Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 : On another site I am on, the discussion turned to head injuries as a precursor to LBD, so they did an unscientific survey as to how many had suffered head injuries previous to LBD diagnosis. The replies were astonishing - I don't remember the number, but many, many of them, particularly men, had head injuries up to several years before dx'd. Wonder about this group. --- wrote: > Another feature on the website for LBDCaregivers > (besides Links, Files, > Database) is the Polls section. This feature hasn't > been utilized for a > long time. > > Are there any Poll questions that you would like to > see done? Any LBD > symptom/feature you'd be interested in knowing who > has / hasn't have > it? > > Private email me any question/thought you'd like to > have a Poll done > and I'll put it together... > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 I loved dressing up, and keeping my nails well manicured, and polished. Toluene in nail polish is toxic. I wore nail polish for over twenty years. I don't believe they put Toluene in polish so much now, but all polish had it just a few years ago, as far as I know. Also, what about all the lotions, and perfumes some wear? I now have to be most careful around scents. Sprays in the house to freshen the air can do a chemical number. Now in modern times we live in a very chemical environment. Imogene In a message dated 9/4/2006 10:16:24 PM Central Daylight Time, jchristensen1953@... writes: : Even though you may not think your mother was exposed to chemicals, she may have been and it might not have been actual pesticides, insecticides, that you think of being sprayed on crops. For instance, if you have an exterminator who treats the home for bugs/mice, etc.; if you have used paints, varnishes, paint removers, etc.; have possibly been in contact with lead paint somewhere in an older home; possibly asbestos in some of the older homes/buildings; sprays for lawns, termites, etc. Sometimes these chemicals do not seem they are ones that could be harmful, but a long-time, low-dose exposure, or a one-time high-dose exposure can cause problems. It could also be something, such as glue used in laying flooring or carpeting, if that person is allergic to it. Might have been sometime when she didn't even realize it. --- lauraf13 <_lauraf13@..._ (mailto:lauraf13@...) > wrote: > , Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2006 Report Share Posted September 4, 2006 : Even though you may not think your mother was exposed to chemicals, she may have been and it might not have been actual pesticides, insecticides, that you think of being sprayed on crops. For instance, if you have an exterminator who treats the home for bugs/mice, etc.; if you have used paints, varnishes, paint removers, etc.; have possibly been in contact with lead paint somewhere in an older home; possibly asbestos in some of the older homes/buildings; sprays for lawns, termites, etc. Sometimes these chemicals do not seem they are ones that could be harmful, but a long-time, low-dose exposure, or a one-time high-dose exposure can cause problems. It could also be something, such as glue used in laying flooring or carpeting, if that person is allergic to it. Might have been sometime when she didn't even realize it. --- lauraf13 wrote: > , > > My comments for the polls that you posted: > > As for the drugs, my Mother has done well on > Seroquel, but can't take Ativan. > In my Mother's case, I don't believe there was any > one thing that caused the LBD > symptoms. Looking back, they had been gradually > coming on. I do believe that she took a > sharp decline due to a stressful event. She was > never around much pesticide or other > chemicals. My Mother never had a head injury. > > in Dallas > > > > > > > > I think doing these polls are really interesting > and informative -- > > > yet, I probably should have done them > differently. Like the last one - > > - > > > what precipitated the bulk of the LBD symtoms - > would have been > > better > > > had I checked off who voted for what... So we > could see if one person > > > voted for more than one thing. But at the same > time was trying to > > make > > > it kind of anonymous... I should write a report > from these polls in > > the > > > end... We could write a book... > > > > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 June, The reason I say that she wasn't exposed to chemicals is because she has always been sensitive to chemical odor and therefore, we didn't have those things around. If a room was painted, it had to be well aired out before she would go into to it. When low VOC paint came out, we started using that. If an insecticide was used it had to be a low odor one. She has always worn a mask and gloves when doing anything that might have chemicals. If anything, my Mother has had less exposure to chemicals than the average person. She certainly hasn't been chemical free, but she hasn't gotten any high doses. in Dallas > > > > > > > > I think doing these polls are really interesting > > and informative -- > > > > yet, I probably should have done them > > differently. Like the last one - > > > - > > > > what precipitated the bulk of the LBD symtoms - > > would have been > > > better > > > > had I checked off who voted for what... So we > > could see if one person > > > > voted for more than one thing. But at the same > > time was trying to > > > make > > > > it kind of anonymous... I should write a report > > from these polls in > > > the > > > > end... We could write a book... > > > > > > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Imogene, My Mother never painted her nails, she always used makeup and lotions that are fragrance free, she never wore much perfume, and we never used air fresheners. Her skin and mine are very sensitive, so we never used the highly chemical products. in Dallas > > > , > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 I have MCS (Multiple Chemical Sensitivity). That name is used for lack of thinking up a better name. Diagnoses was made by two doctors. I am like your mother in staying away from odors. It is very hard on my lungs that are always laden with chronic Eosenophilia Pneumonia. Get a Dose of chemical, and I may very well land in the hospital. Imogene In a message dated 9/5/2006 7:42:42 AM Central Daylight Time, lauraf13@... writes: Imogene, My Mother never painted her nails, she always used makeup and lotions that are fragrance free, she never wore much perfume, and we never used air fresheners. Her skin and mine are very sensitive, so we never used the highly chemical products. in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Yes, I have learned that also. (Is your name June? or Judy? Sorry I can't remember) And, this conversation is for sharing knowledge to gain insight. I am concerned for any of us suffering from the environment. Most of us were exposed to DDT as youngsters. There are chemicals in cleaning supplies that we take as ordinary objects that we have been around all our lives. As we have gotten older we have taken precautions, but not so much as children. There are chemicals in makeup. Lipstick was always a good one because we tend to lick or eat it off. Manufacturers are becoming much more aware of causing harm. I lived on farms for a while, and I also walked in the grass barefoot without realizing some chemicals were on the grass. The thing that concerns me is lead in some of our dishes. I had a set of Franciscan Desert Rose dishes that were made before lead became known as a danger. My dishes were loaded with lead. What about crystal? Decanters for drinks? Being a commercial fisherman's daughter, I handled thousands of yards of nets with lead weights. I always handled the lead side when we racked the nets, and my sister handled the cork side, because she was smaller, and the corks were lighter. How much lead is in my body? I have no idea. What about lead water pipes, or even just the pipes being welded with lead. Are these things going to give me dementia? Some of them have ruined my lungs already. I really wonder what caused my husband to get LBD???? Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with Parkinsonism. In a message dated 9/5/2006 9:33:15 PM Central Daylight Time, jchristensen1953@... writes: Not to be argumentive, but I also have multiple chemical sensitivity, and to have it, you generally have had to be exposed to some kind of chemicals to develop it. It may have been when she was very young and didn't know about it. That's why she couldn't tolerate them later on. It doesn't mean that's the reason for LBD necessarily, though, or if so, guess I'll be getting it too! You have a doctor in Dallas, Dr. Rea, who diagnosed me several years ago, and he was very good. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2006 Report Share Posted September 5, 2006 Not to be argumentive, but I also have multiple chemical sensitivity, and to have it, you generally have had to be exposed to some kind of chemicals to develop it. It may have been when she was very young and didn't know about it. That's why she couldn't tolerate them later on. It doesn't mean that's the reason for LBD necessarily, though, or if so, guess I'll be getting it too! You have a doctor in Dallas, Dr. Rea, who diagnosed me several years ago, and he was very good. --- lauraf13 wrote: > June, > > The reason I say that she wasn't exposed to > chemicals is because she > has always been sensitive to chemical odor and > therefore, we didn't > have those things around. If a room was painted, it > had to be well > aired out before she would go into to it. When low > VOC paint came out, > we started using that. If an insecticide was used it > had to be a low > odor one. She has always worn a mask and gloves when > doing anything > that might have chemicals. If anything, my Mother > has had less > exposure to chemicals than the average person. She > certainly hasn't > been chemical free, but she hasn't gotten any high > doses. > > in Dallas > > > > > > > > > > > > I think doing these polls are really > interesting > > > and informative -- > > > > > yet, I probably should have done them > > > differently. Like the last one - > > > > - > > > > > what precipitated the bulk of the LBD > symtoms - > > > would have been > > > > better > > > > > had I checked off who voted for what... So > we > > > could see if one person > > > > > voted for more than one thing. But at the > same > > > time was trying to > > > > make > > > > > it kind of anonymous... I should write a > report > > > from these polls in > > > > the > > > > > end... We could write a book... > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
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