- welcome and Gathering

[Guest guest]

Welcome . Please don't worry about being proper around here. You will

quickly find that we are one big family that can be turned to in time of need or

for some fun.

Yes, there is going to be a gathering in 2008. Haven't narrowed down an area as

yet...probably a bit early to do so.

Would love to have it in or around Canada. We have one stubborn member there

that NEEDS to be at the gathering so what a better way to meet up with her but

to head to her neck of the woods.

I shall put you on my roll call as a possibility of attending the gathering.

Many hugs to you-

Sandie

Des Moines, IA

dad, Merle, passed from LBD 9-20-02, age 65

-- Green wrote:

Hello

I have just joined your caregivers group, so I am not sure if this is the

proper way to start or respond, but I thought I would give it a try. My mother

was diagnosed by LBD in February.

It is a lengthy story which I would like to share with you at sometime,

however, I notice that you are planning a meeting of members in the summer of

2008 and have given Canada consideration.

I live in Toronto, and of course for personal reasons would love to have the

meeting here. But more importantly I think LBD needs a much higher profile in

this country. Obviously as I have just joined, I don't know what other people's

experience with the medical profession, or for that matter ordinary people.

However I have learned to answer questions re my mother with " Do you want the

long answer " or the " short answer " .

Oh, bye the way, during a patient's advocate meeting requested by me, the

Doctor at a major hospital in Toronto, referred to LBD as a theory. I am not

sure whether he was referring to my mother's diagnosis LBD (which they did not

make) or the disease itself.

Thank you for this opportunity.