Re: New member with questions re food and drink with Hashi's...

[Guest guest]

Hi ,

Thank you for your kind welcome, I appreciate it:-) Yes, the nodules are benign

thus far but the high degree of calcification apparently has my endo worried and

so hence the q 6 mos ultrasounds and the (supposed to be) equally frequent

biopsies so to keep on top of things.

I forgot to mention as it's just so normal for me now that I don't even think

about it anymore but I am aware of the gluten/thyroid connection, soy too (btw,

there's a suspected glaucoma connection as well and I have that too which has

also diminished some with treatment which is another good thing:-). Anyhoo, I

had food testing done back in 2004 to see if anything I was regularly consuming

might be exacerbating/contributing to my FMS/CFS symptoms and was found to be

intolerant of just about everything I ate on a regular basis, organic or

otherwise, so, I've been completely gluten/soy/dairy-free and several foodstuffs

as well, for almost seven years now. I also have systemic candida so avoid all

simple carbs and most fruits and probably should leave out complex carbs as

well, but, I haven't tried that yet (been pondering a paleolithic diet of late

but haven't tried that either yet LOL:-)

Never was much of a drinker so probaby have maybe three alcoholic drinks in

total in an entire year and those'd be maybe a 1/4 of a glass of white wine at

most although I suppose I shouldn't have those either.

I really do miss tea though having drank it for most of my life and so hence my

query re the fluoride in white and green to see if maybe just one cup a day

would be ok?

Am aware of the time restrictions re calcium and such after taking the thyroid

hormones as that info accompanied the packaging when I was first prescribed them

but thank you very much for the reiteration, it never hurts to be reminded of

important things:-)

Appreciate too the thumbs up re my steamed brassica veggies as I really enjoy

'em:-)

Thanks too for the tip re the files and links sections and will check them out

forthwith!

Many blessings be to you and yours Sue and take care now, eh?!

Peace,

Mare

S. Ontario, Canada

[Guest guest]

Ah OK - you are ahead of the curve then, Mare in your thyroid diet knowledge.

I personally don't worry about tea or coffee in relation to my thyroid - except

I know that too much caffeine will start messing with my metabolism, not to

mention harming my gut. I am actually now starting to tolerate dairy again after

going cold turkey on caffeine for only one week (and being gluten-free for

months). I was shocked at how much it was affecting my stomach (even tea). Now

I've started drinking a little again but really watch I don't overdo it, and

will usually choose natural decaf first. And keep a steady supply of rooibos on

hand when I want something hot.

Another thing to consider with thyroid is iodine. Something interesting happened

to me the other night. Sea salt is usually my only cooking/ dining salt but I

have wondered if my body is missing iodine.. or is it better off without it? One

of the controversial areas with thyroid. I made a big bowl of popcorn and put

lots of iodized salt on it when I watched a movie.. I know, not the healthiest

dinner but at least there was no butter! That night I felt revved up and started

having a panicky feeling when trying to sleep, and it was late too. Some

palpitations, adrenaline seemed to be uncomfortably high. Not sure if it was

really the iodine, but something else to consider. Iodine has both helped and

harmed folks here.

>

> Hi ,

>

> Thank you for your kind welcome, I appreciate it:-) Yes, the nodules are

benign thus far but the high degree of calcification apparently has my endo

worried and so hence the q 6 mos ultrasounds and the (supposed to be) equally

frequent biopsies so to keep on top of things.

>

> I forgot to mention as it's just so normal for me now that I don't even think

about it anymore but I am aware of the gluten/thyroid connection, soy too (btw,

there's a suspected glaucoma connection as well and I have that too which has

also diminished some with treatment which is another good thing:-). Anyhoo, I

had food testing done back in 2004 to see if anything I was regularly consuming

might be exacerbating/contributing to my FMS/CFS symptoms and was found to be

intolerant of just about everything I ate on a regular basis, organic or

otherwise, so, I've been completely gluten/soy/dairy-free and several foodstuffs

as well, for almost seven years now. I also have systemic candida so avoid all

simple carbs and most fruits and probably should leave out complex carbs as

well, but, I haven't tried that yet (been pondering a paleolithic diet of late

but haven't tried that either yet LOL:-)

>

> Never was much of a drinker so probaby have maybe three alcoholic drinks in

total in an entire year and those'd be maybe a 1/4 of a glass of white wine at

most although I suppose I shouldn't have those either.

>

> I really do miss tea though having drank it for most of my life and so hence

my query re the fluoride in white and green to see if maybe just one cup a day

would be ok?

>

> Am aware of the time restrictions re calcium and such after taking the thyroid

hormones as that info accompanied the packaging when I was first prescribed them

but thank you very much for the reiteration, it never hurts to be reminded of

important things:-)

>

> Appreciate too the thumbs up re my steamed brassica veggies as I really enjoy

'em:-)

>

> Thanks too for the tip re the files and links sections and will check them out

forthwith!

>

> Many blessings be to you and yours Sue and take care now, eh?!

>

> Peace,

> Mare

> S. Ontario, Canada

>

[Guest guest]

> I personally don't worry about tea or coffee in relation to my thyroid -

except I know that too much caffeine will start messing with my metabolism, not

to mention harming my gut. <

I hear ya Sue. For several years, even just one cup of tea in the morning was

enough to keep me awake all night long, so, I gave it up the 3-4 years and only

just started drinking a cup a day again as I was feeling better and I've

deprived myself of SO much for so many years now that I'd hoped just one thing I

used to really enjoy might be ok to let back in, but, maybe that's why my

stomach's been a little sore lately too, so, maybe I can't have it aferall:-(

And then there's the fluride issue which I can't seem to get an answer for

anywhere yet. I've tried rooibos, several flavours and kinds over the years,

but, I seem to always get a headache whenever I drink it (I seem to react to

most things unfortunately). I haven't found too many herbal teas that don't have

something in 'em that I can't have according to that blood testing, so, I guess

it's back to plain ol' hot water again!LOL:-).

Now I find out this morning after reordering my Cytomel (T3) that the dosage I

was on is no longer being made by the manufacturer so the endo has put me back

on JUST Synthroid (T4) again, depsite my telling him when I first went to him

March 2010 how AWFUL I felt on the Synthroid that I'd been on since 2008! I

only slowly began feeling better bit by bit AFTER he'd lowered my Synthroid last

year and added in the Cytomel and he said that was because apparently my liver

isn't converting the T4 to T3 like it's supposed to. And then the biopsy last

week made me think even more that the Cytomel (T3) was what I needed as it

showed the lesion that was there in March 2010 biopsy is GONE now after having

been on the Cytomel for a year, so, am I going to backslide again on just the

Synthroid 'cause my liver can't convert it to T3?

I'm SO danged frustrated!!!!!! It's been so many years living this half life I

live and it seems whenever I get even a little bit ahead, something always

happens to set me back again:-(

I don't get it - does anyone ever win with these endos? Do they ever really

listen to anyone?

[Guest guest]

Sorry to hear about your Cytomel, Mare. He should just have you split a pill if

your dosage is no longer being made - not take you off of something that has

been helping, sheesh. I'd demand that, or find a new doc - screen them when you

call around, ask if they will prescribe Cytomel before you go. No need to

suffer.

Have you tried decaf black tea? Easier on the tummy. There are plenty now made

without chemicals in the decaf process. Trader Joe's has a nice decaf English

Breakfast I drink with a little local honey.

~s

> > I personally don't worry about tea or coffee in relation to my thyroid -

except I know that too much caffeine will start messing with my metabolism, not

to mention harming my gut. <

>

> I hear ya Sue. For several years, even just one cup of tea in the morning was

enough to keep me awake all night long, so, I gave it up the 3-4 years and only

just started drinking a cup a day again as I was feeling better and I've

deprived myself of SO much for so many years now that I'd hoped just one thing I

used to really enjoy might be ok to let back in, but, maybe that's why my

stomach's been a little sore lately too, so, maybe I can't have it aferall:-(

And then there's the fluride issue which I can't seem to get an answer for

anywhere yet. I've tried rooibos, several flavours and kinds over the years,

but, I seem to always get a headache whenever I drink it (I seem to react to

most things unfortunately). I haven't found too many herbal teas that don't have

something in 'em that I can't have according to that blood testing, so, I guess

it's back to plain ol' hot water again!LOL:-).

>

> Now I find out this morning after reordering my Cytomel (T3) that the dosage I

was on is no longer being made by the manufacturer so the endo has put me back

on JUST Synthroid (T4) again, depsite my telling him when I first went to him

March 2010 how AWFUL I felt on the Synthroid that I'd been on since 2008! I

only slowly began feeling better bit by bit AFTER he'd lowered my Synthroid last

year and added in the Cytomel and he said that was because apparently my liver

isn't converting the T4 to T3 like it's supposed to. And then the biopsy last

week made me think even more that the Cytomel (T3) was what I needed as it

showed the lesion that was there in March 2010 biopsy is GONE now after having

been on the Cytomel for a year, so, am I going to backslide again on just the

Synthroid 'cause my liver can't convert it to T3?

>

> I'm SO danged frustrated!!!!!! It's been so many years living this half life

I live and it seems whenever I get even a little bit ahead, something always

happens to set me back again:-(

>

> I don't get it - does anyone ever win with these endos? Do they ever really

listen to anyone?

>

[Guest guest]

can you please verify which Strength of Cytomel that your ENDO says is no longer

being made??

cuz that does not sound true at all or we would be hearing about it .. ENDOS say

all sorts of things that are not true.

FWIW

your being so sensitive to Tea or other caffeine's?

this shows your Liver Detoxification Pathways are not working Great,, (This is

VERY common in HYPOTs and " Adrenal Fatiuge " patients for a number of reasons,,

the biggest reason being the liver is literally hypothyroid too :/

AND the 2nd big reason /and most important and EZ to help support = the Liver

has to drop all of its other 100 main jobs, in order to do its highest priority

job:

which is the Liver is the main Glucose maintaining organ/system in the body and

as such its main role is keeping the glucose level in the bloodstream= and hence

our BRAIN= at a very strict range . or the brain dies. (Brain requires a MUCH

stricter range of Glucose levels the the rest of our body)

so LIVER is an integral part of our STRESS System!

(we need and use up Glucose and storage form of sugars get converted (by the

liver) VERY quickly.

===

so overtasking the LIver re: stress/glucose storage/release ?

means our LIver has NO time or energy to make enough Detoxification Pathways

'enzymees " and conversions

NOR does it have enough time or Energy or Enzyme 'resources' to make our Thryoid

T3** !

-Carol

GOOGLE : Dr Lam + Adrenal Fatigue and read all of his web pages

his is the only site that contains pages that admit our HPA axis and Brain and

Central Nervous system are all involved in affecting the Adrenals

then for an EZ to read and follow book /cheap used on amazon or bookstore about

$15.)

the " father " of " Adrenal Fatiuge " = DR and his book

" Adrenal Fatigue (21st century syndrom or something liek that:)

NOTE: the 'lifestyle guidelines he talks about re: nutrition, meal times, sleep

and exercise rules adn " Reframing' are KEY

but remember as you read it that he has simplified the SCIENCE down to confusing

everyone into thinking that 'Adrneal Fatiuge " means LOW cortisol and nothing

else..

MOST folks have HIGH Cortisol or " Normal " On their serum and saliva tests and

still have " Adrenal Fatiuge " ..

(the confusion lies with DR WIlson's decision to simplify the science so

that sick pateints could understand how to help cure themselves.. not so they

would understand how the body really works via HPA axis and etc

> > > I personally don't worry about tea or coffee in relation to my thyroid -

except I know that too much caffeine will start messing with my metabolism, not

to mention harming my gut. <

> >

> > I hear ya Sue. For several years, even just one cup of tea in the morning

was enough to keep me awake all night long, so, I gave it up the 3-4 years and

only just started drinking a cup a day again as I was feeling better and I've

deprived myself of SO much for so many years now that I'd hoped just one thing I

used to really enjoy might be ok to let back in, but, maybe that's why my

stomach's been a little sore lately too, so, maybe I can't have it aferall:-(

And then there's the fluride issue which I can't seem to get an answer for

anywhere yet. I've tried rooibos, several flavours and kinds over the years,

but, I seem to always get a headache whenever I drink it (I seem to react to

most things unfortunately). I haven't found too many herbal teas that don't have

something in 'em that I can't have according to that blood testing, so, I guess

it's back to plain ol' hot water again!LOL:-).

> >

> > Now I find out this morning after reordering my Cytomel (T3) that the dosage

I was on is no longer being made by the manufacturer so the endo has put me back

on JUST Synthroid (T4) again, depsite my telling him when I first went to him

March 2010 how AWFUL I felt on the Synthroid that I'd been on since 2008! I

only slowly began feeling better bit by bit AFTER he'd lowered my Synthroid last

year and added in the Cytomel and he said that was because apparently my liver

isn't converting the T4 to T3 like it's supposed to. And then the biopsy last

week made me think even more that the Cytomel (T3) was what I needed as it

showed the lesion that was there in March 2010 biopsy is GONE now after having

been on the Cytomel for a year, so, am I going to backslide again on just the

Synthroid 'cause my liver can't convert it to T3?

> >

> > I'm SO danged frustrated!!!!!! It's been so many years living this half

life I live and it seems whenever I get even a little bit ahead, something

always happens to set me back again:-(

> >

> > I don't get it - does anyone ever win with these endos? Do they ever really

listen to anyone?

> >

>

[Guest guest]

Hi Mare,

Sorry to hear about the Cytomel mess. What dose were you taking that is no

longer being made?

According to Pfizer's website they are manufacturing and selling Cytomel in 5,

25, 50 and 117 mcg tablets. (Pfizer bought King Pharm last Oct).

Perhaps it is just where you order your meds they stopped selling Cytomel in

certain doses or are out, or their distributor is no longer carrying it.

Pharmacies contract with a distribution company and can only get the drugs that

the distribution company stocks.

You can fill the Cytomel Rx at another pharmacy? Or online. I just checked the

Canadian pharmacy where I buy NDT aka Erfa and they carry Cytomel in 5 and 25

mcg dosages and they also have a generic in 25 mcgs for much less.

My local pharmacy has all Cytomel doses mentioned above in stock. I higly doubt

Pfizer stopped manufacturing Cytomel in any dosage.

Let me know if I can help. I've had to get creative to get meds on a few

occasions. Also, you can purchase generic Cytomel online without Rx's.

Warm wishes

~Bj

> > I personally don't worry about tea or coffee in relation to my thyroid -

except I know that too much caffeine will start messing with my metabolism, not

to mention harming my gut. <

>

> I hear ya Sue. For several years, even just one cup of tea in the morning was

enough to keep me awake all night long, so, I gave it up the 3-4 years and only

just started drinking a cup a day again as I was feeling better and I've

deprived myself of SO much for so many years now that I'd hoped just one thing I

used to really enjoy might be ok to let back in, but, maybe that's why my

stomach's been a little sore lately too, so, maybe I can't have it aferall:-(

And then there's the fluride issue which I can't seem to get an answer for

anywhere yet. I've tried rooibos, several flavours and kinds over the years,

but, I seem to always get a headache whenever I drink it (I seem to react to

most things unfortunately). I haven't found too many herbal teas that don't have

something in 'em that I can't have according to that blood testing, so, I guess

it's back to plain ol' hot water again!LOL:-).

>

> Now I find out this morning after reordering my Cytomel (T3) that the dosage I

was on is no longer being made by the manufacturer so the endo has put me back

on JUST Synthroid (T4) again, depsite my telling him when I first went to him

March 2010 how AWFUL I felt on the Synthroid that I'd been on since 2008! I

only slowly began feeling better bit by bit AFTER he'd lowered my Synthroid last

year and added in the Cytomel and he said that was because apparently my liver

isn't converting the T4 to T3 like it's supposed to. And then the biopsy last

week made me think even more that the Cytomel (T3) was what I needed as it

showed the lesion that was there in March 2010 biopsy is GONE now after having

been on the Cytomel for a year, so, am I going to backslide again on just the

Synthroid 'cause my liver can't convert it to T3?

>

> I'm SO danged frustrated!!!!!! It's been so many years living this half life

I live and it seems whenever I get even a little bit ahead, something always

happens to set me back again:-(

>

> I don't get it - does anyone ever win with these endos? Do they ever really

listen to anyone?

>

[Guest guest]

Thank you to all who replied, you're very sweet and I am grateful to you:-)

The endo did NOT say it, and I'm very sorry to all if in my state of panic and

anxiety I failed to say that it was the PHARMACY who told me they could no

longer get my Cytomel dose after I'd tried to reoder my prescription last Wed:-(

They didn't call me so didn't bother to tell me this though until I went in to

pick up my prescription late Thursday afternoon when my hubby got off work and

could take me and by then it was too late to call the endo's office as they were

already closed for the day by that time. When I asked the pharmacy what was I

supposed to do as I only had a few pills left the girl just shrugged and said

she didn't know. I guess it's just a hormone so doesn't matter if a person just

stops it cold, eh?! (I say that with sarcasm). As I was getting into my

husband's car in tears I turned around and ran back inside to ask if they could

please fax the endo's office for me so that he'd see the fax first thing Friday

morning which they did (why they couldn't do this on their own is a mystery to

me as is also why they didn't call me when they first found out it was no longer

available but hey, why should a person expect fairness and/or what I would call

plain ol' customer service - again with the sarcasm, sorry folks - please bear

with me, it helps me downplay the anxiety) I wasn't able to phone the pharmacy

back on Friday (phones were out in my neighbourhood so they probably couldn't

call me either but when I called them this morning (Sat) to ask if the endo had

replied back yet to their fax, they said he had but that he'd said to just give

me Synthroid instead, so, it's like he's never heard a sinlge thing I've ever

said.

I am aware of my probable liver problems Carol but VERY much

appreciate all the info you've supplied with regards the liver as you explain it

very well so thank you! Despite being on milk thistle and other

liver-supporting things for many years and also asking several docs for help

with my liver, I've never been able to get any professional help. When the endo

first put me on Cytomel he acknowledged that some people don't covert T4 to T3

but he said it wasn't known why and when I asked him if he'd send me to a liver

specialist to see why mine won't do the conversion he said there was no need and

that it was 'nothing', just 'something that happens' (don't you just HATE being

treated so condescendingly - like any person with even a shred of intelligence

is supposed to blindly accept that it 'just happens'?)

Well, 'nothing' certainly FEELS like a HUGE something and this is precisely why

I self-treated for so long...'cause I haven't been able to get the help I need

where I live. I can't travel somewhere else as I don't drive nor do I have the

money for buses, hotels and restaurants even if I did find someone elsewhere who

would help. So what's a person supposed to do - just lay down and gradually

fade away I guess which is what's been slowly and progressively happening to me

these last 11 years (sigh:-(

Quitting moaning now, sorry folks. I know there's people a great deal worse off

than I and so I should just shut it and be grateful for what I've got.

I was on Cytomel 5 mcg Carol - tried taking 3 tabs a day spaced out through the

day but was unable to sleep at all so have been taking 3 tabs a day first thing

upon arising each morning. It wasn't perfect but it did help some and more than

anything else thus far - made me begin to slowly feel better n' I've felt in a

very very long time.

Thank you also Carol re the suggestions of Drs and Lam. I bought Dr

's book years ago when I suspected I had adrenal fatigue (this endo says I

don't) and have read Dr Lam's pages too (great site!) but when I've taken

's book and printed off Lam's info to medical professionals here they

wouldn't even look at 'em - which is typical of what I've experienced over the

years where I live in SW Ontario, Canada.

Suuzin, yes, I've tried decaf tea, both green and black. Did you know though

that decaf tea is not caffeine-free? The gov't still allows 11-15 mg of

caffeine in decaf tea. That may not seem like much to some folks, but, to those

who are caffeine-sensitive, it can still do harm.

I'm sorry folks, I have to go now, I'm still much too upset about this and need

to go meditate to try and calm down as I'm still too fired up about it, OK?

BLESS YOU ALL for listening and trying to help. Maybe when my mind is clearer

I'll be better able to handle things and be better equipped to wait for Monday

and the endo's decision and also whether or not I can afford to pay for the

compounded T3 should he give that the ok.

Take care all,

Mare

[Guest guest]

BJ - you've already been a big help by telling me that Pfizer now owns King

Pharmaceuticals, thank you:-) I got hold of Pfizer Canada as soon as they

opened this am as I really cannot afford a compounded T3 and so would probably

not have been able to get it anyway and why should I if Pfizer still made it

anyway as that is what is covered under my hubby's drug plan?

Anyhoo, you were absolutely correct - Pfizer not only still make tht dose, they

had it in stock and said to just have my pharmacy call them and they would ship

it direct to them, bypassing the pharmacy's supplier. All the pharmacy said

when I called them immediately afterwards to tell them this was oh well,

sometimes there is a mix up in communication between the supplier and the

manufacturer - no apology for giving me a heart attack nor their callous

treatment of me nor taking any responsibility whatsoever for the part THEY may

have played in this whole unecessary scenario:-( I don't know why I am still

surprised when stuff like this happens - true customer service has largely been

dead for a very long time now (and they are supposed to be amongst the highest

rated pharmacies where I live! Go figure...)

Also, thank you for the info re generic Cytomel without a Rx - I doubt it'd be

possible for a Canadian living within Canada to obtain plus customs and I don't

get along so they'd pose a very big problem trying to get it here from outside

of Canada. Yes, some Canadian

pharmacies happily ship FROM Canada to the USA without a script but WITHIN

Canada TO a Canadian resident? I'm pretty certain that our laws say a script is

required for Canadian citizens, be it generic or name brand as it's a hormone

and all hormones here (except oddly, melatonin and vitamin D) require a script

insofar as I am aware. Of course I could be wrong, afterall, I'm only hooman and

my mind is kinda scrambled anyway due to Hashi's! LOL:-)

Peace,

Mare

S. Ontario, Canada

[Guest guest]

Mare,

I am glad the mess-up is working out for you. And, YES, customer service is NOT

what it used to be. I found out the hard way and some nice woman told me what to

do to get my med. I feel like the least I can do is pass it on to you and

others.

Finally, Summer is here! Hurrah!

Warm wishes,

~Bj

>

> BJ - you've already been a big help by telling me that Pfizer now owns King

Pharmaceuticals, thank you:-) I got hold of Pfizer Canada as soon as they

opened this am as I really cannot afford a compounded T3 and so would probably

not have been able to get it anyway and why should I if Pfizer still made it

anyway as that is what is covered under my hubby's drug plan?

>

> Anyhoo, you were absolutely correct - Pfizer not only still make tht dose,

they had it in stock and said to just have my pharmacy call them and they would

ship it direct to them, bypassing the pharmacy's supplier. All the pharmacy

said when I called them immediately afterwards to tell them this was oh well,

sometimes there is a mix up in communication between the supplier and the

manufacturer - no apology for giving me a heart attack nor their callous

treatment of me nor taking any responsibility whatsoever for the part THEY may

have played in this whole unecessary scenario:-( I don't know why I am still

surprised when stuff like this happens - true customer service has largely been

dead for a very long time now (and they are supposed to be amongst the highest

rated pharmacies where I live! Go figure...)

>

> Also, thank you for the info re generic Cytomel without a Rx - I doubt it'd be

possible for a Canadian living within Canada to obtain plus customs and I don't

get along so they'd pose a very big problem trying to get it here from outside

of Canada. Yes, some Canadian

> pharmacies happily ship FROM Canada to the USA without a script but WITHIN

Canada TO a Canadian resident? I'm pretty certain that our laws say a script is

required for Canadian citizens, be it generic or name brand as it's a hormone

and all hormones here (except oddly, melatonin and vitamin D) require a script

insofar as I am aware. Of course I could be wrong, afterall, I'm only hooman and

my mind is kinda scrambled anyway due to Hashi's! LOL:-)

>

> Peace,

> Mare

> S. Ontario, Canada

>