Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 Congratulations! Keep us informed. You are so blessed to have a team of doctors headed in the same direction. Best of luck! Sincerely, Shauna Together In Autism www.togetherinautism.org Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 You are a fighter and that's what it takes! You are getting it done. We are so happy for you!!! Shauna Together In Autism www.togetherinautism.orgPlan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 I am friggan stubborn and would have kept raising hell until I got what I wanted And Oh yes, I will keep you all posted!!You guys are my backbone right now!!To: mb12 valtrex Sent: Monday, November 3, 2008 12:18:26 PMSubject: Re: Good News Congratulations! Keep us informed. You are so blessed to have a team of doctors headed in the same direction. Best of luck! Sincerely, Shauna Together In Autism www.togetherinautis m.org Plan your next getaway with AOL Travel. Check out Today's Hot 5 Travel Deals! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 That IS good news. What state are you in?Subject: Good NewsTo: mb12 valtrex Date: Monday, November 3, 2008, 12:12 PM The DAN! Doc that I have been speaking with has found me a pediatrician who works EXCELLENT with DAN! docs. e is even able to push some tests through insurance that other docs can't!! So he's a fighter! I am SO excited. Our appt. is Wed Nov. 12th at 9am. Just a town away. So, all three of us, Ped, DAN! and myself, will be getting those tests ordered and shipped off ASAP. I couldn't be more pleased. It IS hard for me to sit and watch the progress you are all making and feel like I'm twiddling my thumbs, but I WOULD feel better doing this with a DAN! doc backing me, at least to start off with. Although- this group is an AMAZING resource! Again, thank you all for humoring my neurotic side last night I KNOW in my head that melatonin is perfectly safe, but I am by nature and EXTREME worrier. The DAN! doc I work with said I am lucky to have you all. So, Thanks and XOXOXO lainna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 MaineTo: mb12 valtrex Sent: Monday, November 3, 2008 5:29:34 PMSubject: Re: Good News That IS good news. What state are you in?From: If I like you, you'll find out. <kaelainneyahoo (DOT) com>Subject: Good NewsTo: mb12 valtrex@ yahoogroups. comDate: Monday, November 3, 2008, 12:12 PM The DAN! Doc that I have been speaking with has found me a pediatrician who works EXCELLENT with DAN! docs. e is even able to push some tests through insurance that other docs can't!! So he's a fighter! I am SO excited. Our appt. is Wed Nov. 12th at 9am. Just a town away. So, all three of us, Ped, DAN! and myself, will be getting those tests ordered and shipped off ASAP. I couldn't be more pleased. It IS hard for me to sit and watch the progress you are all making and feel like I'm twiddling my thumbs, but I WOULD feel better doing this with a DAN! doc backing me, at least to start off with. Although- this group is an AMAZING resource! Again, thank you all for humoring my neurotic side last night I KNOW in my head that melatonin is perfectly safe, but I am by nature and EXTREME worrier. The DAN! doc I work with said I am lucky to have you all. So, Thanks and XOXOXO lainna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 3, 2008 Report Share Posted November 3, 2008 I'm in GA; just looking for one down here that is not backed up for over 2 years! :)From: If I like you, you'll find out. <kaelainneyahoo (DOT) com>Subject: Good NewsTo: mb12 valtrex@ yahoogroups. comDate: Monday, November 3, 2008, 12:12 PM The DAN! Doc that I have been speaking with has found me a pediatrician who works EXCELLENT with DAN! docs. e is even able to push some tests through insurance that other docs can't!! So he's a fighter! I am SO excited. Our appt. is Wed Nov. 12th at 9am. Just a town away. So, all three of us, Ped, DAN! and myself, will be getting those tests ordered and shipped off ASAP. I couldn't be more pleased. It IS hard for me to sit and watch the progress you are all making and feel like I'm twiddling my thumbs, but I WOULD feel better doing this with a DAN! doc backing me, at least to start off with. Although- this group is an AMAZING resource! Again, thank you all for humoring my neurotic side last night I KNOW in my head that melatonin is perfectly safe, but I am by nature and EXTREME worrier. The DAN! doc I work with said I am lucky to have you all. So, Thanks and XOXOXO lainna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 16, 2009 Report Share Posted June 16, 2009 We just got home from UCSF. DR. Gupta is willing to take on her case. He said he will be calling her Dr. W (her current nsg) this week before he goes on vacation next week and will contact me when he gets back. He said he can make some suggestions on what he thinks she should try,but I told him no I want you to help her. I am feel so hopeful for Maddy now,something I didn't feel for the last several days. I am gonna go see Dr. Magram (other nsg this week)to see if he can do anything to help her even just some diamox in the meantime. I will keep you posted. Thank you all for the prayers. Quote Link to comment Share on other sites More sharing options...
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