Guest guest Posted January 19, 2011 Report Share Posted January 19, 2011 I understand that you dont want your daughter to have to take meds, no parent does..but I guess I just dont understand why you want to wean her off everything when she seems to respond to it? I would wean her only working in conjunction with the doc. I seem to remember that youve had these sort of issues before. My only thoughts are that it doesnt seem fair to your daughter. Having been out of Florida for awhile, Id wait to see how well she reacclimates b/c she may not do as well as you think. If her peak flows are still low, shes not fully controlled yet and you run the risk of her having serious trouble. Why would you risk that? In the long term, the yo-yo of being on and off medicines can do more harm than good b/c her lungs will develop scarring over time. That is why they recommend asthmatics be on some sort of controller meds...to prevent the long term damage to the lungs. Please dont think Im yelling at you...Im just asking you to really think long and very hard before you take her off all of her meds. If it was me, I wouldnt do it yet. I would wait at least a year until shes completely reacclimated to FL and you and the doc are satisfied that she is FULLY controlled and her peak flows are where they should be, not just a little low. thats just my opinion though... Ann Hello y'all, I'm happy to report that the Flo-vent really turned things around for my 7yo daughter, and she's doing pretty good now! She was so close to needing the ER just the other day, and today she participated in line-dancing lessons at the RV resort and ran around outside with the kids!! I am ready to try to wean her off of the Flo-vent. She does exceptionally well in warm weather, and we are in FL now. I'm curious - does anyone know a good time schedule to wean off? Currently she is taking 4 puffs per day. I was thinking of taking her down by one puff each week. She no longer needs Albuterol, though her peak flow is still low. After that I'll have to wean her off of the Theophylline. Opinions? Thanks! Marla -- http://www.fretnrest.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Hi, willothewispl here. I understand not wanting your daughter to take all of those meds. But, why would you want to take her off of all of them? I take flovent, and believe me, if I didn't I would be in lots of trouble, it is a good medicine. I want to breathe and stay alive. I think you need to seriously have a talk with your Dr, about weaning her off. And if you aren't satisfied with that, get a second opinion before you do this. It is easy for you to think this, because you can breathe, but she cannot. I am not trying to be smart here, just concerned, I understand what it is like to take all of these, meds, and I hate it, but at least I am alive and breathing. No insult intended, just sharing my thoughts.To: asthma Sent: Wed, January 19, 2011 9:49:17 PMSubject: Re: weaning off Flovent I understand that you dont want your daughter to have to take meds, no parent does..but I guess I just dont understand why you want to wean her off everything when she seems to respond to it? I would wean her only working in conjunction with the doc. I seem to remember that youve had these sort of issues before. My only thoughts are that it doesnt seem fair to your daughter. Having been out of Florida for awhile, Id wait to see how well she reacclimates b/c she may not do as well as you think. If her peak flows are still low, shes not fully controlled yet and you run the risk of her having serious trouble. Why would you risk that? In the long term, the yo-yo of being on and off medicines can do more harm than good b/c her lungs will develop scarring over time. That is why they recommend asthmatics be on some sort of controller meds...to prevent the long term damage to the lungs. Please dont think Im yelling at you...Im just asking you to really think long and very hard before you take her off all of her meds. If it was me, I wouldnt do it yet. I would wait at least a year until shes completely reacclimated to FL and you and the doc are satisfied that she is FULLY controlled and her peak flows are where they should be, not just a little low. thats just my opinion though... Ann Hello y'all, I'm happy to report that the Flo-vent really turned things around for my 7yo daughter, and she's doing pretty good now! She was so close to needing the ER just the other day, and today she participated in line-dancing lessons at the RV resort and ran around outside with the kids!! I am ready to try to wean her off of the Flo-vent. She does exceptionally well in warm weather, and we are in FL now. I'm curious - does anyone know a good time schedule to wean off? Currently she is taking 4 puffs per day. I was thinking of taking her down by one puff each week. She no longer needs Albuterol, though her peak flow is still low. After that I'll have to wean her off of the Theophylline. Opinions? Thanks! Marla -- http://www.fretnrest.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Thank you both very much for your thoughts. I'll definitely talk things over with her doctor next week, but I'm just curious what other people do. As for why I want her off, it's because the last time she took Flo-vent for 10 weeks, she got very, very sick - sicker than she had ever been in her life. So it appears that while the Flo-vent gets her through a crisis, it's not a good solution for long term for her. Also, when she is in warm weather, she has no asthma. She went 9 months this past year without any symptoms. She only got symptomatic in the fall because we were in the NE and it was cool. As soon as we got her out of there - literally 2 days into the warmer weather, she no longer needed her Albuterol. So I don't feel good about drugging her all year for a temporary need. And on top of all of that, I want to start her on a special kind of allergy shot, but she can't be on any meds in order to take the shot. This is not the typical allergy shot that most people are familiar with. Thanks y'all! Marla I understand that you dont want your daughter to have to take meds, no parent does..but I guess I just dont understand why you want to wean her off everything when she seems to respond to it? I would wean her only working in conjunction with the doc. I seem to remember that youve had these sort of issues before. My only thoughts are that it doesnt seem fair to your daughter. Having been out of Florida for awhile, Id wait to see how well she reacclimates b/c she may not do as well as you think. If her peak flows are still low, shes not fully controlled yet and you run the risk of her having serious trouble. Why would you risk that? In the long term, the yo-yo of being on and off medicines can do more harm than good b/c her lungs will develop scarring over time. That is why they recommend asthmatics be on some sort of controller meds...to prevent the long term damage to the lungs. Please dont think Im yelling at you...Im just asking you to really think long and very hard before you take her off all of her meds. If it was me, I wouldnt do it yet. I would wait at least a year until shes completely reacclimated to FL and you and the doc are satisfied that she is FULLY controlled and her peak flows are where they should be, not just a little low. thats just my opinion though... Ann Hello y'all, I'm happy to report that the Flo-vent really turned things around for my 7yo daughter, and she's doing pretty good now! She was so close to needing the ER just the other day, and today she participated in line-dancing lessons at the RV resort and ran around outside with the kids!! I am ready to try to wean her off of the Flo-vent. She does exceptionally well in warm weather, and we are in FL now. I'm curious - does anyone know a good time schedule to wean off? Currently she is taking 4 puffs per day. I was thinking of taking her down by one puff each week. She no longer needs Albuterol, though her peak flow is still low. After that I'll have to wean her off of the Theophylline. Opinions? Thanks! Marla-- http://www.fretnrest.com/ -- http://www.fretnrest.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Do not do that unless you talk to the doctor first. Going from 4 puffs a day to one puff a week could harm her. Try less puffs a day. My daughter takes flovent too. She is 5. She takes one puff daily, and two puffs daily when she gets a cold. I understand that you dont want your daughter to have to take meds, no parent does..but I guess I just dont understand why you want to wean her off everything when she seems to respond to it? I would wean her only working in conjunction with the doc. I seem to remember that youve had these sort of issues before. My only thoughts are that it doesnt seem fair to your daughter. Having been out of Florida for awhile, Id wait to see how well she reacclimates b/c she may not do as well as you think. If her peak flows are still low, shes not fully controlled yet and you run the risk of her having serious trouble. Why would you risk that? In the long term, the yo-yo of being on and off medicines can do more harm than good b/c her lungs will develop scarring over time. That is why they recommend asthmatics be on some sort of controller meds...to prevent the long term damage to the lungs. Please dont think Im yelling at you...Im just asking you to really think long and very hard before you take her off all of her meds. If it was me, I wouldnt do it yet. I would wait at least a year until shes completely reacclimated to FL and you and the doc are satisfied that she is FULLY controlled and her peak flows are where they should be, not just a little low. thats just my opinion though... Ann Hello y'all, I'm happy to report that the Flo-vent really turned things around for my 7yo daughter, and she's doing pretty good now! She was so close to needing the ER just the other day, and today she participated in line-dancing lessons at the RV resort and ran around outside with the kids!! I am ready to try to wean her off of the Flo-vent. She does exceptionally well in warm weather, and we are in FL now. I'm curious - does anyone know a good time schedule to wean off? Currently she is taking 4 puffs per day. I was thinking of taking her down by one puff each week. She no longer needs Albuterol, though her peak flow is still low. After that I'll have to wean her off of the Theophylline. Opinions? Thanks! Marla-- http://www.fretnrest.com/ -- http://www.fretnrest.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 You should definitely discuss the matter with her doctor before you try to wean her off the flovent. The Flovent could be the reason she has shown improvement. Or not. Taking her off the Flovent could bring back the asthma symptoms. Reducing the dosage by 1 puff per week would basically change it from 28 puffs per week to 27 puffs per week, for the first week, 26 puffs per week for the second week, etc. etc. That is not a sudden change. But still the doctor should be aware and be advising you. Ora On Thu, 20 Jan 2011 12:01:16 -0500, Busy Kitchen wrote: >Thank you both very much for your thoughts. I'll definitely talk things >over with her doctor next week, but I'm just curious what other people do. > >As for why I want her off, it's because the last time she took Flo-vent for >10 weeks, she got very, very sick - sicker than she had ever been in her >life. So it appears that while the Flo-vent gets her through a crisis, it's >not a good solution for long term for her. > >Also, when she is in warm weather, she has no asthma. She went 9 months >this past year without any symptoms. She only got symptomatic in the fall >because we were in the NE and it was cool. As soon as we got her out of >there - literally 2 days into the warmer weather, she no longer needed her >Albuterol. So I don't feel good about drugging her all year for a temporary >need. > >And on top of all of that, I want to start her on a special kind of allergy >shot, but she can't be on any meds in order to take the shot. This is not >the typical allergy shot that most people are familiar with. > >Thanks y'all! >Marla > > >> >> >> I understand that you dont want your daughter to have to take meds, no >> parent does..but I guess I just dont understand why you want to wean her off >> everything when she seems to respond to it? I would wean her only working >> in conjunction with the doc. I seem to remember that youve had these sort >> of issues before. >> My only thoughts are that it doesnt seem fair to your daughter. Having >> been out of Florida for awhile, Id wait to see how well she reacclimates b/c >> she may not do as well as you think. If her peak flows are still low, shes >> not fully controlled yet and you run the risk of her having serious trouble. >> Why would you risk that? In the long term, the yo-yo of being on and off >> medicines can do more harm than good b/c her lungs will develop scarring >> over time. That is why they recommend asthmatics be on some sort of >> controller meds...to prevent the long term damage to the lungs. >> Please dont think Im yelling at you...Im just asking you to really think >> long and very hard before you take her off all of her meds. >> >> If it was me, I wouldnt do it yet. I would wait at least a year until shes >> completely reacclimated to FL and you and the doc are satisfied that she is >> FULLY controlled and her peak flows are where they should be, not just a >> little low. >> >> thats just my opinion though... >> Ann >> >> >> >> >> Hello y'all, >> >> I'm happy to report that the Flo-vent really turned things around for my >> 7yo daughter, and she's doing pretty good now! She was so close to needing >> the ER just the other day, and today she participated in line-dancing >> lessons at the RV resort and ran around outside with the kids!! >> >> I am ready to try to wean her off of the Flo-vent. She does exceptionally >> well in warm weather, and we are in FL now. I'm curious - does anyone know >> a good time schedule to wean off? >> >> Currently she is taking 4 puffs per day. I was thinking of taking her down >> by one puff each week. She no longer needs Albuterol, though her peak flow >> is still low. >> >> After that I'll have to wean her off of the Theophylline. >> >> Opinions? >> >> Thanks! >> Marla >> >> -- >> http://www.fretnrest.com/ >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 Yes, you know we all have different reactions to different medications, I hope everything works out for you and your daughter. God Bless. willothewispl@....From: "taurusrc@..." To: asthma Sent: Thu, January 20, 2011 6:18:08 PMSubject: Re: weaning off Flovent You should definitely discuss the matter with her doctor before you try to wean her off the flovent. The Flovent could be the reason she has shown improvement. Or not. Taking her off the Flovent could bring back the asthma symptoms. Reducing the dosage by 1 puff per week would basically change it from 28 puffs per week to 27 puffs per week, for the first week, 26 puffs per week for the second week, etc. etc. That is not a sudden change. But still the doctor should be aware and be advising you. Ora On Thu, 20 Jan 2011 12:01:16 -0500, Busy Kitchen wrote: >Thank you both very much for your thoughts. I'll definitely talk things >over with her doctor next week, but I'm just curious what other people do. > >As for why I want her off, it's because the last time she took Flo-vent for >10 weeks, she got very, very sick - sicker than she had ever been in her >life. So it appears that while the Flo-vent gets her through a crisis, it's >not a good solution for long term for her. > >Also, when she is in warm weather, she has no asthma. She went 9 months >this past year without any symptoms. She only got symptomatic in the fall >because we were in the NE and it was cool. As soon as we got her out of >there - literally 2 days into the warmer weather, she no longer needed her >Albuterol. So I don't feel good about drugging her all year for a temporary >need. > >And on top of all of that, I want to start her on a special kind of allergy >shot, but she can't be on any meds in order to take the shot. This is not >the typical allergy shot that most people are familiar with. > >Thanks y'all! >Marla > > >> >> >> I understand that you dont want your daughter to have to take meds, no >> parent does..but I guess I just dont understand why you want to wean her off >> everything when she seems to respond to it? I would wean her only working >> in conjunction with the doc. I seem to remember that youve had these sort >> of issues before. >> My only thoughts are that it doesnt seem fair to your daughter. Having >> been out of Florida for awhile, Id wait to see how well she reacclimates b/c >> she may not do as well as you think. If her peak flows are still low, shes >> not fully controlled yet and you run the risk of her having serious trouble. >> Why would you risk that? In the long term, the yo-yo of being on and off >> medicines can do more harm than good b/c her lungs will develop scarring >> over time. That is why they recommend asthmatics be on some sort of >> controller meds...to prevent the long term damage to the lungs. >> Please dont think Im yelling at you...Im just asking you to really think >> long and very hard before you take her off all of her meds. >> >> If it was me, I wouldnt do it yet. I would wait at least a year until shes >> completely reacclimated to FL and you and the doc are satisfied that she is >> FULLY controlled and her peak flows are where they should be, not just a >> little low. >> >> thats just my opinion though... >> Ann >> >> >> >> >> Hello y'all, >> >> I'm happy to report that the Flo-vent really turned things around for my >> 7yo daughter, and she's doing pretty good now! She was so close to needing >> the ER just the other day, and today she participated in line-dancing >> lessons at the RV resort and ran around outside with the kids!! >> >> I am ready to try to wean her off of the Flo-vent. She does exceptionally >> well in warm weather, and we are in FL now. I'm curious - does anyone know >> a good time schedule to wean off? >> >> Currently she is taking 4 puffs per day. I was thinking of taking her down >> by one puff each week. She no longer needs Albuterol, though her peak flow >> is still low. >> >> After that I'll have to wean her off of the Theophylline. >> >> Opinions? >> >> Thanks! >> Marla >> >> -- >> http://www.fretnrest.com/ >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2011 Report Share Posted January 20, 2011 I get seriously ill on flovent and singulair. Pulmicort is the only inhaler I can use. I used every other day otherwise my memory is affected. So, yes we are affected differently. Lynne>>>>>>> I understand that you dont want your daughter to have to take meds, no>> parent does..but I guess I just dont understand why you want to wean her off>> everything when she seems to respond to it? I would wean her only working>> in conjunction with the doc. I seem to remember that youve had these sort>> of issues before.>> My only thoughts are that it doesnt seem fair to your daughter. Having>> been out of Florida for awhile, Id wait to see how well she reacclimates b/c>> she may not do as well as you think. If her peak flows are still low, shes>> not fully controlled yet and you run the risk of her having serious trouble.>> Why would you risk that? In the long term, the yo-yo of being on and off>> medicines can do more harm than good b/c her lungs will develop scarring>> over time. That is why they recommend asthmatics be on some sort of>> controller meds...to prevent the long term damage to the lungs.>> Please dont think Im yelling at you...Im just asking you to really think>> long and very hard before you take her off all of her meds.>>>> If it was me, I wouldnt do it yet. I would wait at least a year until shes>> completely reacclimated to FL and you and the doc are satisfied that she is>> FULLY controlled and her peak flows are where they should be, not just a>> little low.>>>> thats just my opinion though...>> Ann>>>>>>>>>> Hello y'all,>>>> I'm happy to report that the Flo-vent really turned things around for my>> 7yo daughter, and she's doing pretty good now! She was so close to needing>> the ER just the other day, and today she participated in line-dancing>> lessons at the RV resort and ran around outside with the kids!!>>>> I am ready to try to wean her off of the Flo-vent. She does exceptionally>> well in warm weather, and we are in FL now. I'm curious - does anyone know>> a good time schedule to wean off?>>>> Currently she is taking 4 puffs per day. I was thinking of taking her down>> by one puff each week. She no longer needs Albuterol, though her peak flow>> is still low.>>>> After that I'll have to wean her off of the Theophylline.>>>> Opinions?>>>> Thanks!>> Marla>>>> -->> http://www.fretnrest.com/>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2011 Report Share Posted January 21, 2011 When I was using asthmanex I swelled up something terrible, so now I use singular, and spiriva, I am seeing a little swelling , but not very much, but I will keep an eye on it. I really don't like taking any of these meds, but, what else can you do, have to breathe?To: asthma Sent: Thu, January 20, 2011 7:04:21 PMSubject: Re: weaning off Flovent I get seriously ill on flovent and singulair. Pulmicort is the only inhaler I can use. I used every other day otherwise my memory is affected. So, yes we are affected differently. Lynne>>>>>>> I understand that you dont want your daughter to have to take meds, no>> parent does..but I guess I just dont understand why you want to wean her off>> everything when she seems to respond to it? I would wean her only working>> in conjunction with the doc. I seem to remember that youve had these sort>> of issues before.>> My only thoughts are that it doesnt seem fair to your daughter. Having>> been out of Florida for awhile, Id wait to see how well she reacclimates b/c>> she may not do as well as you think. If her peak flows are still low, shes>> not fully controlled yet and you run the risk of her having serious trouble.>> Why would you risk that? In the long term, the yo-yo of being on and off>> medicines can do more harm than good b/c her lungs will develop scarring>> over time. That is why they recommend asthmatics be on some sort of>> controller meds...to prevent the long term damage to the lungs.>> Please dont think Im yelling at you...Im just asking you to really think>> long and very hard before you take her off all of her meds.>>>> If it was me, I wouldnt do it yet. I would wait at least a year until shes>> completely reacclimated to FL and you and the doc are satisfied that she is>> FULLY controlled and her peak flows are where they should be, not just a>> little low.>>>> thats just my opinion though...>> Ann>>>>>>>>>> Hello y'all,>>>> I'm happy to report that the Flo-vent really turned things around for my>> 7yo daughter, and she's doing pretty good now! She was so close to needing>> the ER just the other day, and today she participated in line-dancing>> lessons at the RV resort and ran around outside with the kids!!>>>> I am ready to try to wean her off of the Flo-vent. She does exceptionally>> well in warm weather, and we are in FL now. I'm curious - does anyone know>> a good time schedule to wean off?>>>> Currently she is taking 4 puffs per day. I was thinking of taking her down>> by one puff each week. She no longer needs Albuterol, though her peak flow>> is still low.>>>> After that I'll have to wean her off of the Theophylline.>>>> Opinions?>>>> Thanks!>> Marla>>>> -->> http://www.fretnrest.com/>>>>>> Quote Link to comment Share on other sites More sharing options...
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