to pay

> bills he began to

> > talk more about the other " real " home.

> >

> > When they revoked his license after the third

> failure to pass the

> > driving test he wandered out of the house one

> night. A neighbor found

> > him laying in the road and called the paramedics.

> He insisted that

> > home was around the block and looked for it in our

> neighborhood over

> > several days.

> >

> > Visits to his internist and neurologist did not

> turn up any physical

> > stressors.

> >

> > In January he had his first bad fall. Visits to

> his doctors again

> > failed to turn up any ailments, but provided the

> diagnosis " Lewy Body

> > Dementia " from his neurologist. This time both

> doctors gave him the

> > choice, get home health aides for the time I am

> away from work, or I

> > could quit work to care for him, but he should no

> longer be home

> > alone. I began working entirely from home, meeting

> via telephone,

> > although my company prefers I meet in person.

> >

> > At this point the false home problem really got

> worse. Every time I

> > discussed quitting work, or getting HHAs he'd have

> an episode. The

> > Zombies he hallucinates got worse too.

> >

> > The more his life threatened to go out of his

> control the worse the

> > delusion became until two days before he fell and

> broke his neck the

> > delusion reached crisis level. Taking him for a

> drive and bringing him

> > back home didn't solve the problem, it just made

> him furious. He

> > didn't know where home was, but he just was not

> home.

> >

> > is a holocaust survivor. He escaped from

> the Warsaw ghetto as

> > a teenager the day after his mother was taken away

> in a boxcar. He

> > lived under a false identity and by his wits. As a

> result, it's very

> > important for him to be in control. As he finds it

> harder to be in

> > control of his day to day affairs, he feels more

> alienated and less at

> > home.

> >

> > I think that for , being home is being in

> control.

> >

> > Kathy

> >

>

>

>

________________________________________________________________________________\

____

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know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Jane,

I'm so sorry to hear about all that's going on in your life. I can't

imagine what you are going through having a son who has been so ill. I

send my best to him and you. Re your husband and his driving, AAA offers

something online. And we have some helpful things on our website. Here

are two of them:

DriveABLEâ„¢ assessment

A DriveABLEâ„¢ assessment is an effective tool to determine

whether

someone with a medical condition is able to drive safely.

Driving

skills can change. Even the best of drivers can become unsafe

when

their abilities are reduced due to medical conditions or

medications.

http://www.driveable.com/

Driver Safety

by AARP

http://www.aarp.org/families/driver_safety

jane oie

<jao362@...

> To

Sent by: LBDcaregivers

LBDcaregivers@yah cc

oogroups.com

Subject

Re: Re: False Home

03/19/2008 09:45 Delusion Problems

AM

Please respond to

LBDcaregivers@yah

oogroups.com

Kathy,

Thanks for your story. I'm watching my husband

deteriorate and feel very helpless and hopeless. We

have reached the point were we have no relationship

and I'm not hopeful that things will ever get any

better. His neurologist feels that he's " fine " , but

I'm concerned about his driving. I don't know how to

get him tested by DOT, without making him very angry.

Our primary care doctor wants him to have some more

neurological tests, but I'm afraid he'll be resistant.

I'm at such a total loss as to what to do and how to

do it. My 37 year old diabetic son is also in the

home and he recently was released from the hospital

with his third heart attack and a collapsed trachea.

He also has new bleeding in one of his eyes and just

had basal carcinoma removed from his back. My husband

blames my son for everything. I don't know where to

turn.

Thanks for listening.

jane

--- stimtimminss wrote:

> What a touching story with great insight on your

> part Kathy.

>

> , Oakville Ont.

>

> Mother, age 92, died Aug. 12/06 after 13 year

> decline from PDD

>

>

> >

> > People have offered different possible " meanings "

> behind the false

> > home delusion. I suspect it may mean different

> things in different

> > cases, but I'd like to share some observations

> about my husband's

> > experience.

> >

> > He started having this delusion as he began to

> have difficulties with

> > every day life. It first appeared last fall when

> he failed his driving

> > test at license renewal time. As he lost the

> ability to write checks

> > and had to ask my assistance to write them to pay

> bills he began to

> > talk more about the other " real " home.

> >

> > When they revoked his license after the third

> failure to pass the

> > driving test he wandered out of the house one

> night. A neighbor found

> > him laying in the road and called the paramedics.

> He insisted that

> > home was around the block and looked for it in our

> neighborhood over

> > several days.

> >

> > Visits to his internist and neurologist did not

> turn up any physical

> > stressors.

> >

> > In January he had his first bad fall. Visits to

> his doctors again

> > failed to turn up any ailments, but provided the

> diagnosis " Lewy Body

> > Dementia " from his neurologist. This time both

> doctors gave him the

> > choice, get home health aides for the time I am

> away from work, or I

> > could quit work to care for him, but he should no

> longer be home

> > alone. I began working entirely from home, meeting

> via telephone,

> > although my company prefers I meet in person.

> >

> > At this point the false home problem really got

> worse. Every time I

> > discussed quitting work, or getting HHAs he'd have

> an episode. The

> > Zombies he hallucinates got worse too.

> >

> > The more his life threatened to go out of his

> control the worse the

> > delusion became until two days before he fell and

> broke his neck the

> > delusion reached crisis level. Taking him for a

> drive and bringing him

> > back home didn't solve the problem, it just made

> him furious. He

> > didn't know where home was, but he just was not

> home.

> >

> > is a holocaust survivor. He escaped from

> the Warsaw ghetto as

> > a teenager the day after his mother was taken away

> in a boxcar. He

> > lived under a false identity and by his wits. As a

> result, it's very

> > important for him to be in control. As he finds it

> harder to be in

> > control of his day to day affairs, he feels more

> alienated and less at

> > home.

> >

> > I think that for , being home is being in

> control.

> >

> > Kathy

> >

>

>

>

__________________________________________________________

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know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ

[Guest guest]

Jane and Kathy,

Some where in the " files " or " link " at the bottom of this message, you will find

Jan C's bag of tricks.

She has a $10,00 kill switch put on her car in a very short time at a garage.

She could run the car and he couldn't start it unless he knew how to make the

" Kill switch " work. She said it was under the steering wheel and she could

quickly turn it off and start the car. He couldn't and didn't know why the car

wouldn't start for him.

He made lots of keys so she could never take enough keys away from him and he

wouldn't have one anyway.

Hope this helps.

Hugs,

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

Re: Re: False Home Delusion Problems

Kathy,

Thanks for your story. I'm watching my husband

deteriorate and feel very helpless and hopeless. We

have reached the point were we have no relationship

and I'm not hopeful that things will ever get any

better. His neurologist feels that he's " fine " , but

I'm concerned about his driving. I don't know how to

get him tested by DOT, without making him very angry.

Our primary care doctor wants him to have some more

neurological tests, but I'm afraid he'll be resistant.

I'm at such a total loss as to what to do and how to

do it. My 37 year old diabetic son is also in the

home and he recently was released from the hospital

with his third heart attack and a collapsed trachea.

He also has new bleeding in one of his eyes and just

had basal carcinoma removed from his back. My husband

blames my son for everything. I don't know where to

turn.

Thanks for listening.

jane

--- stimtimminss wrote:

> What a touching story with great insight on your

> part Kathy.

>

> , Oakville Ont.

>

> Mother, age 92, died Aug. 12/06 after 13 year

> decline from PDD

>

>

> >

> > People have offered different possible " meanings "

> behind the false

> > home delusion. I suspect it may mean different

> things in different

> > cases, but I'd like to share some observations

> about my husband's

> > experience.

> >

> > He started having this delusion as he began to

> have difficulties with

> > every day life. It first appeared last fall when

> he failed his driving

> > test at license renewal time. As he lost the

> ability to write checks

> > and had to ask my assistance to write them to pay

> bills he began to

> > talk more about the other " real " home.

> >

> > When they revoked his license after the third

> failure to pass the

> > driving test he wandered out of the house one

> night. A neighbor found

> > him laying in the road and called the paramedics.

> He insisted that

> > home was around the block and looked for it in our

> neighborhood over

> > several days.

> >

> > Visits to his internist and neurologist did not

> turn up any physical

> > stressors.

> >

> > In January he had his first bad fall. Visits to

> his doctors again

> > failed to turn up any ailments, but provided the

> diagnosis " Lewy Body

> > Dementia " from his neurologist. This time both

> doctors gave him the

> > choice, get home health aides for the time I am

> away from work, or I

> > could quit work to care for him, but he should no

> longer be home

> > alone. I began working entirely from home, meeting

> via telephone,

> > although my company prefers I meet in person.

> >

> > At this point the false home problem really got

> worse. Every time I

> > discussed quitting work, or getting HHAs he'd have

> an episode. The

> > Zombies he hallucinates got worse too.

> >

> > The more his life threatened to go out of his

> control the worse the

> > delusion became until two days before he fell and

> broke his neck the

> > delusion reached crisis level. Taking him for a

> drive and bringing him

> > back home didn't solve the problem, it just made

> him furious. He

> > didn't know where home was, but he just was not

> home.

> >

> > is a holocaust survivor. He escaped from

> the Warsaw ghetto as

> > a teenager the day after his mother was taken away

> in a boxcar. He

> > lived under a false identity and by his wits. As a

> result, it's very

> > important for him to be in control. As he finds it

> harder to be in

> > control of his day to day affairs, he feels more

> alienated and less at

> > home.

> >

> > I think that for , being home is being in

> control.

> >

> > Kathy

> >

>

>

>

________________________________________________________________________________\

____

Be a better friend, newshound, and

know-it-all with Yahoo! Mobile. Try it now.

http://mobile.yahoo.com/;_ylt=Ahu06i62sR8HDtDypao8Wcj9tAcJ