karen/sharon a-m

[Guest guest]

karen,

what beautiful memories you shared, those are ones to cherish forver, the ones

that you will remember in teh middle of the nite, or when you are sad, and the

thoughts of the i love you game will come to mind,

my dad and i used to sing you are my sunshine to each other, and one day i found

on clearance one of the snowbabies sitting on an easter egg, holding a butterfly

in his hand. and it was a music box, and it played you are my sunshine, i bought

it and gave it to daddy. adn when i was in the hosp he would ask donnie or

sissy to wind it up for him and he would sing and tell them he was singing to

me. it was neat. he also had a duck that i gave him that donnie gave to me

when i was in vanderbilt hosp in nashville when donnie and i were first dating,

it was a puppet adn when you moved his beak it quacked old macdonaold, london

bridge and frere jacques, it made me smile when i was sick and it made dad

giggle and the more lbd took over the more dads laugh got more infantile

sounding and i loved it it was so cute!!!!!.

call your dad, eventhough he maynot be able to carry a conversation well he can

always communicate with you with the i love you game, you can hear smiles and

love over the phone,

i can only imagine how difficult it was for you to go back home, unfortuantly

life doesnt give in to our other needs. keep your spirits up, take care of

your self, hugs, sharon

---- Caution_BlondeThinkin wrote:

Sandie,

It was easier for me to come home this past visit then before,

because I knew that my daddy loved me. You are right daddy does know

my voice, my touch, and he does trust me. We have this little game we

always played. I would say " I love you daddy. " He would say " I love

you too. " I would say, " I love you more. " He would say " nope I love

you more. " Even now when he realizes it is me he still plays that

game with me. The words change from him sometime and he says, " I

don't think so, " or " no way. " He would smile. Daddy's face always

lite up whenever I came home and when I left he would get big tears

in his eyes. My daddy has the prettiest blue eyes as well.

Thank you so much for thinking of my daddy if you see that

hummingbird. That means so much. I know daddy would like that as

well.

Sure glad there isn't a law about chocolate or I would have been in

jail along time ago for not sharing. hehehe

Hugs,

Desert Hot Springs, CA

> > > >

> > > > Hi -

> > > >

> > > > Thank you so much for writing. had had

> > > > photo's of his mom, Jo, in the web site and I had

> > > > photo's of my dad, Merle, in there. I had decided

> > > > to remove my dad's to allow for more room. Then

> > > > we thought we could show others the progression

> > > > in our loved ones if we put them in again. Our

> > > > hearts broke when we received the photo of Christmas

> > > > 2006 with Jo, t, and the children. She looked

> > > > as if she had aged and is so very thin. Yet, through

> > > > it all she has kept her gentle demeanor and the

> > > > staff at the long term care facility adores her.

> > > >

> > > > and I wondered if my dad's photo's would

> > > > confuse anyone. It looks as if they are misdated,

> > > > when, in reality the struggles of LBD were all over

> > > > the place in his journey. He was so very sick in

> > > > January 2000 from aspiration pneumonia. He

> > > > was extremely dehydrated as well. He just couldn't

> > > > swallow and the doctor was going to send him back

> > > > to the NH without my dad being able to swallow.

> > > > I had a 5 minute decision to make, on my own,

> > > > to have a PEG tube inserted or not. I opted for

> > > > the tube. My dad prevailed, had the tube removed

> > > > in April 2000 and lived on for another 2 1/2 years.

> > > > As with Jo, dad showed definite progression of LBD.

> > > > The photo's show his progression from

> > > > summer of 2001 to summer 2002.

> > > >

> > > > We are going to speak with 's sister again

> > > > soon so I shall ask about Jo's eye glasses. I

> > > > do believe she still wears them but now wonder

> > > > if they are helping/needed. Jo now has on days

> > > > and off days where some days she is able to talk

> > > > and others she isn't. Hoping when asked about

> > > > her eye glasses she is able to respond.

> > > >

> > > > Thank you again, , for noticing our photo's

> > > > and for responding. Guess one can't really tell the

> > > > difference in and my height. He is 6' 5 "

> > > > and I, well, am 5' 4 " ...we look so much closer in

> > > > height sitting down...:-))

> > > >

> > > > Many hugs-

> > > >

> > > > Sandie

> > > > Des Moines, IA

> > > >

> > > > -- new pictures!

> > > >

> > > > I appreciate the new pictures sent in recently.

> > > Cautionblondthinkin, a

> > > > great collection. I

> > > > didn't respond sooner because I hesitated using your id name.

> > It's

> > > always

> > > > meaningful to

> > > > see another's journey with LBD.

> > > > And now Sandie and ! Lovely to meet you in a picture,

> also

> > > with

> > > > Merle and Jo. I

> > > > wasn't part of the group as you met and wed, so appreciate

> getting

> > > to know

> > > > you and your

> > > > LOs a little better.

> > > > The decline in Jo is so obvious. I have to wonder if the

> glasses

> > > are still

> > > > being worn and

> > > > doing her any good? Nh staff would put Mom's on, I would go

in

> > and

> > > ask if

> > > > she wanted

> > > > them on, understanding how compromised her vision became

despite

> > > benefit of

> > > > updated

> > > > prescriptions. She would ask that I put them away, and I

asked

> > > staff to not

> > > > put them on

> > > > her anymore. Every once in a while, when her eyes were still

> > open,

> > > I would

> > > > ask if she

> > > > wanted her glasses and she always said no.

> > > > Thanks for the sharing!

> > > >

> > > > , Oakville Ont.

> > > >

> > > > Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

> > > >

> > > >

> > > >

> > > >