Re: New Here. Newly diagnosed.

[Guest guest]

Hi Amy

the biggest thing to learn and understand,, is that Modern Medicine is clueless

and uneducated (by medical schools/residencies etc) on how profoundly *complex

and common are " thyroid problems, including HypOthryrodism.

thyrodi problems -and their cause = involve the whole body including the brain

and espeically our hypothalamus as the 'head' of the Endocrine system, Immune

system, Limbic System!, and our entire Nervsou ssystem

which includes our entire Stress-system (SNS and HPA Axis and Sympathoadrenal

system)

and that is why RX literature has warned our doctors to assess our Adrenal

glands for decades..and now why the concept behind the inaccurate name " Adreanl

Fatiuge' is SO important..

you will have to educate yourself on what Thryodi Patient gourps are

learning..and then go educat4e your self on the Complex FACTS about how the body

works at the system levels, cellular levels and Molecular levels

IOW

to keep yourself safe,

know that the Patients sites and even the GOOD Doctors are only looking at a

simplififed 'model' of how the thryodi system is affected..

the more accurate picture of thyroid problems are that they are whole-body AKA

neuroimmunoendocrine problems - and modern medical science , research and

literature has DECADES of knowledge proving this..

WE are not utilizing this medical knowledge =and even the GOOD doctors are not

learning and using to help restore our health faster (they are too busy to go do

the research/learning !!)

==== How to proceed?

do not be overwhelmed

but learn the basics from the good THryoid doctors views.

but THEN remember that YOUR specific set of Signs and SYmptoms can be caused by

more than 1 underlying 'imbalance' so every 'solution' will not work for EVERY

hypothyroid patient..

EX)

not every hypothyroid patient gets Dizzy for the same underlying causes at the

system or cellular level =so the " Treatment " can not be the same becuz 1

treatment " that works for 1 will cauwe another patient to get worse!

EXample possible causes/solutiosn:

some hYPOT patients need good * salt as their sodium is low on blood tests or

their Water/sodium ratio in body is too high (Dilutional Hyponatremai)

some folks are literally dehydraetd and don't have enough blood volume .

some hypot folks have Inner_ear problems (common() and that is the cause of

their dizziness...

and all require slightly different 'treatments'AKA " lifestyel changes VS an

RX_DRug "

============

and your Doctor will not know most of what he/she needs to

which means you want to start learnign howt he body works from medical/science

literature

AND find out what 'treatments' helped many other pateitns who experiened

specific sytmposm that you share..

you CAN DO IT

just proceed smartly

-Carol

Good Doctor WEbsites to Start:

THyroid:

DR Rind

DR Kharrazian (immune system focus )

DR Shames

DR Teitelbaum(Focus was on CFS/FM but he includes HYPOT and " Adrenal

Fatiuge " patients in his collective focus)

" Adrenal Fatiuge " (silly name)

DR Lam

DR WIlson (his book is EZ to follow guidelines tho he is the Dcotr who

COined the Name " Adrenal Fatiuge " ,, his writing is overly simplified the Problem

to the point of COnfusion and Innacuracy =EG the probldm is with the Brain/HPA

axis vs the Adrneals being the Cause.

however his LIfestyle guideliens are EZ to read and do

>

> Hi Everyone! I thought I would take a moment to introduce myself. I am new to

the board, as well as newly diganosed. I have been going through various testing

for the last 2 months. About 18 months ago I had a blood test that came back

saying my thyroid levels were low. The nurse pract. I was seeing ended up being

a bit flakey. She was supposed to be really good with hormone stuff, in the end

4 of my friends went to her and she treated us ALL the same which was my first

clue. Anyway I was doing good on the low dose of armour she gave me then I

wasn't. So I stopped it about a year ago. I since have found a new GP, and upon

my first visit for PCOS he mentioned that I had a goiter. I had never been told

I did before. He tested my blood which came back normal, then sent me for a US,

and it came back enlarged with a nodule on the right side. I went for a Uptake

Scan, which came back saying my thyroid was enlarged and abnormal looking but

the iodine showed my thyroid was working normally and the nodule was

indetermanite. I went for a biopsy earlier this week, and during the biopsy the

radiologist identified a second nodule. The biopsy is back and said that I have

hashimotos disease. I go back Tuesday to talk to my GP about treatment options.

>

> I have NO CLUE what questions to ask or anything... is a GP fine to treat this

or should I ask for a referrel to a specific type of specialist if he doesn't

offer to refer me?? What do I need to know?? Anyone wanna give me a crash

course??

>

> I have had bouts of extreme fatigue for over 5 years now, like I can sleep 18

hours a day for days on end and still feel tired. I had been drinking lots of

caffine to stay awake because I have 3 kids, one of whom is autistic. I have cut

out caffine for almost a month now. Honestly it wasn't really helping anymore

anyway... Then every now and then I will be fine energy-wise then crash again...

it's frustrating. I have known something was off and causing this but am also

overweight so the doctors I've seen always blame it on this... ANYWAY....

>

> That's my story for now... :0)

>

> Amy

>