moms condition

[Guest guest]

((((Lynn))))

Just letting you know someone is here and thinking about you and

keeping you in prayer. It's a blessing that your husband supports

you, you will need it in the coming days....

There's no way to know when the end will come... all you can do is

make sure your loved one is comfortable, and for you to take care of

yourself.

Vent here as often as you can

yn

>

> Hi Group,

> Just want to give an update on my mom. Yesturday we thought she was

going to go home to her maker because she was so week, disipondent,

not eating or drinking. We thought this was it. She fooled us!

Today she was more alert and even ate a little bit of food. Her bed

sores (there are at least 4) won't get any better so they dress them

and make her comfortable. They only have her on tylenol but the

morphine is there if she is in pain. AT this point,she isn't. The

nurse said she could last months like this. What do you think? It is

so much harder on us as family members to watch the progression of

this disease. It sucks big time!!!! My husband and I were actually

disapointed by what the nurse told us. Is that bad of us? We are the

only ones that live here so it is all on us. Out of sight,out of

mind. I guess I'm feeling like I need to vent so please forgive me.

I have a brother in the SF area, A ste

p brother in San , And a step

> brother that has vanished somewhere. They are all only interested

in what they get. They never call or ask how she is. They will come

around only for what they can get there hands on. Can you tell that

I'm a little frustrated, stressed, and overwhelmed? My husband is the

only person who supports me. Well, I'm sure you have hear this: When

the going gets tough, the tought go shopping. I think that is how it

is said. Anyway, I' going shopping now.

> Thank for listening to me.

> Lynn S

>

>

>

> ______________________________________

______________________________________________

> Pinpoint customers who are looking for what you sell.

> http://searchmarketing.yahoo.com/

>

>

[Guest guest]

Hi Lynn, Just jumping in to say that Im thinking of you.As hard as this disease

is on our loved ones not a day goes by that I dont think to myself that I would

take moms suffering on myself if I could so when the rough times come and they

seem to always come I wouldnt have to see her suffer.I feel for you and your

husband and mom and hope and pray that god gives you and all on the group the

strength to handle the road thats ahead of us.It doesnt sound bad of you at all

being bummed about what the nurse said.We can all understand where you are

coming from.You hate seeing someone you love so much suffer, believe me I know

how you feel and my heart goes out to you right now.Vent often and hang in there

and know that your not alone.Best wishes to you and all Ron

Lynn Shilman wrote: Hi Group,

Just want to give an update on my mom. Yesturday we thought she was going to go

home to her maker because she was so week, disipondent, not eating or drinking.

We thought this was it. She fooled us! Today she was more alert and even ate a

little bit of food. Her bed sores (there are at least 4) won't get any better so

they dress them and make her comfortable. They only have her on tylenol but the

morphine is there if she is in pain. AT this point,she isn't. The nurse said she

could last months like this. What do you think? It is so much harder on us as

family members to watch the progression of this disease. It sucks big time!!!!

My husband and I were actually disapointed by what the nurse told us. Is that

bad of us? We are the only ones that live here so it is all on us. Out of

sight,out of mind. I guess I'm feeling like I need to vent so please forgive me.

I have a brother in the SF area, A step brother in San , And a step

brother that has vanished somewhere. They are all only interested in what they

get. They never call or ask how she is. They will come around only for what they

can get there hands on. Can you tell that I'm a little frustrated, stressed, and

overwhelmed? My husband is the only person who supports me. Well, I'm sure you

have hear this: When the going gets tough, the tought go shopping. I think that

is how it is said. Anyway, I' going shopping now.

Thank for listening to me.

Lynn S

__________________________________________________________

Pinpoint customers who are looking for what you sell.

http://searchmarketing.yahoo.com/

[Guest guest]

Lynn,

I'm sorry you're going through this terribly rough period almost alone.

It's always so hard. Re your Mom's bed sores, do you have the special air

mattress that moves slowly (electrically) underneath her? It does help.

Also, are they applying Silverdine to the wounds?

Norma

Lynn Shilman

<lshilman@...

om> To

Sent by: LBD support

LBDcaregivers@yah <LBDcaregivers >

oogroups.com cc

Subject

09/19/2007 02:01 Moms condition

AM

Please respond to

LBDcaregivers@yah

oogroups.com

Hi Group,

Just want to give an update on my mom. Yesturday we thought she was going

to go home to her maker because she was so week, disipondent, not eating or

drinking. We thought this was it. She fooled us! Today she was more

alert and even ate a little bit of food. Her bed sores (there are at least

4) won't get any better so they dress them and make her comfortable. They

only have her on tylenol but the morphine is there if she is in pain. AT

this point,she isn't. The nurse said she could last months like this.

What do you think? It is so much harder on us as family members to watch

the progression of this disease. It sucks big time!!!! My husband and I

were actually disapointed by what the nurse told us. Is that bad of us?

We are the only ones that live here so it is all on us. Out of sight,out

of mind. I guess I'm feeling like I need to vent so please forgive me. I

have a brother in the SF area, A step brother in San , And a step

brother that has vanished somewhere. They are all only interested in what

they get. They never call or ask how she is. They will come around only

for what they can get there hands on. Can you tell that I'm a little

frustrated, stressed, and overwhelmed? My husband is the only person who

supports me. Well, I'm sure you have hear this: When the going gets tough,

the tought go shopping. I think that is how it is said. Anyway, I' going

shopping now.

Thank for listening to me.

Lynn S

__________________________________________________________

Pinpoint customers who are looking for what you sell.

http://searchmarketing.yahoo.com/

[Guest guest]

Lynn-

Keeping you and your family in my thoughts and prayers. I always viewed my

dad's LBD that...as long as there is life, there is hope. I had seen my dad

rally back many times. I know of other loved ones that have done the same.

Life continues on as long as our loved ones carry on. Please find strength in

our prayers.

Many heartfelt hugs-

Sandie

Des Moines, IA

dad, Merle, passed from LBD 9-20-02, age 65

Lynn Shilman wrote: Hi Group,

Just want to give an update on my mom. Yesturday we thought she was going to go

home to her maker because she was so week, disipondent, not eating or drinking.

We thought this was it. She fooled us! Today she was more alert and even ate a

little bit of food. Her bed sores (there are at least 4) won't get any better so

they dress them and make her comfortable. They only have her on tylenol but the

morphine is there if she is in pain. AT this point,she isn't. The nurse said she

could last months like this. What do you think? It is so much harder on us as

family members to watch the progression of this disease. It sucks big time!!!!

My husband and I were actually disapointed by what the nurse told us. Is that

bad of us? We are the only ones that live here so it is all on us. Out of

sight,out of mind. I guess I'm feeling like I need to vent so please forgive me.

I have a brother in the SF area, A step brother in San , And a step

brother that has vanished somewhere. They are all only interested in what they

get. They never call or ask how she is. They will come around only for what they

can get there hands on. Can you tell that I'm a little frustrated, stressed, and

overwhelmed? My husband is the only person who supports me. Well, I'm sure you

have hear this: When the going gets tough, the tought go shopping. I think that

is how it is said. Anyway, I' going shopping now.

Thank for listening to me.

Lynn S

__________________________________________________________

Pinpoint customers who are looking for what you sell.

http://searchmarketing.yahoo.com/

[Guest guest]

Dear Lynn,

You're a wonderful daughter - taking care of your mom and doing it with just

your husband as support. It's good your mom isn't in pain - that's the primary

thing I worry about with my mom. And yes, isn't this disease surprising in its

unpredictability? My mom often looks as if it's " the end " when she has sores,

UTIs or other physical problems. They leave her exhausted, quiet and without

appetite. We still treat these issues aggressively, and she " comes back "

although a bit less so each time. Your mom is fortunate to have you and your

spouse on her side.

Our moms do need us, especially when the rest of the " family " disappear. How

close are you to the SF/SJ area? It sounds like the brothers could get to you

and your mom if they wanted. Of course you're stressed! This disease is very

hard on all concerned. And when only 1 or 2 are available to share the load, it

gets harder.

Your story here sounds much like mine. One brother 150 miles away... can't let

go of our bad childhood with Mom and visits 1-2 times a year, saying 'Oh, she

doesn't need me around. " Of course, HE doesn't want to deal with any of it. A

BIL and SIL, 80 miles away, always close in the past. Now " no time " to get here,

although they travel frequently and often drive within 20 miles of us on their

way elsewhere.

Your response to the nurse's comment sounds very human to me. Being in the

" LBD fog " - that in-between place - is physically and emotionally exhausting.

Venting is a good outlet - and this is sure the right place. Please keep us

posted on your mom - and yourself, too.

You have lots of " big-shouldered friends " here who understand.

Peace,

Lin

Lynn Shilman wrote:

Hi Group,

Just want to give an update on my mom. Yesturday we thought she was going to go

home to her maker because she was so week, disipondent, not eating or drinking.

We thought this was it. She fooled us! Today she was more alert and even ate a

little bit of food. Her bed sores (there are at least 4) won't get any better so

they dress them and make her comfortable. They only have her on tylenol but the

morphine is there if she is in pain. AT this point,she isn't. The nurse said she

could last months like this. What do you think? It is so much harder on us as

family members to watch the progression of this disease. It sucks big time!!!!

My husband and I were actually disapointed by what the nurse told us. Is that

bad of us? We are the only ones that live here so it is all on us. Out of

sight,out of mind. I guess I'm feeling like I need to vent so please forgive me.

I have a brother in the SF area, A step brother in San , And a step

brother that has vanished somewhere. They are all only interested in what they

get. They never call or ask how she is. They will come around only for what they

can get there hands on. Can you tell that I'm a little frustrated, stressed, and

overwhelmed? My husband is the only person who supports me. Well, I'm sure you

have hear this: When the going gets tough, the tought go shopping. I think that

is how it is said. Anyway, I' going shopping now.

Thank for listening to me.

Lynn S

________________________________________________________________________________\

____

Pinpoint customers who are looking for what you sell.

http://searchmarketing.yahoo.com/

[Guest guest]

Dear Lynn,

I didn't realize your Mom was at this point. My thoughts and prayers are

with you. Though she can't communicate, I know she knows you're there and

can feel your love.

x, Norma

Lynn Shilman

<lshilman@...

om> To

Sent by: LBD support

LBDcaregivers@yah <LBDcaregivers >

oogroups.com cc

Subject

09/21/2007 12:25 moms condition

AM

Please respond to

LBDcaregivers@yah

oogroups.com

Hi group,

We had to give my mom some morphine again tonight. She seemed to be in

pain by the looks on her face. My husband thinks it could be any time now

but we've thought that before. We told her again that we love her and she

will be in a better place when she goes. We told her again that she can

let go. She seemed to want to go. Please pray that God will be merciful

to her. This is horrible for her. Her entire backside is all sores. She

can hardly eat or drink. She didn't even have a BM for 5 days till today.

Everything is shutting down. I know she is trying to communicate with us

but can't.

Thanks a Bunch-

Lynn

P.S. She is on hospice through " VITAS " If you have it where you are, they

are GREAT!!!

---------------------------------

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[Guest guest]

Hi Lynn,

I'm feeling it for your and your mom today. I pray that she gets good pain

management and that God will be merciful.

Courage

moms condition

Hi group,

We had to give my mom some morphine again tonight. She seemed to be in pain by

the looks on her face. My husband thinks it could be any time now but we've

thought that before. We told her again that we love her and she will be in a

better place when she goes. We told her again that she can let go. She seemed to

want to go. Please pray that God will be merciful to her. This is horrible for

her. Her entire backside is all sores. She can hardly eat or drink. She didn't

even have a BM for 5 days till today. Everything is shutting down. I know she is

trying to communicate with us but can't.

Thanks a Bunch-

Lynn

P.S. She is on hospice through " VITAS " If you have it where you are, they are

GREAT!!!

---------------------------------

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news, photos & more.

[Guest guest]

Dear Lynn

I will defiantly be keeping you all in my prayers.

Your poor dear mother. My mom also had many pressure

wounds at one time, but she did heal from them. No one

ever thought she would, doctors or nurses, but she

did.

It just makes me cry to think of her like this. I will

be praying that God has mercy on her and takes her

quickly and quietly. The end is so hard on everyone.

She is so blessed to have you and your husband. You

are her angels.

Dena in SoCal

Mother(84)Existing with LBD in NH

--- Lynn Shilman wrote:

> Hi group,

> We had to give my mom some morphine again tonight.

> She seemed to be in pain by the looks on her face.

> My husband thinks it could be any time now but we've

> thought that before. We told her again that we love

> her and she will be in a better place when she goes.

> We told her again that she can let go. She seemed

> to want to go. Please pray that God will be

> merciful to her. This is horrible for her. Her

> entire backside is all sores. She can hardly eat or

> drink. She didn't even have a BM for 5 days till

> today. Everything is shutting down. I know she is

> trying to communicate with us but can't.

> Thanks a Bunch-

> Lynn

> P.S. She is on hospice through " VITAS " If you have

> it where you are, they are GREAT!!!

>

>

>

> ---------------------------------

> Take the Internet to Go: Yahoo!Go puts the Internet

> in your pocket: mail, news, photos & more.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

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[Guest guest]

Dear Lynn, We are grateful for your messages about your dear mom. Yes, Vitas has

a wonderful reputation. We use their local agency at the senior community where

I work. You are blessed indeed. Are they keeping your mom pain-free? Today's

pain meds are a real miracle - our pain management team here reassures every

family their LOs don't have to suffer. We call on them whenever our residents

develop pressure sores, which are indeed among the worst of conditions. Your mom

- and you and your husband - remain in my prayers.

Peace,

Lin

Dena LEAVITT wrote:

Dear Lynn

I will defiantly be keeping you all in my prayers.

Your poor dear mother. My mom also had many pressure

wounds at one time, but she did heal from them. No one

ever thought she would, doctors or nurses, but she

did.

It just makes me cry to think of her like this. I will

be praying that God has mercy on her and takes her

quickly and quietly. The end is so hard on everyone.

She is so blessed to have you and your husband. You

are her angels.

Dena in SoCal

Mother(84)Existing with LBD in NH

--- Lynn Shilman wrote:

> Hi group,

> We had to give my mom some morphine again tonight.

> She seemed to be in pain by the looks on her face.

> My husband thinks it could be any time now but we've

> thought that before. We told her again that we love

> her and she will be in a better place when she goes.

> We told her again that she can let go. She seemed

> to want to go. Please pray that God will be

> merciful to her. This is horrible for her. Her

> entire backside is all sores. She can hardly eat or

> drink. She didn't even have a BM for 5 days till

> today. Everything is shutting down. I know she is

> trying to communicate with us but can't.

> Thanks a Bunch-

> Lynn

> P.S. She is on hospice through " VITAS " If you have

> it where you are, they are GREAT!!!

>

>

>

> ---------------------------------

> Take the Internet to Go: Yahoo!Go puts the Internet

> in your pocket: mail, news, photos & more.

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

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Welcome to LBDcaregivers.

[Guest guest]

Dina

I know this message was meant for Lynn, but it is so

beautiful. What a blessing. I pray that it will be

just this way for my mother too.

Dena in SoCal

Mother (84)Existing with LBD in NH

--- Dina wrote:

> Lynn,

>

>

>

> It was just a week ago that we were in the same

> position with my Mom. It

> was so heartbreaking - but we were blessed that she

> had such a calm - truly

> peace-filled last season of her life. I am SO

> thankful for every moment

> that I was able to have with her as she prepared to

> go Home - to the home of

> her heart - heaven!

>

>

>

> My Mom didn't eat for 3 weeks, or drink for 1 week

> prior to her death. And

> the last 24 hours she developed some horrible sores

> where her bones were

> just wearing on her tissues so horribly - we had to

> move her every 2 hours

> to keep her as close to comfortable as possible.

>

>

>

> Our hospice nurse/team were - well, nothing short of

> precious. They did

> EVERYTHING in their power to see that she was

> comfortable and lovingly cared

> for - as did the staff at the facility she lived in.

> I am so glad you have

> that wonderful support network there for you, too!

>

>

>

> The thing that seemed to help Mom in the last 24 to

> 48 hours was simply my

> sitting there next to her - oftentimes it was

> frustrating for her to even be

> touched - but I would sit next to her and sing along

> with the music we had

> playing (my kids loaded one of their ipods with all

> of her favorite hymns

> and worship songs and we plugged it into a speaker),

> or pray out loud for

> her - lots of friends from church came by to do the

> same - she just

> brightened so when people would pray for her out

> loud, and telling her that

> I loved her and was so proud of her, and that it was

> okay to go - that I/we

> would miss her something awful, but we were

> rejoicing knowing she'd finally

> be home. We told her it was okay if she couldn't

> talk, or if she didn't

> want to - that we would be there with her around the

> clock. That seemed to

> make her very happy.

>

>

>

> Lynn - I know how heartbreaking this is. You are

> much in my thoughts and

> prayers. May God grant you grace, peace and

> comfort, and your Mom the

> ability to know that she is cocooned in love.

>

>

>

> Many blessings,

>

>

>

> Dina

>

> Care Manager to Mom, aged 67

> dx'd with LBD 10/2006

>

> Home with Jesus 9/15/07

>

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

________________________________________________________________________________\

____

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[Guest guest]

Hi Group,

Well just another day in paridise. Isn't that how the song goes? I am so

tired I'm being kinda silly now. I was at moms for almost all day. I went

early in the morning because I wanted to see how she was and wanted also to see

for myself how much food she could actually eat. She was weak and didn't respond

to me. After she ate, they put her in bed which she then fell asleep very

quickly. I had to do something at home so I wasn't gone for more than maybe 2

1/2 hours. When I got back there, she was still sleeping. I stayed till almost

5:00. When I left they were giving her dinner which she seemed to eat. I don't

know how much though. She is drinking a little. What a way to end a life. They

have my mom on tylenol liquid 3 or 4 times a day. They were going to check her

breathing during the night. If she has trouble with it, they said they would

give her oxygen and morphine. If she is still consuming food and fluids, how

long can she go on like this? Someone

told me one sign of nearing the end is the legs get very blochy because the

circulation is shutting down. What else is there to look for? If anyone has a

clue, please let me know. I am totally blown away by everyones concerns,

parayers, and love for my mom and myself. This is something I am not used to .

I don't know where the group is meeting next year, but I hope I can go to meet

all of you. Even though I haven't met any of you in person, I sure feel like we

know each other. If this is any indication of what blind love is, then I am

blessed. I hope your day was good for you today. You are all in my prayers and

I hope you will all be blessed at least 10 fold. This is the most wonderful

gift I ever got, when I found all of you!!!!!!!!!

Thank You-Thank You -Thank You!!!!!!!!!!!!!!

Lynn S.

A group to provide support and information for Lewy Body Dementia

caregivers

Messages In This Digest (25 Messages)

1a.

Re: moms condition From: Normal@...

1b.

Re: moms condition From: gaat

1c.

Re: moms condition From: Dena LEAVITT

1d.

Re: moms condition From: Dina

1e.

Re: moms condition From: betty barber

1f.

Re: moms condition From: l pratt

1g.

Re: moms condition From: Dena LEAVITT

2a.

taking Mom off Ativan From: kim kozlowski

2b.

taking Mom off Ativan From: dawnfrrg

3a.

Donna R. From: Sandie /

4a.

Re: Memories From: Dena LEAVITT

5a.

Re: Donna/ Sandie remembering you on Sep 20 From: Dena LEAVITT

6a.

Fracture Pelivis/Pain medication From: francis1035

6b.

Re: Fracture Pelivis/Pain medication From: D.W. Lee

6c.

Re: Fracture Pelivis/Pain medication From: gaat

6d.

Re: Fracture Pelivis/Pain medication From: Sharon

6e.

Re: Fracture Pelivis/Pain medication From: Donna Mido

7a.

Re: Falling, Going Downhill, Waiting to Die and Donate her Brain From:

stimtimminss

8a.

Head Sore From: Beth

8b.

Re: Head Sore From: Sharon

8c.

Re: Head Sore From: Beth

8d.

Re: Head Sore From: beachwritergirl@...

9a.

Re: poor donnie his birthday has been permanently canceled. Ot From: l pratt

10a.

Re: Amoxicillin Q-Back to Beth From: l pratt

11a.

Re: Lin /September 20th From: l pratt

View All Topics | Create New Topic

Messages

1a.

Re: moms condition Posted by: " Normal@... " Normal@...

normalanne Fri Sep 21, 2007 5:02 am (PST)

Dear Lynn,

I didn't realize your Mom was at this point. My thoughts and prayers are

with you. Though she can't communicate, I know she knows you're there and

can feel your love.

x, Norma

Lynn Shilman

<lshilman@...

om> To

Sent by: LBD support

LBDcaregivers@yah <LBDcaregivers >

oogroups.com cc

Subject

09/21/2007 12:25 moms condition

AM

Please respond to

LBDcaregivers@yah

oogroups.com

Hi group,

We had to give my mom some morphine again tonight. She seemed to be in

pain by the looks on her face. My husband thinks it could be any time now

but we've thought that before. We told her again that we love her and she

will be in a better place when she goes. We told her again that she can

let go. She seemed to want to go. Please pray that God will be merciful

to her. This is horrible for her. Her entire backside is all sores. She

can hardly eat or drink. She didn't even have a BM for 5 days till today.

Everything is shutting down. I know she is trying to communicate with us

but can't.

Thanks a Bunch-

Lynn

P.S. She is on hospice through " VITAS " If you have it where you are, they

are GREAT!!!

---------------------------------

Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail,

news, photos & more.

[Guest guest]

Hi Lynn,

I am sorry for the tiredness and pain you are going through and so remember what

you

are feeling after going through Mom's death last summer. She was in dying mode

for 6

weeks, but it was the last 3 weeks that she hardly ate or drank anything, a

little less and

less until her last day food just sat in her open mouth and there was absolutely

no

response to having it in there. We had to scoop it out and basically give up.

She died the

next day. All she did at the end was sleep, although I got eye fluttering from

her the last

day to let me know she knew I was there. She would go 3 days with nothing and

then eat

or drink a bit, which would carry her a little longer.

I too watched her hands, feet, legs for bluing and blotching but all we got was

some

greying around her knees the last 2 days. Her legs wouldn't straighten anymore

so I guess

the blood could not get up and over on return. Her feet remained warm and pink

until

death. The afternoon before she died she went into respiratory arrest which

settled down

with oxygen. She died the next morning. I know we are all different but that

was just a

small part of our journey.

Wishes for strength to you both, during this very difficult journey for you.

, Oakville Ont.

Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

>

> Hi Group,

> Well just another day in paridise. Isn't that how the song goes? I am so

tired I'm

being kinda silly now. I was at moms for almost all day. I went early in the

morning

because I wanted to see how she was and wanted also to see for myself how much

food

she could actually eat. She was weak and didn't respond to me. After she ate,

they put her

in bed which she then fell asleep very quickly. I had to do something at home so

I wasn't

gone for more than maybe 2 1/2 hours. When I got back there, she was still

sleeping. I

stayed till almost 5:00. When I left they were giving her dinner which she

seemed to eat. I

don't know how much though. She is drinking a little. What a way to end a

life. They have

my mom on tylenol liquid 3 or 4 times a day. They were going to check her

breathing

during the night. If she has trouble with it, they said they would give her

oxygen and

morphine. If she is still consuming food and fluids, how long can she go on

like this?

Someone

> told me one sign of nearing the end is the legs get very blochy because the

circulation

is shutting down. What else is there to look for? If anyone has a clue,

please let me

know. I am totally blown away by everyones concerns, parayers, and love for my

mom and

myself. This is something I am not used to . I don't know where the group is

meeting next

year, but I hope I can go to meet all of you. Even though I haven't met any of

you in

person, I sure feel like we know each other. If this is any indication of what

blind love is,

then I am blessed. I hope your day was good for you today. You are all in my

prayers and

I hope you will all be blessed at least 10 fold. This is the most wonderful

gift I ever got,

when I found all of you!!!!!!!!!

> Thank You-Thank You -Thank You!!!!!!!!!!!!!!

> Lynn S.

>

>

> A group to provide support and information for Lewy Body Dementia

caregivers

> Messages In This Digest (25 Messages)

> 1a.

> Re: moms condition From: Normal@...

> 1b.

> Re: moms condition From: gaat

> 1c.

> Re: moms condition From: Dena LEAVITT

> 1d.

> Re: moms condition From: Dina

> 1e.

> Re: moms condition From: betty barber

> 1f.

> Re: moms condition From: l pratt

> 1g.

> Re: moms condition From: Dena LEAVITT

> 2a.

> taking Mom off Ativan From: kim kozlowski

> 2b.

> taking Mom off Ativan From: dawnfrrg

> 3a.

> Donna R. From: Sandie /

> 4a.

> Re: Memories From: Dena LEAVITT

> 5a.

> Re: Donna/ Sandie remembering you on Sep 20 From: Dena LEAVITT

> 6a.

> Fracture Pelivis/Pain medication From: francis1035

> 6b.

> Re: Fracture Pelivis/Pain medication From: D.W. Lee

> 6c.

> Re: Fracture Pelivis/Pain medication From: gaat

> 6d.

> Re: Fracture Pelivis/Pain medication From: Sharon

> 6e.

> Re: Fracture Pelivis/Pain medication From: Donna Mido

> 7a.

> Re: Falling, Going Downhill, Waiting to Die and Donate her Brain From:

stimtimminss

> 8a.

> Head Sore From: Beth

> 8b.

> Re: Head Sore From: Sharon

> 8c.

> Re: Head Sore From: Beth

> 8d.

> Re: Head Sore From: beachwritergirl@...

> 9a.

> Re: poor donnie his birthday has been permanently canceled. Ot From: l

pratt

> 10a.

> Re: Amoxicillin Q-Back to Beth From: l pratt

> 11a.

> Re: Lin /September 20th From: l pratt

> View All Topics | Create New Topic

> Messages

> 1a.

> Re: moms condition Posted by: " Normal@... " Normal@... normalanne

Fri Sep 21,

2007 5:02 am (PST)

> Dear Lynn,

>

> I didn't realize your Mom was at this point. My thoughts and prayers are

> with you. Though she can't communicate, I know she knows you're there and

> can feel your love.

>

> x, Norma

>

> Lynn Shilman

> <lshilman@...

> om> To

> Sent by: LBD support

> LBDcaregivers@yah <LBDcaregivers >

> oogroups.com cc

>

> Subject

> 09/21/2007 12:25 moms condition

> AM

>

>

> Please respond to

> LBDcaregivers@yah

> oogroups.com

>

>

>

> Hi group,

> We had to give my mom some morphine again tonight. She seemed to be in

> pain by the looks on her face. My husband thinks it could be any time now

> but we've thought that before. We told her again that we love her and she

> will be in a better place when she goes. We told her again that she can

> let go. She seemed to want to go. Please pray that God will be merciful

> to her. This is horrible for her. Her entire backside is all sores. She

> can hardly eat or drink. She didn't even have a BM for 5 days till today.

> Everything is shutting down. I know she is trying to communicate with us

> but can't.

> Thanks a Bunch-

> Lynn

> P.S. She is on hospice through " VITAS " If you have it where you are, they

> are GREAT!!!

>

> ---------------------------------

> Take the Internet to Go: Yahoo!Go puts the Internet in your pocket: mail,

> news, photos & more.

>

>

[Guest guest]

My husband did not have the mottling until the very

end. I had been told that it came on more quickly, so

we watched for it, but it did not happen until the

last few hours, if then. More of the signs with him

were his labored breathing on Friday, which settled

down on Saturday, and I thought he was better, but in

reality, the lungs are " giving up. " The urine ouput

will be almost nothing and very dark in color. His

catheter bag probably had about an inch in one corner

the last day. Also, the blood pressure readings, when

they get closer together (top goes down, bottom goes

up), is a pretty good indication.

You are expecting it, but when they take that last

breath, it is still a terrible shock. There is a

feeling of relief that it is finally over for them

(and the family) and that the suffering is no more.

Yes, you are exhausted, even though you may not be

doing any " hard " work, the stress level is extremely

high; probably you have lack of sleep or lack of

" good " sleep, but the whole process is exhausting.

As long as she is still taking food and drinking, her

body will probably hang in for awhile. When there is

no longer eating or drinking, the body is shutting

down and no longer wants or needs food.

My thoughts are with you as you travel the ending

journey. Take care of yourself, too.

June (husband Darrell dx'd AD 1999; possible LBD 2006;

died Nov. 2006.

--- stimtimminss wrote:

> Hi Lynn,

> I am sorry for the tiredness and pain you are going

> through and so remember what you

> are feeling after going through Mom's death last

> summer. She was in dying mode for 6

> weeks, but it was the last 3 weeks that she hardly

> ate or drank anything, a little less and

> less until her last day food just sat in her open

> mouth and there was absolutely no

> response to having it in there. We had to scoop it

> out and basically give up. She died the

> next day. All she did at the end was sleep,

> although I got eye fluttering from her the last

> day to let me know she knew I was there. She would

> go 3 days with nothing and then eat

> or drink a bit, which would carry her a little

> longer.

> I too watched her hands, feet, legs for bluing and

> blotching but all we got was some

> greying around her knees the last 2 days. Her legs

> wouldn't straighten anymore so I guess

> the blood could not get up and over on return. Her

> feet remained warm and pink until

> death. The afternoon before she died she went into

> respiratory arrest which settled down

> with oxygen. She died the next morning. I know we

> are all different but that was just a

> small part of our journey.

> Wishes for strength to you both, during this very

> difficult journey for you.

>

> , Oakville Ont.

>

> Mother, age 92, died Aug. 12/06 after 13 year

> decline from PDD

>

>

> >

> > Hi Group,

> > Well just another day in paridise. Isn't that

> how the song goes? I am so tired I'm

> being kinda silly now. I was at moms for almost all

> day. I went early in the morning

> because I wanted to see how she was and wanted also

> to see for myself how much food

> she could actually eat. She was weak and didn't

> respond to me. After she ate, they put her

> in bed which she then fell asleep very quickly. I

> had to do something at home so I wasn't

> gone for more than maybe 2 1/2 hours. When I got

> back there, she was still sleeping. I

> stayed till almost 5:00. When I left they were

> giving her dinner which she seemed to eat. I

> don't know how much though. She is drinking a

> little. What a way to end a life. They have

> my mom on tylenol liquid 3 or 4 times a day. They

> were going to check her breathing

> during the night. If she has trouble with it, they

> said they would give her oxygen and

> morphine. If she is still consuming food and

> fluids, how long can she go on like this?

> Someone

> > told me one sign of nearing the end is the legs

> get very blochy because the circulation

> is shutting down. What else is there to look for?

> If anyone has a clue, please let me

> know. I am totally blown away by everyones

> concerns, parayers, and love for my mom and

> myself. This is something I am not used to . I

> don't know where the group is meeting next

> year, but I hope I can go to meet all of you. Even

> though I haven't met any of you in

> person, I sure feel like we know each other. If

> this is any indication of what blind love is,

> then I am blessed. I hope your day was good for you

> today. You are all in my prayers and

> I hope you will all be blessed at least 10 fold.

> This is the most wonderful gift I ever got,

> when I found all of you!!!!!!!!!

> > Thank You-Thank You -Thank You!!!!!!!!!!!!!!

> > Lynn S.

> >

> >

> > A group to provide support and information

> for Lewy Body Dementia caregivers

> > Messages In This Digest (25 Messages)

> > 1a.

> > Re: moms condition From: Normal@...

> > 1b.

> > Re: moms condition From: gaat

> > 1c.

> > Re: moms condition From: Dena LEAVITT

> > 1d.

> > Re: moms condition From: Dina

> > 1e.

> > Re: moms condition From: betty barber

> > 1f.

> > Re: moms condition From: l pratt

> > 1g.

> > Re: moms condition From: Dena LEAVITT

> > 2a.

> > taking Mom off Ativan From: kim kozlowski

> > 2b.

> > taking Mom off Ativan From: dawnfrrg

> > 3a.

> > Donna R. From: Sandie /

> > 4a.

> > Re: Memories From: Dena LEAVITT

> > 5a.

> > Re: Donna/ Sandie remembering you on Sep 20

> From: Dena LEAVITT

> > 6a.

> > Fracture Pelivis/Pain medication From:

> francis1035

> > 6b.

> > Re: Fracture Pelivis/Pain medication From: D.W.

> Lee

> > 6c.

> > Re: Fracture Pelivis/Pain medication From: gaat

>

> > 6d.

> > Re: Fracture Pelivis/Pain medication From:

> Sharon

> > 6e.

> > Re: Fracture Pelivis/Pain medication From:

> Donna Mido

> > 7a.

> > Re: Falling, Going Downhill, Waiting to Die and

> Donate her Brain From: stimtimminss

> > 8a.

> > Head Sore From: Beth

> > 8b.

> > Re: Head Sore From: Sharon

> > 8c.

> > Re: Head Sore From: Beth

> > 8d.

> > Re: Head Sore From: beachwritergirl@...

> > 9a.

> > Re: poor donnie his birthday has been

> permanently canceled. Ot From: l pratt

> > 10a.

> > Re: Amoxicillin Q-Back to Beth From: l pratt

>

> > 11a.

> > Re: Lin /September 20th From: l pratt

> > View All Topics | Create New Topic

> > Messages

> > 1a.

> > Re: moms condition Posted by: " Normal@... "

> Normal@... normalanne Fri Sep 21,

> 2007 5:02 am (PST)

> > Dear Lynn,

> >

> > I didn't realize your Mom was at this point. My

> thoughts and prayers are

> > with you. Though she can't communicate, I know she

> knows you're there and

> > can feel your love.

> >

> > x, Norma

> >

> > Lynn Shilman

> > <lshilman@...

> > om> To

> > Sent by: LBD support

> > LBDcaregivers@yah <LBDcaregivers >

> > oogroups.com cc

> >

> > Subject

> > 09/21/2007 12:25 moms condition

> > AM

> >

> >

> > Please respond to

> > LBDcaregivers@yah

> > oogroups.com

> >

> >

> >

> > Hi group,

> > We had to give my mom some morphine again tonight.

> She seemed to be in

> > pain by the looks on her face. My husband thinks

> it could be any time now

> > but we've thought that before. We told her again

> that we love her and she

> > will be in a better place when she goes. We told

> her again that she can

> > let go. She seemed to want to go. Please pray that

> God will be merciful

> > to her. This is horrible for her. Her entire

> backside is all sores. She

> > can hardly eat or drink. She didn't even have a BM

> for 5 days till today.

> > Everything is shutting down. I know she is trying

> to communicate with us

> > but can't.

> > Thanks a Bunch-

> > Lynn

> > P.S. She is on hospice through " VITAS " If you have

> it

=== message truncated ===

________________________________________________________________________________\

____

Don't let your dream ride pass you by. Make it a reality with Yahoo! Autos.

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[Guest guest]

Lynn,

Another thing to watch for is a change in breathing. Breathing may get

more shallow, more rapid. When that happens, it can't be long, maybe a

day at most?? They may seem to rally, get stronger briefly, be more

alert, and then suddenly all strength is gone and they are soon gone.

G

[Guest guest]

lynn,

please please do not berate yourself for being human, God understands, he is a

loving God and doesn't expect us to be perfect. i can write a book on my dads

family, i was an only child and was never close to any of my cousins on either

side fo the family,

my dads sister and her family all had the nastiest things to say about me, and

my wonderful then boyfreiend and now husband donnie. yet we moved from

nashville tennesee to pensacola florida to take care of dad the last 2 years of

his life. they all live in the new york city area. all of them spoke ill of

donnie, had very ugly opinoins of all my decisions about my dads care. the

archives in these messages are filled with letters of my frustration, anger,

venting and downright screaming. it was great people in this group wrote to me,

wonderful letters of encouragement and love, reminding me that i was on a

terrible roller coaster ride and people who knew about lbd couldnt control it or

help me as we all were learning together so why let people who knew absolutely

nothing about lbd try to dictate how i should care for my dad. my heart was too

full of hate, full of hate becuase these people said oh we love you leonard but

we cant come visit, call or talk to you becuase blah blah blah, made me so sick,

but you know what, DONNIE AND I KNOW WHAT WE DID WAS RIGHT and was teh best

choices available for daddy. my daddy is buried in ny in a family plot with his

parents. makes me so sad as i am unable to go there, but i know we took care of

dad, we were then when he needed love and caring , we took care of him when

noone else had the time, it is much healthier for you NOT to dwell on what they

arent doing or should be doing as one day, maybe it wont be until THEIR

judgement day, they will regret their bad judgement, my family all apologized

to donnie at daddys funeral, but in all honesty, it didnt mean much to either of

us. it made them feel better i guess but thats about it as far as we were

concerned. you are doing the best you can, as is your hubby, and we are all

here for you to vent to, to share with, whatever you need,

i can assure you that if it was not for this loving group dads lbd journey would

have been totally devasting for me.

take care of yourself honey, do waht you feel is best for you and your hubby and

mom and whatever teh rest of the family does, well tahts their problem their

conscience etc.

hugs, sharon

---- Lynn Shilman wrote:

> Hi group,

> Well, I couldn't sleep so I came downstairs to check e-mails. It's the

middle of the night here but I guess I'm restless. This process really SUCKS!

I have not experienced this and it is quite over whelming. All your information

and life experiences is so helpful to me. I appreciate how hard it was for you

to go through all this yourselves. I am seing some of the signs you have

mentioned already and now I know what else to look for. I am guessing she

probably won't go as fast as I thought. However, one never knows. She is still

eating a little food and drinking a little so maybe she could last up to 2

weeks. She is pretty weak and is looking pretty bad to me. She was watching

with her eyes more when I saw her yesturday. We'll see what happens today. I

know we have the Lord to get us through this, but my flesh is angry that my

family has no idea what we are going through and doesn't seem to care.I pray God

will forgive my evil thoughts and selfish ways. I

> wonder if being a daughter has anything to with my feelings. There is that

saying about a son is a son till he takes a wife, but a daughter is a daughter

for the rest of her life. My brother could care less ,until the money comes to

him. Even the step children never care. My mom was really a mom to them. I

can't wait to have them out of my life for good. When all this is over, I won't

have to have them in my llife anymore. It will be good to move to New Hampshire

where our children and grandchildren are. Forgive me for blowing off steam but

I will stop . I know this is not glorifying God to feel this way. My husband

is so helpful and patient with me. He works hard and comes home tired but still

takes me back to see my mom again. She is about 20 minutes away and yesturday

he made 2 trips, while I made a 3rd trip by myself while he was at work. One of

my dear friends met me there and stayed a few hours with me. She was there when

the nurse came and that was a help

> because sometimes I don't get everything that is said. I'm going on too long.

Love you all for all your support. I feel the love.

> Lynn S.

>

>

> ---------------------------------

> Yahoo! oneSearch: Finally, mobile search that gives answers, not web links.

>

>

[Guest guest]

this has really hit me between the eyes and what sharon had to say in

particular. i have wasted spo much time and energy on what my sister is and

isn't doing and how she is only willing to contribute 6-8 hrs a week to our

mother so i can get rest that i overlooked what our bickering was doing to

ma--until my oldest(who has POA for finances after sis and her son stole over

18thou) told god sees what everyone does. she will answer for her misdeeds and

i am not god. i concentrate now on ma and her needs and to heqqw/ the rest of

'em. you allow yourself to be human and know you are there and doing the best

you can. i now have a volunteer once a wk for 4 hrs, a cna that gives ma her

baths here moomlighting every other sat and sun for a very reasonable fee, and

my sons (2) who help hubby and me out as they can. there used to be 35+ here at

christmas time w/ their hand out and no one here now that she is broke, old and

sick. but we're here and that's all that matters.

when ma cries cause this one or that one never calls or comes by, i just kiss

her and pat her white cotton-candy hair and love her and try not to cry w/ the

anger i feel. it wouldn't hurt anyone but her. the people on the message board

are the geatest, most loving and giving resource for LBD victims you could ever

find. my thoughts and prayers are w/ you and yours, me and mine, and everyone

on this board whose names i have. the rest must answer for themselves. end of

sermon w/ tiny tim's quote--GOD BLESS US EVERYONE'--had to end w/ a LOL--NANCYB

CG TO BETTYB-LBD '03 AND SAM DEMENTIA FROM HEAD TRAUMA '04

laugh whenever you can

---------------------------------

Shape Yahoo! in your own image. Join our Network Research Panel today!

[Guest guest]

Hi, -

Well, guess there are a lot of us with the " family that isn't " in our lives.

I'm grateful for your message here and the reminder to just keep loving our LOs

regardless of what " rest of them " do or don't do. You and all our friends here

are in my prayers tonight.

Peace, Lin

betty barber wrote:

this has really hit me between the eyes and what sharon had to say in

particular. i have wasted spo much time and energy on what my sister is and

isn't doing and how she is only willing to contribute 6-8 hrs a week to our

mother so i can get rest that i overlooked what our bickering was doing to

ma--until my oldest(who has POA for finances after sis and her son stole over

18thou) told god sees what everyone does. she will answer for her misdeeds and i

am not god. i concentrate now on ma and her needs and to heqqw/ the rest of 'em.

you allow yourself to be human and know you are there and doing the best you

can. i now have a volunteer once a wk for 4 hrs, a cna that gives ma her baths

here moomlighting every other sat and sun for a very reasonable fee, and my sons

(2) who help hubby and me out as they can. there used to be 35+ here at

christmas time w/ their hand out and no one here now that she is broke, old and

sick. but we're here and that's all that matters.

when ma cries cause this one or that one never calls or comes by, i just kiss

her and pat her white cotton-candy hair and love her and try not to cry w/ the

anger i feel. it wouldn't hurt anyone but her. the people on the message board

are the geatest, most loving and giving resource for LBD victims you could ever

find. my thoughts and prayers are w/ you and yours, me and mine, and everyone on

this board whose names i have. the rest must answer for themselves. end of

sermon w/ tiny tim's quote--GOD BLESS US EVERYONE'--had to end w/ a LOL--NANCYB

CG TO BETTYB-LBD '03 AND SAM DEMENTIA FROM HEAD TRAUMA '04

laugh whenever you can

---------------------------------

Shape Yahoo! in your own image. Join our Network Research Panel today!

[Guest guest]

AMEN to that!

Courage

Re: Re: moms condition

Hi, -

Well, guess there are a lot of us with the " family that isn't " in our lives.

I'm grateful for your message here and the reminder to just keep loving our LOs

regardless of what " rest of them " do or don't do. You and all our friends here

are in my prayers tonight.

Peace, Lin

betty barber wrote:

this has really hit me between the eyes and what sharon had to say in

particular. i have wasted spo much time and energy on what my sister is and

isn't doing and how she is only willing to contribute 6-8 hrs a week to our

mother so i can get rest that i overlooked what our bickering was doing to

ma--until my oldest(who has POA for finances after sis and her son stole over

18thou) told god sees what everyone does. she will answer for her misdeeds and i

am not god. i concentrate now on ma and her needs and to heqqw/ the rest of 'em.

you allow yourself to be human and know you are there and doing the best you

can. i now have a volunteer once a wk for 4 hrs, a cna that gives ma her baths

here moomlighting every other sat and sun for a very reasonable fee, and my sons

(2) who help hubby and me out as they can. there used to be 35+ here at

christmas time w/ their hand out and no one here now that she is broke, old and

sick. but we're here and that's all that matters.

when ma cries cause this one or that one never calls or comes by, i just kiss

her and pat her white cotton-candy hair and love her and try not to cry w/ the

anger i feel. it wouldn't hurt anyone but her. the people on the message board

are the geatest, most loving and giving resource for LBD victims you could ever

find. my thoughts and prayers are w/ you and yours, me and mine, and everyone on

this board whose names i have. the rest must answer for themselves. end of

sermon w/ tiny tim's quote--GOD BLESS US EVERYONE'--had to end w/ a LOL--NANCYB

CG TO BETTYB-LBD '03 AND SAM DEMENTIA FROM HEAD TRAUMA '04

laugh whenever you can

---------------------------------

Shape Yahoo! in your own image. Join our Network Research Panel today!

[Guest guest]

Hi ,

I have to admit that I think what you said to your sister was the unvarnished

truth. On the grand scale of things its not that awful at all but I guess for

your mother's sake you'll have to hold your tongue. I know how difficult it can

be.

Hopefully your sister will wake up and smell the coffee but then again I

wouldn't count on it as there are lots of siblings of people on this site who

just don't get it. You are doing just fine by your mom and your efforts and

memories of her will sustain you in time to come.

Courage

[Guest guest]

lynn,

easier yes that does make sense, remember your are riding the lewy roller

coaster, much easier going down the hill than struggling up the hill, the end

can be trying to come and then maybe not, that is what is sso terrible about

lbd, jans husband jim worried her and us last winter walking the balance beam

not sure which side to go to, but bounced back from barely able to move and no

energy to being able to come home and stay with her on weekends at home. so

with lbd you never know.

just know that we are with you and helping you thru this ride, hugs, sharon

---- Lynn wrote:

> Hi Donna,and Group,

> Thanks for your prayers and encouragement. Today My husband and I went to

see her early about 9:00 . She was somewhat alert and smiling alot. We went

out for breakfast and brought a partial ice cream cone. She devoured it. She

hasn't had anything like that in years. I wasn't sure if she would remember how

to eat it but she got the hang of it quickly. She was all smiles and tried to

talk. Didn't make any sense to us. My husband thinks she is at the end end. I

don't know. We've seen this before. As they say, it's a lewy coaster. It's

getting harder in some ways but in other ways, it's easier if that makes any

sense.

> Lynn S.

>

>

> ---------------------------------

> Catch up on fall's hot new shows on Yahoo! TV. Watch previews, get listings,

and more!

>

>

[Guest guest]

That is what it's all about on this List, Isn't it Sharon? We are

here for each other, (when I can be).

I hope you are holding your own dear, Sharon. You are the one with a

terrible load. Not only did you take care of your father, you have

the worst health of any of us that I am aware of. Yet, you are here,

helping all of us.

Thank you very much dear one.

Love a bunch,

Imogene

> > Hi Donna,and Group,

> > Thanks for your prayers and encouragement. Today My husband

and I went to see her early about 9:00 . She was somewhat alert and

smiling alot. We went out for breakfast and brought a partial ice

cream cone. She devoured it. She hasn't had anything like that in

years. I wasn't sure if she would remember how to eat it but she got

the hang of it quickly. She was all smiles and tried to talk.

Didn't make any sense to us. My husband thinks she is at the end

end. I don't know. We've seen this before. As they say, it's a lewy

coaster. It's getting harder in some ways but in other ways, it's

easier if that makes any sense.

> > Lynn S.

> >

> >

> > ---------------------------------

> > Catch up on fall's hot new shows on Yahoo! TV. Watch previews,

get listings, and more!

> >

> >

[Guest guest]

Hi Lynn

I know the exact ride you are on. I have been on this

ride before. As we use to say a long time ago " It is

an E Ticket " I am happy that your mom is remembering

how to eat an ice cream cone. LBD is amazing. One day

nothing the next remarkable.

I had to put my mom in an NH 19 months ago. I also

consulted Hospice and had two nurses from NH come to

my home to give their opinions. Everyone was in

agreement that they felt that my mom had less than 2

months to live. Well, as you can see they were all

wrong. The last time she saw the Geriatric Dr. he told

me maybe 1 year. In November that will be 2 years. She

was dropped from Hospice last October 7Th. One year

ago today.It is amazing to see. Many of us have seen

our loved ones be very near death and bounce back.

Others has lost loved ones very quickly. You just

never know what will happen. Only God knows the day

and the hour.

All this to say " Hang in there, Lynn " It is a day to

day thing. Be happy for the little things and try not

to look down the road to far. I am a planner and you

just cannot plan for anything with this disease. We

are all here for you. Just live for today.

Dena in SoCal

Mother (84)Existing with LBD in NH

--- Lynn wrote:

> Hi Donna,and Group,

> Thanks for your prayers and encouragement. Today

> My husband and I went to see her early about 9:00 .

> She was somewhat alert and smiling alot. We went

> out for breakfast and brought a partial ice cream

> cone. She devoured it. She hasn't had anything

> like that in years. I wasn't sure if she would

> remember how to eat it but she got the hang of it

> quickly. She was all smiles and tried to talk.

> Didn't make any sense to us. My husband thinks she

> is at the end end. I don't know. We've seen this

> before. As they say, it's a lewy coaster. It's

> getting harder in some ways but in other ways, it's

> easier if that makes any sense.

> Lynn S.

>

>

> ---------------------------------

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> Watch previews, get listings, and more!

>

> [Non-text portions of this message have been

> removed]

>

>

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[Guest guest]

Lynn, I am so sorry, I know this is horrendous! I am so glad for you and

your Mom that you are close, and that you can talk to her. If she kissed you

back then she knew. The last thing to " go "

is the hearing. She heard you.

The Mottling can't be missed. It is purple blotches around the toes

(especially), and fingers at first. I have never been around the other. It is

not a

slight bluing from being cold. But is purple. At least what I saw was.

When My husband's mother was in the nursing home, she had never used

profanity before, and she let him have it every time he visited. She used guilt

trips, and just made his life miserable, and he finally just went once a week.

You know what? In no time she was socializing, and had a " boyfriend " She would

order clothes, and go to Walmart with others and buy so that she would look

pretty for her " boyfriend. " She always had her hair done. My husband is an

only child, so she really put him through it, until she was forced to make her

own life, because she no longer had him.

She was the one we were with when she was dying. I watched the nurse look at

her feet, so I pulled to cover back and looked a number of times.

Your mother should not suffer at all if she has hospice. They make sure a

patient doesn't suffer.

Love a bunch,

Imogene

In a message dated 10/8/2007 12:39:16 PM Central Daylight Time,

lshilman@... writes:

Hi group,

I need to know if anyone has experienced there loved one jerking? My mom

has started little jerks from time to time. I also tried to explain to her

about her disease. When I was done I asked her for a kiss and put my lips to

her and she was able to kiss me. Do you think that is an indication that she

understood anything I said? She is sleeping more and eating less. What does

the mottling look like? I'm not sure if i'm seing it or not. Please pray that

the Lord would be good too her and spare her pain. And mine!

Love to all,

Lynn

************************************** See what's new at http://www.aol.com

[Guest guest]

Lynn: Those jerks are " myoclonic " jerks, and for some

with LBD, can be very strong and troublesome.

Apparently a part of LBD. I think they sometimes use

epilepsy meds to control them (they gave my husband

Depakote, but I don't know if it was just for that or

for other things as well).

--- Normal@... wrote:

>

> Lynn,

>

> My Mom has had those little jerks from time to time

> over the past year. I

> think it's a parkinsonism (or I assumed it is). She

> definitely understands

> you if she gave you a kiss when you asked her. And

> she loved her ice

> cream! Your Mom is quite aware, it seems to me--in

> a good way.

>

>

>

>

>

> Lynn

>

> <lshilman@...

>

> om>

> To

> Sent by: LBD support

>

> LBDcaregivers@yah

> <LBDcaregivers >

> oogroups.com

> cc

>

>

>

> Subject

> 10/08/2007 01:39

> moms condition

> PM

>

>

>

>

>

> Please respond to

>

> LBDcaregivers@yah

>

> oogroups.com

>

>

>

>

>

>

>

>

>

>

>

>

> Hi group,

> I need to know if anyone has experienced there loved

> one jerking? My mom

> has started little jerks from time to time. I also

> tried to explain to her

> about her disease. When I was done I asked her for

> a kiss and put my lips

> to her and she was able to kiss me. Do you think

> that is an indication

> that she understood anything I said? She is

> sleeping more and eating less.

> What does the mottling look like? I'm not sure if

> i'm seing it or not.

> Please pray that the Lord would be good too her and

> spare her pain. And

> mine!

> Love to all,

> Lynn

>

> ---------------------------------

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> Research Panel today!

>

> [Non-text portions of this message have been

> removed]

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>

>

> [Non-text portions of this message have been

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>

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[Guest guest]

Lynn: The mottling that my husband had did not come

until the last hour or so before death. At times, his

feet looked a little blue, but lack of oxygen can do

that. When they gave him more oxygen, that went away,

but the real purple mottling didn't show until very

close to death. Very noticeable on his knees.

June

--- Lynn wrote:

> Hi group,

> I need to know if anyone has experienced there

> loved one jerking? My mom has started little jerks

> from time to time. I also tried to explain to her

> about her disease. When I was done I asked her for

> a kiss and put my lips to her and she was able to

> kiss me. Do you think that is an indication that

> she understood anything I said? She is sleeping

> more and eating less. What does the mottling look

> like? I'm not sure if i'm seing it or not. Please

> pray that the Lord would be good too her and spare

> her pain. And mine!

> Love to all,

> Lynn

>

>

> ---------------------------------

> Shape Yahoo! in your own image. Join our Network

> Research Panel today!

>

> [Non-text portions of this message have been

> removed]

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