2nd letter from LDN in uk and my reply :)

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More options 2:35 am (2½ hours ago)

Russ

Thanks, I am sorry that you had a bad experience with LDN but I

think it would be helpful if you reported your problems to one of

the Doctors with the LDN trust. Dr Bob Lawrence did publicly state

at the First Annual LDN Conference that he had one patient with a

server adverse reaction to LDN so based on his number of patients

that makes it about 1 in 400 which is not a vary accurate way to

judge. My wife had a very adverse reaction to 4.5Mg probably serious

enough to do serious harm if we had not dropped the dose (Her story

is in the LDN research newsletter 1.7.05). I do understand that why

people are reluctant to give ammunition to drug companies by

reporting adverse reaction to things like LDN but I personally think

that people who are being forced to make there own choices about

treatments should be given all the facts including potential

problems that are known about. I was quite disturbed that the safety

trial proposed by Dr Coles was allegedly trying to prove 3Mg daily

was safe for any MS patient when those of us using it know full well

that this is very dose critical for some and that 3Mg is definitely

not safe for all

It is your site and therefore what you say must be your decision,

but I think it would be helpful if you mentioned your problem and in

some way tried to put it into genuine perspective i.e. how likely is

that LDN caused it, what is a reasonable estimate of how dangerous

it was and what percentage of people could be likely to experience

it. I think you may be able to get some help from Dr Bob Lawrence on

those issues. bob.lawrence@...

The double blind trials with AIDS was mentioned at the LDN

conference as was the effective suppression by the data on the

usefulness of LDN for treating Cancer where anyone really does need

help to determine if it is of use in their particular case. I would

think Dr Bahrie would let you have copies of the data in respect of

these issues if you tell him how you intend to publicise them.

As you can see I have been following this for some time and whilst I

would fully accept LDN is not right for all with MS I would say that

the only reason that has actually been found for LDN not working for

some is that of mis diagnosis of Lyme Disease. I would therefore

seriously suggest you get yourself a copy of the Lyme Disease and

Rife Machines ISBN 0-9763797-0-8 www.lymebook.com since it is a fact

that most people ultimately diagnosed with Lyme Disease were

originally diagnosed with MS. Although this mis diagnosis is

probably only about 5% of those diagnosed with MS we took the time

to check it out and I would recommend you do the same. It is not an

opportunity to be missed since Rife machines are curing a reasonable

percentage of Lyme sufferers and Lyme disease does cause heart

problems some times.

Dave

Russ Miles to , (bcc:Barb), (bcc:safespaceproje.) ...

More options 4:58 am (26 minutes ago)

,

Once again your letter is well recieved and your good advice most

appreciated. Certainly, I will do my part by posting it on

http://MilesBooks.com in the " Activist Issues " and the " Multiple

Sclerosis " sections, where your first letter to me and my response

resides. I have also informed a 2273 member LDN group, to which I

still belong, of your letter and expect some favorable response.

Also, I've posted statements directing several other MS patient

groups to the information that you've so kindly offered.

As regards my personal interest in again using LDN, it has wained do

to success I have had, and am having, with other treatment methods.

See my ezine article http://milesbooks.com/wb/pages/multiple-

sclerosis/is-silver-water-for-you.php .

The other things I am doing will be detailed, to some degree, in a

forthcoming article.

As regards Lymes disease, you will be interested in a personal write

up I recieved this week from , another patient that was

diagnosed with MS. http://milesbooks.com/wb/pages/multiple-

sclerosis/ginas-healing-story.php

http://health.groups.yahoo.com/group/MS-Christians/message/46758 is

one of my recent posts to another group in which LDN is mentioned .

Personally, my goal is " Curvs Contend " with MS. Yes, I do feel it is

a viable option. Below are a couple more links that you might find

of interest.

http://milesbooks.com/wb/pages/activist-issues/quackwatch-update.php

http://health.groups.yahoo.com/group/mscured/message/18283

As I am somewhat active in groups and internet ezine article

publication, I'm certain we will be in contact again,

Best regards,

Russ )