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Hello Minc:

I'm not a lawyer but it sounds like, from reading what you put in the

post that the Lawyer is looking at the legal portion of the fight. If

she is right, even though you know what you know, you still have to work

within the legal system. Perhaps you can find another lawyer and confirm

or disprove her perspective. It would be a shame to just disregard what

she is saying and then find out she is legally correct in how the court

will handle the case and be removed from the home in a way that

will ultimately prevent her from receiving the proper help.

In Christ's love and mine...Jen : )

On Sun, 20 May 2001 01:26:24 -0400 " Minc " <minc@...>

writes:

> I am having a bit of trouble with an attorney named Lyda Astrove who

> evidently has an autistic child but does not feel the Chang family

> deserves

> a DAN doctor to be in charge of 's recovery.

>

> Grace Chang wrote to me and said, " The world never looked crueler. "

>

> They have been feeding Chang cheese and macaroni and nothing

> else.

> The attorney seems to think a school program can heal autism.

>

> Here is a clip from the attorney's letter to the Chang family. The

> Chang

> family now knows should not eat certain foods and be given

> the

> chance to see whether or not, even under the institutionalization,

>

> can make advancements.

>

> Don't you feel everyone has the basic human right to the best

> medical

> assistance? In my mind, to institutionalize away from

> competent

> medical assistance, is just the same as locking a cancer victim away

> from

> medical treatment.

>

> >From: ASTROVE@...

> >healthylife@...

>

> >Subject: Re: Get treatment for

>

> >1. The trial is not about whether can be cured.

> >

> >2. The trial is about whether you are able to take care of her.

> >

> >3. Unless this person (Minc ) is an MD or a psychologist

> or a

> masters level special education teacher, the court will not receive

> anything

> she has to say as an

> expert opinion. I guarantee you that the judge will not give

> back

> based on one pseudo-scientific theory of what causes autism.

> >

> >4. Maybe a special diet and food allergy treatment could help

> .

> However, the people that I know that are doing the special diet and

> allergy

> testing are doing it IN CONJUNCTION with a highly structured

> special

> education program.

> >

> >5. Do you understand that it is my legal opinion that if you go to

> a trial

> you will almost certainly lose short term custody of and it

> could be

> the first step on the way to termination of your parental rights. I

> cannot

> say strongly enough that THE BEST WAY TO ULTIMATELY GET JESSICA BACK

> is to

> attempt to work out an arrangement where OUR expert is keeping data

> on

> over the course of several months, to determine whether or

> not the

> level of supervision she is getting is decreasing the behaviors to

> the point

> where she can learn.

> >

> >6. There are rules to be followed in a court both about what can

> be

> introduced as evidence and who can testify. I can't just submit

> pages of

> letters from people who think a particular treatment helped their

> child. If

> it is my legal judgment that particular items or people cannot be

> introduced

> as evidence, I will not embarass you or my professional reputation

> by trying

> to violate the evidence rules.

> >

> >7. I really have tried my best to help you over 2 years. Now,

> however, the

> department of child welfare services is in the drivers seat and your

> ability

> to make choices is being limited, and may be LOST forever if you

> don't try

> to save it in a way that is consistent with the law. For the sake

> of your

> >family, I urge you to focus on the long term goal of reuniting

> with

> your family, not on the elusive hope of a " cure. "

> >

> >Lyda Astrove

> >

> >

>

>

>

> =======================================================

>

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  • 3 years later...

Lynda, that is an awful long time to be in misery while you're waiting

to see the rheumatologist. Unfortunately, that is typical, since there

are not enough rheumatologists to go around.

I was in the same situation a couple of years ago waiting for my first

appointment with a rheumy. I looked him up on the Internet, found an

email address for him, and sent him a message asking for tips on how to

cope with the pain while waiting to see him. Two days later he called

me and said he was going to get me in to see him sooner. So I wound up

seeing him in one month instead of three. No doctor had ever called me

like that, out of the blue. He is such a compassionate person; I just

loved him. Unfortunately, he relocated to Atlanta recently.

I do sympathize with you; I know just how you feel. Sometimes

prednisone is prescribed to tide people over and can relive pain

tremendously. But it has so many bad side effects if used over a long

period.

It's too bad that people in great pain cannot get in sooner to see a

rheumy. Keep us informed. Sue

On Thursday, February 24, 2005, at 12:03 PM, hazelmyst66 wrote:

>

> My name is Lynda and I live in Dayton, OH. I was wondering if anyone

> has any suggestions on how to get some relief for my RA symptoms? I

> cannot get into the rheumatologist until April 26th (it is my first

> appointment) and my hands/wrists (especially) are killing me.

>

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I am SO sorry you are having to cope with this for so long till your

appt.

For me in the begginning, I had a hard time getting relief for my

hands, wrists. At that time I could not tolerate much, mostly I

relied far too heavily on Ibuprofen. Ibuprofen can be hard on some

peoples stomachs. I could NOT use ice back then, and water soaks

also were intolerable for me. (Now ice or water soaks work nicely)

I know on bad days I wear wrist splints or these glove type things

(by ace bandages etc at the store) - you might want to ask a doc,

whether you ask your GP or rheumy......it is possible they might give

you some relief. Some days warmth helps me with stiffness, some days

ice is better for numbing and reducing swelling. I think I had to

just kinda grow some kind of intuition to help me figure out which

days I want the glove things or splints and which days I want ice or

heat. I also use Aspercream, Ben Gay, Vicks Vapo rub, Tiger

Balm..........yeesh, LOL. And yes some days I just cry and get

emotional r just give in to pain, some days I get angry.......some

days I just sit and stare off with my hands (of feet) propped on

pillows and stare into outter space.......other days I grit my teeth

and try to push......(usually I regret that)

I did learn how to fold laundry using my elbows. LOL, sounds weird.

The good news is my rheumy was able to help me massively. For me,

it was simple enough, every person is going to need different meds,

different ideas etc. I take methotrexate, Ibuprofen and Folic acid,

and am lucky enough my MTX is oral and the Ibuprofen does not bother

me either.

Hang in there.

--- In , " hazelmyst66 " <hazelmyst66@y...>

wrote:

>

>

> Hello everyone,

> My name is Lynda and I live in Dayton, OH. I was wondering if

anyone

> has any suggestions on how to get some relief for my RA symptoms?

I

> cannot get into the rheumatologist until April 26th (it is my first

> appointment) and my hands/wrists (especially) are killing me. It's

> hard to type, hard to do anything, but I knew I could come here to

> you all. My doctor prescribed Ultraset for me this week and I've

> been using a rub that's similar to Ben-Gay. I'm so depressed and

> worried. I just got married (for the second time) in September and

> my new husband is so sweet, tries to do all he can, but gets upset

> because I cry. I looked up some RA stuff online and showed him

some

> of the things that go along with it. Fortunately, it mentioned

> crying. I just don't want him to think I hate being married. I'm

so

> thankful for you all. I try to talk to my sister and she tells me

> to " dry up " and to be thankful I'm alive. Well, I've gotten way

off

> track of my question, sorry. Any suggestions would be greatly

> appreciated! Thanks!

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Hey Lynda, welcome to the group, and also congratulations on your

marriage! I'm sorry to hear about your dx, I know it's tough on

you. It's hard to take it all in. I'm glad you found the group, you

will find out so much info here, and find wonderful support, and

friends. When I first was dx, I didn't know what to do, or what to

expect. I found this group, and it has been my life line.

With the crying, it's natural. A lot of people with RA, and other

chronic diseases have depression. You might need to go on a anti-

depressant of some kind to help with that. I would see the doctor,

and see if he can't help you, until you can get into the rheumy.

Sometimes, a family doctor will put you on Prednisone, or a DMARD

until you can get to the rheumy. Also, he can help you with your

depression, you need to talk with him.

It is hard for family to understand what were going through. I would

get some information, and give it to her. Or, maybe she can go with

you on your rheumy visit. Maybe, with the rheumy explaining might

help her to understand it better. I still have problems with my

family, so I have just stopped trying. I have the support I need

right here, and I'm so thankful for everyone here.

So, just know were all here for you. If you would like to email me

anytime, please feel free.

Big hug,

Tawny

--- In , " hazelmyst66 " <hazelmyst66@y...>

wrote:

>

>

> Hello everyone,

> My name is Lynda and I live in Dayton, OH. I was wondering if

anyone

> has any suggestions on how to get some relief for my RA symptoms?

I

> cannot get into the rheumatologist until April 26th (it is my first

> appointment) and my hands/wrists (especially) are killing me. It's

> hard to type, hard to do anything, but I knew I could come here to

> you all. My doctor prescribed Ultraset for me this week and I've

> been using a rub that's similar to Ben-Gay. I'm so depressed and

> worried. I just got married (for the second time) in September and

> my new husband is so sweet, tries to do all he can, but gets upset

> because I cry. I looked up some RA stuff online and showed him

some

> of the things that go along with it. Fortunately, it mentioned

> crying. I just don't want him to think I hate being married. I'm

so

> thankful for you all. I try to talk to my sister and she tells me

> to " dry up " and to be thankful I'm alive. Well, I've gotten way

off

> track of my question, sorry. Any suggestions would be greatly

> appreciated! Thanks!

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Lynda, I forgot to mention that I used Aleve while waiting to see the

rheumy. It gave me a bleeding ulcer. So be careful with whatever you

take. Sue

On Thursday, February 24, 2005, at 03:15 PM, Enxing wrote:

>

> Hi, Lynda. I know how you feel. Before I could get in

> to see my Rheumy I was using extra strength aleve in

> the mornings

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Lynda, that is an awfully long time to have to waite. Would you

consider going to Columbus to see a rheumatologist. The Columbus

Arthritis Center has a great group of rheumatologist in it. I see

one there as well. They have come highly recommened by my

orthopedist and I also recommend them. Email me if you want more

info....Marina in Ohio

--- In , " hazelmyst66 " <hazelmyst66@y...>

wrote:

>

>

> Hello everyone,

> My name is Lynda and I live in Dayton, OH. I was wondering if

anyone

> has any suggestions on how to get some relief for my RA symptoms?

I

> cannot get into the rheumatologist until April 26th (it is my

first

> appointment) and my hands/wrists (especially) are killing me.

It's

> hard to type, hard to do anything, but I knew I could come here to

> you all. My doctor prescribed Ultraset for me this week and I've

> been using a rub that's similar to Ben-Gay. I'm so depressed and

> worried. I just got married (for the second time) in September

and

> my new husband is so sweet, tries to do all he can, but gets upset

> because I cry. I looked up some RA stuff online and showed him

some

> of the things that go along with it. Fortunately, it mentioned

> crying. I just don't want him to think I hate being married. I'm

so

> thankful for you all. I try to talk to my sister and she tells me

> to " dry up " and to be thankful I'm alive. Well, I've gotten way

off

> track of my question, sorry. Any suggestions would be greatly

> appreciated! Thanks!

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Hi Lynda,

I think Sue's idea is worth a try - nothing to lose after all. I live in

France and my rheumatologist has a 13-month waiting list, but every time I have

a problem I e-mail him and he e-mails me back by return with an appointment

within a week. He's a real sweetheart.

Let us all know how you get on.

n

[ ] any suggestions?

Hello everyone,

My name is Lynda and I live in Dayton, OH. I was wondering if anyone

has any suggestions on how to get some relief for my RA symptoms? I

cannot get into the rheumatologist until April 26th (it is my first

appointment) and my hands/wrists (especially) are killing me. It's

hard to type, hard to do anything, but I knew I could come here to

you all. My doctor prescribed Ultraset for me this week and I've

been using a rub that's similar to Ben-Gay. I'm so depressed and

worried. I just got married (for the second time) in September and

my new husband is so sweet, tries to do all he can, but gets upset

because I cry. I looked up some RA stuff online and showed him some

of the things that go along with it. Fortunately, it mentioned

crying. I just don't want him to think I hate being married. I'm so

thankful for you all. I try to talk to my sister and she tells me

to " dry up " and to be thankful I'm alive. Well, I've gotten way off

track of my question, sorry. Any suggestions would be greatly

appreciated! Thanks!

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--- In , " hazelmyst66 " <hazelmyst66@y...>

wrote:

> Hi Lynda,

I'm Tracie and I was diagnosed with RA last November. I waited

three months for that appointment in total misery. I finally have

learned some tricks of the trade that help me trememdously. First

thing in the morning to help get going and ease that pain, I get

into a nice hot bath and soak my hands and feet especially. (Since

starting my meds I no longer need to do this daily, just on bad

days). It really helps. Also, rest often and don't overdo it. Ask

for help. I know how hard it can be to just pick up a pan or clip

your nails or the simplest things, but ask for help. Don't overbook

yourself with errands or appointments, one or two stops at a time is

all I can handle. Otherwise, I end up in tears and just miserable.

Try to have a day " off " in between these appointment and errand days

just so you can rest when you want to. I finally gave up my job in

November as I could no longer do it. Good luck and I know what you

mean about the tears, but that will ease as you start to feel better

honest. It is hard for our husbands to watch us suffer. Take care

and email me if you need to talk to someone. I was lucky to find a

wonderful rheumy who is fantastic and takes great care of me. I am

not pain free yet, but definitely making progress which is more than

I could say last November!!! Hugs and Prayers - Tracie

>

> Hello everyone,

> My name is Lynda and I live in Dayton, OH. I was wondering if

anyone

> has any suggestions on how to get some relief for my RA symptoms?

I

> cannot get into the rheumatologist until April 26th (it is my

first

> appointment) and my hands/wrists (especially) are killing me.

It's

> hard to type, hard to do anything, but I knew I could come here to

> you all. My doctor prescribed Ultraset for me this week and I've

> been using a rub that's similar to Ben-Gay. I'm so depressed and

> worried. I just got married (for the second time) in September

and

> my new husband is so sweet, tries to do all he can, but gets upset

> because I cry. I looked up some RA stuff online and showed him

some

> of the things that go along with it. Fortunately, it mentioned

> crying. I just don't want him to think I hate being married. I'm

so

> thankful for you all. I try to talk to my sister and she tells me

> to " dry up " and to be thankful I'm alive. Well, I've gotten way

off

> track of my question, sorry. Any suggestions would be greatly

> appreciated! Thanks!

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  • 2 years later...

Cherie ~

Bless your heart, your body is really

dumping a load ! I am so sorry you are

having such a reaction.

Do you have a crock pot? If so, put some water

in there and turn it on. You can also put some

wash cloths in there and use them on your face for

wet heat and steam. When your kidneys are spilling

trash, it can make you itch like a son of a gun too.

Get an aveeno soothing oatmeal bath, the one for

extra sensitive skin, and bathe in it. Relax in it. Well,

that is, if you are not allergic to it ! !

I am sorry you are having such a reaction. Drink lots

and lots of water to push the toxins thru. Rest best you

can. Hugs DedeSee what's new at AOL.com and Make AOL Your Homepage.

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Cherie ~

I think you are having a reaction to fungal

issues. This is why the pearls help. I make

and drink kefir and that works wonders

for me. I drink it a couple times a day.

It is a probiotic, and it has vitamins and

it sooths the gut, and it gives me energy.

You definately have a full plate ! You are

in my prayers !

Hugs DedeSee what's new at AOL.com and Make AOL Your Homepage.

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Cherie ~

I hear it is good, but since it is processed, I am

not sure what all differences their are.

I know one of our girls drank the TJ kind til after

her surgery, then started making it herself.

Try it and see how you do. If ya like it, sometime

I can send you some. Right now, mine needs to

grow some, but it doesnt take long.

Hugs DedeSee what's new at AOL.com and Make AOL Your Homepage.

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Cherie,

I would say you have major fungal problems.

Perhaps a 10 day trial of Diflucan would start

you on your way to getting rid of it. Or another

solution, but this sounds like major fungus.

Lynda

At 11:28 AM 10/10/2007, you wrote:

>Hi Ladies,

>

>I was wondering if anyone has experienced major itching. When I take

>Acidophilus Pearls or any Probiotics my itching really decreases but my

>sinus's get plugged and I have a lot of pressure. My itching started

>when I was taking caprylic acid and I assumed it would stop when I

>stopped taking it. That was not the case. I did a little liver flush

>last night with mag. citrate and I got up this morning and my itching

>was UNCONTROLLABLE this morning until I took a Pearl. The Pearls

>really calmed it down. Help! Between my inflamed and plugged up nose

>and my itching I feel like I am in a vicious circle.

>

>Thanks

>Cherie

>

>

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Yep, I went overseas and got my diflucan, by mail. I think

will give you three 150 tablets.

I will try and find the location. But, my oncologist will prescribe

it for me. I see him once a year, in January.

Lynda

At 11:38 AM 10/10/2007, you wrote:

>Dr. Huang

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Dede,

Thanks! I will have to see if I'm allgeric, since I seem to react to

everything. I feel like a walking toxic fungal person! I am such a

busy person, I do not get much time to rest much. I have a long

commute everyday to work and I am a single mom with a daughter with

autisim who can be a handfull.....and ya know, there's always

something that needs to be done. Itching with a stuffed head has

made me more stressful while I try to get everything done. I pray

ALOT! My LOUD prayer this morning led me to my Pearls to calm down my

uncontrollable itching while I driving.....thank GOD I had them with

me in the car!

Cherie

>

> Cherie ~

> Bless your heart, your body is really

> dumping a load ! I am so sorry you are

> having such a reaction.

> Do you have a crock pot? If so, put some water

> in there and turn it on. You can also put some

> wash cloths in there and use them on your face for

> wet heat and steam. When your kidneys are spilling

> trash, it can make you itch like a son of a gun too.

> Get an aveeno soothing oatmeal bath, the one for

> extra sensitive skin, and bathe in it. Relax in it. Well,

> that is, if you are not allergic to it ! !

> I am sorry you are having such a reaction. Drink lots

> and lots of water to push the toxins thru. Rest best you

> can. Hugs Dede

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

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Dede,

I do not know how to make it, but I can buy it at Trader Joe's. Is

that Kefir just as good?

Thanks for your help!

Cherie

>

> Cherie ~

> I think you are having a reaction to fungal

> issues. This is why the pearls help. I make

> and drink kefir and that works wonders

> for me. I drink it a couple times a day.

> It is a probiotic, and it has vitamins and

> it sooths the gut, and it gives me energy.

> You definately have a full plate ! You are

> in my prayers !

> Hugs Dede

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

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Cherie, Thank God you can take the Pearls! . . . finally something that agrees with you! . . . I'd suggest taking them as frequently as you feel the need to do so . . . even if it's several times as often as the label recommends. It's apparent you have a major fungal problem going on. . . Once you begin getting it under control, you should be able to try other protocols. Hugs, Rogene

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I get japanese mint oil and put it on a cotton ball and put in a small jar, and

when I get stuffy, I breath it and it opens me up. I got the mint

oil at trader joes if I remember correctly.

it helps me alot........DedeSee what's new at AOL.com and Make AOL Your Homepage.

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Cherie ~

I am so sorry you are having a rough time.

I am too.....and it just sucks......I know

removing these toxic bags will be key

for both of us ! I dont have a date yet,

but hope to in the near future. Hang in

best you can ! Hugs DedeSee what's new at AOL.com and Make AOL Your Homepage.

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Hi Rogene

I have been amazed on how the Pearls help me itching. Your right, I

do have to take more than what is recommended. I woke up itching

this morning and had to take four of them to get this itching to calm

down. I do have a question though, when my itching calms down, the

pressure in my nose gets really, really bad. I am still putting

Lamisil in my nose too. I tried a decongested, but it did not do

anything but make me feel worse. Any suggestions? Or do you think

that this will start to subside once I have taken the Pearls for a

while?

Thanks for your help my dear!

Cherie

>

> Cherie,

>

> Thank God you can take the Pearls! . . . finally something that

agrees with you! . . . I'd suggest taking them as frequently as you

feel the need to do so . . . even if it's several times as often as

the label recommends.

>

> It's apparent you have a major fungal problem going on. . . Once

you begin getting it under control, you should be able to try other

protocols.

>

> Hugs,

>

> Rogene

>

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Yes, I think your body is trying to throw off the debris from killing

the fungus, so you get stuffed up.

Lynda

At 10:31 AM 10/11/2007, you wrote:

>Hi Rogene

>

>I have been amazed on how the Pearls help me itching. Your right, I

>do have to take more than what is recommended. I woke up itching

>this morning and had to take four of them to get this itching to calm

>down. I do have a question though, when my itching calms down, the

>pressure in my nose gets really, really bad. I am still putting

>Lamisil in my nose too. I tried a decongested, but it did not do

>anything but make me feel worse. Any suggestions? Or do you think

>that this will start to subside once I have taken the Pearls for a

>while?

>

>Thanks for your help my dear!

>Cherie

>

>

> >

> > Cherie,

> >

> > Thank God you can take the Pearls! . . . finally something that

>agrees with you! . . . I'd suggest taking them as frequently as you

>feel the need to do so . . . even if it's several times as often as

>the label recommends.

> >

> > It's apparent you have a major fungal problem going on. . . Once

>you begin getting it under control, you should be able to try other

>protocols.

> >

> > Hugs,

> >

> > Rogene

> >

>

>

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Cherie, I'm glad you're getting some relief . . . You might try a Vick's inhaler . .. or check with a pharmacist to see what he/she recommends. I'd try to avoid taking supplements or meds internally since you're reacting to everything except the Pearls. Can you tolerate plain yogurt, Kefir, or organic (homemade sauerkraut)? . They all contain live organisms that will help combat fungus. . . The Sauerkraut recipe is in the archives. It takes several days of fermenting to be ready to eat. . Rubin recommeds two tablespoons several times a day. Eat raw. I'm wondering if you are hypersensitive to silicone too? . . . Are you using any products that contain silicone dioxide or silica? You'll find it everywhere! Hugs, Rogene

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Rogene,

The sinus pressure I have comes from taking the Pearls but they take

my itching away. I'm in a catch 22. I read the box and there isn't

any silicone or anything with the word " cone " or " silica " in it. I

started drinking kefir yesterday, bought some at Trader Joe's. I

guess I will have to see if I get better or worse with this

pressure. I know with some things you get worse before you get

better.

Cherie

>

> Cherie,

>

> I'm glad you're getting some relief . . .

>

> You might try a Vick's inhaler . .. or check with a pharmacist to

see what he/she recommends. I'd try to avoid taking supplements or

meds internally since you're reacting to everything except the

Pearls.

>

> Can you tolerate plain yogurt, Kefir, or organic (homemade

sauerkraut)? . They all contain live organisms that will help combat

fungus. . . The Sauerkraut recipe is in the archives. It takes

several days of fermenting to be ready to eat. . Rubin recommeds two

tablespoons several times a day. Eat raw.

>

> I'm wondering if you are hypersensitive to silicone too? . . .

>

> Are you using any products that contain silicone dioxide or

silica? You'll find it everywhere!

>

> Hugs,

>

> Rogene

>

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Hi Dede,

I'm not stuffy or have congestion, my nose hurts and it feels like

tremenous pressure. It also feels like an ache, it throbs. My poor

body doesn't know what to do.

Cherie

>

> I get japanese mint oil and put it on a cotton ball and put in a

small jar,

> and

> when I get stuffy, I breath it and it opens me up. I got the mint

> oil at trader joes if I remember correctly.

> it helps me alot........Dede

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

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Dede,

You hang in there too my dear! Your right.....it sucks! But we must

stay hopeful and know we WILL get better. Your are in my prayers of a

sugery date soon! Mine is November 13th and it still seems far away

especially when you have to battle having new problems come up all the

time...which I'm sure that you can relate! The pain in my nose finally

started to subside....but now I'm starting to itch a bit. Well...at

least its not uncontrollable like yesterday. I'm am definetely getting

the test of my life.....I keep telling God that I am waiting for QUITE

the reward for staying in control and not letting my emotions get the

better of me during this. I use to just get very fed up and loose my

hope in things like this but I'm still hopeful. I'm grateful that I now

know my implants must go! Not knowing what was wrong with me for soooo

long was taking it's toll on me. I'm sure you know what I mean!

Hugs to you!

Cherie

>

> Cherie ~

> I am so sorry you are having a rough time.

> I am too.....and it just sucks......I know

> removing these toxic bags will be key

> for both of us ! I dont have a date yet,

> but hope to in the near future. Hang in

> best you can ! Hugs Dede

>

>

>

> ************************************** See what's new at

http://www.aol.com

>

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