Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 ours are petiet absent seizers., zoned out, non responsive, blank stares with no startel, MEANING, you can bang a pot behind them they don't turn or move, or react, you can actually (and we ONLY did this cause we had to test to see if it WAS seizers) spray water in their face like with a spray bottle and they don't close eyes or flinch or move durring one, you can clap in their face ect and nothing.....like day dreaming but they DON"T snap out on command type thing Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelkinghttp://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169 Seizures Hi everyone, its been a long time since I have posted, but I have been reading and keeping up, and still amazed at the amount of info I learn everytime I log on and read...I have a question, and I feel a little silly asking it...however, I have always thought that seizures as like an epileptic seizure, full body shaking, completely zoned out....convulsing...However, maybe I am getting the definition wrong for our kids? But, lately I have been questioning my own definition, since I have read that some of our kids are having 20-40-60 seizures a day...are these full body seizures? If not, can someone explain what our kids seizures look like?Thanks!AngieMom to Ethan, , and No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.175 / Virus Database: 270.8.2/1742 - Release Date: 10/23/2008 3:29 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 Seizures don't always come out ,but are occuring in the brain. Most kids that have these will sit and zone out or be confused. Thats what my son did anyway. He has absence, partial, secondary generlized, sleep seizures. These show up on EEGs. Absence- stares into space. Doesn't repond to u. blank look also many call them "Peti Mal" I think I spelled that right. Partial - one side of the body mild shaking to severe shaking, or starts at one place hand leg,etc. Secondary generlized also many call them "grad mal" involves the whold body, shaking, eyes rolling, confusion, loss of consciouness, what I think most people are common with. Sleep seizures- lip smacking, will not repond, twitching or shaking or limbs and face, wakes up ofter with these and is confused. Also called monoclonic sorry I can not spell today. Hope I helped. Subject: SeizuresTo: mb12 valtrex Date: Thursday, October 23, 2008, 2:37 PMHi everyone, its been a long time since I have posted, but I have been reading and keeping up, and still amazed at the amount of info I learn everytime I log on and read... I have a question, and I feel a little silly asking it...however, I have always thought that seizures as like an epileptic seizure, full body shaking, completely zoned out....convulsing... However, maybe I am getting the definition wrong for our kids? But, lately I have been questioning my own definition, since I have read that some of our kids are having 20-40-60 seizures a day...are these full body seizures? If not, can someone explain what our kids seizures look like? Thanks! Angie Mom to Ethan, , and ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 What type of seizure would you say this is...it's more of a whoa..catch myself, deep blink..kinda what Stan Kurtz's son's looked like on his recovering kids video. Thanks, SeizuresTo: mb12 valtrex Date: Thursday, October 23, 2008, 2:37 PMHi everyone, its been a long time since I have posted, but I have been reading and keeping up, and still amazed at the amount of info I learn everytime I log on and read... I have a question, and I feel a little silly asking it...however, I have always thought that seizures as like an epileptic seizure, full body shaking, completely zoned out....convulsing... However, maybe I am getting the definition wrong for our kids? But, lately I have been questioning my own definition, since I have read that some of our kids are having 20-40-60 seizures a day...are these full body seizures? If not, can someone explain what our kids seizures look like? Thanks! Angie Mom to Ethan, , and ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 The definition of Epilepsy is two or more unprovoked seizures. That is it. It is a huge label, and one that allows conventional medicine to slap a prescription in your hand rather than find out the cause. There are 40 different types of seizures. Tonic Clonic, previously known as Gran Mal, generalized, full body shaking, is only one type. There is also a Tonic seizure or just a clonic seizure. Again... only a label. It is now our job to figure out why. My daughter had a Tonic Clonic seizure today. She has been experiencing them for the past two years. She is now 16. Her's appear to be connected to body functions, nutritional choices, hormones, and .... ? Piecing the puzzle together. Most seizures are " triggered " by something. HTH Robin > > Hi everyone, its been a long time since I have posted, but I have been > reading and keeping up, and still amazed at the amount of info I learn > everytime I log on and read... > > I have a question, and I feel a little silly asking it...however, I > have always thought that seizures as like an epileptic seizure, full > body shaking, completely zoned out....convulsing... > > However, maybe I am getting the definition wrong for our kids? But, > lately I have been questioning my own definition, since I have read > that some of our kids are having 20-40-60 seizures a day...are these > full body seizures? If not, can someone explain what our kids seizures > look like? > > Thanks! > Angie > Mom to Ethan, , and > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 The definition of Epilepsy is two or more unprovoked seizures. That is it. It is a huge label, and one that allows conventional medicine to slap a prescription in your hand rather than find out the cause. There are 40 different types of seizures. Tonic Clonic, previously known as Gran Mal, generalized, full body shaking, is only one type. There is also a Tonic seizure or just a clonic seizure. Again... only a label. It is now our job to figure out why. My daughter had a Tonic Clonic seizure today. She has been experiencing them for the past two years. She is now 16. Her's appear to be connected to body functions, nutritional choices, hormones, and .... ? Piecing the puzzle together. Most seizures are " triggered " by something. HTH Robin > > Hi everyone, its been a long time since I have posted, but I have been > reading and keeping up, and still amazed at the amount of info I learn > everytime I log on and read... > > I have a question, and I feel a little silly asking it...however, I > have always thought that seizures as like an epileptic seizure, full > body shaking, completely zoned out....convulsing... > > However, maybe I am getting the definition wrong for our kids? But, > lately I have been questioning my own definition, since I have read > that some of our kids are having 20-40-60 seizures a day...are these > full body seizures? If not, can someone explain what our kids seizures > look like? > > Thanks! > Angie > Mom to Ethan, , and > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 23, 2008 Report Share Posted October 23, 2008 We recently discovered that our son is having a seizure about every 11 seconds (showed up on a 1-hour EEG). There were really no outward signs of seizures that we could see. He would on occasion " roll his eyes " back, but when I described it to a neurologist a year ago (and also told him that my son had, for a few days, lost his ability to pronounce the " f " sound, and got very discouraged when couldn't get a word out -- seemed like a person who had a stroke) -- the neuro told me there was absolutely nothing to worry about, since my son's condition was not degenerating in any way. I left feeling very relieved, but it was still unsettling. Then, back in April or May of this year, a couple of people mentioned to me a story they had seen on Good Morning America about children who were dxed with autism but were having seizures; after the seizures were treated several of these children showed remarkable improvement; but many neuros don't routinely do EEGs for children with autism, and some other doctors think it should be standard practice. When two people mentioned this TV program to me, I took matters into my own hands and asked my pediatrician to schedule an EEG. She was reluctant, but went ahead with it; her office also scheduled me with a pediatrica neurologist, who went over my son's EEG results with us. The EEG clearly showed seizure activity every 11 seconds, and I was floored by this! Between the time he had his EEG and we got in to see the nuro (about 4 months), my son's condition got worse. He started pulling one side of his mouth down (looked like Bells Palsey) while shaking his right hand. I thought it was just stimming, but the neurologist said this was actually a seizure. When he does this, he's seizing on the left side of his brain which controls the right side of his body, and that's why it's the right hand and right side of his mouth that does this. The first med my son was on (Keppra) helped, but did not stop these " mouth seizures " as our neuro called them, so now he has been switched to Lamictel (not sure if I spelled this right). He's been on it for a week, and we are gradually building the dosage. I am very hopeful that this med will help it. If any other parents have comments for me about the medication, things I should do for my son, it would be greatly appreciated. I also want to encourage EVERY parent out there who has the SLIGHTEST suspicion that your child is having seizures to INSIST on an EEG, even if a ped or even a neuro tells you it's not needed. I wish I had insisted on this a year earlier, when the neuro dismissed my worries; but at that time I didn't even know what an EEG was or what other steps I should take, and of course no one in the medical profession (who, I guess, are afraid of insurance companies) let me know about these options or encouraged me in any way. I am very angry about this now! IN FACT -- the Autism Research Institute website recommends an EEG for any child who has language delays or regression, since seizures could cause language problems. For my son, the area of his brain where he is seizing is the area that controls language.) I also want to express my sincere THANKS to other parents on this group! It was other parents on this group who alerted me to the fact that some of my son's behaviors might be seizure related (like losing his " fs " ), and I have gotten far better information from all of you than from many doctors I've seen. The information you all gave me helped me be better prepared for the appointment with the neurologist, and for that I am truly grateful! partial complex one I believe look like that Recovering from Autism is a marathonNOT a sprint, but FULLY possible!Read more about it on my BLOGs athttp://www.myspace.com/christelking http://foggyrock.com/MyPage/recoveringwisheshttp://www.facebook.com/profile.php?id=677063169 SeizuresTo: mb12 valtrex Date: Thursday, October 23, 2008, 2:37 PMHi everyone, its been a long time since I have posted, but I have been reading and keeping up, and still amazed at the amount of info I learn everytime I log on and read... I have a question, and I feel a little silly asking it...however, I have always thought that seizures as like an epileptic seizure, full body shaking, completely zoned out....convulsing... However, maybe I am getting the definition wrong for our kids? But, lately I have been questioning my own definition, since I have read that some of our kids are having 20-40-60 seizures a day...are these full body seizures? If not, can someone explain what our kids seizures look like? Thanks! Angie Mom to Ethan, , and ------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 To Robin, It was very alarming when I found out that my daughter was having seizure bursts (via EEG) without my knowlege, since I wasn't witnessing any outward signs of a seizure, mild or otherwise, DURING her EEG session. (this has been a few years ago...) I also witnessed seizures during her normal hours of the day ...BUT.... to realize that the seizures were going on basically every minute, it saddened me. (It is interesting, with neruofeeback, you basically can, see bursts also.) Which I highly, recommend! When you wrote>>> I have gotten far better information from all of you than from many doctors I've seen. Robin, I say, I couldn't agree with you more! ~ Robin Broyles " wrote: > > We recently discovered that our son is having a seizure about every 11 > seconds (showed up on a 1-hour EEG). There were really no outward signs of > seizures that we could see. He would on occasion " roll his eyes " back, but > when I described it to a neurologist a year ago (and also told him that my > son had, for a few days, lost his ability to pronounce the " f " sound, and > got very discouraged when couldn't get a word out -- seemed like a person > who had a stroke) -- the neuro told me there was absolutely nothing to worry > about, since my son's condition was not degenerating in any way. I left > feeling very relieved, but it was still unsettling. > > Then, back in April or May of this year, a couple of people mentioned to me > a story they had seen on Good Morning America about children who were dxed > with autism but were having seizures; after the seizures were treated > several of these children showed remarkable improvement; but many neuros > don't routinely do EEGs for children with autism, and some other doctors > think it should be standard practice. > > When two people mentioned this TV program to me, I took matters into my own > hands and asked my pediatrician to schedule an EEG. She was reluctant, but > went ahead with it; her office also scheduled me with a pediatrica > neurologist, who went over my son's EEG results with us. The EEG clearly > showed seizure activity every 11 seconds, and I was floored by this! > > Between the time he had his EEG and we got in to see the nuro (about 4 > months), my son's condition got worse. He started pulling one side of his > mouth down (looked like Bells Palsey) while shaking his right hand. I > thought it was just stimming, but the neurologist said this was actually a > seizure. When he does this, he's seizing on the left side of his brain which > controls the right side of his body, and that's why it's the right hand and > right side of his mouth that does this. > > The first med my son was on (Keppra) helped, but did not stop these " mouth > seizures " as our neuro called them, so now he has been switched to Lamictel > (not sure if I spelled this right). He's been on it for a week, and we are > gradually building the dosage. I am very hopeful that this med will help it. > > > If any other parents have comments for me about the medication, things I > should do for my son, it would be greatly appreciated. > > I also want to encourage EVERY parent out there who has the SLIGHTEST > suspicion that your child is having seizures to INSIST on an EEG, even if a > ped or even a neuro tells you it's not needed. I wish I had insisted on this > a year earlier, when the neuro dismissed my worries; but at that time I > didn't even know what an EEG was or what other steps I should take, and of > course no one in the medical profession (who, I guess, are afraid of > insurance companies) let me know about these options or encouraged me in any > way. I am very angry about this now! > > IN FACT -- the Autism Research Institute website recommends an EEG for any > child who has language delays or regression, since seizures could cause > language problems. For my son, the area of his brain where he is seizing is > the area that controls language.) > > I also want to express my sincere THANKS to other parents on this group! It > was other parents on this group who alerted me to the fact that some of my > son's behaviors might be seizure related (like losing his " fs " ), and I have > gotten far better information from all of you than from many doctors I've > seen. The information you all gave me helped me be better prepared for the > appointment with the neurologist, and for that I am truly grateful! > > > > On Thu, Oct 23, 2008 at 11:23 PM, Christel King wrote: > > > partial complex one I believe look like that > > > > Recovering from Autism is a marathon > > NOT a sprint, but FULLY possible! > > Read more about it on my BLOGs at > > http://www.myspace.com/christelking > > http://foggyrock.com/MyPage/recoveringwishes > > http://www.facebook.com/profile.php?id=677063169 > > > > Seizures > > To: mb12 valtrex > > Date: Thursday, October 23, 2008, 2:37 PM > > > > Hi everyone, its been a long time since I have posted, but I have been > > reading and keeping up, and still amazed at the amount of info I learn > > everytime I log on and read... > > > > I have a question, and I feel a little silly asking it...however, I > > have always thought that seizures as like an epileptic seizure, full > > body shaking, completely zoned out....convulsing... > > > > However, maybe I am getting the definition wrong for our kids? But, > > lately I have been questioning my own definition, since I have read > > that some of our kids are having 20-40-60 seizures a day...are these > > full body seizures? If not, can someone explain what our kids seizures > > look like? > > > > Thanks! > > Angie > > Mom to Ethan, , and > > > > > > ------------------------------------ > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 24, 2008 Report Share Posted October 24, 2008 Please understand though, that just because an EEG is normal, it does not mean that your child is not experiencing seizures. The abnormal activity can be deep in the brain, or in the right frontal lobe. Not sure why that is not always picked up by an EEG but it is a medical known fact. Also, unless your child is experiencing the abnormal activity during the EEG you won't see it recorded. I was given the analogy that, if 7/11 market has a video camera on their store from 7 - 11:00 and then the thief hits at 11:30... you won't have it on camera. Same with the EEG. If it looks like a seizure,then it most likely is. There are 40 different flavors here. And of these types, each individual will display them in different ways. Epilepsy only means two or more seizures. There are more causes to this disorder than are known. Nutrition being the first line of attach. Intestinal health being the second. A journal is a must, and will be your best friend. -- In mb12 valtrex , " Robin Broyles " wrote: > I also want to encourage EVERY parent out there who has the SLIGHTEST > suspicion that your child is having seizures to INSIST on an EEG, even if a > ped or even a neuro tells you it's not needed. I wish I had insisted on this > a year earlier, when the neuro dismissed my worries; but at that time I > didn't even know what an EEG was or what other steps I should take, and of > course no one in the medical profession (who, I guess, are afraid of > insurance companies) let me know about these options or encouraged me in any > way. I am very angry about this now! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 25, 2008 Report Share Posted October 25, 2008 Thank you, ! I find it incredibly sad that an EEG isn't just standard practice for every child who is diagnosed with autism. How is your daughter now? I hope she is much better! Have you found a good med (or alternative) that works for her? To Robin, It was very alarming when I found out that my daughter was having seizure bursts (via EEG)without my knowlege, since I wasn't witnessing any outward signs of a seizure, mild or otherwise, DURING her EEG session. (this has been a few years ago...)I also witnessed seizures during her normal hours ofthe day ...BUT.... to realize that theseizures were going on basically every minute, itsaddened me. (It is interesting, with neruofeeback, you basically can, see bursts also.) Which I highly,recommend! When you wrote>>> I have gotten far better information from all of you than from many doctors I'veseen. Robin, I say, I couldn't agree with you more!~ Robin Broyles " wrote:>> We recently discovered that our son is having a seizure about every 11> seconds (showed up on a 1-hour EEG). There were really no outward signs of> seizures that we could see. He would on occasion " roll his eyes " back, but> when I described it to a neurologist a year ago (and also told him that my> son had, for a few days, lost his ability to pronounce the " f " sound, and> got very discouraged when couldn't get a word out -- seemed like a person> who had a stroke) -- the neuro told me there was absolutely nothing to worry> about, since my son's condition was not degenerating in any way. I left> feeling very relieved, but it was still unsettling.> > Then, back in April or May of this year, a couple of people mentioned to me> a story they had seen on Good Morning America about children who were dxed> with autism but were having seizures; after the seizures were treated> several of these children showed remarkable improvement; but many neuros> don't routinely do EEGs for children with autism, and some other doctors> think it should be standard practice.> > When two people mentioned this TV program to me, I took matters into my own> hands and asked my pediatrician to schedule an EEG. She was reluctant, but> went ahead with it; her office also scheduled me with a pediatrica> neurologist, who went over my son's EEG results with us. The EEG clearly> showed seizure activity every 11 seconds, and I was floored by this! > > Between the time he had his EEG and we got in to see the nuro (about 4> months), my son's condition got worse. He started pulling one side of his> mouth down (looked like Bells Palsey) while shaking his right hand. I> thought it was just stimming, but the neurologist said this was actually a> seizure. When he does this, he's seizing on the left side of his brain which> controls the right side of his body, and that's why it's the right hand and> right side of his mouth that does this.> > The first med my son was on (Keppra) helped, but did not stop these " mouth> seizures " as our neuro called them, so now he has been switched to Lamictel> (not sure if I spelled this right). He's been on it for a week, and we are> gradually building the dosage. I am very hopeful that this med will help it.> > > If any other parents have comments for me about the medication, things I> should do for my son, it would be greatly appreciated.> > I also want to encourage EVERY parent out there who has the SLIGHTEST> suspicion that your child is having seizures to INSIST on an EEG, even if a> ped or even a neuro tells you it's not needed. I wish I had insisted on this> a year earlier, when the neuro dismissed my worries; but at that time I> didn't even know what an EEG was or what other steps I should take, and of> course no one in the medical profession (who, I guess, are afraid of> insurance companies) let me know about these options or encouraged me in any> way. I am very angry about this now! > > IN FACT -- the Autism Research Institute website recommends an EEG for any> child who has language delays or regression, since seizures could cause> language problems. For my son, the area of his brain where he is seizing is> the area that controls language.)> > I also want to express my sincere THANKS to other parents on this group! It> was other parents on this group who alerted me to the fact that some of my> son's behaviors might be seizure related (like losing his " fs " ), and I have> gotten far better information from all of you than from many doctors I've> seen. The information you all gave me helped me be better prepared for the> appointment with the neurologist, and for that I am truly grateful!> > > > On Thu, Oct 23, 2008 at 11:23 PM, Christel King wrote: > > > partial complex one I believe look like that> >> > Recovering from Autism is a marathon> > NOT a sprint, but FULLY possible!> > Read more about it on my BLOGs at > > http://www.myspace.com/christelking> > http://foggyrock.com/MyPage/recoveringwishes > > http://www.facebook.com/profile.php?id=677063169> >> > Seizures> > To: mb12 valtrex > > Date: Thursday, October 23, 2008, 2:37 PM > >> > Hi everyone, its been a long time since I have posted, but I have been> > reading and keeping up, and still amazed at the amount of info I learn> > everytime I log on and read... > >> > I have a question, and I feel a little silly asking it...however, I> > have always thought that seizures as like an epileptic seizure, full> > body shaking, completely zoned out....convulsing... > >> > However, maybe I am getting the definition wrong for our kids? But,> > lately I have been questioning my own definition, since I have read> > that some of our kids are having 20-40-60 seizures a day...are these> > full body seizures? If not, can someone explain what our kids seizures> > look like?> >> > Thanks!> > Angie> > Mom to Ethan, , and > > > >> > ------------------------------------> >> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2008 Report Share Posted October 26, 2008 My daughter's seizures have improved quite a lot!!! Only 5 seizures in the past 2 months. That is wonderful compared to prior months and years. I have found as I increased many of the supplements and did Kineseology (muscle testing) on the supplements (most, I simply wasn't giving enough) and the food tests are interesting, too. The ONLY medication she has had in her entire life, was one month she took something for seizures, made matters worse. we quit, never to start again. Other than that one time, we do all natural methods, for healthcare. No medical. Thanks for asking. ~ " Robin Broyles " wrote: Thank you, ! I find it incredibly sad that an EEG isn't just standard practice for every child who is diagnosed with autism. How is your daughter now? I hope she is much better! Have you found a good med (or alternative) that works for her? > wrote: > To Robin, It was very alarming when I found out > > that my daughter was having seizure bursts (via EEG) > > without my knowlege, since I wasn't witnessing any > > outward signs of a seizure, mild or otherwise, DURING > > her EEG session. (this has been a few years ago...) > > I also witnessed seizures during her normal hours of > > the day ...BUT.... to realize that the > > seizures were going on basically every minute, it > > saddened me. (It is interesting, with neruofeeback, > > you basically can, see bursts also.) Which I highly, > > recommend! When you wrote>>> I have gotten far better > > information from all of you than from many doctors I've > > seen. Robin, I say, I couldn't agree with you more! > > ~ > > > > > > Robin Broyles " <rabroyles@> wrote: > > > > > > We recently discovered that our son is having a seizure about every > > 11 > > > seconds (showed up on a 1-hour EEG). There were really no outward > > signs of > > > seizures that we could see. He would on occasion " roll his eyes " > > back, but > > > when I described it to a neurologist a year ago (and also told him > > that my > > > son had, for a few days, lost his ability to pronounce the " f " > > sound, and > > > got very discouraged when couldn't get a word out -- seemed like a > > person > > > who had a stroke) -- the neuro told me there was absolutely nothing > > to worry > > > about, since my son's condition was not degenerating in any way. I > > left > > > feeling very relieved, but it was still unsettling. > > > > > > Then, back in April or May of this year, a couple of people > > mentioned to me > > > a story they had seen on Good Morning America about children who > > were dxed > > > with autism but were having seizures; after the seizures were > > treated > > > several of these children showed remarkable improvement; but many > > neuros > > > don't routinely do EEGs for children with autism, and some other > > doctors > > > think it should be standard practice. > > > > > > When two people mentioned this TV program to me, I took matters > > into my own > > > hands and asked my pediatrician to schedule an EEG. She was > > reluctant, but > > > went ahead with it; her office also scheduled me with a pediatrica > > > neurologist, who went over my son's EEG results with us. The EEG > > clearly > > > showed seizure activity every 11 seconds, and I was floored by this! > > > > > > Between the time he had his EEG and we got in to see the nuro > > (about 4 > > > months), my son's condition got worse. He started pulling one side > > of his > > > mouth down (looked like Bells Palsey) while shaking his right hand. > > I > > > thought it was just stimming, but the neurologist said this was > > actually a > > > seizure. When he does this, he's seizing on the left side of his > > brain which > > > controls the right side of his body, and that's why it's the right > > hand and > > > right side of his mouth that does this. > > > > > > The first med my son was on (Keppra) helped, but did not stop > > these " mouth > > > seizures " as our neuro called them, so now he has been switched to > > Lamictel > > > (not sure if I spelled this right). He's been on it for a week, and > > we are > > > gradually building the dosage. I am very hopeful that this med will > > help it. > > > > > > > > > If any other parents have comments for me about the medication, > > things I > > > should do for my son, it would be greatly appreciated. > > > > > > I also want to encourage EVERY parent out there who has the > > SLIGHTEST > > > suspicion that your child is having seizures to INSIST on an EEG, > > even if a > > > ped or even a neuro tells you it's not needed. I wish I had > > insisted on this > > > a year earlier, when the neuro dismissed my worries; but at that > > time I > > > didn't even know what an EEG was or what other steps I should take, > > and of > > > course no one in the medical profession (who, I guess, are afraid of > > > insurance companies) let me know about these options or encouraged > > me in any > > > way. I am very angry about this now! > > > > > > IN FACT -- the Autism Research Institute website recommends an EEG > > for any > > > child who has language delays or regression, since seizures could > > cause > > > language problems. For my son, the area of his brain where he is > > seizing is > > > the area that controls language.) > > > > > > I also want to express my sincere THANKS to other parents on this > > group! It > > > was other parents on this group who alerted me to the fact that > > some of my > > > son's behaviors might be seizure related (like losing his " fs " ), > > and I have > > > gotten far better information from all of you than from many > > doctors I've > > > seen. The information you all gave me helped me be better prepared > > for the > > > appointment with the neurologist, and for that I am truly grateful! > > > > > > > > > > > > On Thu, Oct 23, 2008 at 11:23 PM, Christel King > > <christel76@>wrote: > > > > > > > partial complex one I believe look like that > > > > > > > > Recovering from Autism is a marathon > > > > NOT a sprint, but FULLY possible! > > > > Read more about it on my BLOGs at > > > > http://www.myspace.com/christelking > > > > http://foggyrock.com/MyPage/recoveringwishes > > > > http://www.facebook.com/profile.php?id=677063169 > > > > > > > > Seizures > > > > To: mb12 valtrex <mb12 valtrex% 40yahoogroups.com> > > > > Date: Thursday, October 23, 2008, 2:37 PM > > > > > > > > Hi everyone, its been a long time since I have posted, but I have > > been > > > > reading and keeping up, and still amazed at the amount of info I > > learn > > > > everytime I log on and read... > > > > > > > > I have a question, and I feel a little silly asking it...however, > > I > > > > have always thought that seizures as like an epileptic seizure, > > full > > > > body shaking, completely zoned out....convulsing... > > > > > > > > However, maybe I am getting the definition wrong for our kids? > > But, > > > > lately I have been questioning my own definition, since I have > > read > > > > that some of our kids are having 20-40-60 seizures a day...are > > these > > > > full body seizures? If not, can someone explain what our kids > > seizures > > > > look like? > > > > > > > > Thanks! > > > > Angie > > > > Mom to Ethan, , and > > > > > > > > > > > > ------------------------------------ > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2009 Report Share Posted October 26, 2009 Hi, Everyone Sorry I haven't been well enough to keep up with all the posts. Does anyone know anything about seizures that can happen with Chiari, or where I can find info. My son is very sick, had an EEG today, but he is really out of it, can't talk, .... He said that I've had times like that, but not for quite awhile. Please, if anyone could help with info. We just aren't getting the help we need because of money and insurance, and I am very concerned about him. Thank you for any help. Debbie _________________________________________________________________ Windows 7: It helps you do more. Explore Windows 7. http://www.microsoft.com/Windows/windows-7/default.aspx?ocid=PID24727::T:WLMTAGL\ :ON:WL:en-US:WWL_WIN_evergreen3:102009 Quote Link to comment Share on other sites More sharing options...
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