Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 TRUST YOUR GUT... if she is on no meds and fine-- let her be. My dad is at " end stage " and sleeps most of the time.. When he does talk it is gobble goop with occasional moments of clarity.. BUt I would not introduce any drugs and risk a complication.. > > How does it affect Lewys patients? As I have said my step mom is in > end stages....the new dr wants to try her on it. Right now she's on no > meds and much more relaxed. She was taking Nameda and Aricept back in > the spring....they stopped working. When she came off she was looser > and relaxed. Now instead of being in a chair on wheels all day, she > lies down in the afternoon to prevent leg swelling. Even when she's up > she mostly sleeps; I don't want to agitate her AT ALL. Dr seems to > think she would might talk again and gave me the line about, " wouldn't > you want to talk to her? " . She hasn't talked since December and even > then she was in Lala land. I told him how quickly she has gone down > hill. She has had this since 1998. I think he's being a good dr but > doesn't understand HER wished to be " let go " at this point in time. > She gave us instructions about her journey and we are trying to follow > them. She is on comfort meds only. He says this would be a comfort > med? I'm REALLY confused and don't want to make her go through being > agitated and discomfted....Sara > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2006 Report Share Posted September 25, 2006 Requip is supposed to be a drug for Restless Leg Syndrome and reportedly helps with some of the Parkinson's symptoms. It didn't work well for my mother. I don't think that requip helped my mother, rather the opposite: I think that it accelerated her decline. She was still walking unassited, without a walker when the doctor started her on requip. The falling started soon after. It tended to give her more of the - what she then called -the dizzies- disorientation and nausia, which got worse as we followed the slow upgrade in the dosage. When we finally switched doctors, and got the diagnosis for LBD, the new Neurologist slowly took her off both the Requip and Simement. She improved some as those meds were slowly scaled back. Ditto on Donna's phrase : Trust your Gut. Dann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 26, 2006 Report Share Posted September 26, 2006 I agree with the comments--if she's not uncomfortable, don't upset the applecart. BTW-My mom, who was dxed 3/06, can no longer read. Talk about a rapid decline in mentation. Her movement disorders are more pronounced, so the medication game will be a challenge. We see the neurologist in 2 weeks. Dodie (Mom, 71. Dxed with LBD 3/06 after brain surgery. Dad, 81, died 2/06 of pancreatic CA. Knew Mom wasn't " right " , but thought it was psychiatric. Now wonder how long (and what toll) the LBD took on my Dad.) --------------------------------- Yahoo! Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2006 Report Share Posted September 28, 2006 hi sara, my dad didnt take requip so i cant comment on the medicine itself. BUT, it seems to me your little voice is saying NO, so i would go along iwth your little voice and NOT do the requip. it is hard to watch our loved ones go from communicative to almost noncommunicative. my dad was just pointing alot at the end but 32 hours before he died he sung happy birthday with us to donnie. so you never know. follow your heart and instincts, good luck and hugs, sharon m ---- Sara wrote: How does it affect Lewys patients? As I have said my step mom is in end stages....the new dr wants to try her on it. Right now she's on no meds and much more relaxed. She was taking Nameda and Aricept back in the spring....they stopped working. When she came off she was looser and relaxed. Now instead of being in a chair on wheels all day, she lies down in the afternoon to prevent leg swelling. Even when she's up she mostly sleeps; I don't want to agitate her AT ALL. Dr seems to think she would might talk again and gave me the line about, " wouldn't you want to talk to her? " . She hasn't talked since December and even then she was in Lala land. I told him how quickly she has gone down hill. She has had this since 1998. I think he's being a good dr but doesn't understand HER wished to be " let go " at this point in time. She gave us instructions about her journey and we are trying to follow them. She is on comfort meds only. He says this would be a comfort med? I'm REALLY confused and don't want to make her go through being agitated and discomfted....Sara -- Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall 7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration pneumonia and uti 8/05, died of blood pressure drop on 9/25/05, may he rest in peace with his mom and dad, a smile a day keeps the meanies away Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2006 Report Share Posted September 30, 2006 After my LO took Requip, she walked better for about a week, then went back to where she was before. Thought it was only for movement and like the rest of th PD meds, can increase hallucinations. Hove you checked it out on Google? --- LadySmilingAtU2@... wrote: > hi sara, > my dad didnt take requip so i cant comment on the > medicine itself. BUT, it seems to me your little > voice is saying NO, so i would go along iwth your > little voice and NOT do the requip. it is hard to > watch our loved ones go from communicative to > almost noncommunicative. my dad was just pointing > alot at the end but 32 hours before he died he sung > happy birthday with us to donnie. so you never > know. follow your heart and instincts, good luck > and hugs, sharon m > ---- Sara wrote: > How does it affect Lewys patients? As I have said my > step mom is in > end stages....the new dr wants to try her on it. > Right now she's on no > meds and much more relaxed. She was taking Nameda > and Aricept back in > the spring....they stopped working. When she came > off she was looser > and relaxed. Now instead of being in a chair on > wheels all day, she > lies down in the afternoon to prevent leg swelling. > Even when she's up > she mostly sleeps; I don't want to agitate her AT > ALL. Dr seems to > think she would might talk again and gave me the > line about, " wouldn't > you want to talk to her? " . She hasn't talked since > December and even > then she was in Lala land. I told him how quickly > she has gone down > hill. She has had this since 1998. I think he's > being a good dr but > doesn't understand HER wished to be " let go " at this > point in time. > She gave us instructions about her journey and we > are trying to follow > them. She is on comfort meds only. He says this > would be a comfort > med? I'm REALLY confused and don't want to make her > go through being > agitated and discomfted....Sara > > > > > > > -- > Daugher of Leonard, diag May 2004, had lbd since > 1993, had hip surgery from fall 7/05, aspiration > pneumonia 7/05 with pulmonary embolyis, had > aspiration pneumonia and uti 8/05, died of blood > pressure drop on 9/25/05, > may he rest in peace with his mom and dad, > a smile a day keeps the meanies away > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
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