Guest guest Posted September 30, 2011 Report Share Posted September 30, 2011 When taking T4, it is a "storage" form of thyroid so it has a 2 week life-span in the body. It will take a bit of time for it to build and you might need to increase the dose in time. I am currently on a T4 and t3 mix, which is working ok but I will still need the bloodwork in a couple of weeks to see what all the levels are. In time I may go to Natural thyroid, but I am ok with the mix also. Synthroid alone was not enough for me. I was just diagnosed Hashi's yesterday. Actually, I'm just going to copy/paste something I posted on another forum because I am too tired to write it all over again: I'll try not to go into a long spiel since I'm sure that many of you have been through the same things: "normal" numbers, Dr.s telling you there's nothing wrong or rolling their eyes at the fat chick complaining about weight gain, being told it's your age or to exercise more or try South Beach. It took four tries with four different doctors to finally get an antibody test. They're extremely high (Really? Go fig. :roll:). I got the diagnosis yesterday. My Doctor gave me synthroid and a fellow Hashi pointed me toward Stop The Thyroid Insanity where I discovered that diagnosis was just the beginning. I have ordered a health food raw thyroid supplement (Natural Sources Raw Thyroid which should arrive by Monday. In the meantime I'm on a really low dose (50 mcg) of synthroid. I'm thinking that I will keep taking the synthroid and supplement with the thyroid supplement. I'm kind of afraid to mention natural thyroid to my endo because it took so danged long to even get THIS far. I'm grateful that this doctor decided to listen to me and test for possible causes for my fatigue, aches, cold sensitivity, depression and increasing inability to exercise. I worry that if I "rock the boat" I'll alienate the doc and jeopardize my treatment. At the same time, I know I'll have to get over it, man up and either "demand" natural thyroid or politely inform my doctor that I will be using OTC natural thyroid supplements in addition to the T-4 prescription and I'm not budging on that. I've taken two doses of T-4 and the only difference I have noticed is that my allergies are going nuts. However, it is also "allergy" season and I have a new cat in the house so it could also be that. It's really hard to tell since I'm always snotty and congested this time of year. I did have two questions: How soon after you started treatment did you notice a difference in your symptoms? Has anyone here tried the Natural Sources Raw Thyroid? What were your experiences with it? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2011 Report Share Posted October 1, 2011 Hi there, I actually do have a question for you: were all of your numbers in range except for the antibodies? Because that is what I am going through. I still haven't been to an endo so I haven't got the definitive definition of hashi's yet. I was just curious if you were the same as me (numbers in range, except for high antibodies). Still trying to figure out if high antibodies is definitively hashi's. Thanks in advance! > > I was just diagnosed Hashi's yesterday. Actually, I'm just going to copy/paste something I posted on another forum because I am too tired to write it all over again: > > I'll try not to go into a long spiel since I'm sure that many of you have been through the same things: " normal " numbers, Dr.s telling you there's nothing wrong or rolling their eyes at the fat chick complaining about weight gain, being told it's your age or to exercise more or try South Beach. > > It took four tries with four different doctors to finally get an antibody test. They're extremely high (Really? Go fig. :roll:). I got the diagnosis yesterday. > > My Doctor gave me synthroid and a fellow Hashi pointed me toward Stop The Thyroid Insanity where I discovered that diagnosis was just the beginning. > > I have ordered a health food raw thyroid supplement (Natural Sources Raw Thyroid which should arrive by Monday. > > In the meantime I'm on a really low dose (50 mcg) of synthroid. > > I'm thinking that I will keep taking the synthroid and supplement with the thyroid supplement. I'm kind of afraid to mention natural thyroid to my endo because it took so danged long to even get THIS far. I'm grateful that this doctor decided to listen to me and test for possible causes for my fatigue, aches, cold sensitivity, depression and increasing inability to exercise. > > I worry that if I " rock the boat " I'll alienate the doc and jeopardize my treatment. > > At the same time, I know I'll have to get over it, man up and either " demand " natural thyroid or politely inform my doctor that I will be using OTC natural thyroid supplements in addition to the T-4 prescription and I'm not budging on that. > > I've taken two doses of T-4 and the only difference I have noticed is that my allergies are going nuts. However, it is also " allergy " season and I have a new cat in the house so it could also be that. It's really hard to tell since I'm always snotty and congested this time of year. > > I did have two questions: > How soon after you started treatment did you notice a difference in your symptoms? > > Has anyone here tried the Natural Sources Raw Thyroid? What were your experiences with it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2011 Report Share Posted October 1, 2011 Understand your situation, but you must be honest with your doctor. I had to have my thyroid removed because they could not rule out cancer with the biopsy (lots of herthle cells). After surgery, we found out I had Hashi with a fist size growth that was not visible from outside appearances. Go figure. The endo started me on 100mcg of synthroid then tested my blood after 4 or 6 months. At that point he upped it to 125 mcg. Now he has me taking an additional 1/2 tablet on Sat and Sun. This is why the doctor needs to know of all supplements and meds you are taking. It is a balancing act to get your labs at the place they need to be. I had surgery in March and have been taking meds since then. My life gradually got better, but it was not instant. The only thing that was instant was the " brain fog " was lifted. No more extreme fatigue, pain, depression, etc. But some of this is normal for a 62 yr old. I hope you stick with your meds and your doctor tests your levels. Wishing you the best. Regina Burns > > I was just diagnosed Hashi's yesterday. Actually, I'm just going to copy/paste something I posted on another forum because I am too tired to write it all over again: > > I'll try not to go into a long spiel since I'm sure that many of you have been through the same things: " normal " numbers, Dr.s telling you there's nothing wrong or rolling their eyes at the fat chick complaining about weight gain, being told it's your age or to exercise more or try South Beach. > > It took four tries with four different doctors to finally get an antibody test. They're extremely high (Really? Go fig. :roll:). I got the diagnosis yesterday. > > My Doctor gave me synthroid and a fellow Hashi pointed me toward Stop The Thyroid Insanity where I discovered that diagnosis was just the beginning. > > I have ordered a health food raw thyroid supplement (Natural Sources Raw Thyroid which should arrive by Monday. > > In the meantime I'm on a really low dose (50 mcg) of synthroid. > > I'm thinking that I will keep taking the synthroid and supplement with the thyroid supplement. I'm kind of afraid to mention natural thyroid to my endo because it took so danged long to even get THIS far. I'm grateful that this doctor decided to listen to me and test for possible causes for my fatigue, aches, cold sensitivity, depression and increasing inability to exercise. > > I worry that if I " rock the boat " I'll alienate the doc and jeopardize my treatment. > > At the same time, I know I'll have to get over it, man up and either " demand " natural thyroid or politely inform my doctor that I will be using OTC natural thyroid supplements in addition to the T-4 prescription and I'm not budging on that. > > I've taken two doses of T-4 and the only difference I have noticed is that my allergies are going nuts. However, it is also " allergy " season and I have a new cat in the house so it could also be that. It's really hard to tell since I'm always snotty and congested this time of year. > > I did have two questions: > How soon after you started treatment did you notice a difference in your symptoms? > > Has anyone here tried the Natural Sources Raw Thyroid? What were your experiences with it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2011 Report Share Posted October 1, 2011 Hi, ASk your pharmacy for a list of drs that prescribe Armour. So if you don't feel better on synthroid , you can switch to a dr that would give you Armour (T3 & T4.) Joan > > I was just diagnosed Hashi's yesterday. Actually, I'm just going to copy/paste something I posted on another forum because I am too tired to write it all over again: > > I'll try not to go into a long spiel since I'm sure that many of you have been through the same things: " normal " numbers, Dr.s telling you there's nothing wrong or rolling their eyes at the fat chick complaining about weight gain, being told it's your age or to exercise more or try South Beach. > > It took four tries with four different doctors to finally get an antibody test. They're extremely high (Really? Go fig. :roll:). I got the diagnosis yesterday. > > My Doctor gave me synthroid and a fellow Hashi pointed me toward Stop The Thyroid Insanity where I discovered that diagnosis was just the beginning. > > I have ordered a health food raw thyroid supplement (Natural Sources Raw Thyroid which should arrive by Monday. > > In the meantime I'm on a really low dose (50 mcg) of synthroid. > > I'm thinking that I will keep taking the synthroid and supplement with the thyroid supplement. I'm kind of afraid to mention natural thyroid to my endo because it took so danged long to even get THIS far. I'm grateful that this doctor decided to listen to me and test for possible causes for my fatigue, aches, cold sensitivity, depression and increasing inability to exercise. > > I worry that if I " rock the boat " I'll alienate the doc and jeopardize my treatment. > > At the same time, I know I'll have to get over it, man up and either " demand " natural thyroid or politely inform my doctor that I will be using OTC natural thyroid supplements in addition to the T-4 prescription and I'm not budging on that. > > I've taken two doses of T-4 and the only difference I have noticed is that my allergies are going nuts. However, it is also " allergy " season and I have a new cat in the house so it could also be that. It's really hard to tell since I'm always snotty and congested this time of year. > > I did have two questions: > How soon after you started treatment did you notice a difference in your symptoms? > > Has anyone here tried the Natural Sources Raw Thyroid? What were your experiences with it? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 All my numbers were in range but borderline high/low. My antibodies were really high. My understanding is that high antibodies = hashimoto's. Your body should not make antibodies to your thyroid at all. The only purpose for antibodies is to seek and destroy hostile invaders. Your thyroid is not a hostile invader. If you body sees it as such, then you have an autoimmune disorder. Autoimmune = and immune response (or allergy) to yourself. > > > > I was just diagnosed Hashi's yesterday. Actually, I'm just going to copy/paste something I posted on another forum because I am too tired to write it all over again: > > > > I'll try not to go into a long spiel since I'm sure that many of you have been through the same things: " normal " numbers, Dr.s telling you there's nothing wrong or rolling their eyes at the fat chick complaining about weight gain, being told it's your age or to exercise more or try South Beach. > > > > It took four tries with four different doctors to finally get an antibody test. They're extremely high (Really? Go fig. :roll:). I got the diagnosis yesterday. > > > > My Doctor gave me synthroid and a fellow Hashi pointed me toward Stop The Thyroid Insanity where I discovered that diagnosis was just the beginning. > > > > I have ordered a health food raw thyroid supplement (Natural Sources Raw Thyroid which should arrive by Monday. > > > > In the meantime I'm on a really low dose (50 mcg) of synthroid. > > > > I'm thinking that I will keep taking the synthroid and supplement with the thyroid supplement. I'm kind of afraid to mention natural thyroid to my endo because it took so danged long to even get THIS far. I'm grateful that this doctor decided to listen to me and test for possible causes for my fatigue, aches, cold sensitivity, depression and increasing inability to exercise. > > > > I worry that if I " rock the boat " I'll alienate the doc and jeopardize my treatment. > > > > At the same time, I know I'll have to get over it, man up and either " demand " natural thyroid or politely inform my doctor that I will be using OTC natural thyroid supplements in addition to the T-4 prescription and I'm not budging on that. > > > > I've taken two doses of T-4 and the only difference I have noticed is that my allergies are going nuts. However, it is also " allergy " season and I have a new cat in the house so it could also be that. It's really hard to tell since I'm always snotty and congested this time of year. > > > > I did have two questions: > > How soon after you started treatment did you notice a difference in your symptoms? > > > > Has anyone here tried the Natural Sources Raw Thyroid? What were your experiences with it? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 6, 2011 Report Share Posted October 6, 2011 My doctor changed my prescription to tirosint (which is working much better) but the down side is that it is not covered by my insurance. So, unless I can convince my doctor to give me samples (at least every other month) that's $45/month that I have to spend out of pocket. generic levothyroxine is $2 with my insurance and $15 without. Probably much less if I go to a pharmacy that has $4 generics. But name brand synthroid messes me up and I have no idea if the generic will do the same. I'm kind of bummed that my insurance doesn't cover tirosint, but not surprised. The only strangeness I have noticed is loss of appetite. I get hungry but I don't feel like eating and nothing is appetizing. When I do eat, I get " bored " after a few bites. On the up side, I don't have the major sugar cravings I used to have. Quote Link to comment Share on other sites More sharing options...
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