Guest guest Posted February 13, 2009 Report Share Posted February 13, 2009 My daughter (almost 12 months) was put on miralax for a week after lactulose was not working. I began to notice strange behaviors in her after a few days on it (blinking eyes repeatedly, muscle twitches, irritability, insomnia--up all night crying/fussing, and a general jumpiness--she would bounce in her crib and when I would hold her). Anyone had these same effects after less than a week on this drug? The GI doc took her off (and put her back on lactulose) when I told her of these side effects but said she had never heard of these before. The ped was alarmed to say the least, but also said that he has never seen any side effects of miralax, but now that she has been off for several days, she seems back to her old self. I can't think of anything else that could have caused this. She does have SID-with gross motor skill delay, but is otherwise fine. Please send me your thoughts and similar experiences. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 Hi, My three year old was on Miralax for 2.75 years and has SID/apraxia. He also has the eye blinks and facial " wink " that you are describing. I have always wondered if the Miralax caused the eye blinking / SID / Apraxia or if it was there from the start as he was born with a few birth defects. He was off the Miralax for 4 months and then we had a severe situation where he HAD to go back on. I can say that there is a correlation in the eye blinking and Miralax use. The blinking was definitely increased while on adult doses of Miralax. The blinking was less when off the miralax and using Magnesium Citrate. Mag Citrate is used by touretts kids to calm these " tics " . Every doctor I tell also says they have never heard of that side effect (eye blinking tic), but a Mayo surgeon did tell me that he believes it can happen as no drug " is free " (of side effects) in his words. My son started the eye blinking " tic " at age 2. He had been on the Miralax for 1.75 years at that point. There are a lot of parents on this Miralax board who report eye blinking tics as a side effect of Miralax. I do believe that most of these kids have special needs already that predate the use of the Miralax...so we still do not know conclusively if Miralax is the cause of the tic. I for one do stongly suspect that it amplifies problems our kids are genetically predisposed to. I have not heard that eye blinking tics go along with constipation issues prior to Miralax as one would expect to hear if Miralax was not a trigger for these eye tics. Eye blinking tics cannot be all that common and the only place I have heard of other kids having eye blinking tics in on this Miralax board. Pam > > My daughter (almost 12 months) was put on miralax for a week after > lactulose was not working. I began to notice strange behaviors in her > after a few days on it (blinking eyes repeatedly, muscle twitches, > irritability, insomnia--up all night crying/fussing, and a general > jumpiness--she would bounce in her crib and when I would hold her). > Anyone had these same effects after less than a week on this drug? The > GI doc took her off (and put her back on lactulose) when I told her of > these side effects but said she had never heard of these before. The > ped was alarmed to say the least, but also said that he has never seen > any side effects of miralax, but now that she has been off for several > days, she seems back to her old self. I can't think of anything else > that could have caused this. She does have SID-with gross motor skill > delay, but is otherwise fine. Please send me your thoughts and similar > experiences. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 14, 2009 Report Share Posted February 14, 2009 Sounds just like my son! We started experiencing the same behaviors after about a week on miralax but never put two in two until I found this board and was looking for ways to get him off the miralax! Cayce Subject: miralax side effectsTo: miralax Date: Friday, February 13, 2009, 10:16 PM My daughter (almost 12 months) was put on miralax for a week after lactulose was not working. I began to notice strange behaviors in her after a few days on it (blinking eyes repeatedly, muscle twitches, irritability, insomnia--up all night crying/fussing, and a general jumpiness--she would bounce in her crib and when I would hold her). Anyone had these same effects after less than a week on this drug? The GI doc took her off (and put her back on lactulose) when I told her of these side effects but said she had never heard of these before. The ped was alarmed to say the least, but also said that he has never seen any side effects of miralax, but now that she has been off for several days, she seems back to her old self. I can't think of anything else that could have caused this. She does have SID-with gross motor skill delay, but is otherwise fine. Please send me your thoughts and similar experiences. Quote Link to comment Share on other sites More sharing options...
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