Re: How can you tell whether certain behaviors are related to MDS?

[Guest guest]

I guess my first impression of this question, came from a different angle...

My son with MDS is 15 now. I'm trying to recall if I asked myself the same

kinds of questions when he was a toddler...but really for the most part, I

remember always saying/thinking.... is . As far as your daughters

speech and walking delays, I would say those are absolutely MDS, as we know

that so many of the kids have the very same delays...I think my son was around

21 mos before he was actually full blown walking around, and honestly, he

didn't really talk until about 5 years old- and when I say talk, I mean, in

sentences...he had single words, and maybe a few word phrases before that, but

that was about it (although, they can understand EVERYTHING...processing the

words is just a whole other thing for them!)

I'm lumping the rest of my thoughts here, from another post about sensory

issues, and the second half of yours. I think we should be careful to want to

label things. Sometimes because a child/toddler doesn't like something,

doesn't mean its a sensory disorder....it could just be their personality! I

think, that unless there is a whole series of things that add up to a concern

to

bring up to the doctor.............that we realize our kids are just KIDS,

MDS or not...........and they have good days and bad... things that make them

happy, and things that make them angry... mood swings... up times, and down

times.... their lil personalities come out so young!!

I personally think I would WATCH for signs of things....but not be too quick

to attribute it to another type of disorder....or to feel that everything

needs to be attributed to the MDS.

I hope I said that clearly....but not disrespectfully in any way... hmph!

I do know things can overlap though for sure...I've never had

diagnosed...but I do believe he's developed some obsessive compulsive issues as

he's

gotten older........he can't sleep unless his backpack is in a certain

place...his chair is tucked in....his video games have to be lined up a certain

way

on the bookshelf...we had a MAJOR melt down, when a ball he keeps in his

backpack was taken out by his 5 yr old brother and misplaced... But I also

look at that as just part of who is.... so we try to respect his

space....

Angel

Mom to , 15 MDS/Hirschsprung's

Lance 19, Ty 16, 13

Jaeda 12 & Shayne 5

In a message dated 6/16/2008 7:36:21 A.M. Mountain Daylight Time,

cnpsyd@... writes:

Hi everyone,

I new to this post. I have been reading messages daily and also

reading Kristy's blog. All of the information has been very helpful.

I am just wondering how to decifer whether certain behaviors are

related to MDS and which ones are not. My daughter Sydney is 18

months old. She is great at cruising around the furniture and she can

take a couple of steps in between things sometimes. We have even seen

her stand up on her own for a few seconds. However she is not walking

on her own yet. She is also behind in speech as she can only say

three words right now. We have not begun teaching her to sign and we

are unsure whether we want to begin with that right now.

I can totally relate to talk about sensory issues because Sydney

often acts like she is very sensitive to touch. She hates to have her

hair brushed and hates to be touched with lotion on her upper body.

We have also noticed that she gets very easily frustrated sometimes

when she is playing. She often begins to bang her toys or throw them

when she gets frustrated. I have also witnessed her get upset to the

point where she clinches her jaw and bites down on her teeth and

starts to tremble a bit. We are also noticing that she is very

sensitive to loud noises at times and she often does not do well in

restaraunts or when she is around larger groups of people. She often

will start to get very cranky and make very loud noises and if she is

not removed from the situation she will eventually begin to cry.

Does any of this stuff sound familiar to anyone? I know the sensory

stuff does but what about the other stuff like the frustration

behavior? I'm not sure if this is typical behavior for an 18 month

old or even a 12 month old (which is more accurate for her

developmental age). Or can this be related to the MDS? Or can it just

be her personality? How can we tell?

Any suggestions are appreciated. Thanks

------------------------------------

Become a member of IMDSA today at http://www.imdsa.com

*******************************************************

Purchase your MDS awareness bracelet today! http://www.imdsa.com/bracelets

**************************************************************************

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[Guest guest]

Hi, My name is Camisha and i just joined this group last week.

Although i have not sat down long enough to compose a note as to how

my story comes into play-i felt drawn to this email to reply. My

daughter is 7.5mths old. She was diagnosed at 6 mths w/MDS. The

geneticist told us that her cells were " not quite " 15%. She does not

have any " obvious " ds traits. She does have a " slight " slant to her

eyes, but i do as well...and i am not MDS. She is develpmentally on

target as of now. EI evaluated her and claims as of now she does not

qualify for any therapy. I'm greatly a " proactive " mom and will do

anything and everything for any of my children. I have 2 boys that

will have birthdays in August. They will turn 11 and 13. Let me

just say they are quite some " achiever's " . They both crawled at 5

mths- walked at 8 mths and was putting their own sippy cups in the

sink at 15 mths alone. They are intelligent children that excel

academically, socially, and phyically. I am not the kind of mom that

says .. " not my child " . But i have spent a good bit of my time these

past 6-7 weeks reading, researching, talking with doctors and moms

that i have met through different websites about MDS. I really do

struggle with letting go of my original dreams i had for Macie prior

to finding out of MDS. I struggle with grasping the concept that she

will have delays. I read some moms say their babies doesn't

like " this " or doesn't like " that " . And being a mom of 3 with 10

neices and nephews and lots of friends with children AND having been

a daycare provider years ago....a lot of " symtoms " ...are just child

age-appropriate symptoms. I do believe a lot of how our kids " act "

start and breed from the way we parent them. I do know that

sometimes you can have the " best " and most patient parents and still

have a child with some dicipline issues. BUT....what gets me through

this and keeps my faith and hopes high is that Macie is Macie. She

is already past the point my sons were with crawling. She's just

about there....but not quite. She has been sitting unassited since

right at 6 mths. She plays, dances, interacts, and is extremely

inquisitive. Her downfall is " speech " . She doesn't babble. She does

screech, yell, and growl. But you know what...my very intelligent 10

year old had 3.5 years of speech learning to master his

articulation. I do get some degree of comfort reading stories from

other moms, then sometimes i have to remind myself what the

geneticist told me. Every single case is different. Not only was

Macie's percentages " low " . 2 of the 3 Trisomy 21 cells found in each

cell are stuck together. So she basically has translocated Mosaic

Down Syndrome. He told us to raise our daughter and let our eyes be

the judge...as we would no matter what. In the mean time i will

interact with her as i did with my sons and love her and teach her as

much as she will absorb. I do work outside of the home and often

question should i be home with her. For now she is doing fine.. i

do plan on looking into getting an OT--specializing in Oral Motor to

just be one step ahead of the game. I just hope any moms reading

this that question every little thing--if it's related to MDS or

not....just sees....yes, every " child " is different and " typical "

children fusses, some do hate to get their hair brushed, some hate to

be told no, some throw things, some don't like vegtables...and it

doesn't mean it has anything to do with sensory issues or MDS. Just

love your " baby " and be the best advocate for them that you can.

I would love to get to know more of you --- and thank you to the moms

that i have spoken with that has helped me through some " moments " .

Camisha Hopkins

Baton Rouge, La

chopkins@...

>

> Hi everyone,

>

> I new to this post. I have been reading messages daily and also

> reading Kristy's blog. All of the information has been very

helpful.

> I am just wondering how to decifer whether certain behaviors are

> related to MDS and which ones are not. My daughter Sydney is 18

> months old. She is great at cruising around the furniture and she

can

> take a couple of steps in between things sometimes. We have even

seen

> her stand up on her own for a few seconds. However she is not

walking

> on her own yet. She is also behind in speech as she can only say

> three words right now. We have not begun teaching her to sign and

we

> are unsure whether we want to begin with that right now.

>

> I can totally relate to talk about sensory issues because Sydney

> often acts like she is very sensitive to touch. She hates to have

her

> hair brushed and hates to be touched with lotion on her upper body.

> We have also noticed that she gets very easily frustrated sometimes

> when she is playing. She often begins to bang her toys or throw

them

> when she gets frustrated. I have also witnessed her get upset to

the

> point where she clinches her jaw and bites down on her teeth and

> starts to tremble a bit. We are also noticing that she is very

> sensitive to loud noises at times and she often does not do well in

> restaraunts or when she is around larger groups of people. She

often

> will start to get very cranky and make very loud noises and if she

is

> not removed from the situation she will eventually begin to cry.

>

> Does any of this stuff sound familiar to anyone? I know the sensory

> stuff does but what about the other stuff like the frustration

> behavior? I'm not sure if this is typical behavior for an 18 month

> old or even a 12 month old (which is more accurate for her

> developmental age). Or can this be related to the MDS? Or can it

just

> be her personality? How can we tell?

>

> Any suggestions are appreciated. Thanks

>

[Guest guest]

Hello Camisha,

Thanks for your response. It was great reading what you had to say.

I must say I had a difficult time at first letting go of the thought

that Sydney would not have delays. But now I have totally accepted

it. I love her for who she is and I would not trade her in for the

world. I guess it has just been difficult at times just being a first

time parent. She is my first born and I have no neices or nephews and

neither does my fiance so we are both kind of struggling to do our

best and to understand how to best help her when things get difficult

for her.

I think I probably need to just stop questioning whether certain

behaviors have to do with MDS or not and just accept that she is who

she is and that she has her own personality regardless of her genetic

makeup. I think you made a great point. Thanks for your input. I

really appreciate it.

Carmen

> >

> > Hi everyone,

> >

> > I new to this post. I have been reading messages daily and also

> > reading Kristy's blog. All of the information has been very

> helpful.

> > I am just wondering how to decifer whether certain behaviors are

> > related to MDS and which ones are not. My daughter Sydney is 18

> > months old. She is great at cruising around the furniture and she

> can

> > take a couple of steps in between things sometimes. We have even

> seen

> > her stand up on her own for a few seconds. However she is not

> walking

> > on her own yet. She is also behind in speech as she can only say

> > three words right now. We have not begun teaching her to sign and

> we

> > are unsure whether we want to begin with that right now.

> >

> > I can totally relate to talk about sensory issues because Sydney

> > often acts like she is very sensitive to touch. She hates to have

> her

> > hair brushed and hates to be touched with lotion on her upper

body.

> > We have also noticed that she gets very easily frustrated

sometimes

> > when she is playing. She often begins to bang her toys or throw

> them

> > when she gets frustrated. I have also witnessed her get upset to

> the

> > point where she clinches her jaw and bites down on her teeth and

> > starts to tremble a bit. We are also noticing that she is very

> > sensitive to loud noises at times and she often does not do well

in

> > restaraunts or when she is around larger groups of people. She

> often

> > will start to get very cranky and make very loud noises and if

she

> is

> > not removed from the situation she will eventually begin to cry.

> >

> > Does any of this stuff sound familiar to anyone? I know the

sensory

> > stuff does but what about the other stuff like the frustration

> > behavior? I'm not sure if this is typical behavior for an 18

month

> > old or even a 12 month old (which is more accurate for her

> > developmental age). Or can this be related to the MDS? Or can it

> just

> > be her personality? How can we tell?

> >

> > Any suggestions are appreciated. Thanks

> >

>

[Guest guest]

Hi Carmen, Your story sounds like my little Haileys life. Hailey

didnt walk until she was 18 months, Hailey has been doing speech

therapy since 6 months because alot of children w/DS and MDS have

speech delays. We started her on signing at about a yr old. She is

now five and Im continueing the signing but she just got a talking

device. She to only had a few words at that age. Hailey has now been

diagnosed with apraxia(speech disorder). She is 5 now. Its been a

long road so far. She also has been diagnosed with Mild autisium,

severe adhd,and SID(sensory disorder)In my experience there are alot

of behaviour issues that I believe to come from the lack of

communication. Hailey will still clench her teeth and throw things

out of frustration. Alot of behaviour problem also arise from the

sensory issues. Hailey never has liked being around alot of people or

alot of activity going on around her. She use to cry when we would

have family get togethers,and the crying and fussing would stop when

everyone would go home. Now she either goes off by herself or gets

very hyper and into everything. Like a cat in a bath.lol She didnt

like to be held at all when she was that age. That is getting better

with time. Also I dont want to scare you but my older daughter has

what they call mini seizures. She clinch down and bite her teeth but

she trembles as you described. Hailey doesnt tremble when she gets

frustrated and clenches her teeth. You might want to speak with her

Dr. about that. She might be haveing seizures. It is so hard to tell

when my dd is having one. Thats why I mentioned it. Its better to be

safe than sorry.I have been researching the sensory disorder and now

understand the disorder is what has caused alot of her behaviour

problems. I use to think she was just being bad and defiant. I wish I

would have know at birth what I know now.I still have alot to learn

but at least Im on the right road. I started Hailey early in speech

because I feared the worst. What if she doesnt talk. I figured if she

does talk at least she would be able to sign and teach others later

in life. She is getting better with that now that she understands she

is communicating and it gets her something.You just brought alot of

memorys back when I read your post. Your little one sounds alot like

Hailey. What a bleesing they are.

>

> Hi everyone,

>

> I new to this post. I have been reading messages daily and also

> reading Kristy's blog. All of the information has been very

helpful.

> I am just wondering how to decifer whether certain behaviors are

> related to MDS and which ones are not. My daughter Sydney is 18

> months old. She is great at cruising around the furniture and she

can

> take a couple of steps in between things sometimes. We have even

seen

> her stand up on her own for a few seconds. However she is not

walking

> on her own yet. She is also behind in speech as she can only say

> three words right now. We have not begun teaching her to sign and

we

> are unsure whether we want to begin with that right now.

>

> I can totally relate to talk about sensory issues because Sydney

> often acts like she is very sensitive to touch. She hates to have

her

> hair brushed and hates to be touched with lotion on her upper body.

> We have also noticed that she gets very easily frustrated sometimes

> when she is playing. She often begins to bang her toys or throw

them

> when she gets frustrated. I have also witnessed her get upset to

the

> point where she clinches her jaw and bites down on her teeth and

> starts to tremble a bit. We are also noticing that she is very

> sensitive to loud noises at times and she often does not do well in

> restaraunts or when she is around larger groups of people. She

often

> will start to get very cranky and make very loud noises and if she

is

> not removed from the situation she will eventually begin to cry.

>

> Does any of this stuff sound familiar to anyone? I know the sensory

> stuff does but what about the other stuff like the frustration

> behavior? I'm not sure if this is typical behavior for an 18 month

> old or even a 12 month old (which is more accurate for her

> developmental age). Or can this be related to the MDS? Or can it

just

> be her personality? How can we tell?

>

> Any suggestions are appreciated. Thanks

>

[Guest guest]

Hailey is still Hailey also. Im glad I got her diagnosis so I can

learn everything there is to learn. So that I can help her deal with

her disorders. I get tired of hearing her lables but without them I

wouldnt be able to learn what makes her tick and what there is out

there to help make her life a little easier. She has been diagnosed

with SID and I had alot of question.Thank god people answered them

and still do. I have learned so much that helps my understand my

child and why she does the things she does. Believe me Hailey has a

wonderful personality, she is smart,funny and very adventurest. She

has alot of likes and dislikes but I can tell what is typical

behaviour and out of the ordinary. Disorders do not define who my

daughter is. Hailey is Hailey and always will be.

>

> I guess my first impression of this question, came from a

different angle...

>

> My son with MDS is 15 now. I'm trying to recall if I asked myself

the same

> kinds of questions when he was a toddler...but really for the most

part, I

> remember always saying/thinking.... is . As far as

your daughters

> speech and walking delays, I would say those are absolutely MDS, as

we know

> that so many of the kids have the very same delays...I think my son

was around

> 21 mos before he was actually full blown walking around, and

honestly, he

> didn't really talk until about 5 years old- and when I say talk, I

mean, in

> sentences...he had single words, and maybe a few word phrases

before that, but

> that was about it (although, they can understand

EVERYTHING...processing the

> words is just a whole other thing for them!)

>

> I'm lumping the rest of my thoughts here, from another post about

sensory

> issues, and the second half of yours. I think we should be careful

to want to

> label things. Sometimes because a child/toddler doesn't like

something,

> doesn't mean its a sensory disorder....it could just be their

personality! I

> think, that unless there is a whole series of things that add up to

a concern to

> bring up to the doctor.............that we realize our kids are

just KIDS,

> MDS or not...........and they have good days and bad... things that

make them

> happy, and things that make them angry... mood swings... up times,

and down

> times.... their lil personalities come out so young!!

>

> I personally think I would WATCH for signs of things....but not be

too quick

> to attribute it to another type of disorder....or to feel that

everything

> needs to be attributed to the MDS.

>

> I hope I said that clearly....but not disrespectfully in any

way... hmph!

>

> I do know things can overlap though for sure...I've never had

> diagnosed...but I do believe he's developed some obsessive

compulsive issues as he's

> gotten older........he can't sleep unless his backpack is in a

certain

> place...his chair is tucked in....his video games have to be lined

up a certain way

> on the bookshelf...we had a MAJOR melt down, when a ball he keeps

in his

> backpack was taken out by his 5 yr old brother and

misplaced... But I also

> look at that as just part of who is.... so we try to respect

his

> space....

>

> Angel

> Mom to , 15 MDS/Hirschsprung's

> Lance 19, Ty 16, 13

> Jaeda 12 & Shayne 5

>

>

> In a message dated 6/16/2008 7:36:21 A.M. Mountain Daylight Time,

> cnpsyd@... writes:

>

> Hi everyone,

>

> I new to this post. I have been reading messages daily and also

> reading Kristy's blog. All of the information has been very

helpful.

> I am just wondering how to decifer whether certain behaviors are

> related to MDS and which ones are not. My daughter Sydney is 18

> months old. She is great at cruising around the furniture and she

can

> take a couple of steps in between things sometimes. We have even

seen

> her stand up on her own for a few seconds. However she is not

walking

> on her own yet. She is also behind in speech as she can only say

> three words right now. We have not begun teaching her to sign and

we

> are unsure whether we want to begin with that right now.

>

> I can totally relate to talk about sensory issues because Sydney

> often acts like she is very sensitive to touch. She hates to have

her

> hair brushed and hates to be touched with lotion on her upper

body.

> We have also noticed that she gets very easily frustrated

sometimes

> when she is playing. She often begins to bang her toys or throw

them

> when she gets frustrated. I have also witnessed her get upset to

the

> point where she clinches her jaw and bites down on her teeth and

> starts to tremble a bit. We are also noticing that she is very

> sensitive to loud noises at times and she often does not do well

in

> restaraunts or when she is around larger groups of people. She

often

> will start to get very cranky and make very loud noises and if she

is

> not removed from the situation she will eventually begin to cry.

>

> Does any of this stuff sound familiar to anyone? I know the

sensory

> stuff does but what about the other stuff like the frustration

> behavior? I'm not sure if this is typical behavior for an 18 month

> old or even a 12 month old (which is more accurate for her

> developmental age). Or can this be related to the MDS? Or can it

just

> be her personality? How can we tell?

>

> Any suggestions are appreciated. Thanks

>

>

> ------------------------------------

>

> Become a member of IMDSA today at http://www.imdsa.com

> *******************************************************

> Purchase your MDS awareness bracelet today!

http://www.imdsa.com/bracelets

>

**********************************************************************

****

> Contact IMDSA Today at:

> IMDSA~PO Box 1052~lin,TX~77856~USA~1-~1-888-MDS-

LINK

>

*********************************************************************

> Share your story today! http://www.mosaicdownsyndrome.com

> *********************************************************

> To unsubscribe from this list, send e-mail to:

> MosaicDS-unsubscribeegroups

> *************************************************

> To visit the e-group website go to:

http://groups.yahoo.com/group/MosaicDS/

> *************************************************Yahoo! Groups

Links

>

>

>

>

>

>

>

>

> **************Vote for your city's best dining and nightlife.

City's Best

> 2008. (http://citysbest.aol.com?ncid=aolacg00050000000102)

>

>

>

[Guest guest]

I too have been signing with Hailey since she was about a yr old. We

started teaching her about 6 months but she didnt get it until she

was a year old. I have recently gotten her a talking device. I

worried about her becomeing dependant on it. Quite to my surprise she

has done the opposite. She repeats alot of the words she hears on it.

Some of her words are getting clearer. Im so glad she took to it so

well. She can now tell me she is hungry and what she wants to eat,she

can tell me she wants to go outside,and she pushes the movies button

and tells me which movie she wants to watch. It was so funny the

other evening she kept asking to go outside(on her talk board)I kept

telling her no because it was almost dark....then she pushed please

go outside please....well that was it lol we went outside. How could

you say no. It felt so good to communicate with her. She also

understood her manors might get her what she wanted. It was funny. I

was so proud of her. The talking device has opened up a whole new

world for us. She still signs some stuff and Im going to continue

that with her. I think that was great advice you gave and so true.

> > >

> > > Hi everyone,

> > >

> > > I new to this post. I have been reading messages daily and also

> > > reading Kristy's blog. All of the information has been very

> > helpful.

> > > I am just wondering how to decifer whether certain behaviors

are

> > > related to MDS and which ones are not. My daughter Sydney is 18

> > > months old. She is great at cruising around the furniture and

she

> > can

> > > take a couple of steps in between things sometimes. We have

even

> > seen

> > > her stand up on her own for a few seconds. However she is not

> > walking

> > > on her own yet. She is also behind in speech as she can only

say

> > > three words right now. We have not begun teaching her to sign

and

> > we

> > > are unsure whether we want to begin with that right now.

> > >

> > > I can totally relate to talk about sensory issues because

Sydney

> > > often acts like she is very sensitive to touch. She hates to

have

> > her

> > > hair brushed and hates to be touched with lotion on her upper

> body.

> > > We have also noticed that she gets very easily frustrated

> sometimes

> > > when she is playing. She often begins to bang her toys or throw

> > them

> > > when she gets frustrated. I have also witnessed her get upset

to

> > the

> > > point where she clinches her jaw and bites down on her teeth

and

> > > starts to tremble a bit. We are also noticing that she is very

> > > sensitive to loud noises at times and she often does not do

well

> in

> > > restaraunts or when she is around larger groups of people. She

> > often

> > > will start to get very cranky and make very loud noises and if

> she

> > is

> > > not removed from the situation she will eventually begin to cry.

> > >

> > > Does any of this stuff sound familiar to anyone? I know the

> sensory

> > > stuff does but what about the other stuff like the frustration

> > > behavior? I'm not sure if this is typical behavior for an 18

> month

> > > old or even a 12 month old (which is more accurate for her

> > > developmental age). Or can this be related to the MDS? Or can

it

> > just

> > > be her personality? How can we tell?

> > >

> > > Any suggestions are appreciated. Thanks

> > >

> >

>

>

>

>

>

>

>

[Guest guest]

Oh , I feel your pain. My first son who is now 26 went through

that for about 1.5years. It started at 2 and I didnt think it was

ever gonna stop. I did the same thing you are doing. I didnt care how

long it took or how people looked at me. I just let him have his

crying time and he would quit and get up. I was so embaressed but it

worked. He didnt do it but about 6 months in public but it took a

year and a half for it to stop at home.He had to learn he wasnt

always gonna be able to get what he wanted. Hailey doesnt throw fits

like that but I dont let her get away with bad behaviour just because

she has disabilities. She has to learn too. She is a runner and pulls

like crazy to get away from you. It is a nightmare to go outside just

to try and talk to a neighbor. Forget going to the store. I just

bought a leash. We are going to the beach and I didnt want her to get

away from me. So that will be new to both of us. Ill let you know how

that goes....lol Wish me luck

> > >

> > > Hi everyone,

> > >

> > > I new to this post. I have been reading messages daily and also

> > > reading Kristy's blog. All of the information has been very

> > helpful.

> > > I am just wondering how to decifer whether certain behaviors

are

> > > related to MDS and which ones are not. My daughter Sydney is 18

> > > months old. She is great at cruising around the furniture and

she

> > can

> > > take a couple of steps in between things sometimes. We have

even

> > seen

> > > her stand up on her own for a few seconds. However she is not

> > walking

> > > on her own yet. She is also behind in speech as she can only

say

> > > three words right now. We have not begun teaching her to sign

and

> > we

> > > are unsure whether we want to begin with that right now.

> > >

> > > I can totally relate to talk about sensory issues because

Sydney

> > > often acts like she is very sensitive to touch. She hates to

have

> > her

> > > hair brushed and hates to be touched with lotion on her upper

> body.

> > > We have also noticed that she gets very easily frustrated

> sometimes

> > > when she is playing. She often begins to bang her toys or throw

> > them

> > > when she gets frustrated. I have also witnessed her get upset

to

> > the

> > > point where she clinches her jaw and bites down on her teeth

and

> > > starts to tremble a bit. We are also noticing that she is very

> > > sensitive to loud noises at times and she often does not do

well

> in

> > > restaraunts or when she is around larger groups of people. She

> > often

> > > will start to get very cranky and make very loud noises and if

> she

> > is

> > > not removed from the situation she will eventually begin to cry.

> > >

> > > Does any of this stuff sound familiar to anyone? I know the

> sensory

> > > stuff does but what about the other stuff like the frustration

> > > behavior? I'm not sure if this is typical behavior for an 18

> month

> > > old or even a 12 month old (which is more accurate for her

> > > developmental age). Or can this be related to the MDS? Or can

it

> > just

> > > be her personality? How can we tell?

> > >

> > > Any suggestions are appreciated. Thanks

> > >

> >

>

>

[Guest guest]

, That is to funny. Thank goodness Haileys leash doesnt have

velcro. It clips on in the back and the front clips too.It looks like

a teddy bear book bag. Hailey is a little escape artist too. She is

very quick at getting away that is the main reason I bought it. I

know there will be alot of traffic there and I just dont want to take

the chance on her getting away from me an running out in the road. I

hope it doesnt bother her to bad. Time will tell.

> > > >

> > > > Hi everyone,

> > > >

> > > > I new to this post. I have been reading messages daily and

also

> > > > reading Kristy's blog. All of the information has been very

> > > helpful.

> > > > I am just wondering how to decifer whether certain behaviors

> are

> > > > related to MDS and which ones are not. My daughter Sydney is

18

> > > > months old. She is great at cruising around the furniture and

> she

> > > can

> > > > take a couple of steps in between things sometimes. We have

> even

> > > seen

> > > > her stand up on her own for a few seconds. However she is not

> > > walking

> > > > on her own yet. She is also behind in speech as she can only

> say

> > > > three words right now. We have not begun teaching her to sign

> and

> > > we

> > > > are unsure whether we want to begin with that right now.

> > > >

> > > > I can totally relate to talk about sensory issues because

> Sydney

> > > > often acts like she is very sensitive to touch. She hates to

> have

> > > her

> > > > hair brushed and hates to be touched with lotion on her upper

> > body.

> > > > We have also noticed that she gets very easily frustrated

> > sometimes

> > > > when she is playing. She often begins to bang her toys or

throw

> > > them

> > > > when she gets frustrated. I have also witnessed her get upset

> to

> > > the

> > > > point where she clinches her jaw and bites down on her teeth

> and

> > > > starts to tremble a bit. We are also noticing that she is

very

> > > > sensitive to loud noises at times and she often does not do

> well

> > in

> > > > restaraunts or when she is around larger groups of people.

She

> > > often

> > > > will start to get very cranky and make very loud noises and

if

> > she

> > > is

> > > > not removed from the situation she will eventually begin to

cry.

> > > >

> > > > Does any of this stuff sound familiar to anyone? I know the

> > sensory

> > > > stuff does but what about the other stuff like the

frustration

> > > > behavior? I'm not sure if this is typical behavior for an 18

> > month

> > > > old or even a 12 month old (which is more accurate for her

> > > > developmental age). Or can this be related to the MDS? Or can

> it

> > > just

> > > > be her personality? How can we tell?

> > > >

> > > > Any suggestions are appreciated. Thanks

> > > >

> > >

> >

> >

[Guest guest]

, Where did you get the one you have. The one I have looks a

little small on Hailey too. I think I can get by with it to go to the

beach but its not gonna last much longer. I like the idea of it being

on her arm. I got mine at Walmart.

> > > > >

> > > > > Hi everyone,

> > > > >

> > > > > I new to this post. I have been reading messages daily and

> also

> > > > > reading Kristy's blog. All of the information has been very

> > > > helpful.

> > > > > I am just wondering how to decifer whether certain

behaviors

> > are

> > > > > related to MDS and which ones are not. My daughter Sydney

is

> 18

> > > > > months old. She is great at cruising around the furniture

and

> > she

> > > > can

> > > > > take a couple of steps in between things sometimes. We have

> > even

> > > > seen

> > > > > her stand up on her own for a few seconds. However she is

not

> > > > walking

> > > > > on her own yet. She is also behind in speech as she can

only

> > say

> > > > > three words right now. We have not begun teaching her to

sign

> > and

> > > > we

> > > > > are unsure whether we want to begin with that right now.

> > > > >

> > > > > I can totally relate to talk about sensory issues because

> > Sydney

> > > > > often acts like she is very sensitive to touch. She hates

to

> > have

> > > > her

> > > > > hair brushed and hates to be touched with lotion on her

upper

> > > body.

> > > > > We have also noticed that she gets very easily frustrated

> > > sometimes

> > > > > when she is playing. She often begins to bang her toys or

> throw

> > > > them

> > > > > when she gets frustrated. I have also witnessed her get

upset

> > to

> > > > the

> > > > > point where she clinches her jaw and bites down on her

teeth

> > and

> > > > > starts to tremble a bit. We are also noticing that she is

> very

> > > > > sensitive to loud noises at times and she often does not do

> > well

> > > in

> > > > > restaraunts or when she is around larger groups of people.

> She

> > > > often

> > > > > will start to get very cranky and make very loud noises and

> if

> > > she

> > > > is

> > > > > not removed from the situation she will eventually begin to

> cry.

> > > > >

> > > > > Does any of this stuff sound familiar to anyone? I know the

> > > sensory

> > > > > stuff does but what about the other stuff like the

> frustration

> > > > > behavior? I'm not sure if this is typical behavior for an

18

> > > month

> > > > > old or even a 12 month old (which is more accurate for her

> > > > > developmental age). Or can this be related to the MDS? Or

can

> > it

> > > > just

> > > > > be her personality? How can we tell?

> > > > >

> > > > > Any suggestions are appreciated. Thanks

> > > > >

> > > >

> > >

> > >