Guest guest Posted June 15, 2006 Report Share Posted June 15, 2006 We write when we can, Susie. I hope you'll join in as often as you can. There is no special time. There is mail on here just about all the time. We can read, or ask our questions, just talk, or fuss about your caregiver load. We take it all in stride and help each other no end! It is something else at the things I have learned since I have been here. I haven't been on too very long either. This is a great group of wonderful people. We all know we are under more stress than three people should have, so we try to support each other all we can. If we step on toes, it sure isn't intentional. We have the best run list I have even encountered. Easy going, and kind. Enjoy anytime you wish, Susie. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with Parkinsonism, and Frontal Lobe Disease with Apathy, and possibly AD. Love is Long-suffering---- love never fails 1 Cor. 13; 4-7 (Paraphrased for caregivers) In a message dated 6/15/2006 8:03:50 PM Central Daylight Time, gentlysm06@... writes: Is there a special time that caregivers are chatting? what do I need to do to access that? Thanks for your help. Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2006 Report Share Posted June 16, 2006 Since I've been on this board (since January) there hasn't been a chat within this group that I'm aware of. With that said, in the links section of our board there is a link about a LBDCaregivers chat room that someone started - don't know if it's something that still happens or not... Click here for details: http://health.groups.yahoo.com/group/LBDcaregivers/links/Caregiver_Suppo rt_001149946133/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2006 Report Share Posted June 16, 2006 I looked at this, . I was quite pleased. I will try to look into the various sites, and chats. I was especially happy to find a section on stress. Thank you very much, Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with Parkinsonism, and Frontal Lobe Disease with Apathy, and possibly AD. Love endures all things---- love never fails 1 Cor. 13; 4-7 (Paraphrased for caregivers) In a message dated 6/16/2006 5:37:00 AM Central Daylight Time, octoryrose@... writes: Since I've been on this board (since January) there hasn't been a chat within this group that I'm aware of. With that said, in the links section of our board there is a link about a LBDCaregivers chat room that someone started - don't know if it's something that still happens or not... Click here for details: http://health.groups.yahoo.com/group/LBDcaregivers/links/Caregiver_Suppo rt_001149946133/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2006 Report Share Posted June 17, 2006 I have forward this message to Sandy. She use to have the chat going and I don't know if anyone is still there or not. If anyone is interested, I know she had a site. Donna R Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: http://www.lewybodydementia.org Re: chat Since I've been on this board (since January) there hasn't been a chat within this group that I'm aware of. With that said, in the links section of our board there is a link about a LBDCaregivers chat room that someone started - don't know if it's something that still happens or not... Click here for details: http://health.groups.yahoo.com/group/LBDcaregivers/links/Caregiver_Suppo rt_001149946133/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2009 Report Share Posted December 24, 2009 Alright you guys, it's another new week, so I am sending you all a semi-private invitation...... Click HERE <http://www.asap.org/chat.html> in 50 minutes to come to chat! There is a back-up chat site<http://www.chatmaker.net/chatap/rooms/chiari/>too since asap's site has been acting weird. But try the first link FIRST. Just click on the links..... See ya there! Me Chele -- To read all about Chiari, go to http://www.asap.org/ Quote Link to comment Share on other sites More sharing options...
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