Guest guest Posted October 8, 2007 Report Share Posted October 8, 2007 I don’t know about the jerking. My Dad had familial tremor – so his hands shook, and the anti-psychotic drugs he took to stop the hallucinations amplified the tremor… I DO think they have some level of awareness with LBD. My Dad had lost the mental capacity to do too many things and still swallow – so he drooled – especially when he was tired. After several months (2-4 months) of drooling, he was able to figure out he could clean up his drool with Kleenexes (which he NEVER used in his life prior to this, he used his hanky for nose blowing…) I realize now that the point when the Adult Day Care place said they couldn’t keep him awake – should have made me realize where we were… at the end stage… HTH, Debbie in SoCal _____ From: LBDcaregivers [mailto:LBDcaregivers ] On Behalf Of Lynn Sent: Monday, October 08, 2007 10:39 AM To: LBD support Subject: moms condition Hi group, I need to know if anyone has experienced there loved one jerking? My mom has started little jerks from time to time. I also tried to explain to her about her disease. When I was done I asked her for a kiss and put my lips to her and she was able to kiss me. Do you think that is an indication that she understood anything I said? She is sleeping more and eating less. What does the mottling look like? I'm not sure if i'm seing it or not. Please pray that the Lord would be good too her and spare her pain. And mine! Love to all, Lynn --------------------------------- Shape Yahoo! in your own image. Join our Network Research Panel today! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 9, 2007 Report Share Posted October 9, 2007 My mom didn't have too much jerking - but once in awhile I'd see it. From the responses it seems that it can be common w/ those w/ LBD. Your mom kissing you meant that she did understand your request and she wanted to kiss her little girl. I would take all these little miracles and enjoy every one of them. We've all been there where it was those little 'moments of joy' that kept us going. Mom lucid enough to kiss me goodbye gave me butterflies, mom telling me that she loved me gave me goosebumps... Unless you've been through a disease like LBD, you don't understnad the little miracles -- but we do... Just enjoy them all -- they are gifts to you! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Dena, Did you say you are caring for a couple of aunts and an uncle as well as your Mom? Dena LEAVITT <d_j_leavitt@yaho o.com> To Sent by: LBDcaregivers LBDcaregivers@yah cc oogroups.com Subject Re: Re: Moms 10/11/2007 11:25 condition AM Please respond to LBDcaregivers@yah oogroups.com Hi Thank you for thinking of me. It has been a long road for the " end stage " of this awful disease. I try not to dwell on that because it just makes it all harder to do day to day. I am thankful for the days months etc...with her. The one thing that always helps me through besides God, is that I feel that she is so out of it most of the time that she is not aware of time or where she is. She has never asked to go home or anything as she cannot put her words together enough to make a statement. Usually it is just moaning, but occasionally I will hear a word that I recognize. She has not given me any indication that she knows me in 20 or more months now. That is the saddest part of her disease. Yet, it is a blessing too. It is like her soul has gone on and her shell of a body remains. I don't believe that can happen, but that is the best way that I can describe it. Does that make any sense to you? My mom is a different case than most. I know usually the patients do recognize their LO's up until the very end. I do try to be joyful, but some days I just do not want to get out of bed. But I am caring for her sisters and brother, so I must. I feel I am right where I am suppose to be and what more could I ask for. Dena in SoCal Mother(84)Almost 85. Existing with LBD in NH --- stimtimminss wrote: > Yes Dena, your mom must be a very strong woman with > good care. I think of you often. > This has been a very long end of journey for you. > > , Oakville Ont. > > Mother, age 92, died Aug. 12/06 after 13 year > decline from PDD > > > > > > > Thank you group for your input about what signs > to > > > look for on my moms body . That helps me. She > does > > > have the P that goes with the LBD. > > > Well today was a hard time for me. I had to > > > report for jury duty this morning. Dave went to > > > stay at moms for a while since he didn't have to > > > work till noon. He thought my mom was on her > last > > > hours and here I am stuck at court! God is good! > I > > > got out of it by noon . They didn't need my > group. > > > I rushed over to see her and she was actually > eating > > > what was being fed to her. She was still in > outer > > > space but her eyes were wide open. Go figure!!! > I > > > guess God is using this roller coaster time to > > > transform something in me but I hate it. She > has > > > had weird BM's 4 yesturday and at least 2 today. > I > > > think maybe things are shutting down. What do > you > > > think? I am worn out. I cry a lot. My mother > wasn't > > > there for me when she should have been, yet I > know > > > she didn't know any better. She loved me > inspite of > > > her inability to take care of me during > difficult > > > times in my life. But I forgive her for she > knew > > > not what she did. I love her and I am there for > her > > > whatever happens. I > > > want to be there for her when she passes. I > didn't > > > even get to say goodbye to my dad. I guess this > is > > > my way to deal with the pain.Or is being there > > > sadistic on my part. Any way tomorrow is another > day > > > in Lewyland. > > > I appreciate everyone of you and wish I could > > > thank you all in person and maybe someday I can! > > > God Bless, > > > Lynn S. > > > p.s. Some people go to Disnyland for fun, We > go > > > to Lewyland for craziness!!!!! > > > > > > > > > --------------------------------- > > > Don't let your dream ride pass you by. Make > it a > > > reality with Yahoo! Autos. > > > > > > [Non-text portions of this message have been > > > removed] > > > > > > > > > > > > > > > > > __________________________________________________________ > > Boardwalk for $500? In 2007? Ha! Play Monopoly > Here and Now (it's updated for today's > economy) at Yahoo! Games. > > > http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow > > > > > __________________________________________________________ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Hi Dena, I never felt Mom's " soul " was gone, but I did feel who she had been was gone leaving only the shell of herself. Yes, what you describe makes perfect sense. Many of us have expressed the sentiment in different ways, but it boils down to the fact that all that seems to be left of our LOs is the physical. The way you describe your mother makes me wonder if there is some alzheimers going on along with the LBD? I'm sure you have learned to pace yourself to keep on going day to day for so long. > > > > > > > Thank you group for your input about what signs > > to > > > > look for on my moms body . That helps me. She > > does > > > > have the P that goes with the LBD. > > > > Well today was a hard time for me. I had to > > > > report for jury duty this morning. Dave went to > > > > stay at moms for a while since he didn't have to > > > > work till noon. He thought my mom was on her > > last > > > > hours and here I am stuck at court! God is good! > > I > > > > got out of it by noon . They didn't need my > > group. > > > > I rushed over to see her and she was actually > > eating > > > > what was being fed to her. She was still in > > outer > > > > space but her eyes were wide open. Go figure!!! > > I > > > > guess God is using this roller coaster time to > > > > transform something in me but I hate it. She > > has > > > > had weird BM's 4 yesturday and at least 2 today. > > I > > > > think maybe things are shutting down. What do > > you > > > > think? I am worn out. I cry a lot. My mother > > wasn't > > > > there for me when she should have been, yet I > > know > > > > she didn't know any better. She loved me > > inspite of > > > > her inability to take care of me during > > difficult > > > > times in my life. But I forgive her for she > > knew > > > > not what she did. I love her and I am there for > > her > > > > whatever happens. I > > > > want to be there for her when she passes. I > > didn't > > > > even get to say goodbye to my dad. I guess this > > is > > > > my way to deal with the pain.Or is being there > > > > sadistic on my part. Any way tomorrow is another > > day > > > > in Lewyland. > > > > I appreciate everyone of you and wish I could > > > > thank you all in person and maybe someday I can! > > > > God Bless, > > > > Lynn S. > > > > p.s. Some people go to Disnyland for fun, We > > go > > > > to Lewyland for craziness!!!!! > > > > > > > > > > > > --------------------------------- > > > > Don't let your dream ride pass you by. Make > > it a > > > > reality with Yahoo! Autos. > > > > > > > > [Non-text portions of this message have been > > > > removed] > > > > > > > > > > > > > > > > > > > > > > > > > > ________________________________________________________________________________\ ____ > > > Boardwalk for $500? In 2007? Ha! Play Monopoly > > Here and Now (it's updated for today's > > economy) at Yahoo! Games. > > > > > > http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow > > > > > > > > > > > > > > ________________________________________________________________________________\ ____ > Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. > http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 My daughter said to me one day - oh, gosh, maybe a year ago - not that long after Mom had finally been diagnosed with LBD. " It's almost like Grandma's soul has already gone on to heaven, and her body is just kinda stuck here. " Stinks, huh? I came to love the Lewy version of my Mom - but as we were going over the bins of old photos for my Mom's memorial service (we put up display boards with photos of her through every stage of life) - we realized how much I missed the REAL Mom, and how thankful I was she's now at HOME with her Lord. Blessings, Dina Care Manager to Mom, aged 67 dx'd with LBD 10/2006 Home with the Lord 9/15/07 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 My mom does have Alzheimer's too. It is a mix of both according to the Geriatric Dr. I guess as much as they can diagnose it anyway. She took good care of herself, so she is in pretty good health for almost 85. Dena in SoCal Mother (84)Existing with LBD in NH --- stimtimminss wrote: > Hi Dena, > I never felt Mom's " soul " was gone, but I did feel > who she had been was gone leaving only > the shell of herself. Yes, what you describe makes > perfect sense. Many of us have > expressed the sentiment in different ways, but it > boils down to the fact that all that seems > to be left of our LOs is the physical. The way you > describe your mother makes me wonder > if there is some alzheimers going on along with the > LBD? I'm sure you have learned to > pace yourself to keep on going day to day for so > long. > > > > > > > > > > > > Thank you group for your input about what > signs > > > to > > > > > look for on my moms body . That helps me. > She > > > does > > > > > have the P that goes with the LBD. > > > > > Well today was a hard time for me. I had > to > > > > > report for jury duty this morning. Dave > went to > > > > > stay at moms for a while since he didn't > have to > > > > > work till noon. He thought my mom was on her > > > last > > > > > hours and here I am stuck at court! God is > good! > > > I > > > > > got out of it by noon . They didn't need my > > > group. > > > > > I rushed over to see her and she was > actually > > > eating > > > > > what was being fed to her. She was still in > > > outer > > > > > space but her eyes were wide open. Go > figure!!! > > > I > > > > > guess God is using this roller coaster time > to > > > > > transform something in me but I hate it. > She > > > has > > > > > had weird BM's 4 yesturday and at least 2 > today. > > > I > > > > > think maybe things are shutting down. What > do > > > you > > > > > think? I am worn out. I cry a lot. My > mother > > > wasn't > > > > > there for me when she should have been, yet > I > > > know > > > > > she didn't know any better. She loved me > > > inspite of > > > > > her inability to take care of me during > > > difficult > > > > > times in my life. But I forgive her for she > > > knew > > > > > not what she did. I love her and I am there > for > > > her > > > > > whatever happens. I > > > > > want to be there for her when she passes. > I > > > didn't > > > > > even get to say goodbye to my dad. I guess > this > > > is > > > > > my way to deal with the pain.Or is being > there > > > > > sadistic on my part. Any way tomorrow is > another > > > day > > > > > in Lewyland. > > > > > I appreciate everyone of you and wish I > could > > > > > thank you all in person and maybe someday I > can! > > > > > God Bless, > > > > > Lynn S. > > > > > p.s. Some people go to Disnyland for fun, > We > > > go > > > > > to Lewyland for craziness!!!!! > > > > > > > > > > > > > > > --------------------------------- > > > > > Don't let your dream ride pass you by. > Make > > > it a > > > > > reality with Yahoo! Autos. > > > > > > > > > > [Non-text portions of this message have been > > > > > removed] > > > > > > > > > > > > > > > > > > > === message truncated === ________________________________________________________________________________\ ____ Shape Yahoo! in your own image. Join our Network Research Panel today! http://surveylink.yahoo.com/gmrs/yahoo_panel_invite.asp?a=7 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Yes, I did. I do meals for my Uncle who is 82. He has had heart surgery twice and needs a procedure to fix a flutter now. His children live in Sacramento and San Diego. I take him dinner about 3 times a week and to his Dr. appts etc.. One aunt who is 75 and in good health just discovered a large mass in her abdomen and will need surgery soon. She is doing well and cares for her self mostly. Her children live in Oregon and he lives here in SoCal.I will probably help her after surgery if her daughter does not come down. Then my other aunt is 80. She has no children, never married. She broke her hip last December and then has had two falls since. I do her laundry, grocery shopping, banking, doctor appts, take out her trash and bring it in, turn on her water for her lawn and flowers etc... She is a hard person to be around sometimes too. She can be rather nasty at times. She has really bad arthritis and is EXTREMELY stubborn!! She lived with us for two months after her hip injury. I think eventually she will be back on a permanent basics. Having said all that, I know without a doubt that I am doing exactly what I am suppose to do. So I really do not mind. I am still traveling (Caribbean in Nov) and able to help on a daily basis all I can. I ask myself everyday this question. What have I do to help someone else today? I almost always have two or three things that I have done and that is so fulfilling for me. God has me here for a very good reason. Dena in SoCal Mother (84)Existing with LBD in NH --- Normal@... wrote: > > Dena, > > Did you say you are caring for a couple of aunts and > an uncle as well as > your Mom? > > > > > > Dena LEAVITT > > <d_j_leavitt@yaho > > o.com> > To > Sent by: > LBDcaregivers > LBDcaregivers@yah > cc > oogroups.com > > > Subject > Re: > Re: Moms > 10/11/2007 11:25 condition > > AM > > > > > > Please respond to > > LBDcaregivers@yah > > oogroups.com > > > > > > > > > > > > > Hi > > Thank you for thinking of me. It has been a long > road > for the " end stage " of this awful disease. I try not > to dwell on that because it just makes it all harder > to do day to day. I am thankful for the days months > etc...with her. The one thing that always helps me > through besides God, is that I feel that she is so > out > of it most of the time that she is not aware of time > or where she is. She has never asked to go home or > anything as she cannot put her words together enough > to make a statement. Usually it is just moaning, but > occasionally I will hear a word that I recognize. > She > has not given me any indication that she knows me in > 20 or more months now. That is the saddest part of > her > disease. Yet, it is a blessing too. It is like her > soul has gone on and her shell of a body remains. I > don't believe that can happen, but that is the best > way that I can describe it. Does that make any sense > to you? My mom is a different case than most. I know > usually the patients do recognize their LO's up > until > the very end. > I do try to be joyful, but some days I just do not > want to get out of bed. But I am caring for her > sisters and brother, so I must. I feel I am right > where I am suppose to be and what more could I ask > for. > > Dena in SoCal > Mother(84)Almost 85. Existing with LBD in NH > > --- stimtimminss wrote: > > > Yes Dena, your mom must be a very strong woman > with > > good care. I think of you often. > > This has been a very long end of journey for you. > > > > , Oakville Ont. > > > > Mother, age 92, died Aug. 12/06 after 13 year > > decline from PDD > > > > > > > > > > > Thank you group for your input about what > signs > > to > > > > look for on my moms body . That helps me. She > > does > > > > have the P that goes with the LBD. > > > > Well today was a hard time for me. I had to > > > > report for jury duty this morning. Dave went > to > > > > stay at moms for a while since he didn't have > to > > > > work till noon. He thought my mom was on her > > last > > > > hours and here I am stuck at court! God is > good! > > I > > > > got out of it by noon . They didn't need my > > group. > > > > I rushed over to see her and she was actually > > eating > > > > what was being fed to her. She was still in > > outer > > > > space but her eyes were wide open. Go > figure!!! > > I > > > > guess God is using this roller coaster time to > > > > transform something in me but I hate it. She > > has > > > > had weird BM's 4 yesturday and at least 2 > today. > > I > > > > think maybe things are shutting down. What do > > you > > > > think? I am worn out. I cry a lot. My mother > > wasn't > > > > there for me when she should have been, yet I > > know > > > > she didn't know any better. She loved me > > inspite of > > > > her inability to take care of me during > > difficult > > > > times in my life. But I forgive her for she > > knew > > > > not what she did. I love her and I am there > for > > her > > > > whatever happens. I > > > > want to be there for her when she passes. I > > didn't > > > > even get to say goodbye to my dad. I guess > this > > is > > > > my way to deal with the pain.Or is being there > > > > sadistic on my part. Any way tomorrow is > another > > day > > > > in Lewyland. > > > > I appreciate everyone of you and wish I > could > > > > thank you all in person and maybe someday I > can! > > > > God Bless, > > > > Lynn S. > > > > p.s. Some people go to Disnyland for fun, > We > > go > > > > to Lewyland for craziness!!!!! > > > > > > > > > > > > --------------------------------- > > > > Don't let your dream ride pass you by. Make > > it a > > > > reality with Yahoo! Autos. > > > > > > > > [Non-text portions of this message have been > === message truncated === ________________________________________________________________________________\ ____ Check out the hottest 2008 models today at Yahoo! Autos. http://autos.yahoo.com/new_cars.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Oh Stacey, We are living the same life! My aunt should be in assisted living, but I am her assisted living caregiver even though she is still in her own home. I go over anywhere from one to four times a day. Fortunately it is in the same town as where I live. Only 10 minutes away. Was your meeting uncomfortable? How sad for everyone. My husband use to work a lot, but moved to a different dept and works a lot less now. He hopes to retire next year. However, if my aunt comes to live with us he may continue to work. She is pretty hard to deal with. I will keep you in my prayers Stacey. Dena in SoCal Mother (84)Existing with LBD in NH --- Stacey Klein wrote: > Dena, > Wow, sometimes I feel that I am here for the same > reason. That this is my purpose in life - to take > care of people. > > I took care of my husband¢s uncle for 2 years. He > was in assisted living but I did shopping for > him/with him, doctor¢s appts. etc. I used to take > him with me to deliver Meal On Wheels. I thought it > would be good to get him out of facility and do > something good for people. He has since passed > away. > > For the last 3 years I am taking care of MIL and > FIL (both with dementia). MIL is in our home now > (with caregiver) but I watch her when caregiver > takes some time off. FIL is in dementia assisted > living and I take him for doctor¢s appts, do his > shopping, etc. > > Today I had a family meeting at facility with > geriatric psychiatrist, nursing staff and another > family because my FIL has started a relationship > with another resident. (He thinks she is my MIL!!) > They are mutually consenting but this woman just > lost her husband and in a sense my FIL has lost his > wife. > > My husband travels alot for business and DOES > appreciate all that I do for his family and it makes > me feel good to do this. > > Stacey > > > > Re: Re: Moms condition > > Yes, I did. I do meals for my Uncle who is 82. He > has > had heart surgery twice and needs a procedure to fix > a > flutter now. His children live in Sacramento and San > Diego. I take him dinner about 3 times a week and to > his Dr. appts etc.. One aunt who is 75 and in good > health just discovered a large mass in her abdomen > and > will need surgery soon. She is doing well and cares > for her self mostly. Her children live in Oregon and > he lives here in SoCal.I will probably help her > after > surgery if her daughter does not come down. Then my > other aunt is 80. She has no children, never > married. > She broke her hip last December and then has had two > falls since. I do her laundry, grocery shopping, > banking, doctor appts, take out her trash and bring > it > in, turn on her water for her lawn and flowers > etc... > She is a hard person to be around sometimes too. She > can be rather nasty at times. She has really bad > arthritis and is EXTREMELY stubborn!! She lived with > us for two months after her hip injury. I think > eventually she will be back on a permanent basics. > Having said all that, I know without a doubt that I > am > doing exactly what I am suppose to do. So I really > do > not mind. I am still traveling (Caribbean in Nov) > and > able to help on a daily basis all I can. I ask > myself > everyday this question. What have I do to help > someone > else today? I almost always have two or three things > that I have done and that is so fulfilling for me. > God > has me here for a very good reason. > > Dena in SoCal > Mother (84)Existing with LBD in NH > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Ron, Thanks for the encouragement! Dena in SoCal Mother (84)Existing with LBD in NH --- ron frye wrote: > Dena, Wow, Your actions and your attitude are a true > inspiration.Thank you for sharing this.God Bless Ron > > Dena LEAVITT wrote: > Yes, I did. I do meals for my Uncle who is 82. He > has > had heart surgery twice and needs a procedure to fix > a > flutter now. His children live in Sacramento and San > Diego. I take him dinner about 3 times a week and to > his Dr. appts etc.. One aunt who is 75 and in good > health just discovered a large mass in her abdomen > and > will need surgery soon. She is doing well and cares > for her self mostly. Her children live in Oregon and > he lives here in SoCal.I will probably help her > after > surgery if her daughter does not come down. Then my > other aunt is 80. She has no children, never > married. > She broke her hip last December and then has had two > falls since. I do her laundry, grocery shopping, > banking, doctor appts, take out her trash and bring > it > in, turn on her water for her lawn and flowers > etc... > She is a hard person to be around sometimes too. She > can be rather nasty at times. She has really bad > arthritis and is EXTREMELY stubborn!! She lived with > us for two months after her hip injury. I think > eventually she will be back on a permanent basics. > Having said all that, I know without a doubt that I > am > doing exactly what I am suppose to do. So I really > do > not mind. I am still traveling (Caribbean in Nov) > and > able to help on a daily basis all I can. I ask > myself > everyday this question. What have I do to help > someone > else today? I almost always have two or three things > that I have done and that is so fulfilling for me. > God > has me here for a very good reason. > > Dena in SoCal > Mother (84)Existing with LBD in NH > > --- Normal@... wrote: > > > > > Dena, > > > > Did you say you are caring for a couple of aunts > and > > an uncle as well as > > your Mom? > > > > > > > > > > > > Dena LEAVITT > > > > <d_j_leavitt@yaho > > > > o.com> > > To > > Sent by: > > LBDcaregivers > > LBDcaregivers@yah > > cc > > oogroups.com > > > > > > Subject > > Re: > > Re: Moms > > 10/11/2007 11:25 condition > > > > AM > > > > > > > > > > > > Please respond to > > > > LBDcaregivers@yah > > > > oogroups.com > > > > > > > > > > > > > > > > > > > > > > > > > > Hi > > > > Thank you for thinking of me. It has been a long > > road > > for the " end stage " of this awful disease. I try > not > > to dwell on that because it just makes it all > harder > > to do day to day. I am thankful for the days > months > > etc...with her. The one thing that always helps me > > through besides God, is that I feel that she is so > > out > > of it most of the time that she is not aware of > time > > or where she is. She has never asked to go home or > > anything as she cannot put her words together > enough > > to make a statement. Usually it is just moaning, > but > > occasionally I will hear a word that I recognize. > > She > > has not given me any indication that she knows me > in > > 20 or more months now. That is the saddest part of > > her > > disease. Yet, it is a blessing too. It is like her > > soul has gone on and her shell of a body remains. > I > > don't believe that can happen, but that is the > best > > way that I can describe it. Does that make any > sense > > to you? My mom is a different case than most. I > know > > usually the patients do recognize their LO's up > > until > > the very end. > > I do try to be joyful, but some days I just do not > > want to get out of bed. But I am caring for her > > sisters and brother, so I must. I feel I am right > > where I am suppose to be and what more could I ask > > for. > > > > Dena in SoCal > > Mother(84)Almost 85. Existing with LBD in NH > > > > --- stimtimminss wrote: > > > > > Yes Dena, your mom must be a very strong woman > > with > > > good care. I think of you often. > > > This has been a very long end of journey for > you. > > > > > > , Oakville Ont. > > > > > > Mother, age 92, died Aug. 12/06 after 13 year > > > decline from PDD > > > > > > > > > > > > > > > Thank you group for your input about what > > signs > > > to > > > > > look for on my moms body . That helps me. > She > > > does > === message truncated === ________________________________________________________________________________\ ____ Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. http://get.games.yahoo.com/proddesc?gamekey=monopolyherenow Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Dina I miss my mom too. I feel like I have been grieving for over a year now. I know when she is gone it will be different, but the real mom is gone. Just my mother is left. I visited her today and she could not be aroused. She does this periodically. I use to think " This is it " , but not anymore. I think she may out live her brother and sisters. She is amazing. I love her so much. Dena in SoCal Mother (84)Existing with LBD in NH --- Dina wrote: > My daughter said to me one day - oh, gosh, maybe a > year ago - not that long > after Mom had finally been diagnosed with LBD. > > > > " It's almost like Grandma's soul has already gone on > to heaven, and her body > is just kinda stuck here. " > > > > Stinks, huh? > > > > I came to love the Lewy version of my Mom - but as > we were going over the > bins of old photos for my Mom's memorial service (we > put up display boards > with photos of her through every stage of life) - we > realized how much I > missed the REAL Mom, and how thankful I was she's > now at HOME with her Lord. > > > > Blessings, > > > > Dina > > Care Manager to Mom, aged 67 > dx'd with LBD 10/2006 > Home with the Lord 9/15/07 > > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Pinpoint customers who are looking for what you sell. http://searchmarketing.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 11, 2007 Report Share Posted October 11, 2007 Hi Dena, My heart aches for you, you are caring for so many people at once. You are so wonderful to do all that you do. The meeting was not uncomfortable. We have been living with the situation for a little awhile.. The facility is very understanding and trying to do their best to keep everyone happy. However, this is a first for a romance in the dementia section. They have had a few in the independent living section. The staff will be trained by the psychiatrist on how to redirect them and keep the situation under control. My thoughts are with you- Stacey Re: Re: Moms condition > > Yes, I did. I do meals for my Uncle who is 82. He > has > had heart surgery twice and needs a procedure to fix > a > flutter now. His children live in Sacramento and San > Diego. I take him dinner about 3 times a week and to > his Dr. appts etc.. One aunt who is 75 and in good > health just discovered a large mass in her abdomen > and > will need surgery soon. She is doing well and cares > for her self mostly. Her children live in Oregon and > he lives here in SoCal.I will probably help her > after > surgery if her daughter does not come down. Then my > other aunt is 80. She has no children, never > married. > She broke her hip last December and then has had two > falls since. I do her laundry, grocery shopping, > banking, doctor appts, take out her trash and bring > it > in, turn on her water for her lawn and flowers > etc... > She is a hard person to be around sometimes too. She > can be rather nasty at times. She has really bad > arthritis and is EXTREMELY stubborn!! She lived with > us for two months after her hip injury. I think > eventually she will be back on a permanent basics. > Having said all that, I know without a doubt that I > am > doing exactly what I am suppose to do. So I really > do > not mind. I am still traveling (Caribbean in Nov) > and > able to help on a daily basis all I can. I ask > myself > everyday this question. What have I do to help > someone > else today? I almost always have two or three things > that I have done and that is so fulfilling for me. > God > has me here for a very good reason. > > Dena in SoCal > Mother (84)Existing with LBD in NH > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Stacey, And how is your MIL doing now? Stacey Klein <sak515@... > To Sent by: LBDcaregivers LBDcaregivers@yah cc oogroups.com Subject Re: Re: Moms 10/12/2007 07:01 condition AM Please respond to LBDcaregivers@yah oogroups.com Hi Norma, This is a very difficult situation. My husband went to visit his dad a few weeks ago and wanted to take him to the park. My FIL wouldn't leave without his “friendâ€. He wanted her to come along. Needless to say my husband did not want her to come! The outcome of today's meeting was that we call ahead when we are going to visit and they will separate them so we can visit with him or take him out. FIL seems happy and never looked so good. I think MIL's LBD took a toll on him. He always slept most of the day - we now think she kept him up at night with her sleep disorder. His dementia is so bad that he wasn’t able to tell us how she was. He only recognizes my husband. He knows I’m a familiar face but not his daughter-in-law. Re: Re: Moms condition Yes, I did. I do meals for my Uncle who is 82. He has had heart surgery twice and needs a procedure to fix a flutter now. His children live in Sacramento and San Diego. I take him dinner about 3 times a week and to his Dr. appts etc.. One aunt who is 75 and in good health just discovered a large mass in her abdomen and will need surgery soon. She is doing well and cares for her self mostly. Her children live in Oregon and he lives here in SoCal.I will probably help her after surgery if her daughter does not come down. Then my other aunt is 80. She has no children, never married. She broke her hip last December and then has had two falls since. I do her laundry, grocery shopping, banking, doctor appts, take out her trash and bring it in, turn on her water for her lawn and flowers etc... She is a hard person to be around sometimes too. She can be rather nasty at times. She has really bad arthritis and is EXTREMELY stubborn!! She lived with us for two months after her hip injury. I think eventually she will be back on a permanent basics. Having said all that, I know without a doubt that I am doing exactly what I am suppose to do. So I really do not mind. I am still traveling (Caribbean in Nov) and able to help on a daily basis all I can. I ask myself everyday this question. What have I do to help someone else today? I almost always have two or three things that I have done and that is so fulfilling for me. God has me here for a very good reason. Dena in SoCal Mother (84)Existing with LBD in NH Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Hi Donna I will say that you must be organized! And pray a lot! Thanks Donna Dena in SoCal Mother(84)Existing with LBD in NH --- Donna Mido wrote: > Dena, > > You are a one woman wonder! How do you do it? And > what a blessing you are to your family!. > > Hugs, > > Donna R > > Caregave for Mom (after I brought her from WI to MI) > for 3 years and 4th year in a nh. > She was almost 89 when she died in '02. No dx other > than mine. > > > Re: Re: Moms condition > > > > I gave up my full time job(outside my home) when my > mother came to live with me. I started to go back > when > she went into the NH, but all this stuff keep > happening. First my Uncle needed more surgery, then > his wife got really ill and died, then my aunt fell > in > her driveway and broke her hip etc... So I just felt > that this was my new calling so to speak. I truly am > happy doing what I am doing. I think that makes the > difference. I have turned my Mom's condition > completely over to God and feel a lot less stress > too. > > Dena in SoCal > Mother (84)Existing with LBD in NH > > > > > --- stimtimminss wrote: > > > Dena, I seem to remember that you were also > working. > > (fulltime?) Are you still working > > while giving so much support? You sound more > > settled and seem to be coping OK. I > > surely hope so! You are amazing. > > > > > > > > > > > > > > > > > Dena, > > > > > > > > Did you say you are caring for a couple of > aunts > > and > > > > an uncle as well as > > > > your Mom? > > > > > > > > > > > > > > > > > > > > > > > > > > > Dena LEAVITT > > > > > > > > > > > <d_j_leavitt@yaho > > > > > > > > > > > o.com> > > > > > > > To > > > > Sent by: > > > > LBDcaregivers > > > > LBDcaregivers@yah > > > > > > > cc > > > > oogroups.com > > > > > > > > > > > > > > > > > > Subject > > > > Re: > > > > Re: Moms > > > > 10/11/2007 11:25 > condition > > > > > > > > > > AM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Please respond to > > > > > > > > > > > LBDcaregivers@yah > > > > > > > > > > > oogroups.com > > > > > > > > > > > > > > > > > > > > > > > > === message truncated === ________________________________________________________________________________\ ____ Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! http://tv.yahoo.com/collections/3658 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 12, 2007 Report Share Posted October 12, 2007 Hi Courage Thanks! I have been overwhelmed with the compliments. I don't do that very well. Dena in SoCal Mother(84)Existing with LBD in NH --- gaat wrote: > Dena, > > I have often felt that the people on this list are > the very best going and you have confirmed it. This > is a wonderful thing you are doing. All of the > caregivers here are fantastic! > Courage > > > > > [Non-text portions of this message have been > removed] > > ________________________________________________________________________________\ ____ Pinpoint customers who are looking for what you sell. http://searchmarketing.yahoo.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 13, 2007 Report Share Posted October 13, 2007 Dena, Don't pray nearly enough or half of what Sandie does. Organzied is not really my middle name since before I had Mom. I did pretty good before that and have never caught up. But I am working on it. You are the one that sounds organized! How do you remember where to go and what to do with a schedule like you have. Lots of Hugs, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Re: Re: Moms condition > > > > I gave up my full time job(outside my home) when my > mother came to live with me. I started to go back > when > she went into the NH, but all this stuff keep > happening. First my Uncle needed more surgery, then > his wife got really ill and died, then my aunt fell > in > her driveway and broke her hip etc... So I just felt > that this was my new calling so to speak. I truly am > happy doing what I am doing. I think that makes the > difference. I have turned my Mom's condition > completely over to God and feel a lot less stress > too. > > Dena in SoCal > Mother (84)Existing with LBD in NH > > > > > --- stimtimminss wrote: > > > Dena, I seem to remember that you were also > working. > > (fulltime?) Are you still working > > while giving so much support? You sound more > > settled and seem to be coping OK. I > > surely hope so! You are amazing. > > > > > > > > > > > > > > > > > Dena, > > > > > > > > Did you say you are caring for a couple of > aunts > > and > > > > an uncle as well as > > > > your Mom? > > > > > > > > > > > > > > > > > > > > > > > > > > > Dena LEAVITT > > > > > > > > > > > <d_j_leavitt@yaho > > > > > > > > > > > o.com> > > > > > > > To > > > > Sent by: > > > > LBDcaregivers > > > > LBDcaregivers@yah > > > > > > > cc > > > > oogroups.com > > > > > > > > > > > > > > > > > > Subject > > > > Re: > > > > Re: Moms > > > > 10/11/2007 11:25 > condition > > > > > > > > > > AM > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Please respond to > > > > > > > > > > > LBDcaregivers@yah > > > > > > > > > > > oogroups.com > > > > > > > > > > > > > > > > > > > > > > > > === message truncated === ________________________________________________________________________________\ ____ Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings, and more! http://tv.yahoo.com/collections/3658 Quote Link to comment Share on other sites More sharing options...
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