Guest guest Posted November 18, 2001 Report Share Posted November 18, 2001 Terrie, about those prog. supp. I just wonder how they can be effective when as soon as you stand up no matter how long you lay down they run right down your leg???? Anybody know????? Thanks! Love, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 Jeanne, Where are you from? I live in Flemingsburg. Close to Maysville. Are you around that area or am I going the wrong direction? I go to school at Morehead. I am not usually in the chat room but anytime I am on feel free to contact me. My yahoo is bushsbabe33, msn is bushnmona@... and aol is bushsgirl33 please feel free to chat with me anytime. I am usually always here. love ya, moe (unknown) > Hi Everyone, > Have not been on this thing for a couple of days. I had to cook for > 25 people Saturday and I was beat Sunday. Could not get all the kids > together till then. When is anyone on the chat or I might not be > doing this right, HA. I have tons of questions, I am calling the Dr. > tom, I think I should be ready to have the guts and money the end of > Feb. I am looking for a buddy. Also, does anyone live up on this end > of KY??? I live about 20 miles from the Ohio River and WV. I would > love to meet some of you and we can get to know each other. I think I > am driving my husband crazy about all this baby talk, LOL. I am ready > to yell it out, but I don't want anyone to know yet. I just need to > talk.... Not telling family or friends. Well, take care and its the > road to Christmas, I am almost done, little things. My husband works > weird hours so I have to do it when I can. Thank you. > Hugs, > Jeanne > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 Moe, I live in Greenup County, on the border of Grayson. In a little town named Oldtown, I don't think there is 500 people here and if there is they are all relative. I am not from here my husband is, I am from Long Island, NY. I have been to Maysville once, thats where they make double wides????? What are you going to school for? If you don't mind me asking. I am thinking of going, enjoying my days being a housewife. It took me 22 yrs to do this. The only problem I put too much off towards tom. Got to run. Love ya, Jeanne (unknown) > Hi Everyone, > Have not been on this thing for a couple of days. I had to cook for > 25 people Saturday and I was beat Sunday. Could not get all the kids > together till then. When is anyone on the chat or I might not be > doing this right, HA. I have tons of questions, I am calling the Dr. > tom, I think I should be ready to have the guts and money the end of > Feb. I am looking for a buddy. Also, does anyone live up on this end > of KY??? I live about 20 miles from the Ohio River and WV. I would > love to meet some of you and we can get to know each other. I think I > am driving my husband crazy about all this baby talk, LOL. I am ready > to yell it out, but I don't want anyone to know yet. I just need to > talk.... Not telling family or friends. Well, take care and its the > road to Christmas, I am almost done, little things. My husband works > weird hours so I have to do it when I can. Thank you. > Hugs, > Jeanne > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 27, 2001 Report Share Posted November 27, 2001 Jeanne, They make double wides here is Flemingsburg. That is about all they know here. hehehe I am going for my bachlors (sp) degree in Registered Nursing. I don't mind you asking at all. I finally decided to go back when my company had a massive layoff and is now going to close. I am not really sure where Grayson is but it sounds familar. Your town sounds like mine. There is only 600 here in Ewing. I really like it. It is friendly. the only thing is that everyone knows everyone's business. talk later, love to ya, moe (unknown) > > > > Hi Everyone, > > Have not been on this thing for a couple of days. I had to cook for > > 25 people Saturday and I was beat Sunday. Could not get all the kids > > together till then. When is anyone on the chat or I might not be > > doing this right, HA. I have tons of questions, I am calling the Dr. > > tom, I think I should be ready to have the guts and money the end of > > Feb. I am looking for a buddy. Also, does anyone live up on this end > > of KY??? I live about 20 miles from the Ohio River and WV. I would > > love to meet some of you and we can get to know each other. I think I > > am driving my husband crazy about all this baby talk, LOL. I am ready > > to yell it out, but I don't want anyone to know yet. I just need to > > talk.... Not telling family or friends. Well, take care and its the > > road to Christmas, I am almost done, little things. My husband works > > weird hours so I have to do it when I can. Thank you. > > Hugs, > > Jeanne > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 me me me , lol judy l Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 what meating and were? havent heard one thing about it sharon w Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 19, 2004 Report Share Posted August 19, 2004 Martha, I bet you are exhausted! Let us know when you hear something. xoxox ShirleyMartha Garrett wrote: Here is a note to update on my initial interview and application for social security today. I am pretty exhausted so.... I am pasting a note I had written to another sister who has been praying for me. Martha -------------------------------------------------------------------------------------------------------------------------------------- Dear , They tell me that social security disability is not income based. It is awarded as a benefit if you have put in enough working credits in the last ten years and become legally disabled. Anyway... today went well. I particularly prayed for a person who would be compassionate and believe me and trust me. Well... this is exactly who I got. Praise God.. I could see that she was very empathetic and concerned besides doing her job of asking the questions. I had prepared enough that I know she was impressed. So.... she in turn turns all these forms in and then Indianapolis decides my eligibility work history wise and then my medical qualifications for disability have to be met. She said that the fact that I had all of my medical records pertaining to the trigeminal neuralgia and ms was so helpful.. I had Dr's notes and test results. She says that this may save tremendous time if they can use it. Anyway... she will no longer be my go between. I have been assigned a case manager whom I will contact if I haven't heard one way or the other in 90 days. She seemed very positive!! She said that if this is awarded I could get a check as early as October!! And this is too neat (perfect timing of God) I had put off applying.. hoping to get back to work etc. But then there was the issue of thinking that I was loosing considerable back pay if I did not do it right away. Well they always wait six months from the date you were disabled to even allow payment. And amazingly enough my last day of work was just about 6 months ago! Well... I am so relieved. This has been a huge stress. ANd I know it is not over..... she was telling me the best case scenario. But the load of gathering all of these records is off my shoulders.... and I am grateful for that. I have been so completely stressed since finding out that I would not be returning to work.... so stressed over this particular beginning of the SSDI process. I know things will be better now. My stress leaves me to become even more cognitively impared. Poor Tommy. I was up most of the night... concerned over all of this.. and just the overwhelming aspects of admitting to myself and then to my government that I am unable to work. No one ever expects this. And most of us do not want this. From what I have read... you actually are "guilty until proven inocent" as far as the social security people are. Due to the huge volume of folks in our society who want a "free ride" and aren't actually in need. I guess this part concerned me the most. I just wanted to be believed etc. I have not yet seen the forms on activities of daily living which I have heard can be t ricky. But Tommy reminds me often how I am unable to do things anything like I used to. Many things have just been so subtle time wise....that unless reminded I forget how different they are now. He has not forgotten dear fellow. My desire now... is to rest in God... to seek His path... to obey Him to serve Him to grow in Him. To get a schedule for my life that is "attainable" with consistancy. So... thank you for the prayers. I know this isn't over yet. But for now I am free from the actual work and anxiety of preparing to go. Love, Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 HI RAJIV DO YOU HAVE MS ? ARE YOU FROM INDIA ? AMIT --------------------------------- Jiyo cricket on Yahoo! India cricket Yahoo! Messenger Mobile Stay in touch with your buddies all the time. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 6, 2006 Report Share Posted May 6, 2006 > Found a website that will give you free > music. If anyone is interested let me know. - > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2008 Report Share Posted March 2, 2008 Hi, Kirsty! Welcome to the family! You'll find much information and support here. My mother also has LBD. She is 76 and I believe she is in the middle stage. I believe the pace of the disease varies from person to person. A year ago she was still driving, but now, she hallucinates and some days can't find her way from one room to the next in her own home. We've put an addition on our house which should be finished this week and, hopefully, she'll be moving in with us next Saturday. Gladys -- (unknown) hi my name is kirsty rogers my dad was diagnosed with lbd 2 days ago after about a year of tests, he is 69, and is still in the early stages, he currently lives alone so is still coping quite well, i am really worried where to go from here and what i can do to help, the doctor didnt explain the illness that is how i came across this website, any advice would be really appreciated, thanks x --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2008 Report Share Posted March 2, 2008 Hi Kirsty, Does your Dad know the diagnosis? He will probably go through a great depression whether he does know what is happening or not. With LBD the person is usually very aware of all that they are losing and what they can't do, unlike people who have Alzheimer's disease. My mom was diagnosed in 2005 with LBD but we noticed her memory problems as early as 2003. She thought that she was going crazy. She lived independently until about 2 weeks ago. We have had caregivers coming in to her apartment to give her her meds, monitor her bathes and clean the apartment and eventually help with meals. We are lucky that this service was provided by the government. We also hired another caregiver who in the end was coming four days a week for four hours to provide companionship and some stimulation. I visited about every other day, my sister once a week and I phoned my mom about five/six times each day to monitor her and make sure she was okay. Eventually her hallucinations came back and gradually she was unable to do all the everyday tasks and finally we had to apply to have her placed in a nursing home. While we were waiting for a place, my sister phoned her and she was in the process of dressing to go outside in a snow storm to find the kids she has to look after (hallucination). So the next day I called and we got her into an emergency placement and she is there now. The time lines are different for every person who has LBD and they have good days and bad days. There is a lot of agitation and frustration that they can't do what they used to be able to do. There is a lot for you to learn. A lot will depend on your dad's state of mind and willingness to accept help. Everyone here will have a lot of good information to share with you. This board has helped me prepare for this time in our lives because when I joined, my mom was also in the early stages, so I am not surprised by anything that she does or says, because I have been reading the board messages for 3 years now. There is a whole list of things that you should do now to prepare for what is to come. I think that usually gives newcomers a list of good information to start the journey with. Take care and don't hesitate to ask questions of the people on this board. Doris, daughter of Ramona, 78yrs old, first diagnosed with AD in Sep 2004, then changed to LBD in March of 2005. Now living in Long Term Care facility. Meds: Reminyl, Wellbutrin and Seroquel. (Mississauga, Canada) (unknown) hi my name is kirsty rogers my dad was diagnosed with lbd 2 days ago after about a year of tests, he is 69, and is still in the early stages, he currently lives alone so is still coping quite well, i am really worried where to go from here and what i can do to help, the doctor didnt explain the illness that is how i came across this website, any advice would be really appreciated, thanks x ------------ --------- --------- --- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2008 Report Share Posted March 2, 2008 Hooray Gladys! Love a bunch, Imogene In a message dated 3/2/2008 4:25:33 PM Central Standard Time, agoramom@... writes: Hi, Kirsty! Welcome to the family! You'll find much information and support here. My mother also has LBD. She is 76 and I believe she is in the middle stage. I believe the pace of the disease varies from person to person. A year ago she was still driving, but now, she hallucinates and some days can't find her way from one room to the next in her own home. We've put an addition on our house which should be finished this week and, hopefully, she'll be moving in with us next Saturday. Gladys **************Ideas to please picky eaters. Watch video on AOL Living. (http://living.aol.com/video/how-to-please-your-picky-eater/rachel-campos-duffy/ 2050827?NCID=aolcmp00300000002598) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2008 Report Share Posted March 5, 2008 Dear Kirsty, Welcome. This is the place we all wish we never needed, but since we do, it is the best spot to be. I am glad you found us, and I join lots of others here greeting you and letting you know you will make friends, find answers, be comforted and end up grateful here. Folks at this site have saved my sanity many times over, and they understand what I'm going through with my mom (80 YO, LBD and Parkinson's) much more than even close friends and family. How wonderful your dad is still pretty independent. The symptoms of LBD can be treated, and our loved ones need not suffer. As long as your dad has a doctor familiar with LBD - and your love and attention - he's in good hands. referred you to lots of vabluable info. Now is a good time to begin educating yourself. Prayers for you and your dad. Lin Kirsty wrote: hi my name is kirsty rogers my dad was diagnosed with lbd 2 days ago after about a year of tests, he is 69, and is still in the early stages, he currently lives alone so is still coping quite well, i am really worried where to go from here and what i can do to help, the doctor didnt explain the illness that is how i came across this website, any advice would be really appreciated, thanks x --------------------------------- Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 17, 2008 Report Share Posted March 17, 2008 Gladys, what don't you think you can do? " Gladys Stefany " <agoramom@... > To Sent by: <LBDcaregivers > LBDcaregivers@yah cc oogroups.com Subject (unknown) 03/16/2008 01:21 PM Please respond to LBDcaregivers@yah oogroups.com I don't think I can do this....... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 Try this link: http://www.cbsnews.com/stories/2009/02/09/health/main4784973.shtml?source=search\ _story  Fibromyalgia: Disease Or Marketing Ploy?  Money, money, money...it's all about the money. I'm glad that I'm not dependent on any prescriptions for my pain. I've been using a natural product for 3 years that takes away 90% of my muscle pain and gives me all the energy I need to work 30 miles from my home. I would tell you about it, but someone would misunderstand and think it's a marketing ploy. I have ligament damage throughout my whole body and short-term memory damage from 36 years worth of prescription drugs. I will do anything I can now to stay away from prescriptions...especially any that I have to be on long-term. From this link, I guess we can expect to see a lot more drugs pop on the market for fibro. Subject: (unknown) To: fibromyalgiacured Date: Thursday, February 12, 2009, 4:15 PM Hi, the subject line was not working. Has anyone seen this news item about fibromyalgia. URL: http://www.cbsnews. com/stories/ 2009/02/09/ health/main47849 73.shtml C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 What natural products have you been using? ________________________________ To: fibromyalgiacured Sent: Friday, February 13, 2009 9:28:37 AM Subject: Re: (unknown) Try this link: http://www.cbsnews. com/stories/ 2009/02/09/ health/main47849 73.shtml? source=search_ story  Fibromyalgia: Disease Or Marketing Ploy?  Money, money, money...it's all about the money. I'm glad that I'm not dependent on any prescriptions for my pain. I've been using a natural product for 3 years that takes away 90% of my muscle pain and gives me all the energy I need to work 30 miles from my home. I would tell you about it, but someone would misunderstand and think it's a marketing ploy. I have ligament damage throughout my whole body and short-term memory damage from 36 years worth of prescription drugs. I will do anything I can now to stay away from prescriptions. ..especially any that I have to be on long-term. From this link, I guess we can expect to see a lot more drugs pop on the market for fibro. From: cindy_martian <cindy_martian@ yahoo.com> Subject: (unknown) To: fibromyalgiacured@ yahoogroups. com Date: Thursday, February 12, 2009, 4:15 PM Hi, the subject line was not working. Has anyone seen this news item about fibromyalgia. URL: http://www.cbsnews. com/stories/ 2009/02/09/ health/main47849 73.shtml C. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2009 Report Share Posted March 5, 2009 I have been taking supplements from ProHealth - they have malic acid, magnesium, d-ribose, cla, ala, etc. Not sure what works really to be honest. > > From: cindy_martian <cindy_martian@ yahoo.com> > Subject: (unknown) > To: fibromyalgiacured@ yahoogroups. com > Date: Thursday, February 12, 2009, 4:15 PM > > Hi, the subject line was not working. Has anyone seen this news item > about fibromyalgia. URL: http://www.cbsnews. com/stories/ 2009/02/09/ > health/main47849 73.shtml > > C. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 Jim, FWIW, we have talked about them quite a bit in the past, but it's not something that's terribly useful to do since everybody is different. And there are opposing opinions here that make the topic difficult to discuss without tempers getting strained. Helena Re: What if Pooh took Ritalin? What then? >> Is this Ritalin stuff something I need to kick out of my > life or can I use it and still practice ACT?Another way of looking at this question is, is a med furtheringavoidance of experiences that it might work better to accept asthey are? E.g. painful thoughts, painful feelings? Or is the medhelping with engagement in life?Depending on how it's used, alcohol can further avoidance, or itcan further engagement. Same with exercise. The same with watchingTV or surfing the Net or a hobby of any sort. All are potentiallyaddictive or avoidant activities, but not automatically so. Somaybe the same with many sorts of meds.So I would say that although a conflict is always possible, thereis no _inherent_ conflict between a med like Ritalin and learningACT. As Helena says, you're in the best position to know from yourown experience.- Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 Yes,Thanks Helena, I think that you are exactly right about everyone being different so it is hard to have any meaningful discussion. My question is more about how ACT, in general, looks upon drugs, I know that for my ADHD symptoms (And the secondary disorders), Ritalin is amazingly effective for me, but I just wondered if it would hinder me in any way if I wanted to use ACT to enrich my life further.It's a pity that a subject should be so taboo on a forum that seems to have so many open minded people and that is about a discipline that is, at it's very foundation, about being open minded. Maybe I'm missing something.ThankyouJimTo: ACT for the Public <ACT_for_the_Public >Sent: Sat, October 30, 2010 10:16:30 PMSubject: Re: (unknown) Jim, FWIW, we have talked about them quite a bit in the past, but it's not something that's terribly useful to do since everybody is different. And there are opposing opinions here that make the topic difficult to discuss without tempers getting strained. Helena Re: What if Pooh took Ritalin? What then? >> Is this Ritalin stuff something I need to kick out of my > life or can I use it and still practice ACT?Another way of looking at this question is, is a med furtheringavoidance of experiences that it might work better to accept asthey are? E.g. painful thoughts, painful feelings? Or is the medhelping with engagement in life?Depending on how it's used, alcohol can further avoidance, or itcan further engagement. Same with exercise. The same with watchingTV or surfing the Net or a hobby of any sort. All are potentiallyaddictive or avoidant activities, but not automatically so. Somaybe the same with many sorts of meds.So I would say that although a conflict is always possible, thereis no _inherent_ conflict between a med like Ritalin and learningACT. As Helena says, you're in the best position to know from yourown experience.- Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 Actually, the topic is not taboo. It just hasn't been very useful to discuss it because 1) everyone is different and 2) many differing opinions abound, from "take them if you need them" to "absolutely never ever take them". Not everyone is open-minded, even here, although most are. Even generally open-minded people can have strong convictions, right or wrong. Randy is an ACT professional and what he said in his post to you most likely corresponds to the ACT viewpoint on meds: "is a med furthering avoidance of experiences that it might work better to accept as they are? E.g. painful thoughts, painful feelings? Or is the med helping with engagement in life?"Helena Re: What if Pooh took Ritalin? What then? >> Is this Ritalin stuff something I need to kick out of my > life or can I use it and still practice ACT?Another way of looking at this question is, is a med furtheringavoidance of experiences that it might work better to accept asthey are? E.g. painful thoughts, painful feelings? Or is the medhelping with engagement in life?Depending on how it's used, alcohol can further avoidance, or itcan further engagement. Same with exercise. The same with watchingTV or surfing the Net or a hobby of any sort. All are potentiallyaddictive or avoidant activities, but not automatically so. Somaybe the same with many sorts of meds.So I would say that although a conflict is always possible, thereis no _inherent_ conflict between a med like Ritalin and learningACT. As Helena says, you're in the best position to know from yourown experience.- Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 Jim, I understand it's frustrating because you'd like some opinions. Speaking for myself, I am reluctant to weigh in since I don't know what " ACT " says officially. Having read Helena's quote of what Randy said (thanks, Helena), I would think that in light of what you said, your use of Ritalin is not getting in the way of your engagement in life. Rather it seems to enhance it, so in this way I think it sounds very ACT compatible. Additionally, my take is this: there are times when medication can be very valuable. Yes, anxiety medication can be used to avoid experiences. But if one is so anxious that they are paralyzed in fear, they aren't really engaged in the world at all -- just stuck in their minds. Using medication may be something to use as a tool to become more engaged in life. The same goes with antidepressants. If someone doesn't feel like they can stop crying or get out of bed, medication may be *part* of their move towards engagement with the world. This point of view reflects my value to not be too black and white in my thinking, to avoid rigidity that doesn't consider complexity or nuances. This is again, just for me. Having said that, at some point, we all must learn to sit with our 'demons', regardless of the kind of demon (anxiety, depression, fear of intimacy, etc.) I hope that this made sense, at least in terms of describing my view point. Best,Barbara  Actually, the topic is not taboo. It just hasn't been very useful to discuss it because 1) everyone is different and 2) many differing opinions abound, from " take them if you need them " to " absolutely never ever take them " . Not everyone is open-minded, even here, although most are. Even generally open-minded people can have strong convictions, right or wrong.   Randy is an ACT professional and what he said in his post to you most likely corresponds to the ACT viewpoint on meds: " is a med furthering avoidance of experiences that it might work better to accept as they are? E.g. painful thoughts, painful feelings? Or is the med helping with engagement in life? " Helena  Re: What if Pooh took Ritalin? What then?  >> Is this Ritalin stuff something I need to kick out of my > life or can I use it and still practice ACT?Another way of looking at this question is, is a med furtheringavoidance of experiences that it might work better to accept asthey are? E.g. painful thoughts, painful feelings? Or is the med helping with engagement in life?Depending on how it's used, alcohol can further avoidance, or itcan further engagement. Same with exercise. The same with watchingTV or surfing the Net or a hobby of any sort. All are potentially addictive or avoidant activities, but not automatically so. Somaybe the same with many sorts of meds.So I would say that although a conflict is always possible, thereis no _inherent_ conflict between a med like Ritalin and learning ACT. As Helena says, you're in the best position to know from yourown experience.- Randy -- Barbara White, MFTMarriage and Family Therapistbarbarawhitetherapy.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2010 Report Share Posted October 30, 2010 Thanks Helena,It turns out this discussion has been quite useful to me with the input I have got from you and others.I suspected what Randy said was probably the case and it is nice to hear it from a professional.Right, I've got my tool kit ready.Off I go along the path of my life.CheersJimTo: ACT for the Public <ACT_for_the_Public >Sent: Sat, October 30, 2010 11:13:11 PMSubject: Re: (unknown) Actually, the topic is not taboo. It just hasn't been very useful to discuss it because 1) everyone is different and 2) many differing opinions abound, from "take them if you need them" to "absolutely never ever take them". Not everyone is open-minded, even here, although most are. Even generally open-minded people can have strong convictions, right or wrong. Randy is an ACT professional and what he said in his post to you most likely corresponds to the ACT viewpoint on meds: "is a med furthering avoidance of experiences that it might work better to accept as they are? E.g. painful thoughts, painful feelings? Or is the med helping with engagement in life?"Helena Re: What if Pooh took Ritalin? What then? >> Is this Ritalin stuff something I need to kick out of my > life or can I use it and still practice ACT?Another way of looking at this question is, is a med furtheringavoidance of experiences that it might work better to accept asthey are? E.g. painful thoughts, painful feelings? Or is the medhelping with engagement in life?Depending on how it's used, alcohol can further avoidance, or itcan further engagement. Same with exercise. The same with watchingTV or surfing the Net or a hobby of any sort. All are potentiallyaddictive or avoidant activities, but not automatically so. Somaybe the same with many sorts of meds.So I would say that although a conflict is always possible, thereis no _inherent_ conflict between a med like Ritalin and learningACT. As Helena says, you're in the best position to know from yourown experience.- Randy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 Taking some ritalin occasionally is not going to cause you much harm, and taking a tranquiliser every now and again could be useful if you are feeling bad. These drugs work straight away and so they could be used to cope when suffering gets really bad, or just to get sme relief occassionally. In my experience, though, the rebound from tranquilisers when they wear off is not worth it. But the problem starts when you use these drugs chronically for weeks on end, or even months. The brain is neuroplastic and will atempt to get around the drugs and tollerance soon develops in stimulants and tranquilisers. And some of the changes the brain makes in response to these drugs can be permanent. Prozac Eyes is a condition that all antidepressant users get which is permanent and is due to altered REM sleep. It seems to be benign but no one knows the long term outcome of this condition . It is proof, though, that the brain has become peramantly altered by these drugs. I don't know much about ritalin but chronic depression from repeated use is a condition some people develop. And tranquilsers were shown to cause the brain to atrophy in the same was that alcohol does. Antidepresants drugs are the ones that I consider to be the most dangerous - well apart from the antipsychotics. Some people claim to get PSSD (Permanent loss of sex drive ) from just a single dose of an SSRI. Anyhow, it is certainly true that many sufferes of PSSD only took the meds for only a week. Below are some examples of how devastaitng this condition is, which we now suspect is not actually rare at all, but affects millions of people. Sorry to bring this up again, but I can't stand back and let one person tell everyone thse drugs are harmless for most people. Don't worry, I won't go on about it, you have been warned and there is nothing more I can do. ------------------------------------------------------------------------------------------------------------------------------- (sorry for bad english if so..) I'm thinking about killing myself every day, nearly every hour, when I drive to university in the bus... seeing the young students laughing. When I see such people I can only think that they are Ok..they haven an intact sexuality and intact emotions. They are so innocent. And I'm fucked up completely. I can not think about other things. It's a torture....When I wake up at night my one and only thougt is that I have to live until the end of my life with this nightmare. It is 4 years now, living with zero libido and numbed genitals.. And the feeling when you are attracted to a cute girl...? simply dead. It's so a long time ago that I cannot imagine this feelings..thanks to Paxil this area in my brain is lasered away.----------------------------------------------------------------------------------------------------------------------- Yes, I am positive that taking any antidepressant for any amount of time can cause all kinds of unforeseen problems. There is just too great of a risk with theses poisons. I took lexapro for 2 weeks and have been dealing with pssd for 10 months and going. It only took one week to develop pssd in my case. ----------------------------------------------------------------------------------------------------------------------------- I am suffering from this terribly, my life has become a living hell because of what has happened. There are no words to describe how bad I feel, every waking moment is unbearable. I want to kill myself also but Im too scared. I stopped dreaming also, like you recently I started dreaming a lot more. I have regained a very small amount of emotion, and I mean 'small amount', still have no feeling where body is concerned though. I always read everyones posts on here every day. I am so sorry for all of you that are suffering the same way that I am. People do care, Even if I did get better I would never forget the suffering Iv read about on these forums. I hope and pray each and every one of us gets better. Sex was about giving as well taking, we have to remember that, we have to pray for each other. --------------------------------------------------------------------------------------------------------------------------- SSRI's don't work by making anyone feel better, they work by making you feel nothing. Now my life is a drone, I can't stand this any more. God must have made me as a joke or an example. I want to feel love again. I want to feel and see and be overwhelmed by the worlds beauty again. I want to feel lust. I want to be passionate. I want to be me again. This is such a burden on my life, I just want to know I'll get better. My mind is restless. ------------------------------------------------------------------------------------------------------------------ Hi all, i am affected by pssd after just one pill of zoloft (50 mg). Someone here has experienced this situation?It is important for me to understand if i can hope in a full recovery or not. I took the pill on 25 august and now i have emotions problems, low libido, ED, anhedonia and more... It seems impossible. Guys i experienced something like a nervous breakdown and now i am completely numb, can't get an erection and zero libido. I think the first dose starting some process which it is finishing now...This have to be a nightmare or something like that. --------------------------------------------------------------------------------------------------------------------------------- I was on 20 mg of Prozac daily for only a couple of months. But within a couple weeks my ability to have an orgasm disappeared and the numbness set in, followed by total loss of sex drive.It's been 20 years now since I stopped taking that crap and I have never recovered. Well, I can have orgasms now, but they aren't anywhere near as intense and it takes forever just to become physically aroused enough for it to happen and it just kind of fizzles. Since it takes so long I end up sore no matter how much lube is used, which makes me reluctant to even try to do it the next time. Very problematic when you are married and have to keep saying no because you know you will end up paying dearly for that brief nanosecond of something close to pleasure. I feel like the walking dead already. And after 20 years of being made to feel like this problem doesn't even exist, it feels completely hopeless. I keep asking myself how many more years can I stand to go on feeling (or not feeling) the way that I do. ----------------------------------------------------------------------------------------------------------------------------------------------- I swear there are many days when I just do not even want to keep going. If it weren't for 2 kids still at home and elderly parents who still need me, I think I would just end it all.I feel like the walking dead already. And after 20 years of being made to feel like this problem doesn't even exist, it feels completely hopeless. I keep asking myself how many more years can I stand to go on feeling (or not feeling) the way that I do. ----------------------------------------------------------------------------------------------------------------------------------------------- Hi im a 21 year old male. I was prescribed zoloft for 4 months and began noticing the sexual dysfunction soon after starting it, a couple months later it went away and i felt completely normal while on the meds. My anxiety came back tho and the doc doubled my dosage of the zoloft and the dysfunction came back. After the 4 months i stopped taking it, its been 11 months now since my last dose and the dysfunction still remains.MY symptoms are-*Lack of sensitivity in my penis, it has gotten better over time, its about 40% of what it used to be now, the top of the shaft is where it is worst, different areas of the penis are more sensitive then others.*When I cum it has a lot less feeling and it just kinda dribbles out.*My emotional range has been cut down dramatically. It's like I almost have complete apathy, this varies from day to day however.*My rectum has also been numbed, even more so then my penis at this point. I find this very odd and very uncomfortable at times.*My nipples have also been numbed.*Any area of the body that used to be very ticklish has become numbed, including my sides, my arm pits, my lower stomach and upper thighs. This is most noticable when taking a shower and im washing myself, it feels like my skin is just rubber it has almost no sensation at all.I think that about covers it, I just thought I would share my own effects of PSSD as I know it effects everyone differently. > > >> > > Is this Ritalin stuff something I need to kick out of my> > > life or can I use it and still practice ACT?> >> > Another way of looking at this question is, is a med furthering> > avoidance of experiences that it might work better to accept as> > they are? E.g. painful thoughts, painful feelings? Or is the med> > helping with engagement in life?> >> > Depending on how it's used, alcohol can further avoidance, or it> > can further engagement. Same with exercise. The same with watching> > TV or surfing the Net or a hobby of any sort. All are potentially> > addictive or avoidant activities, but not automatically so. So> > maybe the same with many sorts of meds.> >> > So I would say that although a conflict is always possible, there> > is no _inherent_ conflict between a med like Ritalin and learning> > ACT. As Helena says, you're in the best position to know from your> > own experience.> >> > - Randy> >> >> >> > > >> > > > -- > Barbara White, MFT> Marriage and Family Therapist> > barbarawhitetherapy.com> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2010 Report Share Posted October 31, 2010 Full disclosure: I am not in any sense an " ACT professional, " just a layperson who likes to write and who enjoys paraphrasing what real ACT professionals have written elsewhere. These days I learn as much from the posts of my fellow " amateurs " on this board as from any ACT book - so I count myself lucky to be able to listen in & occasionally contribute. - Randy > > > > Is this Ritalin stuff something I need to kick out of my > > life or can I use it and still practice ACT? > > Another way of looking at this question is, is a med furthering > avoidance of experiences that it might work better to accept as > they are? E.g. painful thoughts, painful feelings? Or is the med > helping with engagement in life? > > Depending on how it's used, alcohol can further avoidance, or it > can further engagement. Same with exercise. The same with watching > TV or surfing the Net or a hobby of any sort. All are potentially > addictive or avoidant activities, but not automatically so. So > maybe the same with many sorts of meds. > > So I would say that although a conflict is always possible, there > is no _inherent_ conflict between a med like Ritalin and learning > ACT. As Helena says, you're in the best position to know from your > own experience. > > - Randy > Quote Link to comment Share on other sites More sharing options...
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