need chiari 0 help

[Guest guest]

anyone that can help me with someone that possibly has chiari 0 would

you please respond to me privately.

Thanks

Kathy

[Guest guest]

Hi,

 My name is Jen, I have only posted a few times, but truly find the site helpful

in reading others stories that I can relate to.  I too was just told by Dr.

Shelat, whom I just met for the first time since being a pt. at  TCI  since May

of 08' when I got the official dx of Chiari Malformation, TC, and hereditary

connective tissue disorder, not sure how different that one is from EDS.. My

symptoms seem the same as the EDS.  I had my cord de tethered on 08/04/08.  I

had the appt. at TCI because now am having a whole bunch of other things going

on now and some of the symptoms pre-surgery have not gotten better.  I was

hoping to be able to see Dr. B, but he was booked until Feb. 

Dr. Shelat told me since the de tethering I am now a Chiari 0?  Pre surgery I

was herniated 3mm..  I too do not really understand what a Chiari 0 is?  All

that was told to me is where they draw their line across the MRI film to

determine if you have Chiari, mine is just barely on the line?  But not

understanding why I am having all these new problems?  I too would like some

answers.  If you or anyone else out there could explain what Chiari O is please

reply.  Just know you are not alone.

Jen

Chiari 1 Malformation

De-Tethered on 08/04/08

Hereditary Connective Tissue Disorder

 

 

Subject: need chiari 0 help

To:

Date: Thursday, October 30, 2008, 9:56 AM

anyone that can help me with someone that possibly has chiari 0 would

you please respond to me privately.

Thanks

Kathy