Guest guest Posted June 19, 2010 Report Share Posted June 19, 2010 my son jordan, 11, who has cm1, and syrinx has been seeing many neurosurgeons to try and find answers, and after three years of fighting, driving, mixed messages and frustration, he is going to be given an appt. for surgery soon. thank you for everybody who told me to keep fighting and never give up, the pep talks really worked, cuz i never new what to do next. you all are great inspiration. thank you again. shelly, mom to jordan Quote Link to comment Share on other sites More sharing options...
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