Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 Hello to the group, My name is Charlie. Will I have been lurking for some time may be making an occasional post but no one knows who I am. First of all my multiple sclerosis story. In 1993 they found one brain lesion of which was not enough to say that multiple sclerosis. They washed up for three years and it did not change. They said that if it was multiple sclerosis that it would only be a nuisance in my life. They were wrong but it least they helped me not stop my life. I knew that I had it I went further in education. I am a chiropractor. As I was going through school from 95 through 2000 I noticed more symptoms that I knew what the cause was. I was however in severe denial and just thought that may be it was just me being too absorbed in what I was studying. I can specifically remember that day when my partner in a lab practical foundt he Babinski sign in my foot and ankle clonus. In 2000 they fd eight lesions are by brain and finally called it multiple sclerosis. Well in the last five years the progression has occurred at lightspeed. I kinda felt that what happened so I opened up my own private practice break after school.I also got married and divorced with the last five years. I have to close my business due to the fact that I could not see the volume of patients to support to support it. I will never forget my ex-wife telling me that when she left she wanted a husband who could take walks with her. I swam for exercise and she did not like this. I can blame multiple sclerosis for all the bad things that happen to me. It's hard not to do this. Will I still have some ability in my mind is not affected so I teach anatomy and physiology and nutrition at a massage therapy school in town. I have tried a lot of alternative therapies as well as the medical therapies. I would like to share them even though I do not think they have been answers to my MS. 2000 through 2002 copaxone with a brief trial of avonex. One round of IV steroids 2003 Rebif 2004 Copaxone one round of IV steroids Lipitor 2004 Naltrexone 2005 Cladribine five days of chemotherapeutic four times this year with IV steroids this is different and not talked about much. They did this at Rush University medical Center in Chicago at the multiple sclerosis clinic they have. I was admitted five days in the hospital each time. They were about to start me on Tysabri. They also do another chemo called Cytoxan and that is only three days in a hospital however the side effects of infertility is more likely. Being that I am only 32 and no kids I chose not to do this medication. for symptoms Baclofen Amantadine Wellbutrin 4 AP stll use Provigil still use Botox I will write more as I unfortunately get tired with this typing. Ideally use Dragon NaturallySpeaking hunt is not the best so forgive any fanatic errors. I guess that I don't have it trained well enough. I did not pay $900 I only paid $90. I got it at computer show back in 2002. I wonder if an upgrade version is better mine is version 6. Happy Thanksgiving to all Charlie PS I will write about my alternative therapies soon. I have done many and spent a lot of money. And traveled far. Next up for me is Lyme's disease testing. Everyone look at QribB testing at www.bowen.org thet are a not for profit co., but then again so are a lot of hospitals. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 Hi Charlie! I am a chiropractor, too, but I used Edgar Cayce's remedies to successfully treat my MS. I never did go the medical route: no drugs--just alternatives. For more information about natural treatments that are helping MSers, visit the Multiple Sclerosis Alternatives webring at http://i.webring.com/hub?ring=multiplescleros1 All the best, Dudley Delany http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 Dear , Whatever back problems you have, surgery should be a last resort. There is only one way to know whether chiropractic would help you and that is to try it. But make sure you get someone really good. It may indeed help your mobility, along with massage, exercise, and the other things you are doing. All the best, Dudley http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 23, 2005 Report Share Posted November 23, 2005 If you did not go the medical route how were you diagnosed with MS? --- DudleyDelany@... wrote: > > Hi Charlie! > > I am a chiropractor, too, but I used Edgar Cayce's remedies to > successfully treat my MS. I never did go the medical route: no > drugs--just alternatives. For more information about natural treatments > that are helping MSers, visit the Multiple Sclerosis Alternatives > webring at > > http://i.webring.com/hub?ring=multiplescleros1 > > All the best, > > Dudley Delany > > > http://profiles.yahoo.com/dudley_delany > > Never give up! Never give up! Never give up! Dr. Charlie Roessler 303 E. High St. A Sycamore, IL 60178 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2005 Report Share Posted November 25, 2005 Hi All, I am sort of new, I have been reading your interesting mail for a few months, now to tell you my story. I was diagnosed with M.S. in 1973, I have never had an MRI or spinal tap. I went to my Gp and told him that I had MS. My previous problems had been Optic Neuritis, lead boot feet and unstable hands. I think he thought so too. So what was I to do, we had plans to go on vacation, I was unable to eat or drink without spills. He sent me to see a neuro privately. Who tested my leg reflexes, hand coordination and walking a straight line. That was enough for him to Dx MS. If I wanted a second opinion I could have a spinal tap. I know what I've got, you know what I've got, that's good enough for me. He did not believe in the spinal tap, it was an intrusive test, that can cause damage. Next week I returned to my Gp to be told " There is no cure for MS, so don't call me I'll call you when there is a cure " . In the mean time here is a list of Vitamins that will help you. So that started my quest with Vitamins and Alternatives, I got MacDougall's booklet, that got me started on diet .. In '81 we went to live in Canada, again I was Dxed with MS, again without an MRI or spinal tap. My previous problems from '73 did not show. I worked on for another 7 years, the first Canadian problem that I solved was the leg spasms, I found vitamin B6 worked and still does. A regular visit to a Chiropractor certainly kept me going because my job included a lot of walking. I lived drug free for 20 years, now living back in the U.K. I was talked into a course of IV steroids, something new with great results for M.S. Two days after I was rushed to hospital with Septicaemia, I lost the use of my bladder and ended up in a wheel chair. All the neuro said was, well it doesn't suit every one, as you can guess I don't have a neuro any more. Now I am the one who has to live with the mistake I made, if I make a mistake with herbs or vitamins I stop taking them and no damage done. We all have are own ideas of looking after ourselves, this is mine. . York U.K. > Dudley, > Have you had an MRI or spinal tap? With all due respect,even though > you're a chiropractor, how can you know for sure it's MS you have with so > many other things that can mimic it? > Just curious > Desinie > wrote: > If you did not go the medical route how were you diagnosed with MS? > --- DudleyDelany@... wrote: > >> >> Hi Charlie! >> >> I am a chiropractor, too, but I used Edgar Cayce's remedies to >> successfully treat my MS. I never did go the medical route: no >> drugs--just alternatives. For more information about natural treatments >> that are helping MSers, visit the Multiple Sclerosis Alternatives >> webring at >> >> http://i.webring.com/hub?ring=multiplescleros1 >> >> All the best, >> >> Dudley Delany >> >> >> http://profiles.yahoo.com/dudley_delany Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2005 Report Share Posted November 25, 2005 Hi , That is awful what happend to you, I am so sorry. Steroids are used so much that I don't think doctors remember to talk about the possible side effects. I learned by watching things with my horses. They use steroids in horses alot, and I have seen some really bad side effects and the owners of the horses were devastated. When they wanted to put me on them I just threw away the prescription and walked out. Are you working on regaining some of your health back?? It might take awhile but I am sure you can do it. -- Fw: Sort of New Hi All, I am sort of new, I have been reading your interesting mail for a few months, now to tell you my story. I was diagnosed with M.S. in 1973, I have never had an MRI or spinal tap. I went to my Gp and told him that I had MS. My previous problems had been Optic Neuritis, lead boot feet and unstable hands. I think he thought so too. So what was I to do, we had plans to go on vacation, I was unable to eat or drink without spills. He sent me to see a neuro privately. Who tested my leg reflexes, hand coordination and walking a straight line. That was enough for him to Dx MS. If I wanted a second opinion I could have a spinal tap. I know what I've got, you know what I've got, that's good enough for me. He did not believe in the spinal tap, it was an intrusive test, that can cause damage. Next week I returned to my Gp to be told " There is no cure for MS, so don't call me I'll call you when there is a cure " . In the mean time here is a list of Vitamins that will help you. So that started my quest with Vitamins and Alternatives, I got MacDougall's booklet, that got me started on diet ... In '81 we went to live in Canada, again I was Dxed with MS, again without an MRI or spinal tap. My previous problems from '73 did not show. I worked on for another 7 years, the first Canadian problem that I solved was the leg spasms, I found vitamin B6 worked and still does. A regular visit to a Chiropractor certainly kept me going because my job included a lot of walking. I lived drug free for 20 years, now living back in the U.K. I was talked into a course of IV steroids, something new with great results for M.S. Two days after I was rushed to hospital with Septicaemia, I lost the use of my bladder and ended up in a wheel chair. All the neuro said was, well it doesn't suit every one, as you can guess I don't have a neuro any more. Now I am the one who has to live with the mistake I made, if I make a mistake with herbs or vitamins I stop taking them and no damage done. We all have are own ideas of looking after ourselves, this is mine. . York U.K. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 25, 2005 Report Share Posted November 25, 2005 Hi , My story is eerily similar to yours but only up until seeing the neurologist because of the optic neuritis and MS like symptoms. I refused to accept the diagnosis and thanks to my dad's determination I didn't have the spinal tap either. Instead we started searching for answers rather than following the list of suggestions which included preparing myself for a life in a wheelchair. This all happened in late seventies with 2 toddlers and a baby of only 3 months old. It took me 10 years to figure out, all the while getting weaker, thinner and more miserable. I ended up with the conclusion that it had to be mercury poisoning. After the procedure (in 1988) to have all amalgam in my teeth removed and replaced , my health started to pick up almost immediately. My eye sight returned in blind eye. My overall health improved but the mercury poisoning of many years had left me with enough damage that I need to be constantly aware of eating the right foods, need to be aware of taking extra care to keep immune system as strong as possible. My immune system was shot as I called it due to long term poisoning. Multiple allergies, fibro, difficulty to keep on weight, severe mood swings, brain fog, being fatigued so severe that it would make me cry, extremely low on energy... all these and many more I have forgotten about, are things of the past since I self diagnosed with mercury poisoning and took the action that saved my life. I had to do it myself as my doctors and neurologists looked at me with a look on their face which indicated they thought I was a poor deluded woman with the ideas about mercury poisoning. In 2001, I was working as a volunteer on the local ambulance and as part of this work I was required to have 3 Hep B vaccinations. I had no objections, how ignorant I was. After the third vaccination my blood test came back with no antibodies, a puzzling thing for which no explanation was given but was told not to worry. Have a fourth one and that would 'fix things'. I had however noticed subtle neurological problems... leg giving way.. tremors in hand plus some of the probs I had experienced before as in fatigue, insomnia...all slight but it dawned on me that they had slowly grown worse after each of the 3 vacs.... still nothing like 20 years earlier and I thought more along the lines of probes due to ageing. It was only after NE Hep B blood test that I asked to know what was in the vacs. Thimerosal... I kindly declined the offer of 4th vaccination. Although my action in the late eighties came about because of self diagnosis, to have a recurrence of symptoms of MS, however slight, due to Thimerosal - a derivative of mercury - is enough for me to say that I was spot on with saying it was mercury poisoning. I guess what I am saying is: in spite of receiving a diagnosis by one neurologist, or perhaps 2 or even 3... still, keep looking for more information. It is your health, your life you are talking about. Learn from whatever you can get your hands on, read and read, and dare to take responsibility. Doctors know an awful lot, but there is still an awful lot more they don't know about. Cheers Hannah ~ Australia At 04:29 AM 26/11/2005, you wrote: >Hi All, > >I am sort of new, I have been reading your interesting mail for a few >months, >now to tell you my story. >I was diagnosed with M.S. in 1973, I have never had an MRI or spinal tap. I >went to my Gp and told him that I had MS. My previous problems had been >Optic Neuritis, lead boot feet and unstable hands. I think he thought so >too. So >what was I to do, we had plans to go on vacation, I was unable to eat or >drink without spills. He sent me to see a neuro privately. Who tested my >leg reflexes, hand coordination and walking a straight line. >That was enough for him to Dx MS. If I wanted a second opinion I could have >a spinal tap. I know what I've got, you know what I've got, that's good >enough for me. He did not believe in the spinal tap, it was an intrusive >test, that >can cause damage. >Next week I returned to my Gp to be told " There is no cure for MS, so don't >call me I'll call you when there is a cure " . In the mean time here is a list >of Vitamins that will help you. So that started my quest with Vitamins and >Alternatives, I got MacDougall's booklet, that got me started on diet >. >In '81 we went to live in Canada, again I was Dxed with MS, again >without an MRI or spinal tap. My previous problems from '73 did not show. I >worked on for another 7 years, the first Canadian problem that I solved was >the leg spasms, I found vitamin B6 worked and still does. A regular visit to >a Chiropractor certainly kept me going because my job included a lot of >walking. >I lived drug free for 20 years, now living back in the U.K. I was talked >into a course of IV steroids, something new with great results for M.S. >Two days after I was rushed to hospital with Septicaemia, I lost the use of >my bladder and ended up in a wheel chair. All the neuro said was, well it >doesn't suit every one, as you can guess I don't have a neuro any more. Now >I am the one who has to live with the mistake I made, if I make a mistake >with herbs or vitamins I stop taking them and no damage done. >We all have are own ideas of looking after ourselves, this is mine. > >. York U.K. Quote Link to comment Share on other sites More sharing options...
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