Guest guest Posted May 19, 2009 Report Share Posted May 19, 2009 We saw Dr. Woodward yesterday,she wants to " collect more data " so she turned her valve up from 6 to 8. She said I can give Maddy diamox whenever I feel she needs it as well as pain meds. She hasn't done any better since the setting change if anything she is worse. She screamed in pain last night for about 30 minutes. She ate a few bites of food then slept 12 hours. She didn't want to go to school but I sent her on pain meds in hopes she will be ok. I placed a call to the clinic. I don't know if Maddy can tolerate this setting change for 2 more weeks,but we are praying she can. I just don't have any hope it will work. I will keep you all posted. Quote Link to comment Share on other sites More sharing options...
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