When surgery IS wise = ( at what point ) ? -thoughts

[Guest guest]

Kathleen and I discussed awhile back ,

that this topic of when IS surgery wise , and when ARE we better off to try

other symtpoms mannagment approaches , is one we don't bring up enough .

There are various view points = that medical view using the karnofsky score (

neurology scale ) - and the 70% or greater daily life impacts point ( are

symptoms including pain limmiting you to 70% of normal or less in daily

limmitations /efforts ? - then quality of life impacts may be tiping the scale

into consider surgery's possible beneift's point ) -- but quite often in this

when we REACH the knowledable neurosurgeon able to tell us what IS up here , and

how he feels he MIGHT be able to improve our pain /limmitations ect . = WE loose

sight of asking IS there another path NOW that might help achieve the same goals

? = and afterall - this is a neuroscientist surgeon were asking / they ARE going

to think first =structural atonomical problem /leading to plumbing problem = fix

= equals probablity vs risk this person will gain thinking .

SOME will tell you right away IF you know /think to ask = gee yes , go get those

paraspinal muscles in the best shape possible / BEFORE considering surgery = you

will have an easier /better time of the healing phase if you can do so ===

YES , we do know = that doing this plus those lower back strenghtening of

muscles /stretching gentle ect physical efforts will often improve both back

pain /.and neck =base of the head pain = loose some weight at the same time

==and if your amoung those women with acm that's somewhat normal presure hydro

inclined =and you may see that IMPROVE as well ( where both blood presure /and

acm related head presure problems improve ) == gain better ballance and

endurance in that warm water too =and a bit better cardiac functions = and gosh

darn a LOT Of folks start feeling better === it can become the health care

solution to a LOT Of acm related sorts of problems in reality -better overall

health and wellness /less acm impact / and perhaps years gained without

surgery's too .

It's worth steping back and remembering to really consider trying it ===

that said , when MY acm got bad = I KNEW it was also what was getting worse and

worse and worse = I COULD TELL ==and I knew when it WAS time to trust that

conservative neurosurgeon Dr Batzdorf when HE could see on MRI " S it was

progressing .

I was right to go to that surgery too ==and did do remarkably WELL in recovering

= quite visably well in reality = yep I've still got EDS , acm impacts , lower

spine stuff that IS medically evidant in many ways , multiple sclerosis ect

==but at 5/7 , 5'5 " , 115 lbs , = I'm back UP walking an average of several

hours a day , and able to carry 5-10 pounds a few mins , taking more and more

care of both the house , gardens and rebecca == in good overall health ,

greatful for medications that allow ME this much , but keep that pain bearable

where I DON " T want to snarl at anyone at all = LOL = and most of all = well

aware I CAN go have those next two surgery's the nsgs feel would help ==but I " M

doing ok thanks , I'll wait UNTIL that dire I can tell point again = LOL .

Yep -even doing a bit of scottish dance on my toes now and then ( and wobbling

to that chair in 90 seconds LOOKING like the wiskey already passed my throat too

-= LOL . ) Better yet , I can sing again now too = I'll join that choir again

instead (G) knowing I can plop back onto the bench when needed =tehehe .

PS ::

nope :-( nothing I've found =fixes the eds /pots =ortho stuff that hits with

standing up = or stagger standing in lines ect ,

just prepare to sit at ANY moment =and practice easing to the floor fast (

practice makes perfect = LOL ) . take and carry a light weight chair with you

YOU can sit in = to appts , lines , even grocery lines if need be ( or use thier

scooter ) - but DON " T fall and crack your head or tailbone please !

in Paradise