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Sandie and ,

How did he learn to walk again?

" Sandie and

"

<sanclown@... To

m> <LBDcaregivers >

Sent by: cc

LBDcaregivers@yah

oogroups.com Subject

PEG tube

03/20/2007 01:22

AM

Please respond to

LBDcaregivers@yah

oogroups.com

Hi -

Your story sounds so familiar to my experiences

with my dad. My didn't eat much, by mouth, the

first month he had the tube. Then I slowly introduced

food to him again. He did ok with it, would cough

at times but then learned to eat and swallow again.

He learned to walk again as he had been in a

wheel chair for so long. As you can see by the

photo's - he prevailed.

Also what you wrote about loving chocolate is soooo

me. I try to go days without eating it. When my

youngest son went to Europe June of last year he

brought me back some Belgium chocolate. I

thought I had died and went to heaven as I have

never tasted anything so delicious, and I have tried

many types/kinds of chocolates. I had trouble

sharing the Belgium chocolate with my husband but

found it in my heart...buried deep down in, to share.

I know your torn heart with living geographically

away from your parents. 's mom is still

in New Zealand, 8,500 miles away from Iowa, yet

I also know Jo is being taken care of and our hearts,

thoughts, and prayers are always with her. If we

lived closer we would take care of her but that isn't

where life's path has taken us at the moment.

I have always felt that guilt will take up residency

and grow in my heart if I allow it to.

Take care of yourself, and know there are many

prayers going up in your name, for your parents,

your brother, and your family.

With heartfelt hugs-

Sandie and

Des Moines, IA

dad, Merle, passed from LBD 9-20-02, age 65

mum, Jo, lives in New Zealand with LBD, age 78

-- new pictures!

> >

> > I appreciate the new pictures sent in recently.

> Cautionblondthinkin, a

> > great collection. I

> > didn't respond sooner because I hesitated using your id name.

It's

> always

> > meaningful to

> > see another's journey with LBD.

> > And now Sandie and ! Lovely to meet you in a picture, also

> with

> > Merle and Jo. I

> > wasn't part of the group as you met and wed, so appreciate getting

> to know

> > you and your

> > LOs a little better.

> > The decline in Jo is so obvious. I have to wonder if the glasses

> are still

> > being worn and

> > doing her any good? Nh staff would put Mom's on, I would go in

and

> ask if

> > she wanted

> > them on, understanding how compromised her vision became despite

> benefit of

> > updated

> > prescriptions. She would ask that I put them away, and I asked

> staff to not

> > put them on

> > her anymore. Every once in a while, when her eyes were still

open,

> I would

> > ask if she

> > wanted her glasses and she always said no.

> > Thanks for the sharing!

> >

> > , Oakville Ont.

> >

> > Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

> >

> >

> >

> >

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Hello , I am so sorry things are so hard for you and your Mama. This

has got to be horrendous for her. Does she have outside help? It seems like you

said she did. (I have a good memory, it's just short)

If your daddy loves humming birds can a feeder be placed by his window, and

his bed be placed so that he can see them?

I am sure you are preparing the children for seeing their grandfather in the

bad shape that he is in.

But, it still may be a shock for all of you. When a person is that sick

every few weeks can make a difference.

My Don has had two open heart surgeries. 1980, 1994. Later in 1997 he

received two stents, and received an AVF that wouldn't stay mended, so he wound

up

having more surgeries than carters got pills. He received a very serious

infection after one surgery, and was in the hospital for weeks.

That whole year was a very bad one. I had to pack his cleaned out hole,

three times a day for several weeks. It was caused by another surgery to dig

out

the left over infection that antibiotics wouldn't get. It was at least five

inches long, a couple of inches wide, and at least that deep.

Now this!

I feel very badly for your Mama (I used the term Mama also) If she is old

enough to have a grown daughter then this has got to be horrible for her. I am

older too. 74.

Take care dear lady,

Imogene

In a message dated 3/20/2007 1:26:35 PM Central Standard Time,

cautionblondethinkin@... writes:

My dad has had problems swallowing since he had cardio artery surgery

years ago. From what I understand they hit a nerve, correct me if I

am wrong mama, he has had problems swallowing every since. Mama reads

the boards here as well as writes in the Caring Spouses site. I know

that mama tries to give him some soft food every now and again, but

he has such a hard time. As for daddy being able to walk again, I

believe we are all scared that his blood pressure will drop and we

might lose him for sure. Mama is a little bitty ole' thing and even

though daddy has lost so much weight he is still a big boned man.

Mama has a bad neck and cannot lift him out of bed and the hoyer lift

that they were given would not work because he could slip out the

back. I wish that daddy could get up and move around and enjoy the

beautiful sunshine. Daddy loves hummingbirds and had 3 or 4 feeders

at all times.

When I was home last month, mama and I sat dad up on the side of the

bed for a little while. She sat behind him and I was in front. It

wore him out, but he was happy to be sitting up I think. Mama was

able to cut his hair a little bit before he wore out. We had to lay

him back down because his feet were turning blue.

Daddy has more problems then LBD. He has heart problems. He had a

triple bypass in 91 or 92. Had cardio artery surgery and when he was

diagnosed with LBD they found he had lung cancer as well. They

removed 1/4 of his left lung. Daddy always said if anyone was to get

something strange wrong with him, he was the one.

Yea, I have trouble sharing my chocolate as well. I hide it in the

fridge behind stuff the kids would never look at. They haven't found

my hiding spot yet. hehehe It is just so hard to share my Recess

Peanut Butter Cups..... Every now and then I have a week moment and

let them have some....hehehe

I try not to let the guilt get to me but on those days I talk to mama

and she has had a bad day, I feel that I should have been there to

help her. I will be going home again in July for two weeks for

vacation and will be bringing the kids this time. I am sure we will

have lots of " projects " to do. :-)

You, , and Jo are in my thoughts and prayers...

Hugs,

************************************** AOL now offers free email to everyone.

Find out more about what's free from AOL at http://www.aol.com.

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Hi Sandie,

My dad has had problems swallowing since he had cardio artery surgery

years ago. From what I understand they hit a nerve, correct me if I

am wrong mama, he has had problems swallowing every since. Mama reads

the boards here as well as writes in the Caring Spouses site. I know

that mama tries to give him some soft food every now and again, but

he has such a hard time. As for daddy being able to walk again, I

believe we are all scared that his blood pressure will drop and we

might lose him for sure. Mama is a little bitty ole' thing and even

though daddy has lost so much weight he is still a big boned man.

Mama has a bad neck and cannot lift him out of bed and the hoyer lift

that they were given would not work because he could slip out the

back. I wish that daddy could get up and move around and enjoy the

beautiful sunshine. Daddy loves hummingbirds and had 3 or 4 feeders

at all times.

When I was home last month, mama and I sat dad up on the side of the

bed for a little while. She sat behind him and I was in front. It

wore him out, but he was happy to be sitting up I think. Mama was

able to cut his hair a little bit before he wore out. We had to lay

him back down because his feet were turning blue.

Daddy has more problems then LBD. He has heart problems. He had a

triple bypass in 91 or 92. Had cardio artery surgery and when he was

diagnosed with LBD they found he had lung cancer as well. They

removed 1/4 of his left lung. Daddy always said if anyone was to get

something strange wrong with him, he was the one.

Yea, I have trouble sharing my chocolate as well. I hide it in the

fridge behind stuff the kids would never look at. They haven't found

my hiding spot yet. hehehe It is just so hard to share my Recess

Peanut Butter Cups..... Every now and then I have a week moment and

let them have some....hehehe

I try not to let the guilt get to me but on those days I talk to mama

and she has had a bad day, I feel that I should have been there to

help her. I will be going home again in July for two weeks for

vacation and will be bringing the kids this time. I am sure we will

have lots of " projects " to do. :-)

You, , and Jo are in my thoughts and prayers...

Hugs,

> > >

> > > Hi -

> > >

> > > Thank you so much for writing. had had

> > > photo's of his mom, Jo, in the web site and I had

> > > photo's of my dad, Merle, in there. I had decided

> > > to remove my dad's to allow for more room. Then

> > > we thought we could show others the progression

> > > in our loved ones if we put them in again. Our

> > > hearts broke when we received the photo of Christmas

> > > 2006 with Jo, t, and the children. She looked

> > > as if she had aged and is so very thin. Yet, through

> > > it all she has kept her gentle demeanor and the

> > > staff at the long term care facility adores her.

> > >

> > > and I wondered if my dad's photo's would

> > > confuse anyone. It looks as if they are misdated,

> > > when, in reality the struggles of LBD were all over

> > > the place in his journey. He was so very sick in

> > > January 2000 from aspiration pneumonia. He

> > > was extremely dehydrated as well. He just couldn't

> > > swallow and the doctor was going to send him back

> > > to the NH without my dad being able to swallow.

> > > I had a 5 minute decision to make, on my own,

> > > to have a PEG tube inserted or not. I opted for

> > > the tube. My dad prevailed, had the tube removed

> > > in April 2000 and lived on for another 2 1/2 years.

> > > As with Jo, dad showed definite progression of LBD.

> > > The photo's show his progression from

> > > summer of 2001 to summer 2002.

> > >

> > > We are going to speak with 's sister again

> > > soon so I shall ask about Jo's eye glasses. I

> > > do believe she still wears them but now wonder

> > > if they are helping/needed. Jo now has on days

> > > and off days where some days she is able to talk

> > > and others she isn't. Hoping when asked about

> > > her eye glasses she is able to respond.

> > >

> > > Thank you again, , for noticing our photo's

> > > and for responding. Guess one can't really tell the

> > > difference in and my height. He is 6' 5 "

> > > and I, well, am 5' 4 " ...we look so much closer in

> > > height sitting down...:-))

> > >

> > > Many hugs-

> > >

> > > Sandie

> > > Des Moines, IA

> > >

> > > -- new pictures!

> > >

> > > I appreciate the new pictures sent in recently.

> > Cautionblondthinkin, a

> > > great collection. I

> > > didn't respond sooner because I hesitated using your id name.

> It's

> > always

> > > meaningful to

> > > see another's journey with LBD.

> > > And now Sandie and ! Lovely to meet you in a picture,

also

> > with

> > > Merle and Jo. I

> > > wasn't part of the group as you met and wed, so appreciate

getting

> > to know

> > > you and your

> > > LOs a little better.

> > > The decline in Jo is so obvious. I have to wonder if the

glasses

> > are still

> > > being worn and

> > > doing her any good? Nh staff would put Mom's on, I would go in

> and

> > ask if

> > > she wanted

> > > them on, understanding how compromised her vision became despite

> > benefit of

> > > updated

> > > prescriptions. She would ask that I put them away, and I asked

> > staff to not

> > > put them on

> > > her anymore. Every once in a while, when her eyes were still

> open,

> > I would

> > > ask if she

> > > wanted her glasses and she always said no.

> > > Thanks for the sharing!

> > >

> > > , Oakville Ont.

> > >

> > > Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

> > >

> > >

> > >

> > >

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Guest guest

Hi Imogene,

Yes, mama has outside help. In July we called in Hospice and also

mama hired a Caregiver to come in 3 days a week. Yes, daddy so loved

hummingbirds. His bed doesn't face the window but before I came home

a few weeks ago mama and I talked about switching his bed around so

he can see outside. I believe she is going to have my brother move

everything.

Mama still sleeps in the same room with daddy so she can be close to

him. She has a twin bed that she moves next to his bed every night so

she can touch him when he needs calming down in the middle of the

night. When she didn't sleep close to him he would get very restless

and I believe scared because he didn't know where he was. Mama's

comforting touch helps soothe him.

My daddy's name is Don as well and he is 76. Mama is younger than him

she is 59 (I am 40). We always said that daddy got himself a young

chick...hehehe Mama loves daddy so very much it is obvious in the way

she cares for him. Mama also had to pack his wound after surgery two

years ago. While in the hospital he ended up getting a staff

infection. Like you Don he has also had stents several times. Sounds

like we have some pretty " tough " Don's.

I shot video when I was home in Feb and showed the kids. I do not

hide from them what is going on with their Paw Paw. My dad loved all

his grandkids and they him. I just wish they had as much time as I

did getting to learn from him and love him like I did.

You sound like a very strong person.I admire your courage and

strength as I do my mamas. Stay strong!

Hugs,

Desert Hot Springs, CA

>

>

> Hello , I am so sorry things are so hard for you and your

Mama. This

> has got to be horrendous for her. Does she have outside help? It

seems like you

> said she did. (I have a good memory, it's just short)

>

> If your daddy loves humming birds can a feeder be placed by his

window, and

> his bed be placed so that he can see them?

>

> I am sure you are preparing the children for seeing their

grandfather in the

> bad shape that he is in.

> But, it still may be a shock for all of you. When a person is that

sick

> every few weeks can make a difference.

>

> My Don has had two open heart surgeries. 1980, 1994. Later in 1997

he

> received two stents, and received an AVF that wouldn't stay mended,

so he wound up

> having more surgeries than carters got pills. He received a very

serious

> infection after one surgery, and was in the hospital for weeks.

> That whole year was a very bad one. I had to pack his cleaned out

hole,

> three times a day for several weeks. It was caused by another

surgery to dig out

> the left over infection that antibiotics wouldn't get. It was at

least five

> inches long, a couple of inches wide, and at least that deep.

> Now this!

>

> I feel very badly for your Mama (I used the term Mama also) If she

is old

> enough to have a grown daughter then this has got to be horrible

for her. I am

> older too. 74.

> Take care dear lady,

> Imogene

>

>

> In a message dated 3/20/2007 1:26:35 PM Central Standard Time,

> cautionblondethinkin@... writes:

>

> My dad has had problems swallowing since he had cardio artery

surgery

> years ago. From what I understand they hit a nerve, correct me if

I

> am wrong mama, he has had problems swallowing every since. Mama

reads

> the boards here as well as writes in the Caring Spouses site. I

know

> that mama tries to give him some soft food every now and again,

but

> he has such a hard time. As for daddy being able to walk again, I

> believe we are all scared that his blood pressure will drop and we

> might lose him for sure. Mama is a little bitty ole' thing and

even

> though daddy has lost so much weight he is still a big boned man.

> Mama has a bad neck and cannot lift him out of bed and the hoyer

lift

> that they were given would not work because he could slip out the

> back. I wish that daddy could get up and move around and enjoy the

> beautiful sunshine. Daddy loves hummingbirds and had 3 or 4 feeders

> at all times.

>

> When I was home last month, mama and I sat dad up on the side of

the

> bed for a little while. She sat behind him and I was in front. It

> wore him out, but he was happy to be sitting up I think. Mama was

> able to cut his hair a little bit before he wore out. We had to

lay

> him back down because his feet were turning blue.

>

> Daddy has more problems then LBD. He has heart problems. He had a

> triple bypass in 91 or 92. Had cardio artery surgery and when he

was

> diagnosed with LBD they found he had lung cancer as well. They

> removed 1/4 of his left lung. Daddy always said if anyone was to

get

> something strange wrong with him, he was the one.

>

> Yea, I have trouble sharing my chocolate as well. I hide it in the

> fridge behind stuff the kids would never look at. They haven't

found

> my hiding spot yet. hehehe It is just so hard to share my Recess

> Peanut Butter Cups..... Every now and then I have a week moment

and

> let them have some....hehehe

>

> I try not to let the guilt get to me but on those days I talk to

mama

> and she has had a bad day, I feel that I should have been there to

> help her. I will be going home again in July for two weeks for

> vacation and will be bringing the kids this time. I am sure we

will

> have lots of " projects " to do. :-)

>

> You, , and Jo are in my thoughts and prayers...

>

> Hugs,

>

>

>

>

>

>

>

>

>

>

> ************************************** AOL now offers free email to

everyone.

> Find out more about what's free from AOL at http://www.aol.com.

>

>

>

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Guest guest

Sandie,

It was easier for me to come home this past visit then before,

because I knew that my daddy loved me. You are right daddy does know

my voice, my touch, and he does trust me. We have this little game we

always played. I would say " I love you daddy. " He would say " I love

you too. " I would say, " I love you more. " He would say " nope I love

you more. " Even now when he realizes it is me he still plays that

game with me. The words change from him sometime and he says, " I

don't think so, " or " no way. " He would smile. Daddy's face always

lite up whenever I came home and when I left he would get big tears

in his eyes. My daddy has the prettiest blue eyes as well.

Thank you so much for thinking of my daddy if you see that

hummingbird. That means so much. I know daddy would like that as

well.

Sure glad there isn't a law about chocolate or I would have been in

jail along time ago for not sharing. hehehe

Hugs,

Desert Hot Springs, CA

> > > >

> > > > Hi -

> > > >

> > > > Thank you so much for writing. had had

> > > > photo's of his mom, Jo, in the web site and I had

> > > > photo's of my dad, Merle, in there. I had decided

> > > > to remove my dad's to allow for more room. Then

> > > > we thought we could show others the progression

> > > > in our loved ones if we put them in again. Our

> > > > hearts broke when we received the photo of Christmas

> > > > 2006 with Jo, t, and the children. She looked

> > > > as if she had aged and is so very thin. Yet, through

> > > > it all she has kept her gentle demeanor and the

> > > > staff at the long term care facility adores her.

> > > >

> > > > and I wondered if my dad's photo's would

> > > > confuse anyone. It looks as if they are misdated,

> > > > when, in reality the struggles of LBD were all over

> > > > the place in his journey. He was so very sick in

> > > > January 2000 from aspiration pneumonia. He

> > > > was extremely dehydrated as well. He just couldn't

> > > > swallow and the doctor was going to send him back

> > > > to the NH without my dad being able to swallow.

> > > > I had a 5 minute decision to make, on my own,

> > > > to have a PEG tube inserted or not. I opted for

> > > > the tube. My dad prevailed, had the tube removed

> > > > in April 2000 and lived on for another 2 1/2 years.

> > > > As with Jo, dad showed definite progression of LBD.

> > > > The photo's show his progression from

> > > > summer of 2001 to summer 2002.

> > > >

> > > > We are going to speak with 's sister again

> > > > soon so I shall ask about Jo's eye glasses. I

> > > > do believe she still wears them but now wonder

> > > > if they are helping/needed. Jo now has on days

> > > > and off days where some days she is able to talk

> > > > and others she isn't. Hoping when asked about

> > > > her eye glasses she is able to respond.

> > > >

> > > > Thank you again, , for noticing our photo's

> > > > and for responding. Guess one can't really tell the

> > > > difference in and my height. He is 6' 5 "

> > > > and I, well, am 5' 4 " ...we look so much closer in

> > > > height sitting down...:-))

> > > >

> > > > Many hugs-

> > > >

> > > > Sandie

> > > > Des Moines, IA

> > > >

> > > > -- new pictures!

> > > >

> > > > I appreciate the new pictures sent in recently.

> > > Cautionblondthinkin, a

> > > > great collection. I

> > > > didn't respond sooner because I hesitated using your id name.

> > It's

> > > always

> > > > meaningful to

> > > > see another's journey with LBD.

> > > > And now Sandie and ! Lovely to meet you in a picture,

> also

> > > with

> > > > Merle and Jo. I

> > > > wasn't part of the group as you met and wed, so appreciate

> getting

> > > to know

> > > > you and your

> > > > LOs a little better.

> > > > The decline in Jo is so obvious. I have to wonder if the

> glasses

> > > are still

> > > > being worn and

> > > > doing her any good? Nh staff would put Mom's on, I would go

in

> > and

> > > ask if

> > > > she wanted

> > > > them on, understanding how compromised her vision became

despite

> > > benefit of

> > > > updated

> > > > prescriptions. She would ask that I put them away, and I

asked

> > > staff to not

> > > > put them on

> > > > her anymore. Every once in a while, when her eyes were still

> > open,

> > > I would

> > > > ask if she

> > > > wanted her glasses and she always said no.

> > > > Thanks for the sharing!

> > > >

> > > > , Oakville Ont.

> > > >

> > > > Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

> > > >

> > > >

> > > >

> > > >

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Guest guest

Hello again, -

Just found this post. I must have missed it before

now.

Your dad is surrounded by love. A heart always

knows when others feel love. I have heard many

people here say their loved one doesn't know them

but I felt and still feel differently. My dad's heart

knew me. He knew my touch, my voice, and he

trusted me. Every time I visited him he would light

up even when he couldn't talk or even smile any

more. His eyes followed me. He had the biggest

blue eyes and they spoke volumes.

It does sound like your dad has had a few trials

and tribulations in his life. He has been strong

through so much and the fight isn't over with yet.

I have stood with the theory that...as long as there

is life there is hope.

We moved into our home the beginning of April

last year. In asking neighbors and taking some

samples of leaves and what not I found we have

a Trumpet Vine. The Hummingbirds love it.

Also, just had a thought that I have a wind chime

of my dad's that he used to hang outside his

apartment. I have hung it outside since he went

into a NH. Last year when I hung it outside our

home a Hummingbird came to it. I don't know

if it was the same one but one would come to

those chimes daily. There is a red plastic

piece that hangs down. I shall look for that

hummingbird this year and shall remember your

dad. We have a huge Lilly of the Valley patch

that reminds me of another dear member who

lost her Uncle (Mr. B). Each and every time

I am near the Lillies I send up a special prayer

for Stevie and Mr. B.

Take care of yourself. Stay strong and love

your dear daddy where you are at. His heart

will always know your love.

Also - hang on to your chocolate. There is no

law saying we NEED to share. :-))

Hugs from Iowa-

Sandie

-- new pictures!

> > >

> > > I appreciate the new pictures sent in recently.

> > Cautionblondthinkin, a

> > > great collection. I

> > > didn't respond sooner because I hesitated using your id name.

> It's

> > always

> > > meaningful to

> > > see another's journey with LBD.

> > > And now Sandie and ! Lovely to meet you in a picture,

also

> > with

> > > Merle and Jo. I

> > > wasn't part of the group as you met and wed, so appreciate

getting

> > to know

> > > you and your

> > > LOs a little better.

> > > The decline in Jo is so obvious. I have to wonder if the

glasses

> > are still

> > > being worn and

> > > doing her any good? Nh staff would put Mom's on, I would go in

> and

> > ask if

> > > she wanted

> > > them on, understanding how compromised her vision became despite

> > benefit of

> > > updated

> > > prescriptions. She would ask that I put them away, and I asked

> > staff to not

> > > put them on

> > > her anymore. Every once in a while, when her eyes were still

> open,

> > I would

> > > ask if she

> > > wanted her glasses and she always said no.

> > > Thanks for the sharing!

> > >

> > > , Oakville Ont.

> > >

> > > Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

> > >

> > >

> > >

> > >

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Guest guest

Hi -

I have found over the years that many loved ones

have almost mirrored images of symptoms. They

can be so individual yet so many symptoms the

same.

Thank you for sharing your story. Please continue

to do so. My dad's and my birthday are/were both

in July. What a wonderful gift for us to have you

visiting your dear daddy. Have some chocolate

while you are there...for us!

Many hugs-

Sandie

Des Moines, IA

-- new pictures!

> > > >

> > > > I appreciate the new pictures sent in recently.

> > > Cautionblondthinkin, a

> > > > great collection. I

> > > > didn't respond sooner because I hesitated using your id name.

> > It's

> > > always

> > > > meaningful to

> > > > see another's journey with LBD.

> > > > And now Sandie and ! Lovely to meet you in a picture,

> also

> > > with

> > > > Merle and Jo. I

> > > > wasn't part of the group as you met and wed, so appreciate

> getting

> > > to know

> > > > you and your

> > > > LOs a little better.

> > > > The decline in Jo is so obvious. I have to wonder if the

> glasses

> > > are still

> > > > being worn and

> > > > doing her any good? Nh staff would put Mom's on, I would go

in

> > and

> > > ask if

> > > > she wanted

> > > > them on, understanding how compromised her vision became

despite

> > > benefit of

> > > > updated

> > > > prescriptions. She would ask that I put them away, and I

asked

> > > staff to not

> > > > put them on

> > > > her anymore. Every once in a while, when her eyes were still

> > open,

> > > I would

> > > > ask if she

> > > > wanted her glasses and she always said no.

> > > > Thanks for the sharing!

> > > >

> > > > , Oakville Ont.

> > > >

> > > > Mother, age 92, died Aug. 12/06 after 13 year decline from PDD

> > > >

> > > >

> > > >

> > > >

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Guest guest

! You & Your Dad and Me & My Mom played the same game - almost

exactly... :)

Mom would say to me " I love you. " And I'd say " I love you, too. " And

mom would say " I love you more than you love me. " And I'd say, " No, I

love you more than you love me. " .... One time after one of her

miracles days I said the phrase to her -- and the light bulb suddenly

turned on and she said, " HEY! That's what I say "

<snip> We have this little game we always played. I would say " I love

you daddy. " He would say " I love you too. " I would say, " I love you

more. " He would say " nope I love you more. " Even now when he realizes

it is me he still plays that game with me. The words change from him

sometime and he says, " I don't think so, " or " no way. " He would smile.

<snip>

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Guest guest

,

I always love your stories. . .

Norma

" "

<octoryrose@yahoo

.com> To

Sent by: LBDcaregivers

LBDcaregivers@yah cc

oogroups.com

Subject

Re: PEG tube

03/22/2007 05:50

AM

Please respond to

LBDcaregivers@yah

oogroups.com

! You & Your Dad and Me & My Mom played the same game - almost

exactly... :)

Mom would say to me " I love you. " And I'd say " I love you, too. " And

mom would say " I love you more than you love me. " And I'd say, " No, I

love you more than you love me. " .... One time after one of her

miracles days I said the phrase to her -- and the light bulb suddenly

turned on and she said, " HEY! That's what I say "

<snip> We have this little game we always played. I would say " I love

you daddy. " He would say " I love you too. " I would say, " I love you

more. " He would say " nope I love you more. " Even now when he realizes

it is me he still plays that game with me. The words change from him

sometime and he says, " I don't think so, " or " no way. " He would smile.

<snip>

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Guest guest

,

It is a game I play with my daughter as well. I have been doing that

since she was a little girl. She is 13 now and she still loves to do

that. She and I say a little more like, " I love you more than the

moon and the stars and the sky above. " We keep adding more things

until we are tired.

You are right on those special days with daddy he will play the game

with me when I say I love him more. On the days he doesn't respond I

know it isn't one of the miracal days. I enjoy them when I can.

Hugs,

Desert Hot Springs, CA

> <snip> We have this little game we always played. I would say " I

love

> you daddy. " He would say " I love you too. " I would say, " I love you

> more. " He would say " nope I love you more. " Even now when he

realizes

> it is me he still plays that game with me. The words change from

him

> sometime and he says, " I don't think so, " or " no way. " He would

smile.

> <snip>

>

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