Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 , I think you need to get an ok from someone at the AD organization to do that. We have had some stuff in the past with the AD organization and they may get mad if you do it without AD approval. Our LBDA needs to do their own thing and maybe they will come up with a fund raiser that will let the caregivers do some of that kind of thing. How about you send the Board at LBDA a suggestion of any idea you might have to do a fundraiser? I just think we need to be careful not to step on the AD's toes. We have just made some progression in working with them in some areas. is working with them in the UK. And Carol is working with them in Florida. Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Memory Walk MA So here's my plan... Alz Assoc. is having a Memory Walk in MA. Obviously they're raising money for Alz... So I was thinking that I'd do the walk -- play by the rules and raise money for Alz. BUT pass out flyers about LBD and wear a T-shirt that reads " Ask Me About LBD, Lewy Body Dementia " (or something like that). Maybe when I'm getting sponsors I can let them know my plans and then I can give 1/2 to Alz. Assoc. and 1/2 to LBDA... Any other ideas? I can call myself " Moe's Team " -- remember? Go Moe! Go Moe! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2006 Report Share Posted August 24, 2006 This sounds like a great idea but I'm worried that perhaps the organizers won't be too happy about the T-shirt??????? Courage wrote: > So here's my plan... Alz Assoc. is having a Memory Walk in MA. > Obviously they're raising money for Alz... So I was thinking that I'd > do the walk -- play by the rules and raise money for Alz. BUT pass out > flyers about LBD and wear a T-shirt that reads " Ask Me About LBD, Lewy > Body Dementia " (or something like that). Maybe when I'm getting > sponsors I can let them know my plans and then I can give 1/2 to Alz. > Assoc. and 1/2 to LBDA... Any other ideas? > > I can call myself " Moe's Team " -- remember? Go Moe! Go Moe! > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 25, 2006 Report Share Posted August 25, 2006 Sounds as if you have it nailed down very well, . Imogene In a message dated 8/24/2006 6:40:09 AM Central Daylight Time, octoryrose@... writes: So here's my plan... Alz Assoc. is having a Memory Walk in MA. Obviously they're raising money for Alz... So I was thinking that I'd do the walk -- play by the rules and raise money for Alz. BUT pass out flyers about LBD and wear a T-shirt that reads " Ask Me About LBD, Lewy Body Dementia " (or something like that). Maybe when I'm getting sponsors I can let them know my plans and then I can give 1/2 to Alz. Assoc. and 1/2 to LBDA... Any other ideas? I can call myself " Moe's Team " -- remember? Go Moe! Go Moe! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 Hey everybody. I'm all signed up. Visit my personal page: http://www.kintera.org/faf/r.asp?t=4 & i=160726 & u=160726-144698850 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 28, 2006 Report Share Posted August 28, 2006 wow, !!!! great job, hugs, sharon m ---- wrote: Hey everybody. I'm all signed up. Visit my personal page: http://www.kintera.org/faf/r.asp?t=4 & i=160726 & u=160726-144698850 -- Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall 7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration pneumonia and uti 8/05, died of blood pressure drop on 9/25/05, may he rest in peace with his mom and dad, a smile a day keeps the meanies away Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 29, 2006 Report Share Posted August 29, 2006 , I have just gotten around to looking at your site. It looks good. I wouldn't be able to help but just a little. The only thing is I would rather send a check, and that doesn't seem to be allowed. I do not send my credit card number over the internet. I haven't learned to feel safe with it yet. Is it? Imogene In a message dated 8/28/2006 5:38:25 AM Central Daylight Time, octoryrose@... writes: Hey everybody. I'm all signed up. Visit my personal page: _http://www.kintera.http://wwwhttp:// & i=i=<WBR & u=u=<WBR>160726-14_ (http://www.kintera.org/faf/r.asp?t=4 & i=160726 & u=160726-144698850) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Please know that I didn't post the link to request donations. Just wanted to show you all what my plan is in spreading the word about LBD. But if you insist - from the web page there is a form to print to mail a check in. If you need further info you can send me a personal email. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I'll have to read it a little closer. I think it is a good thing, and wanted to help if just a little bit. Every little bit helps. I want to see our LBD association get all the help it can, because my dear one suffers from it, and I want to see progress made in finding ways to ease his illness, even if not cure it right now. But, in time find the cause and a cure for it. Imogene In a message dated 8/30/2006 6:03:10 AM Central Daylight Time, octoryrose@... writes: Please know that I didn't post the link to request donations. Just wanted to show you all what my plan is in spreading the word about LBD. But if you insist - from the web page there is a form to print to mail a check in. If you need further info you can send me a personal email. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 Well, that do make a difference. I have donated to LBD by check, and indirectly by sending Sharon M. A few pieces of clothing to sell, then give a portion of the funds (just pennies in this case) to LBD. Every little bit helps. Imogene In a message dated 8/30/2006 3:52:02 PM Central Daylight Time, octoryrose@... writes: I appreciate it -- but as a reminder, the money raised goes to Alz. Assoc., MA Chapter, not LBDA. What I'm doing for LBD is raising awareness -- but it's an ALZ. Assoc. event... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2006 Report Share Posted August 30, 2006 I appreciate it -- but as a reminder, the money raised goes to Alz. Assoc., MA Chapter, not LBDA. What I'm doing for LBD is raising awareness -- but it's an ALZ. Assoc. event... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 BTW -- didn't mention that the NH my mom is at will have a team during the Memory Walk too. And I just found out that they're having a table set up too -- about music therapy. This NH is great with their music therapy. They have two FT girls who perform to the residents daily. Mom loves it... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2006 Report Share Posted September 8, 2006 Hi , It sounds like you found a very good facility and that they take good care of your mother...very lucky. Congratulations on your new job!! Daughter of Bill, 91 > > BTW -- didn't mention that the NH my mom is at will have a team during > the Memory Walk too. And I just found out that they're having a table > set up too -- about music therapy. This NH is great with their music > therapy. They have two FT girls who perform to the residents daily. Mom > loves it... > > > Quote Link to comment Share on other sites More sharing options...
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