Sensory Issues

[Guest guest]

I know a few of you have mentioned to me that Isabella might have sensory

issues, you were right. I honestly do not think I was understand the complexity

of sensory issues and how they can effect a person differently, with so many

different sense involved. On Friday OT came to evaluate her. The findings were

very strange, but that does not shock me any more. She scored Isabella and as a

whole the scoring showed Isabella did not have sensory issues, but when she

broke down each category she had sensory issues in all categories and some were

pretty extreme. Needless to say they added OT to her list of therapy. There

was so much they covered on Friday I could not grasp it all so I started looking

on the web to find out all I could. I found a really good web site and thought

I would pass it on to all of you.

http://www.sensory-processing-disorder.com/index.html

They also started her on brushing therapy and showed me how to do it.

Isabella loves it and goes to sleep shortly after each session. This seems to

have a very calming effect on her.

Sue

[Guest guest]

Hi Fiona,

I would have Hunter get an OT eval. If he has SI, it will help him get a

head start.

From: MosaicDS [mailto:MosaicDS ] On Behalf

Of Fiona & Lee Price

Sent: Friday, June 06, 2008 2:07 AM

To: MosaicDS Group

Subject: Sensory issues

A support list for parents whose babies/children/adult children have been

diagnosed with Mosaic Down Syndrome!Hi everyone

I've been reading all the blogs lately and have noticed a couple of people

mention sensory issues. As Hunter is only 8 months old I haven't really had

any troubles or come across any issues yet, however, now I realise he

probabloy has a sensory issue because whenever I try and wash his hair or

wet his face he screams. At first I thought this was just because the water

was getting in his eyes so I tried using my hands to cover his face but this

didn't work. Then I thought it was because I wasn't giving him a bath or

shower every day so I started showering with him everyday, but this hasn't

made it any easier either.

Can I ask those who also have a problem with this, is there anything I can

do to help or will he just hate having his hair washed forever. I wanted to

start taking him to swimming classes but now I'm a bit worried as I know

they dunk the babies under the water (which he will hate).

I also wanted to ask what other sensory issues can develop.

Sorry if I'm a bit vague bit this is still all very new to us.

I also wanted to let Kristy know how much I'm enjoying your blogs on DS and

MDS. You write things that are very easy to understand and are a joy to

read. Thank you for educating me all over again!

Fiona

Hunter mds 8mths

[Guest guest]

Other issues that can develop that can occur and develop late on are

language loss, sensory to food, touch, not playing with toys, loud noises,

haircuts, brushing teeth and so on. All of this can delay developmental

learning and speech.

From: MosaicDS [mailto:MosaicDS ] On Behalf

Of Fiona & Lee Price

Sent: Friday, June 06, 2008 2:07 AM

To: MosaicDS Group

Subject: Sensory issues

A support list for parents whose babies/children/adult children have been

diagnosed with Mosaic Down Syndrome!Hi everyone

I've been reading all the blogs lately and have noticed a couple of people

mention sensory issues. As Hunter is only 8 months old I haven't really had

any troubles or come across any issues yet, however, now I realise he

probabloy has a sensory issue because whenever I try and wash his hair or

wet his face he screams. At first I thought this was just because the water

was getting in his eyes so I tried using my hands to cover his face but this

didn't work. Then I thought it was because I wasn't giving him a bath or

shower every day so I started showering with him everyday, but this hasn't

made it any easier either.

Can I ask those who also have a problem with this, is there anything I can

do to help or will he just hate having his hair washed forever. I wanted to

start taking him to swimming classes but now I'm a bit worried as I know

they dunk the babies under the water (which he will hate).

I also wanted to ask what other sensory issues can develop.

Sorry if I'm a bit vague bit this is still all very new to us.

I also wanted to let Kristy know how much I'm enjoying your blogs on DS and

MDS. You write things that are very easy to understand and are a joy to

read. Thank you for educating me all over again!

Fiona

Hunter mds 8mths

[Guest guest]

I wet a soapy washcloth ahead of time and keep his hair buzzed short.

When he first steps in the tub, I do it very fast. I went thru the

same thoughts you did and wondered if it was because I bathed him

every other day. Then I wondered about the water temperature, the

soap, water in eyes and ears. This is the weird thing...although he

is cautious in a pool of water, and he does get some perturbed about

the water if you put it upon his head, he seems to be able to brush

it off faster in public water than at home in the bathtub. Hair

brushes are a no-no for us as well. Toothbrushes are getting better,

as we let him do his own (usually). I do not know for sure, and I am

not sure anyone will ever know for sure, but it seems to be

te " touch " rather than the water. (If that makes any sense

whatsoever?) Simply splashing water on his head does not perturb him

as much as " touching his head " to shampoo it. I even thought it was

a " fear of water " , because I was extremely fearful of water as a

child. (But I had good reason...drowning or near drowning and

resuscitated at 2 or 3.) I cannot say I remember that he was

sensitive to touch as a baby. It seemes to just occur one day. Now

that I have been hearing from speech therapists and basic reading and

information gathering all around from all sources, I am beginning to

see that it is something else and not a fear of water in itself. <br>

BTW, he has no problems with eating, never has. Breastfed well, feeds

self well, and etc... He did get a reflux issue after a needless NG

tube (an insurance money maker). So we think this was the cause. And

between 15 months and two, we discovered he had an aversion to gluten-

containing products when he kept spitting up tremendous amounts of

foul smelling bile stuff. Still he ate all the time. We eliminated

the gluten and no more issue with that. We are not sure why he

responds this way. He also detests loud train hons and the baby

crying. Yet, he will kill our ears with a loud TV (perhaps he is

drowning us out?) You are not alone.

>

> A support list for parents whose babies/children/adult children

have been diagnosed with Mosaic Down Syndrome!Hi everyone

>

> I've been reading all the blogs lately and have noticed a couple of

people mention sensory issues. As Hunter is only 8 months old I

haven't really had any troubles or come across any issues yet,

however, now I realise he probabloy has a sensory issue because

whenever I try and wash his hair or wet his face he screams. At

first I thought this was just because the water was getting in his

eyes so I tried using my hands to cover his face but this didn't

work. Then I thought it was because I wasn't giving him a bath or

shower every day so I started showering with him everyday, but this

hasn't made it any easier either.

>

> Can I ask those who also have a problem with this, is there

anything I can do to help or will he just hate having his hair washed

forever. I wanted to start taking him to swimming classes but now

I'm a bit worried as I know they dunk the babies under the water

(which he will hate).

>

> I also wanted to ask what other sensory issues can develop.

>

> Sorry if I'm a bit vague bit this is still all very new to us.

>

> I also wanted to let Kristy know how much I'm enjoying your blogs

on DS and MDS. You write things that are very easy to understand and

are a joy to read. Thank you for educating me all over again!

>

> Fiona

> Hunter mds 8mths

>

>

[Guest guest]

Fiona, I agree with the other have Hunter tested for sensory issues. I was

speaking with my daughters OT the other day and she said most people have some

for of sensory issues. The way I look at it the more therapy we give our

children when they are young the better it is. I also like the fact that I have

other people more experienced then myself seeing my daughter all of the time.

This way they might pick up on something that I miss.

Sue

Fiona & Lee Price wrote:

A support list for parents whose babies/children/adult children have

been diagnosed with Mosaic Down Syndrome!Hi everyone

I've been reading all the blogs lately and have noticed a couple of people

mention sensory issues. As Hunter is only 8 months old I haven't really had any

troubles or come across any issues yet, however, now I realise he probabloy has

a sensory issue because whenever I try and wash his hair or wet his face he

screams. At first I thought this was just because the water was getting in his

eyes so I tried using my hands to cover his face but this didn't work. Then I

thought it was because I wasn't giving him a bath or shower every day so I

started showering with him everyday, but this hasn't made it any easier either.

Can I ask those who also have a problem with this, is there anything I can do to

help or will he just hate having his hair washed forever. I wanted to start

taking him to swimming classes but now I'm a bit worried as I know they dunk the

babies under the water (which he will hate).

I also wanted to ask what other sensory issues can develop.

Sorry if I'm a bit vague bit this is still all very new to us.

I also wanted to let Kristy know how much I'm enjoying your blogs on DS and MDS.

You write things that are very easy to understand and are a joy to read. Thank

you for educating me all over again!

Fiona

Hunter mds 8mths

[Guest guest]

Hi Fiona, Hailey has SID (sensory disorder) I have done alot of

research on this subject and have come across a treatment called

brushing. I spoke with Haileys therapist and she is gonna start doing

this her next visit. Ill let you know how that goes. I wish they

would have started it at a younger age. Thinking back when Hailey was

little she didnt like to be held and doesnt like her face to be

touched or her hands and feet. Some children are sensitive to light

touch and some to a more firm touch. I wish I would have known about

this disorder when she was a baby but I didnt. I thought all these

behaviours were just because she wanted to be on the go. Hailey will

move away from touch. This breaks my heart. I hope the brushing

works. Her therapist said that most kids dont like it at first but

then grow to love it. It becomes very soothing to them and calms them

down. There are some great websites out there to help reconize the

symptoms and educate. Another thing I have noticed with Hailey is she

doesnt seem to feel pain the same way. Its like she has a delay in

her reaction to pain. If she even reacts at all. She ran into the

table and hit her head really hard and just sat down and stared at

the floor. She never cried and yet she had a big goose egg on her

head. She also is sensitive to hot and cold. Warm food feels really

hot to her. A warm bath feels really hot to her. They just dont

process these feelings the same way we do. Well those are a few

things you can look out for I hope it helps. I do recommend research.

If I would have had access to a computer back then I could have

helped Hailey so much more. No one ever told me about this disorder

when she was little and I didnt no all of these were symptoms of

sensory integration disorder. I just thought it was behaviour

issues.If you have any other question feel free to ask. Have a good

day. Becky & #65007; & #65007;

& #65007; & #65007; & #65007; & #65007;

>           A support list for parents whose babies/children/adult

children have been diagnosed with Mosaic Down Syndrome!Hi

everyone & #65007; & #65007;

> & #65007; & #65007;

> I've been reading all the blogs lately and have noticed a couple of

people mention sensory issues. As Hunter is only 8 months old I

haven't really had any troubles or come across any issues yet,

however, now I realise he probabloy has a sensory issue because

whenever I try and wash his hair or wet his face he screams. At first

I thought this was just because the water was getting in his eyes so

I tried using my hands to cover his face but this didn't work. Then I

thought it was because I wasn't giving him a bath or shower every day

so I started showering with him everyday, but this hasn't made it any

easier either. & #65007; & #65007;

> & #65007; & #65007;

> Can I ask those who also have a problem with this, is there

anything I can do to help or will he just hate having his hair washed

forever. I wanted to start taking him to swimming classes but now I'm

a bit worried as I know they dunk the babies under the water (which

he will hate). & #65007; & #65007;

> & #65007; & #65007;

> I also wanted to ask what other sensory issues can develop. & #65007; & #65007;

> & #65007; & #65007;

> Sorry if I'm a bit vague bit this is still all very new to us. & #65007; & #65007;

> & #65007; & #65007;

> I also wanted to let Kristy know how much I'm enjoying your blogs

on DS and MDS. You write things that are very easy to understand and

are a joy to read. Thank you for educating me all over again! & #65007; & #65007;

> & #65007; & #65007;

> Fiona & #65007; & #65007;

> Hunter mds 8mths & #65007; & #65007;

> & #65007; & #65007;

>

[Guest guest]

This is the message I was trying to send the other day. It still has not posted

and Yahoo is still " investigating. " It was still in my sent items, so I decided

to try and re-send it!

A.

Special Educator

Simon Kenton HS

11132 Madison Pk.

Independence, KY 41051

(859)960-0348

cynthia.jones@...

________________________________

From: , - Kenton County

Sent: Tue 6/10/2008 9:41 AM

To: MosaicDS

Subject: RE: Sensory issues

They brush Molly at school and it really seems to help her focus. The first

time I heard a child being brushed, I thought it sounded HORRIBLE, because I

could hear it from across the room! So, when the suggested it for Molly I was

really hesitant. Then, they let me feel the brush and it's really extremely

soft! In fact, I'D love to be brushed for a few minutes a day! LOL! They also

use a Hug vest -- it's sort of a weighted vest for 30 minutes a day. The thing

with the vest, though, is if you leave it on them for more than 30 minutes, they

will fall asleep! I was a big skeptic at first, but these things really do

work.

A.

Special Educator

Simon Kenton HS

11132 Madison Pk.

Independence, KY 41051

(859)960-0348

cynthia.jones@...

________________________________

From: MosaicDS on behalf of Becky

Sent: Tue 6/10/2008 9:09 AM

To: MosaicDS

Subject: Re: Sensory issues

Hi Fiona, Hailey has SID (sensory disorder) I have done alot of

research on this subject and have come across a treatment called

brushing. I spoke with Haileys therapist and she is gonna start doing

this her next visit. Ill let you know how that goes. I wish they

would have started it at a younger age. Thinking back when Hailey was

little she didnt like to be held and doesnt like her face to be

touched or her hands and feet. Some children are sensitive to light

touch and some to a more firm touch. I wish I would have known about

this disorder when she was a baby but I didnt. I thought all these

behaviours were just because she wanted to be on the go. Hailey will

move away from touch. This breaks my heart. I hope the brushing

works. Her therapist said that most kids dont like it at first but

then grow to love it. It becomes very soothing to them and calms them

down. There are some great websites out there to help reconize the

symptoms and educate. Another thing I have noticed with Hailey is she

doesnt seem to feel pain the same way. Its like she has a delay in

her reaction to pain. If she even reacts at all. She ran into the

table and hit her head really hard and just sat down and stared at

the floor. She never cried and yet she had a big goose egg on her

head. She also is sensitive to hot and cold. Warm food feels really

hot to her. A warm bath feels really hot to her. They just dont

process these feelings the same way we do. Well those are a few

things you can look out for I hope it helps. I do recommend research.

If I would have had access to a computer back then I could have

helped Hailey so much more. No one ever told me about this disorder

when she was little and I didnt no all of these were symptoms of

sensory integration disorder. I just thought it was behaviour

issues.If you have any other question feel free to ask. Have a good

day. Becky & #65007; & #65007;

& #65007; & #65007; & #65007; & #65007;

> A support list for parents whose babies/children/adult

children have been diagnosed with Mosaic Down Syndrome!Hi

everyone & #65007; & #65007;

> & #65007; & #65007;

> I've been reading all the blogs lately and have noticed a couple of

people mention sensory issues. As Hunter is only 8 months old I

haven't really had any troubles or come across any issues yet,

however, now I realise he probabloy has a sensory issue because

whenever I try and wash his hair or wet his face he screams. At first

I thought this was just because the water was getting in his eyes so

I tried using my hands to cover his face but this didn't work. Then I

thought it was because I wasn't giving him a bath or shower every day

so I started showering with him everyday, but this hasn't made it any

easier either. & #65007; & #65007;

> & #65007; & #65007;

> Can I ask those who also have a problem with this, is there

anything I can do to help or will he just hate having his hair washed

forever. I wanted to start taking him to swimming classes but now I'm

a bit worried as I know they dunk the babies under the water (which

he will hate). & #65007; & #65007;

> & #65007; & #65007;

> I also wanted to ask what other sensory issues can develop. & #65007; & #65007;

> & #65007; & #65007;

> Sorry if I'm a bit vague bit this is still all very new to us. & #65007; & #65007;

> & #65007; & #65007;

> I also wanted to let Kristy know how much I'm enjoying your blogs

on DS and MDS. You write things that are very easy to understand and

are a joy to read. Thank you for educating me all over again! & #65007; & #65007;

> & #65007; & #65007;

> Fiona & #65007; & #65007;

> Hunter mds 8mths & #65007; & #65007;

> & #65007; & #65007;

>

[Guest guest]

I forgot to mention that along with Charlie Hart's head and face

sensitivity, he also cannot stand his " back " to be washed. I got

reminded very quickly when he had his bath last night. What I have

started doing is using a " sponge " soaked in water and squeezing it so

the water " drips " like rain. At first he jumps, but then it seems to

be less traumatic than scrubbing or washing with a washcloth. We play

a game with the water pitcher that " sprinkles " water from the spout

and we sing " It's Raining, It's Pouring " - This seems to work well

also. The " music " from the song stimulates a different part of the

brain. While the brain is " busy " in that area, he seems to be

somewhat distracted from what I am doing. Since I am into studying

neural pathways, I have also studied what parts of the brain do what

(Speech, language, music, etc...)In doing so, I am able to determine

and apply the method of what I call " brain distaction " or " changing

the neural pathways " . It is similar to treating a stroke patient.

With a stroke patient, for instance, te patient may be able to talk

on a telephone, but not face-to-face. (The reason is because they

take diffeent pathways in the brain. Someone who cannot speak via

face-to-face, can more than likely learn to speak with a phoneto

their ear. I discovered this back in 1996, when my reat aunt had a

stroke. I just remembered it after Charlie Hart was born.) You all

may want to get a simple illustration of the brain and the areas that

control each function. (Easily found online.) If you are having a

problem in one area, stimulate the other areas on the opposite side

of the brain in order to try and fix or remedy your issues. Lanuage

is in more than one area and " foreign language " is in a different

area than " native speech language " .

I hope this helps. <br>

-- In MosaicDS , " Fiona & Lee Price "

wrote:

>

> A support list for parents whose babies/children/adult children

have been diagnosed with Mosaic Down Syndrome!Hi everyone

>

> I've been reading all the blogs lately and have noticed a couple of

people mention sensory issues. As Hunter is only 8 months old I

haven't really had any troubles or come across any issues yet,

however, now I realise he probabloy has a sensory issue because

whenever I try and wash his hair or wet his face he screams. At

first I thought this was just because the water was getting in his

eyes so I tried using my hands to cover his face but this didn't

work. Then I thought it was because I wasn't giving him a bath or

shower every day so I started showering with him everyday, but this

hasn't made it any easier either.

>

> Can I ask those who also have a problem with this, is there

anything I can do to help or will he just hate having his hair washed

forever. I wanted to start taking him to swimming classes but now

I'm a bit worried as I know they dunk the babies under the water

(which he will hate).

>

> I also wanted to ask what other sensory issues can develop.

>

> Sorry if I'm a bit vague bit this is still all very new to us.

>

> I also wanted to let Kristy know how much I'm enjoying your blogs

on DS and MDS. You write things that are very easy to understand and

are a joy to read. Thank you for educating me all over again!

>

> Fiona

> Hunter mds 8mths

>

>

[Guest guest]

Hi Kristy, Thanks for the sites. I have been on a couple of them

already but will check them all out. Every little bit helps in some

way or another. ty again

> & gt; & gt;

> & gt; & gt; A support list for parents whose babies/children/ adult

children

> & gt; have been diagnosed with Mosaic Down Syndrome!Hi everyone

> & gt; & gt;

> & gt; & gt; I've been reading all the blogs lately and have noticed a

couple

> of

> & gt; people mention sensory issues. As Hunter is only 8 months old

I

> & gt; haven't really had any troubles or come across any issues yet,

> & gt; however, now I realise he probabloy has a sensory issue

because

> & gt; whenever I try and wash his hair or wet his face he screams.

At

> & gt; first I thought this was just because the water was getting in

his

> & gt; eyes so I tried using my hands to cover his face but this

didn't

> & gt; work. Then I thought it was because I wasn't giving him a bath

or

> & gt; shower every day so I started showering with him everyday, but

this

> & gt; hasn't made it any easier either.

> & gt; & gt;

> & gt; & gt; Can I ask those who also have a problem with this, is

there

> & gt; anything I can do to help or will he just hate having his hair

> washed

> & gt; forever. I wanted to start taking him to swimming classes but

now

> & gt; I'm a bit worried as I know they dunk the babies under the

water

> & gt; (which he will hate).

> & gt; & gt;

> & gt; & gt; I also wanted to ask what other sensory issues can

develop.

> & gt; & gt;

> & gt; & gt; Sorry if I'm a bit vague bit this is still all very new

to us.

> & gt; & gt;

> & gt; & gt; I also wanted to let Kristy know how much I'm enjoying

your blogs

> & gt; on DS and MDS. You write things that are very easy to

understand

> and

> & gt; are a joy to read. Thank you for educating me all over again!

> & gt; & gt;

> & gt; & gt; Fiona

> & gt; & gt; Hunter mds 8mths

> & gt; & gt;

> & gt; & gt;