Re: Back To Maggie Fr Lin - Razadyne 2 Exelon

[Guest guest]

Dear Maggie,

Thanks so much for the information. Guess I failed to type several key words -

mom was stable for about 3 years on Razadyne. Worked very well - no significant

behavior problems or eating issues. But over the past months it clearly was not

working well anymore. Her dementia was progessing, and anxiety and mild

aggression set in. So the MD started Exelon - 3mg. twice a day was the start

dosage. Perked her up within first few days, but on 5th day she was somnolent,

and on 6th hyper-alert and overstimulated. Have decreased to 1.5 mg 2X/day.

Will see how that goes. I apologize for leaving out important info. Many thanks

again. It's helpful to learn that others have good success with Ex. I know the

dementia will only get worse, and this is a " stop-gaop " measure, but I would

like to help mom have as many good days as possible.

Peace, Lin

M Sumner wrote:

Please explain to me

Why your mom was taken off Razadyne if

you claim it was working.

My mom was on maximum dosage taking twice

a day, she was getting aggressive she had out

of control hunger she wanted to eat every

2 hours or more.

But according to what you are saying

your mother should not be on exelon

My mother only does good on the lowest

1.5 exelon, exelon is also suppose to

help with Parkinson.

Please read information and take your

mother off exelon if from the start it looked

like it was not good for her.

My mother had been on razadyne 3 years also

he raised her blood pressure and made her moody

My mother is also on high blood pressure

once a day and she is on high cholesterol

medication

From the start exelon calmed my mother

and made her more pleasant to be around

but Razadyne made her somewhat hostile

>

>

>

>

> maggie

________________________________________________________________________________\

____

Need Mail bonding?

Go to the Yahoo! Mail Q & A for great tips from Yahoo! Answers users.

http://answers.yahoo.com/dir/?link=list & sid=396546091

Welcome to LBDcaregivers.

[Guest guest]

Thank you for your e mail.

Wanted to mention that the hallucinations are

the worse part of dementia, my mother has

some very good days, but today, she was talking

and talking in the bathroom, claiming once or

twice that she could not use bathroom because

some people were in her bathroom, it just

breaks your heart, if not for hallucinations

my mom could live pretty semi normal life.

Hope your loved one is doing well

maggie

--- l pratt wrote:

> Dear Maggie,

>

> Thanks so much for the information. Guess I failed

> to type several key words - mom was stable for about

> 3 years on Razadyne. Worked very well - no

> significant behavior problems or eating issues. But

> over the past months it clearly was not working well

> anymore. Her dementia was progessing, and anxiety

> and mild aggression set in. So the MD started Exelon

> - 3mg. twice a day was the start dosage. Perked her

> up within first few days, but on 5th day she was

> somnolent, and on 6th hyper-alert and

> overstimulated. Have decreased to 1.5 mg 2X/day.

> Will see how that goes. I apologize for leaving out

> important info. Many thanks again. It's helpful to

> learn that others have good success with Ex. I know

> the dementia will only get worse, and this is a

> " stop-gaop " measure, but I would like to help mom

> have as many good days as possible.

>

> Peace, Lin

> M Sumner wrote:

> Please explain to me

> Why your mom was taken off Razadyne if

> you claim it was working.

>

> My mom was on maximum dosage taking twice

> a day, she was getting aggressive she had out

> of control hunger she wanted to eat every

> 2 hours or more.

>

> But according to what you are saying

> your mother should not be on exelon

>

> My mother only does good on the lowest

> 1.5 exelon, exelon is also suppose to

> help with Parkinson.

>

> Please read information and take your

> mother off exelon if from the start it looked

> like it was not good for her.

>

> My mother had been on razadyne 3 years also

> he raised her blood pressure and made her moody

>

> My mother is also on high blood pressure

> once a day and she is on high cholesterol

> medication

>

> From the start exelon calmed my mother

> and made her more pleasant to be around

> but Razadyne made her somewhat hostile

> >

> >

> >

>

> >

> > maggie

>

>

>

>

>

________________________________________________________________________________\

____

> Need Mail bonding?

> Go to the Yahoo! Mail Q & A for great tips from Yahoo!

> Answers users.

>

http://answers.yahoo.com/dir/?link=list & sid=396546091

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Dear Maggie,

Just getting to my end-of-last-week messages. Thanks very much for yours. The

hallucinations really can be an issue. Do they bother your mom? Those my mom has

(and so far not too frequently) don't seem to disturb her greatly - if whoever

is with her has the presence of mind to " handle " them. I'm glad to have heard

from you.

Peace,

Lin

M Sumner wrote:

Thank you for your e mail.

Wanted to mention that the hallucinations are

the worse part of dementia, my mother has

some very good days, but today, she was talking

and talking in the bathroom, claiming once or

twice that she could not use bathroom because

some people were in her bathroom, it just

breaks your heart, if not for hallucinations

my mom could live pretty semi normal life.

Hope your loved one is doing well

maggie

--- l pratt wrote:

> Dear Maggie,

>

> Thanks so much for the information. Guess I failed

> to type several key words - mom was stable for about

> 3 years on Razadyne. Worked very well - no

> significant behavior problems or eating issues. But

> over the past months it clearly was not working well

> anymore. Her dementia was progessing, and anxiety

> and mild aggression set in. So the MD started Exelon

> - 3mg. twice a day was the start dosage. Perked her

> up within first few days, but on 5th day she was

> somnolent, and on 6th hyper-alert and

> overstimulated. Have decreased to 1.5 mg 2X/day.

> Will see how that goes. I apologize for leaving out

> important info. Many thanks again. It's helpful to

> learn that others have good success with Ex. I know

> the dementia will only get worse, and this is a

> " stop-gaop " measure, but I would like to help mom

> have as many good days as possible.

>

> Peace, Lin

> M Sumner wrote:

> Please explain to me

> Why your mom was taken off Razadyne if

> you claim it was working.

>

> My mom was on maximum dosage taking twice

> a day, she was getting aggressive she had out

> of control hunger she wanted to eat every

> 2 hours or more.

>

> But according to what you are saying

> your mother should not be on exelon

>

> My mother only does good on the lowest

> 1.5 exelon, exelon is also suppose to

> help with Parkinson.

>

> Please read information and take your

> mother off exelon if from the start it looked

> like it was not good for her.

>

> My mother had been on razadyne 3 years also

> he raised her blood pressure and made her moody

>

> My mother is also on high blood pressure

> once a day and she is on high cholesterol

> medication

>

> From the start exelon calmed my mother

> and made her more pleasant to be around

> but Razadyne made her somewhat hostile

> >

> >

> >

>

> >

> > maggie

>

>

>

>

>

________________________________________________________________________________\

____

> Need Mail bonding?

> Go to the Yahoo! Mail Q & A for great tips from Yahoo!

> Answers users.

>

http://answers.yahoo.com/dir/?link=list & sid=396546091

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Hi Lyn,

Thank you for your response .

The only time i do see her upset is when

she claims she wants to use the bathroom

but she can' t because people are in there

making a mess, if i don t find an answer

quickly she will get aggitated.

I always tell her either, they left already,

or let's go together and see if we can

figure out what is going on. That so far

has done the trick, worried that one day

it might not work.

Her doctor claims, one day she will go into

accusing me of stealing something from her ,

that is the biggest hallucination his patients

caregivers complain to him about.

Hope everything helps, feel free to share

other things if you feel like doing so.

Take care

Maggie

--- l pratt wrote:

> Dear Maggie,

> Just getting to my end-of-last-week messages.

> Thanks very much for yours. The hallucinations

> really can be an issue. Do they bother your mom?

> Those my mom has (and so far not too frequently)

> don't seem to disturb her greatly - if whoever is

> with her has the presence of mind to " handle " them.

> I'm glad to have heard from you.

>

> Peace,

> Lin

>

> M Sumner wrote:

> Thank you for your e mail.

>

> Wanted to mention that the hallucinations are

> the worse part of dementia, my mother has

> some very good days, but today, she was talking

> and talking in the bathroom, claiming once or

> twice that she could not use bathroom because

> some people were in her bathroom, it just

> breaks your heart, if not for hallucinations

> my mom could live pretty semi normal life.

>

> Hope your loved one is doing well

>

> maggie

> --- l pratt wrote:

>

> > Dear Maggie,

> >

> > Thanks so much for the information. Guess I failed

> > to type several key words - mom was stable for

> about

> > 3 years on Razadyne. Worked very well - no

> > significant behavior problems or eating issues.

> But

> > over the past months it clearly was not working

> well

> > anymore. Her dementia was progessing, and anxiety

> > and mild aggression set in. So the MD started

> Exelon

> > - 3mg. twice a day was the start dosage. Perked

> her

> > up within first few days, but on 5th day she was

> > somnolent, and on 6th hyper-alert and

> > overstimulated. Have decreased to 1.5 mg 2X/day.

> > Will see how that goes. I apologize for leaving

> out

> > important info. Many thanks again. It's helpful to

> > learn that others have good success with Ex. I

> know

> > the dementia will only get worse, and this is a

> > " stop-gaop " measure, but I would like to help mom

> > have as many good days as possible.

> >

> > Peace, Lin

> > M Sumner wrote:

> > Please explain to me

> > Why your mom was taken off Razadyne if

> > you claim it was working.

> >

> > My mom was on maximum dosage taking twice

> > a day, she was getting aggressive she had out

> > of control hunger she wanted to eat every

> > 2 hours or more.

> >

> > But according to what you are saying

> > your mother should not be on exelon

> >

> > My mother only does good on the lowest

> > 1.5 exelon, exelon is also suppose to

> > help with Parkinson.

> >

> > Please read information and take your

> > mother off exelon if from the start it looked

> > like it was not good for her.

> >

> > My mother had been on razadyne 3 years also

> > he raised her blood pressure and made her moody

> >

> > My mother is also on high blood pressure

> > once a day and she is on high cholesterol

> > medication

> >

> > From the start exelon calmed my mother

> > and made her more pleasant to be around

> > but Razadyne made her somewhat hostile

> > >

> > >

> > >

> >

> > >

> > > maggie

> >

> >

> >

> >

> >

>

________________________________________________________________________________\

____

> > Need Mail bonding?

> > Go to the Yahoo! Mail Q & A for great tips from

> Yahoo!

> > Answers users.

> >

>

http://answers.yahoo.com/dir/?link=list & sid=396546091

> >

> >

> > Welcome to LBDcaregivers.

> >

> >

> >

[Guest guest]

maggie and lin,

my dad just a few monthsafter signing everything over to mine and his name then

went into i dont trust you, i hate you mode, it was awful. he accused me of

stealing him blind, for selling his house from underneaht him, in reality he

made me sell the house in tenn that his and my names were on, the longer i put

off selling it th uglier he got, so i gave in and we made 25k$ on it, but could

have made more if dad had let me negtioate but alas, so prepare yourselves,

unfortuantely the dr jekyll mr/mrs hyde routine does eventually comes, good

luck and hugs, sharon

---- M Sumner wrote:

Hi Lyn,

Thank you for your response .

The only time i do see her upset is when

she claims she wants to use the bathroom

but she can' t because people are in there

making a mess, if i don t find an answer

quickly she will get aggitated.

I always tell her either, they left already,

or let's go together and see if we can

figure out what is going on. That so far

has done the trick, worried that one day

it might not work.

Her doctor claims, one day she will go into

accusing me of stealing something from her ,

that is the biggest hallucination his patients

caregivers complain to him about.

Hope everything helps, feel free to share

other things if you feel like doing so.

Take care

Maggie

--- l pratt wrote:

> Dear Maggie,

> Just getting to my end-of-last-week messages.

> Thanks very much for yours. The hallucinations

> really can be an issue. Do they bother your mom?

> Those my mom has (and so far not too frequently)

> don't seem to disturb her greatly - if whoever is

> with her has the presence of mind to " handle " them.

> I'm glad to have heard from you.

>

> Peace,

> Lin

>

> M Sumner wrote:

> Thank you for your e mail.

>

> Wanted to mention that the hallucinations are

> the worse part of dementia, my mother has

> some very good days, but today, she was talking

> and talking in the bathroom, claiming once or

> twice that she could not use bathroom because

> some people were in her bathroom, it just

> breaks your heart, if not for hallucinations

> my mom could live pretty semi normal life.

>

> Hope your loved one is doing well

>

> maggie

> --- l pratt wrote:

>

> > Dear Maggie,

> >

> > Thanks so much for the information. Guess I failed

> > to type several key words - mom was stable for

> about

> > 3 years on Razadyne. Worked very well - no

> > significant behavior problems or eating issues.

> But

> > over the past months it clearly was not working

> well

> > anymore. Her dementia was progessing, and anxiety

> > and mild aggression set in. So the MD started

> Exelon

> > - 3mg. twice a day was the start dosage. Perked

> her

> > up within first few days, but on 5th day she was

> > somnolent, and on 6th hyper-alert and

> > overstimulated. Have decreased to 1.5 mg 2X/day.

> > Will see how that goes. I apologize for leaving

> out

> > important info. Many thanks again. It's helpful to

> > learn that others have good success with Ex. I

> know

> > the dementia will only get worse, and this is a

> > " stop-gaop " measure, but I would like to help mom

> > have as many good days as possible.

> >

> > Peace, Lin

> > M Sumner wrote:

> > Please explain to me

> > Why your mom was taken off Razadyne if

> > you claim it was working.

> >

> > My mom was on maximum dosage taking twice

> > a day, she was getting aggressive she had out

> > of control hunger she wanted to eat every

> > 2 hours or more.

> >

> > But according to what you are saying

> > your mother should not be on exelon

> >

> > My mother only does good on the lowest

> > 1.5 exelon, exelon is also suppose to

> > help with Parkinson.

> >

> > Please read information and take your

> > mother off exelon if from the start it looked

> > like it was not good for her.

> >

> > My mother had been on razadyne 3 years also

> > he raised her blood pressure and made her moody

> >

> > My mother is also on high blood pressure

> > once a day and she is on high cholesterol

> > medication

> >

> > From the start exelon calmed my mother

> > and made her more pleasant to be around

> > but Razadyne made her somewhat hostile

> > >

> > >

> > >

> >

> > >

> > > maggie

> >

> >

> >

> >

> >

>

________________________________________________________________________________\

____

> > Need Mail bonding?

> > Go to the Yahoo! Mail Q & A for great tips from

> Yahoo!

> > Answers users.

> >

>

http://answers.yahoo.com/dir/?link=list & sid=396546091

> >

> >

> > Welcome to LBDcaregivers.

> >

> >

> >

[Guest guest]

Hi LadySmiling,

That is horrible, that you had to endure

an accusation like that.

When i was young, and just learning

about dementia, i worked in a hospital

and i had to interview a patient that had

dementia to figure out her financial status

for this hospital i worked for. The best

she could explain to me what Alzheimer or

dementia felt like was her thoughts were dizzy

and she could not focus on anything.

Only good part, our relatives don' t really

know they are in this state of mind. My own

mother thinks her memory is fine, and maybe

mine is not. LOL

Thank you

Maggie

--- LadySmilingAtU2@... wrote:

> maggie and lin,

> my dad just a few monthsafter signing everything

> over to mine and his name then went into i dont

> trust you, i hate you mode, it was awful. he

> accused me of stealing him blind, for selling his

> house from underneaht him, in reality he made me

> sell the house in tenn that his and my names were

> on, the longer i put off selling it th uglier he

> got, so i gave in and we made 25k$ on it, but could

> have made more if dad had let me negtioate but alas,

> so prepare yourselves, unfortuantely the dr jekyll

> mr/mrs hyde routine does eventually comes, good

> luck and hugs, sharon

> ---- M Sumner wrote:

> Hi Lyn,

>

> Thank you for your response .

> The only time i do see her upset is when

> she claims she wants to use the bathroom

> but she can' t because people are in there

> making a mess, if i don t find an answer

> quickly she will get aggitated.

>

> I always tell her either, they left already,

> or let's go together and see if we can

> figure out what is going on. That so far

> has done the trick, worried that one day

> it might not work.

>

> Her doctor claims, one day she will go into

> accusing me of stealing something from her ,

> that is the biggest hallucination his patients

> caregivers complain to him about.

>

> Hope everything helps, feel free to share

> other things if you feel like doing so.

>

> Take care

> Maggie

>

>

>

>

>

>

> --- l pratt wrote:

>

> > Dear Maggie,

> > Just getting to my end-of-last-week messages.

> > Thanks very much for yours. The hallucinations

> > really can be an issue. Do they bother your mom?

> > Those my mom has (and so far not too frequently)

> > don't seem to disturb her greatly - if whoever is

> > with her has the presence of mind to " handle "

> them.

> > I'm glad to have heard from you.

> >

> > Peace,

> > Lin

> >

> > M Sumner wrote:

> > Thank you for your e mail.

> >

> > Wanted to mention that the hallucinations are

> > the worse part of dementia, my mother has

> > some very good days, but today, she was talking

> > and talking in the bathroom, claiming once or

> > twice that she could not use bathroom because

> > some people were in her bathroom, it just

> > breaks your heart, if not for hallucinations

> > my mom could live pretty semi normal life.

> >

> > Hope your loved one is doing well

> >

> > maggie

> > --- l pratt wrote:

> >

> > > Dear Maggie,

> > >

> > > Thanks so much for the information. Guess I

> failed

> > > to type several key words - mom was stable for

> > about

> > > 3 years on Razadyne. Worked very well - no

> > > significant behavior problems or eating issues.

> > But

> > > over the past months it clearly was not working

> > well

> > > anymore. Her dementia was progessing, and

> anxiety

> > > and mild aggression set in. So the MD started

> > Exelon

> > > - 3mg. twice a day was the start dosage. Perked

> > her

> > > up within first few days, but on 5th day she was

> > > somnolent, and on 6th hyper-alert and

> > > overstimulated. Have decreased to 1.5 mg 2X/day.

> > > Will see how that goes. I apologize for leaving

> > out

> > > important info. Many thanks again. It's helpful

> to

> > > learn that others have good success with Ex. I

> > know

> > > the dementia will only get worse, and this is a

> > > " stop-gaop " measure, but I would like to help

> mom

> > > have as many good days as possible.

> > >

> > > Peace, Lin

> > > M Sumner wrote:

> > > Please explain to me

> > > Why your mom was taken off Razadyne if

> > > you claim it was working.

> > >

> > > My mom was on maximum dosage taking twice

> > > a day, she was getting aggressive she had out

> > > of control hunger she wanted to eat every

> > > 2 hours or more.

> > >

> > > But according to what you are saying

> > > your mother should not be on exelon

> > >

> > > My mother only does good on the lowest

> > > 1.5 exelon, exelon is also suppose to

> > > help with Parkinson.

> > >

> > > Please read information and take your

> > > mother off exelon if from the start it looked

> > > like it was not good for her.

> > >

> > > My mother had been on razadyne 3 years also

> > > he raised her blood pressure and made her moody

> > >

> > > My mother is also on high blood pressure

> > > once a day and she is on high cholesterol

> > > medication

> > >

> > > From the start exelon calmed my mother

> > > and made her more pleasant to be around

> > > but Razadyne made her somewhat hostile

> > > >

> > > >

> > > >

> > >

> > > >

> > > > maggie

> > >

> > >

> > >

> > >

> > >

> >

>

________________________________________________________________________________\

____

> > > Need Mail bonding?

> > > Go to the Yahoo! Mail Q & A for great tips from

> > Yahoo!

> > > Answers users.

> > >

> >

>

http://answers.yahoo.com/dir/?link=list & sid=396546091

> > >

> > >

> > > Welcome to LBDcaregivers.

> > >

> > >

> > >

[Guest guest]

maggie,

anything to do with dementia is hard on the lo (loved one ( and the cg

(caregiver) i am glad you had a little bit of exposure i did when i was 15 and

visited my great aunt, my great uncle had a nervous breakdown as they called

dementia back in the mid 70's.

the worst about dad was that he was well enough some of the time to realize that

somethng was very wrong, he couldnt remember lewy body disease and anything i

let him read, i edited out the prognosis of death as i didtn want dad to give

up, but as it was dad died 16 months after diagnosis. he called lbd the little

man in his head and he sometims knew when he did bad things to upset me he would

look at me and say i hate that little man in my head. and then he would start

singing you are my sunshine, so looking back, it doesnt seem as bad when i

remember you are my sunshine. tke care and hugs, sharon a=m

---- M Sumner wrote:

Hi LadySmiling,

That is horrible, that you had to endure

an accusation like that.

When i was young, and just learning

about dementia, i worked in a hospital

and i had to interview a patient that had

dementia to figure out her financial status

for this hospital i worked for. The best

she could explain to me what Alzheimer or

dementia felt like was her thoughts were dizzy

and she could not focus on anything.

Only good part, our relatives don' t really

know they are in this state of mind. My own

mother thinks her memory is fine, and maybe

mine is not. LOL

Thank you

Maggie

--- LadySmilingAtU2@... wrote:

> maggie and lin,

> my dad just a few monthsafter signing everything

> over to mine and his name then went into i dont

> trust you, i hate you mode, it was awful. he

> accused me of stealing him blind, for selling his

> house from underneaht him, in reality he made me

> sell the house in tenn that his and my names were

> on, the longer i put off selling it th uglier he

> got, so i gave in and we made 25k$ on it, but could

> have made more if dad had let me negtioate but alas,

> so prepare yourselves, unfortuantely the dr jekyll

> mr/mrs hyde routine does eventually comes, good

> luck and hugs, sharon

> ---- M Sumner wrote:

> Hi Lyn,

>

> Thank you for your response .

> The only time i do see her upset is when

> she claims she wants to use the bathroom

> but she can' t because people are in there

> making a mess, if i don t find an answer

> quickly she will get aggitated.

>

> I always tell her either, they left already,

> or let's go together and see if we can

> figure out what is going on. That so far

> has done the trick, worried that one day

> it might not work.

>

> Her doctor claims, one day she will go into

> accusing me of stealing something from her ,

> that is the biggest hallucination his patients

> caregivers complain to him about.

>

> Hope everything helps, feel free to share

> other things if you feel like doing so.

>

> Take care

> Maggie

>

>

>

>

>

>

> --- l pratt wrote:

>

> > Dear Maggie,

> > Just getting to my end-of-last-week messages.

> > Thanks very much for yours. The hallucinations

> > really can be an issue. Do they bother your mom?

> > Those my mom has (and so far not too frequently)

> > don't seem to disturb her greatly - if whoever is

> > with her has the presence of mind to " handle "

> them.

> > I'm glad to have heard from you.

> >

> > Peace,

> > Lin

> >

> > M Sumner wrote:

> > Thank you for your e mail.

> >

> > Wanted to mention that the hallucinations are

> > the worse part of dementia, my mother has

> > some very good days, but today, she was talking

> > and talking in the bathroom, claiming once or

> > twice that she could not use bathroom because

> > some people were in her bathroom, it just

> > breaks your heart, if not for hallucinations

> > my mom could live pretty semi normal life.

> >

> > Hope your loved one is doing well

> >

> > maggie

> > --- l pratt wrote:

> >

> > > Dear Maggie,

> > >

> > > Thanks so much for the information. Guess I

> failed

> > > to type several key words - mom was stable for

> > about

> > > 3 years on Razadyne. Worked very well - no

> > > significant behavior problems or eating issues.

> > But

> > > over the past months it clearly was not working

> > well

> > > anymore. Her dementia was progessing, and

> anxiety

> > > and mild aggression set in. So the MD started

> > Exelon

> > > - 3mg. twice a day was the start dosage. Perked

> > her

> > > up within first few days, but on 5th day she was

> > > somnolent, and on 6th hyper-alert and

> > > overstimulated. Have decreased to 1.5 mg 2X/day.

> > > Will see how that goes. I apologize for leaving

> > out

> > > important info. Many thanks again. It's helpful

> to

> > > learn that others have good success with Ex. I

> > know

> > > the dementia will only get worse, and this is a

> > > " stop-gaop " measure, but I would like to help

> mom

> > > have as many good days as possible.

> > >

> > > Peace, Lin

> > > M Sumner wrote:

> > > Please explain to me

> > > Why your mom was taken off Razadyne if

> > > you claim it was working.

> > >

> > > My mom was on maximum dosage taking twice

> > > a day, she was getting aggressive she had out

> > > of control hunger she wanted to eat every

> > > 2 hours or more.

> > >

> > > But according to what you are saying

> > > your mother should not be on exelon

> > >

> > > My mother only does good on the lowest

> > > 1.5 exelon, exelon is also suppose to

> > > help with Parkinson.

> > >

> > > Please read information and take your

> > > mother off exelon if from the start it looked

> > > like it was not good for her.

> > >

> > > My mother had been on razadyne 3 years also

> > > he raised her blood pressure and made her moody

> > >

> > > My mother is also on high blood pressure

> > > once a day and she is on high cholesterol

> > > medication

> > >

> > > From the start exelon calmed my mother

> > > and made her more pleasant to be around

> > > but Razadyne made her somewhat hostile

> > > >

> > > >

> > > >

> > >

> > > >

> > > > maggie

> > >

> > >

> > >

> > >

> > >

> >

>

________________________________________________________________________________\

____

> > > Need Mail bonding?

> > > Go to the Yahoo! Mail Q & A for great tips from

> > Yahoo!

> > > Answers users.

> > >

> >

>

http://answers.yahoo.com/dir/?link=list & sid=396546091

> > >

> > >

> > > Welcome to LBDcaregivers.

> > >

> > >

> > >

[Guest guest]

Sharon,

Glad you have those good memories.

So sorry about your fathers death.

You have been great help, i do cherish

every good moment i have with my mother

and even thru LBD she manages to thank

me for each and every meal and thanks me

when she sees me checking on her in the

middle of the night. It is so rewarding

to have few minutes here and there that

keeps us going

Thank you

Maggie

--- LadySmilingAtU2@... wrote:

> maggie,

> anything to do with dementia is hard on the lo

> (loved one ( and the cg (caregiver) i am glad you

> had a little bit of exposure i did when i was 15 and

> visited my great aunt, my great uncle had a nervous

> breakdown as they called dementia back in the mid

> 70's.

> the worst about dad was that he was well enough some

> of the time to realize that somethng was very wrong,

> he couldnt remember lewy body disease and anything

> i let him read, i edited out the prognosis of death

> as i didtn want dad to give up, but as it was dad

> died 16 months after diagnosis. he called lbd the

> little man in his head and he sometims knew when he

> did bad things to upset me he would look at me and

> say i hate that little man in my head. and then he

> would start singing you are my sunshine, so looking

> back, it doesnt seem as bad when i remember you are

> my sunshine. tke care and hugs, sharon a=m

> ---- M Sumner wrote:

> Hi LadySmiling,

>

> That is horrible, that you had to endure

> an accusation like that.

>

> When i was young, and just learning

> about dementia, i worked in a hospital

> and i had to interview a patient that had

> dementia to figure out her financial status

> for this hospital i worked for. The best

> she could explain to me what Alzheimer or

> dementia felt like was her thoughts were dizzy

> and she could not focus on anything.

>

> Only good part, our relatives don' t really

> know they are in this state of mind. My own

> mother thinks her memory is fine, and maybe

> mine is not. LOL

>

> Thank you

>

> Maggie

>

>

> --- LadySmilingAtU2@... wrote:

>

> > maggie and lin,

> > my dad just a few monthsafter signing everything

> > over to mine and his name then went into i dont

> > trust you, i hate you mode, it was awful. he

> > accused me of stealing him blind, for selling his

> > house from underneaht him, in reality he made me

> > sell the house in tenn that his and my names were

> > on, the longer i put off selling it th uglier he

> > got, so i gave in and we made 25k$ on it, but

> could

> > have made more if dad had let me negtioate but

> alas,

> > so prepare yourselves, unfortuantely the dr jekyll

> > mr/mrs hyde routine does eventually comes, good

> > luck and hugs, sharon

> > ---- M Sumner wrote:

> > Hi Lyn,

> >

> > Thank you for your response .

> > The only time i do see her upset is when

> > she claims she wants to use the bathroom

> > but she can' t because people are in there

> > making a mess, if i don t find an answer

> > quickly she will get aggitated.

> >

> > I always tell her either, they left already,

> > or let's go together and see if we can

> > figure out what is going on. That so far

> > has done the trick, worried that one day

> > it might not work.

> >

> > Her doctor claims, one day she will go into

> > accusing me of stealing something from her ,

> > that is the biggest hallucination his patients

> > caregivers complain to him about.

> >

> > Hope everything helps, feel free to share

> > other things if you feel like doing so.

> >

> > Take care

> > Maggie

> >

> >

> >

> >

> >

> >

> > --- l pratt wrote:

> >

> > > Dear Maggie,

> > > Just getting to my end-of-last-week messages.

> > > Thanks very much for yours. The hallucinations

> > > really can be an issue. Do they bother your mom?

> > > Those my mom has (and so far not too frequently)

> > > don't seem to disturb her greatly - if whoever

> is

> > > with her has the presence of mind to " handle "

> > them.

> > > I'm glad to have heard from you.

> > >

> > > Peace,

> > > Lin

> > >

> > > M Sumner wrote:

> > > Thank you for your e mail.

> > >

> > > Wanted to mention that the hallucinations are

> > > the worse part of dementia, my mother has

> > > some very good days, but today, she was talking

> > > and talking in the bathroom, claiming once or

> > > twice that she could not use bathroom because

> > > some people were in her bathroom, it just

> > > breaks your heart, if not for hallucinations

> > > my mom could live pretty semi normal life.

> > >

> > > Hope your loved one is doing well

> > >

> > > maggie

> > > --- l pratt wrote:

> > >

> > > > Dear Maggie,

> > > >

> > > > Thanks so much for the information. Guess I

> > failed

> > > > to type several key words - mom was stable for

> > > about

> > > > 3 years on Razadyne. Worked very well - no

> > > > significant behavior problems or eating

> issues.

> > > But

> > > > over the past months it clearly was not

> working

> > > well

> > > > anymore. Her dementia was progessing, and

> > anxiety

> > > > and mild aggression set in. So the MD started

> > > Exelon

> > > > - 3mg. twice a day was the start dosage.

> Perked

> > > her

> > > > up within first few days, but on 5th day she

> was

> > > > somnolent, and on 6th hyper-alert and

> > > > overstimulated. Have decreased to 1.5 mg

> 2X/day.

> > > > Will see how that goes. I apologize for

> leaving

> > > out

> > > > important info. Many thanks again. It's

> helpful

> > to

> > > > learn that others have good success with Ex. I

> > > know

> > > > the dementia will only get worse, and this is

> a

> > > > " stop-gaop " measure, but I would like to help

> > mom

> > > > have as many good days as possible.

> > > >

> > > > Peace, Lin

> > > > M Sumner wrote:

> > > > Please explain to me

> > > > Why your mom was taken off Razadyne if

> > > > you claim it was working.

> > > >

> > > > My mom was on maximum dosage taking twice

> > > > a day, she was getting aggressive she had out

> > > > of control hunger she wanted to eat every

> > > > 2 hours or more.

> > > >

> > > > But according to what you are saying

> > > > your mother should not be on exelon

> > > >

> > > > My mother only does good on the lowest

> > > > 1.5 exelon, exelon is also suppose to

> > > > help with Parkinson.

> > > >

> > > > Please read information and take your

> > > > mother off exelon if from the start it looked

> > > > like it was not good for her.

> > > >

> > > > My mother had been on razadyne 3 years also

> > > > he raised her blood pressure and made her

> moody

> > > >

> > > > My mother is also on high blood pressure

> > > > once a day and she is on high cholesterol

> > > > medication

> > > >

> > > > From the start exelon calmed my mother

> > > > and made her more pleasant to be around

> > > > but Razadyne made her somewhat hostile

> > > > >

> > > > >

> > > > >

>

=== message truncated ===

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