Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 HI Dawn, I do so like to read about good things on this board. I'm happy to hear that your mom is on the road to recovery. Courage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Dawn, What wonderful news. Glad to hear she is doing so well. This disease is amazing. The ups and downs we go through, never mind our LOs. And she remembered something to say " I might make it after all. " Good they can let go and just go on for now. Sound like you are doing so much better too. Hugs, Donna R Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. She was almost 89 when she died in '02. No dx other than mine. Update Thank you all so much for your thoughts and prayers, it looks like the prayers have worked for which we're truly grateful. I don't have much time at the minute (supposed to be working) but yesterday Mum had gone from telling her daughter on Saturday that she wouldn't be getting better, that she would die from this illness to Sunday lunch time when we visited her she was sitting in the chair, reaching for her own drink AND DRINKING from it! She was chatting, not all was making sense but we read between the lines and got there in the end. She also told me and SIL that she thought she would " make it " after all...She was wide awake the whole time we were there and later in the day the other daughter and SIL went and she was strong enough to want to take a shower - apparently she even stood throughout! We think a combination of us having insisted they give the LBD meds at the correct time, my husband ensuring that at least her evening meal is eaten and the exelon given with that meal and the anti biotics they presecribed on Friday has all contributed to what we see as nothing but a miracle. Honestly on Saturday evening my SIl and I really thought she would pass that night if not whilst we were there....She is amazing and has such a strong will and a strong body.. Look...I said I didn't have much time but just had to tell all as best and condensed as I could. And once again thank you all for your prayers Love Dawn x Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2007 Report Share Posted October 2, 2007 We are doing much better now thank you Donna...its just such a relief. Mum's had infections before but NOTHING like this, we really thought ...well you know that already. Whilst visiting with her on Sunday all of the nursing staff and care workers, who're looking after her, commented on how well she looked but one in particular told her " you've made my day, you really have! " Well Mum beamed her beautiful smile at her and said " Well thank you very much " ...nearly broke my heart! I just had to leave the room, for the shear relief brought on a crying fit, my SIL couldn't believe it...I get down like everyone but don't normally sob like that especially when I'm happy....maybe it was the stress of the whole situation exploding out of me? Who knows? Yesterday and she's still improving so now we're going to get the OT on board, get her mobilised and hopefully back home for a while longer. God bless you all for being here Dawn x > > Dawn, > > What wonderful news. Glad to hear she is doing so well. This disease is amazing. The ups and downs we go through, never mind our LOs. And she remembered something to say " I might make it after all. " Good they can let go and just go on for now. > > Sound like you are doing so much better too. > > Hugs, > > Donna R > > Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in a nh. > She was almost 89 when she died in '02. No dx other than mine. > > > Update > > Thank you all so much for your thoughts and prayers, it looks like > the prayers have worked for which we're truly grateful. > > I don't have much time at the minute (supposed to be working) but > yesterday Mum had gone from telling her daughter on Saturday that she > wouldn't be getting better, that she would die from this illness to > Sunday lunch time when we visited her she was sitting in the chair, > reaching for her own drink AND DRINKING from it! She was chatting, > not all was making sense but we read between the lines and got there > in the end. She also told me and SIL that she thought she would " make > it " after all...She was wide awake the whole time we were there and > later in the day the other daughter and SIL went and she was strong > enough to want to take a shower - apparently she even stood > throughout! > > We think a combination of us having insisted they give the LBD meds > at the correct time, my husband ensuring that at least her evening > meal is eaten and the exelon given with that meal and the anti > biotics they presecribed on Friday has all contributed to what we see > as nothing but a miracle. Honestly on Saturday evening my SIl and I > really thought she would pass that night if not whilst we were > there....She is amazing and has such a strong will and a strong body.. > > Look...I said I didn't have much time but just had to tell all as > best and condensed as I could. > > And once again thank you all for your prayers > > Love Dawn x > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 4, 2007 Report Share Posted October 4, 2007 i'm sorry i am just now catching up on posts...i'm am so happy and so sad for yu, dawn. i'm on hr 28 w/ 3hrs sleep because my ma's rebound to 'sanity' is back to lewyville. i just put her back to bed for the rest of the night (i hope) and i will hopefully soon follow. she was up 'playing' on the 'puter which i spent half a day de-bugging and no the subscription to the service ran out. i am having injections friday in my spine (5of them) and then in 10 days i'm having my rt hip de-bursussed (is that a word?) and injected w/cortisone so i can keep waiting on her so she doesn't fall and hurt herself. yes, i have cna's help her bathe 3x a week and a hospice volunteer 4hrs a week. earlier in my posts, (i think 1st or 2nd) i described my mother and her situation. i am alone basically other than the tuesday my sis has pencilled for her and my dementia hubby who does the main housekeeping. my endocrinologist has ordered a lot of things (scopes, blood work, ct-s ) and i am afraid in my impassioned fit to keep her home rather than the only place she can now affford (i pay $500/mo of my $700 and am selling my house to pay her loan the rest of the way off she took to help me buy it although my payment is only $250)it looks like she will end up there anyway and i will have failed in my attempt to save her from greedy relatives ( a few tens of thousands of $$ too late) and may have fretted myself into even worse shape than I was to start with. i am sad because like you, dawn, my spirits rose every time there was an upswing in her condition. at the neurologist (she only diegned to visit once because he was the 1 who said she had LBD and couldn't drive any more) she said she wished ' we would accpet she is dying', and let her die in peace is the inference i took. she isn't awake now, less than 30 mins after i chased her back to bed, but it will take me a couple of hrs to get back to sleep. i accept she is dying but the neuro wants to see her back and has referred her to uro to get a grip on the UTI's she keeps having. hospice may drop her for breach of contract and i would understand if they did. her oral exam was better than the 1 only time he saw her and is giving a new EEG later after UTI's clear. she may last another 2 or 3 yrs i am guessing, but i'm not sure about me. i read caregiving can take 4-8 yrs off a lifespan (how can they guestimate that ?) and i have enough wrong w/ me at 51 yrs old that i may only have 4-8 yrs period and i don't know what shape hubby may be by then. i am in a quandry and get upset alot easier that i used to. i'm sorry to rant like this but i am sick, tired and so despondant over her relapse back to lewyville and the one who looks like my ma but that is where the resemblance ends, i don't know how long i can live on the lewy yo-yo, now i understand why LO's are in other than homes-safety for ALL(i fall too when exhausted)an sanity for all-- i get short w/ her at 2 a.m. and hurt her feelings and feel like sqqt. again, i'm sorry, i'm glad for you dawn, but it's a bittersweet glad that feels sad. i wish i could be as eloquent as tony and some of the others but i'm too sick,tired and heartbroken. i keep you all in my heart and prayers,--NANCYB CAREGIVER TO MA,BETTY-DX LBD '03AND HUBBY,SAM-DX DEMENTIA DUE TO HEAD TRAUMA '04--REALLY- LAUGH WHENEVER YOU CAN laugh whenever you can --------------------------------- Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Yahoo! Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2011 Report Share Posted January 13, 2011 Hi all,How are you all doing?I am again on a different antibiotics due to Sinus infection, ear infection and a chest infection seems like a never ending cycle I am tired after not sleeping at all last night, Been told to try and sleep sitting up going to be fun!Anyone got any advice on how to best cope with painful chest and what position is best From Miss Donna-marie rachel Griffiths UK south Wales yn Gymraeg ac yn falch Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2011 Report Share Posted January 14, 2011 Sitting up in a recliner is about as good as it gets Donna. It takes alot of pressure off your chest. When Ive had bronchitis, I use (I can tolerate the mentholyptus smell) Vicks vaporrub like its my best friend at night. Hot showers/baths work too. I also take Tylenol or Ibuprofen around the clock if my chest really hurts. Using a heating pad on your back when you are sitting in your chair might help too. Drink hot liquids too...lots of them! Feel better soon! Ann Update Hi all, How are you all doing? I am again on a different antibiotics due to Sinus infection, ear infection and a chest infection seems like a never ending cycle I am tired after not sleeping at all last night, Been told to try and sleep sitting up going to be fun! Anyone got any advice on how to best cope with painful chest and what position is best From Miss Donna-marie rachel Griffiths UK south Wales yn Gymraeg ac yn falch Quote Link to comment Share on other sites More sharing options...
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