Re: Re: tethered on both sides

[Guest guest]

Wow, I dodged a bullet on this one. My pain clinic was pushing mightily on

this and I was uncomfortable with the fact Medtronics is the only game in

town. They are stalling with the mistake they made with my bladder stim

(hooked up only one side, the one that did not work during the test, and I

am now a giant Pissy Polly Doll)

Doesn't anyone else worry about the fact there is only one company out there

and we are both their guinea pigs and only customers. They can do anything

they want and what are we going to do? Take our business elsewhere?

M.

On Sat, Mar 27, 2010 at 6:47 PM, hollygolightly1916 wrote:

> Hello Kathy -

>

> Funny as I've never heard of this happening, but I'm sure it has more than

> often than we all know. I'm not familiar with any electrical studies other

> than EEG. Nonetheless, I'd be curious to find out what more you're able to

> figure out about this once you know anything.

>

> How have you been otherwise? Now that I finally have insurance again it

> will be nice to follow up with neurologist & neurosurgeon, pain management

> doctor .. this past year I've been forced to forego all of that. My nerve

> pain is geting worse .. I've had frustrating experience of my primary not

> wanting to prescribe pain medication to treat my chronic pain & neuropathy -

> I've been treated like I'm an addict and well it's been terrible. There's

> nothing worse, than being in pain and not being able to treat it. Ugh. I'm

> glad to be able to return to the pain management specialist I've seen

> before.

>

> Can you email me off list with more informaion about the Medtronic pain

> pump study .. b/c I think I'm at that point.

>

> This year (2010) thus far has started at marathon pace .. I'd just like for

> it to slow down enough for me to catch my breath & find rest. Mom is not in

> the hospital anymore, she was at MGH for a month from Jan 19th-Feb 17th --

> and will most likely return in a few weeks o begin prep for Bone Marrow

> Transplant -- she has her follow up appointment with her Oncologist at MGH

> on Monday. So very glad it's spring! ox E

>

>

> >

> > Hello,

> >

> > I just received a copy of the radiologist's report from my scan in

> December. I knew I was retethered to the right side - plus it made sense,

> my right side is deteriorating faster than my left. However, I couldn't

> understand why my left side (leg) was still getting worse - although at a

> slower rate and in a different way - it is still getting much worse.

> >

> > The report states I'm tethered to the left in the sacral area and

> tethered to the right at S1/L5-4. It also states that I have arachnoiditis

> on nerve roots on the right side. When I researched the term they used when

> discussing the nerves, the pages all said it meant arachnoiditis - so that

> one is a self-diagnosis - the report uses a different term. However, this

> is on the right side and the research I read states symptoms that I am

> experiencing in my right leg can be caused by arachnoiditis (as does

> tethered cord symptoms, as we all know).

> >

> > So - my questions are: anyone else tethered on both sides in different

> areas? Anyone else with the above and been able to figure out what is

> causing what deterioration? Are there electrical studies that can determine

> if it's a tether or swollen/scar tissue encased nerve roots that is causing

> the problems?

> >

> > Kathy

> >

> >

> >