an article in Natural Awakenings about my LBD Support Group

[Guest guest]

hi all,

i wanted to brag a little, sory, but i am so proud to be starting an LBD

support group in honor of my dad, and the meeting will take place at my shoppe

where many peopel will be comfortable as it is set up as a house, so there are

couches and chairs and tables to be confortable, here it is they made me write

it in 3rd person which i would have preferd 1st person oh well hugs sharon

hi a ll,

sorry i am bragging here, this is an intro i wrote in 3rd person ugh they

wouldnt let me do it in 1st person about my new lbd support group, here it is, i

hope you all approve hugs, sharon

Dementia Support Group

On September 11th, a local support group will be starting

for caregivers and family of Lewy Body Dementia

patients.

Lewy Body Dementia is a progressive brain disease and

is the second leading cause of degenerative dementia in the

elderly. It accounts for as much as 20% of all dementia patients

and is the most frequently misdiagnosed form of dementia. One

half of all Parkinson patient’s will develop Parkinson’s Disease

Dementia which is a form of a LBD.

LBD patient’s are extremely sensitive to medicines commonly

used to treat dementia based hallucinations. They also

have fluctuating cognition, these changes can occur frequently

and quickly. Common things like balancing a checkbook, or

how to use a screwdriver may become foreign to an LBD‘er.

Forgetting words or names, and having difficulty with language

is common, as well. This may be accompanied with Parkinson

symptoms such as shuffling gait, leaning to one side, and unexplained

falls.

Even though a conclusive diagnosis can only be obtained by

a brain autopsy, it is important that LBD be properly diagnosed

since the patient adversely reacts to many common medicines

given to other types of dementia. A geriatric neurologist or a

medical university hospital are good places to start for diagnosis.

For more information about the NW Florida SE Alabama

LBD Support Group, please leave message for Sharon Murray

at or email PensacolaLewyBodySupportGroup@

cox.net. The meeting will be at Treasures Galore, 1700 Fairfield

Drive, Pensacola, off of Gulf Beach Highway.

--

I am daugher of Leonard, diagnosed May 2004, probably had lbd since 1993,.Dad

had a serious fall in 7/05 causing him to hav hip surgery .After that he

developed aspiration pneumonia 7/05 with pulmonary embolyis, which he almost

died from. He had a 2nd bout of aspiration pneumonia and uti 8/05. He died when

his blood pressure fluctuations started dropping without coming back up on

9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

[Guest guest]

Congrats Sharon! :) Good luck on a successful meeting -- no doubt it

will be!! :)

I, too, am proud of the support group I started in MA in memory of my

mom. We'll be having our 6th meeting in September. My email list is now

at 18 and the # of attendees per actual meeting is on average at 6. Now

I know some of the answers that I didn't know when I started the

journey... Now newbies in MA know where to go for a dx, to find LBD

specialists, NH that welcome LBD residents (not turn away out of fear),

etc. And I'm able to share the info to those who find me. The newbies

find me via LBDA, this board, and the nursing home where the meeting is

held. And now MA Alz. Assoc. know about the meetings and I've

communicated with them and they provided me with additional information

that I can pass on (a local list of adult day centers, a local list of

in-home services, a local list of doctors who work well with dementia

patients) I wish I knew all that I know now when mom started her

journey -- but I'm sure she's happy that I'm passing on the

knowledge...

[Guest guest]

Way to go Sharon!!!!!!

Courage

an article in Natural Awakenings about my LBD Support

Group

hi all,

i wanted to brag a little, sory, but i am so proud to be starting an LBD

support group in honor of my dad, and the meeting will take place at my shoppe

where many peopel will be comfortable as it is set up as a house, so there are

couches and chairs and tables to be confortable, here it is they made me write

it in 3rd person which i would have preferd 1st person oh well hugs sharon

hi a ll,

sorry i am bragging here, this is an intro i wrote in 3rd person ugh they

wouldnt let me do it in 1st person about my new lbd support group, here it is, i

hope you all approve hugs, sharon

Dementia Support Group

On September 11th, a local support group will be starting

for caregivers and family of Lewy Body Dementia

patients.

Lewy Body Dementia is a progressive brain disease and

is the second leading cause of degenerative dementia in the

elderly. It accounts for as much as 20% of all dementia patients

and is the most frequently misdiagnosed form of dementia. One

half of all Parkinson patient’s will develop Parkinson’s Disease

Dementia which is a form of a LBD.

LBD patient’s are extremely sensitive to medicines commonly

used to treat dementia based hallucinations. They also

have fluctuating cognition, these changes can occur frequently

and quickly. Common things like balancing a checkbook, or

how to use a screwdriver may become foreign to an LBD‘er.

Forgetting words or names, and having difficulty with language

is common, as well. This may be accompanied with Parkinson

symptoms such as shuffling gait, leaning to one side, and unexplained

falls.

Even though a conclusive diagnosis can only be obtained by

a brain autopsy, it is important that LBD be properly diagnosed

since the patient adversely reacts to many common medicines

given to other types of dementia. A geriatric neurologist or a

medical university hospital are good places to start for diagnosis.

For more information about the NW Florida SE Alabama

LBD Support Group, please leave message for Sharon Murray

at or email PensacolaLewyBodySupportGroup@

cox.net. The meeting will be at Treasures Galore, 1700 Fairfield

Drive, Pensacola, off of Gulf Beach Highway.

--

I am daugher of Leonard, diagnosed May 2004, probably had lbd since 1993,.Dad

had a serious fall in 7/05 causing him to hav hip surgery .After that he

developed aspiration pneumonia 7/05 with pulmonary embolyis, which he almost

died from. He had a 2nd bout of aspiration pneumonia and uti 8/05. He died when

his blood pressure fluctuations started dropping without coming back up on

9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away