Guest guest Posted April 14, 2011 Report Share Posted April 14, 2011 Hi Everyone, I'm new around here. I have been dealing with asthma hoe over 27 years now and thankfully currently I am pretty stable. I have several other health issues that I wont bore anyone with right now. I am on SSDI due to asthma. I currently have adrenal insufficiency due to prolonged steriod use. I was wondering if there was anyone here who has developed this condition and then successfully weaned off prednisone? Glad to be a part of the group! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2011 Report Share Posted April 15, 2011 Hi . I think I am the current reigning steroid queen. However, it sounds like you may be competing for the title. I am also dealing with adrenal insufficiency for the same reasons. I have been able to wean from 65mg/day down to 9mg/day. I was able to wean at about 5mg/week until about 40mg. Then had to slow it to 5mg every two weeks. That got me down to 15. From 15 it has taken forever. I had to start a wean of 1mg at a time. It got as slow as 1mg/month. From 11mg I am trying 1/2mg at a time. It took me a month and a half to get from 9-1/2 to 9mg. I will step down the 1/2mg then wait 2 weeks. If I don't start having symptoms, I can try another 1/2mg. If I have symptoms, I have to bump back up and wait another 2 weeks then try again. It is sooooooooo frustrating. Then I have a flare and end up with a huge dose in the hospital which just serves to slow the taper even more. I have been stepping down for two years in June. I feel that I may never get totally off the things. My adrenals just don't seem to want to pick back up. However, I will keep trying.MadelineTo: asthma Sent: Thu, April 14, 2011 7:31:38 PMSubject: New to this group Hi Everyone, I'm new around here. I have been dealing with asthma hoe over 27 years now and thankfully currently I am pretty stable. I have several other health issues that I wont bore anyone with right now. I am on SSDI due to asthma. I currently have adrenal insufficiency due to prolonged steriod use. I was wondering if there was anyone here who has developed this condition and then successfully weaned off prednisone? Glad to be a part of the group! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2011 Report Share Posted April 15, 2011 Its awesome that youve come down that far though!! I know you are frustrated with the ups and downs, but you really have come a loong way Madeline. Ann New to this group Hi Everyone, I'm new around here. I have been dealing with asthma hoe over 27 years now and thankfully currently I am pretty stable. I have several other health issues that I wont bore anyone with right now. I am on SSDI due to asthma. I currently have adrenal insufficiency due to prolonged steriod use. I was wondering if there was anyone here who has developed this condition and then successfully weaned off prednisone? Glad to be a part of the group! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2011 Report Share Posted April 16, 2011 Hi Madeline, You have come a long way, good for you!! i was off of pred for three months when I was dx with AI. My endo started me on 30mg and that was back in June 2010. i am down to 4.5 and this last taper my doc had me go down by .5 for two months. I dont know if I will cont. to taper at this slow a pace but i quess as long as I'm going in the right direction I can't complain! I was very lucky this past winter 6 sinus infections but no bronchitis or asthma flares! I'm taking life slow and taking care of myself for fear I will have another flare and have to go up on the pred. again Two years is a long time to be dealing with this. God bless you you must have lots of patience. When you say symptoms are they asthma symptoms or adrenal symptoms? I just feel fatigued all the time. It's good to know I'm not alone dealing with this and I might be badgering you with lots of other questions. Thank you for responding! > > Hi . . However, it sounds > like you may be competing for the title. I am also dealing with adrenal > insufficiency for the same reasons. I have been able to wean from 65mg/day down > to 9mg/day. I was able to wean at about 5mg/week until about 40mg. Then had to > slow it to 5mg every two weeks. That got me down to 15. From 15 it has taken > forever. I had to start a wean of 1mg at a time. It got as slow as 1mg/month. > From 11mg I am trying 1/2mg at a time. It took me a month and a half to get > from 9-1/2 to 9mg. I will step down the 1/2mg then wait 2 weeks. If I don't > start having symptoms, I can try another 1/2mg. If I have symptoms, I have to > bump back up and wait another 2 weeks then try again. It is sooooooooo > frustrating. Then I have a flare and end up with a huge dose in the hospital > which just serves to slow the taper even more. I have been stepping down for > two years in June. I feel that I may never get totally off the things. My > adrenals just don't seem to want to pick back up. However, I will keep trying. > > Madeline > > > > ________________________________ > > To: asthma > Sent: Thu, April 14, 2011 7:31:38 PM > Subject: New to this group > > > Hi Everyone, > > I'm new around here. I have been dealing with asthma hoe over 27 years now and > thankfully currently I am pretty stable. I have several other health issues > that I wont bore anyone with right now. I am on SSDI due to asthma. I > currently have adrenal insufficiency due to prolonged steriod use. I was > wondering if there was anyone here who has developed this condition and then > successfully weaned off prednisone? Glad to be a part of the group! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2011 Report Share Posted April 17, 2011 Hi, willothewispl here. I was just wondering? Does your adrenal insufficiency have to do with your asthma, or vice versa?To: asthma Sent: Sat, April 16, 2011 9:21:12 PMSubject: Re: New to this group Hi Madeline, You have come a long way, good for you!! i was off of pred for three months when I was dx with AI. My endo started me on 30mg and that was back in June 2010. i am down to 4.5 and this last taper my doc had me go down by .5 for two months. I dont know if I will cont. to taper at this slow a pace but i quess as long as I'm going in the right direction I can't complain! I was very lucky this past winter 6 sinus infections but no bronchitis or asthma flares! I'm taking life slow and taking care of myself for fear I will have another flare and have to go up on the pred. again Two years is a long time to be dealing with this. God bless you you must have lots of patience. When you say symptoms are they asthma symptoms or adrenal symptoms? I just feel fatigued all the time. It's good to know I'm not alone dealing with this and I might be badgering you with lots of other questions. Thank you for responding! > > Hi . . However, it sounds > like you may be competing for the title. I am also dealing with adrenal > insufficiency for the same reasons. I have been able to wean from 65mg/day down > to 9mg/day. I was able to wean at about 5mg/week until about 40mg. Then had to > slow it to 5mg every two weeks. That got me down to 15. From 15 it has taken > forever. I had to start a wean of 1mg at a time. It got as slow as 1mg/month. > From 11mg I am trying 1/2mg at a time. It took me a month and a half to get > from 9-1/2 to 9mg. I will step down the 1/2mg then wait 2 weeks. If I don't > start having symptoms, I can try another 1/2mg. If I have symptoms, I have to > bump back up and wait another 2 weeks then try again. It is sooooooooo > frustrating. Then I have a flare and end up with a huge dose in the hospital > which just serves to slow the taper even more. I have been stepping down for > two years in June. I feel that I may never get totally off the things. My > adrenals just don't seem to want to pick back up. However, I will keep trying. > > Madeline > > > > ________________________________ > > To: asthma > Sent: Thu, April 14, 2011 7:31:38 PM > Subject: New to this group > > > Hi Everyone, > > I'm new around here. I have been dealing with asthma hoe over 27 years now and > thankfully currently I am pretty stable. I have several other health issues > that I wont bore anyone with right now. I am on SSDI due to asthma. I > currently have adrenal insufficiency due to prolonged steriod use. I was > wondering if there was anyone here who has developed this condition and then > successfully weaned off prednisone? Glad to be a part of the group! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2011 Report Share Posted April 17, 2011 HiThe adrenal insufficiency was caused by The asthma meds. Most of my doctors sayIt was from the oral meds ( prednisone)But one of my doctors insisted it was from The inhaled steroids especially since I wasUsing more than the recommended dosageAs prescribed by my pulmonary dr.Sent from my iPod Hi, willothewispl here. I was just wondering? Does your adrenal insufficiency have to do with your asthma, or vice versa?To: asthma Sent: Sat, April 16, 2011 9:21:12 PMSubject: Re: New to this group Hi Madeline, You have come a long way, good for you!! i was off of pred for three months when I was dx with AI. My endo started me on 30mg and that was back in June 2010. i am down to 4.5 and this last taper my doc had me go down by .5 for two months. I dont know if I will cont. to taper at this slow a pace but i quess as long as I'm going in the right direction I can't complain! I was very lucky this past winter 6 sinus infections but no bronchitis or asthma flares! I'm taking life slow and taking care of myself for fear I will have another flare and have to go up on the pred. again Two years is a long time to be dealing with this. God bless you you must have lots of patience. When you say symptoms are they asthma symptoms or adrenal symptoms? I just feel fatigued all the time. It's good to know I'm not alone dealing with this and I might be badgering you with lots of other questions. Thank you for responding! > > Hi . . However, it sounds > like you may be competing for the title. I am also dealing with adrenal > insufficiency for the same reasons. I have been able to wean from 65mg/day down > to 9mg/day. I was able to wean at about 5mg/week until about 40mg. Then had to > slow it to 5mg every two weeks. That got me down to 15. From 15 it has taken > forever. I had to start a wean of 1mg at a time. It got as slow as 1mg/month. > From 11mg I am trying 1/2mg at a time. It took me a month and a half to get > from 9-1/2 to 9mg. I will step down the 1/2mg then wait 2 weeks. If I don't > start having symptoms, I can try another 1/2mg. If I have symptoms, I have to > bump back up and wait another 2 weeks then try again. It is sooooooooo > frustrating. Then I have a flare and end up with a huge dose in the hospital > which just serves to slow the taper even more. I have been stepping down for > two years in June. I feel that I may never get totally off the things. My > adrenals just don't seem to want to pick back up. However, I will keep trying. > > Madeline > > > > ________________________________ > > To: asthma > Sent: Thu, April 14, 2011 7:31:38 PM > Subject: New to this group > > > Hi Everyone, > > I'm new around here. I have been dealing with asthma hoe over 27 years now and > thankfully currently I am pretty stable. I have several other health issues > that I wont bore anyone with right now. I am on SSDI due to asthma. I > currently have adrenal insufficiency due to prolonged steriod use. I was > wondering if there was anyone here who has developed this condition and then > successfully weaned off prednisone? Glad to be a part of the group! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2011 Report Share Posted April 18, 2011 Oh that is scary, about the adrenal insufficiency being caused by the asthma meds. By being on this website, I have learned so much not only about asthma, but about other people living with this. It never fails to amaze what other people are going through. Thank you so much for all of the information I have learned on here. It has made dealing with my asthma so much better, not necessarily easier, but better. willothewispl@.... To: "asthma " <asthma >Sent: Sun, April 17, 2011 9:53:44 PMSubject: Re: Re: New to this group HiThe adrenal insufficiency was caused by The asthma meds. Most of my doctors sayIt was from the oral meds ( prednisone)But one of my doctors insisted it was from The inhaled steroids especially since I wasUsing more than the recommended dosageAs prescribed by my pulmonary dr.Sent from my iPod Hi, willothewispl here. I was just wondering? Does your adrenal insufficiency have to do with your asthma, or vice versa?To: asthma Sent: Sat, April 16, 2011 9:21:12 PMSubject: Re: New to this group Hi Madeline, You have come a long way, good for you!! i was off of pred for three months when I was dx with AI. My endo started me on 30mg and that was back in June 2010. i am down to 4.5 and this last taper my doc had me go down by .5 for two months. I dont know if I will cont. to taper at this slow a pace but i quess as long as I'm going in the right direction I can't complain! I was very lucky this past winter 6 sinus infections but no bronchitis or asthma flares! I'm taking life slow and taking care of myself for fear I will have another flare and have to go up on the pred. again Two years is a long time to be dealing with this. God bless you you must have lots of patience. When you say symptoms are they asthma symptoms or adrenal symptoms? I just feel fatigued all the time. It's good to know I'm not alone dealing with this and I might be badgering you with lots of other questions. Thank you for responding! > > Hi . . However, it sounds > like you may be competing for the title. I am also dealing with adrenal > insufficiency for the same reasons. I have been able to wean from 65mg/day down > to 9mg/day. I was able to wean at about 5mg/week until about 40mg. Then had to > slow it to 5mg every two weeks. That got me down to 15. From 15 it has taken > forever. I had to start a wean of 1mg at a time. It got as slow as 1mg/month. > From 11mg I am trying 1/2mg at a time. It took me a month and a half to get > from 9-1/2 to 9mg. I will step down the 1/2mg then wait 2 weeks. If I don't > start having symptoms, I can try another 1/2mg. If I have symptoms, I have to > bump back up and wait another 2 weeks then try again. It is sooooooooo > frustrating. Then I have a flare and end up with a huge dose in the hospital > which just serves to slow the taper even more. I have been stepping down for > two years in June. I feel that I may never get totally off the things. My > adrenals just don't seem to want to pick back up. However, I will keep trying. > > Madeline > > > > ________________________________ > > To: asthma > Sent: Thu, April 14, 2011 7:31:38 PM > Subject: New to this group > > > Hi Everyone, > > I'm new around here. I have been dealing with asthma hoe over 27 years now and > thankfully currently I am pretty stable. I have several other health issues > that I wont bore anyone with right now. I am on SSDI due to asthma. I > currently have adrenal insufficiency due to prolonged steriod use. I was > wondering if there was anyone here who has developed this condition and then > successfully weaned off prednisone? Glad to be a part of the group! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2011 Report Share Posted April 18, 2011 Plus it helps to have a group of supportive people to encourage us when we get discouraged or are going through a rough time. > >> > >> Hi . . However, it sounds > >> like you may be competing for the title. I am also dealing with adrenal > >> insufficiency for the same reasons. I have been able to wean from 65mg/day > >>down > >> > >> to 9mg/day. I was able to wean at about 5mg/week until about 40mg. Then had > >>to > >> > >> slow it to 5mg every two weeks. That got me down to 15. From 15 it has taken > > > >> forever. I had to start a wean of 1mg at a time. It got as slow as 1mg/month. > >> > >> From 11mg I am trying 1/2mg at a time. It took me a month and a half to get > > >> from 9-1/2 to 9mg. I will step down the 1/2mg then wait 2 weeks. If I don't > > >> start having symptoms, I can try another 1/2mg. If I have symptoms, I have to > > > >> bump back up and wait another 2 weeks then try again. It is sooooooooo > >> frustrating. Then I have a flare and end up with a huge dose in the hospital > > >> which just serves to slow the taper even more. I have been stepping down for > > >> two years in June. I feel that I may never get totally off the things. My > >> adrenals just don't seem to want to pick back up. However, I will keep > >>trying. > >> > >> Madeline > >> > >> > >> > >> ________________________________ > >> From: <cdem290@> > >> To: asthma > >> Sent: Thu, April 14, 2011 7:31:38 PM > >> Subject: New to this group > >> > >> > >> Hi Everyone, > >> > >> I'm new around here. I have been dealing with asthma hoe over 27 years now and > > > >> thankfully currently I am pretty stable. I have several other health issues > > >> that I wont bore anyone with right now. I am on SSDI due to asthma. I > >> currently have adrenal insufficiency due to prolonged steriod use. I was > >> wondering if there was anyone here who has developed this condition and then > >> successfully weaned off prednisone? Glad to be a part of the group! > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2011 Report Share Posted April 18, 2011 Yes it does, I don't really know too many people with asthma other than on here, and it helps to read about other people, feels like somebody understands what we go through. Thanks everyone.To: asthma Sent: Mon, April 18, 2011 7:13:04 PMSubject: Re: New to this group Plus it helps to have a group of supportive people to encourage us when we get discouraged or are going through a rough time. > >> > >> Hi . . However, it sounds > >> like you may be competing for the title. I am also dealing with adrenal > >> insufficiency for the same reasons. I have been able to wean from 65mg/day > >>down > >> > >> to 9mg/day. I was able to wean at about 5mg/week until about 40mg. Then had > >>to > >> > >> slow it to 5mg every two weeks. That got me down to 15. From 15 it has taken > > > >> forever. I had to start a wean of 1mg at a time. It got as slow as 1mg/month. > >> > >> From 11mg I am trying 1/2mg at a time. It took me a month and a half to get > > >> from 9-1/2 to 9mg. I will step down the 1/2mg then wait 2 weeks. If I don't > > >> start having symptoms, I can try another 1/2mg. If I have symptoms, I have to > > > >> bump back up and wait another 2 weeks then try again. It is sooooooooo > >> frustrating. Then I have a flare and end up with a huge dose in the hospital > > >> which just serves to slow the taper even more. I have been stepping down for > > >> two years in June. I feel that I may never get totally off the things. My > >> adrenals just don't seem to want to pick back up. However, I will keep > >>trying. > >> > >> Madeline > >> > >> > >> > >> ________________________________ > >> From: <cdem290@> > >> To: asthma > >> Sent: Thu, April 14, 2011 7:31:38 PM > >> Subject: New to this group > >> > >> > >> Hi Everyone, > >> > >> I'm new around here. I have been dealing with asthma hoe over 27 years now and > > > >> thankfully currently I am pretty stable. I have several other health issues > > >> that I wont bore anyone with right now. I am on SSDI due to asthma. I > >> currently have adrenal insufficiency due to prolonged steriod use. I was > >> wondering if there was anyone here who has developed this condition and then > >> successfully weaned off prednisone? Glad to be a part of the group! > >> > >> > > > > > Quote Link to comment Share on other sites More sharing options...
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