Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 Hi all My name is rob. I have sm since 1985. I found out on October 2007 after an mva. I visited dr b 3 months after and long story short i am having my surgery next week. Starting to have cold feet. With all the emails that im reading i don't no if the surgery will help or make it worst. I feel that my body is so use to the pain. And im so not in the mood for hospital. the most im afraid of is for my wife, she is the one that will have to worry about me. I am not afraid. I just worry. I want to go to sleep and wake up next year. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 15, 2009 Report Share Posted June 15, 2009 Hi Rob, Boy, I think we can all relate to what you said about going to sleep and waking up next year. It is perfectly normal to be frightened prior to surgery. I always worried about my husband and kids. I had never had surgery prior to Chiari surgery and I thought my husband would have to hit me over the head and drag me into the hospital. If you aren't ready mentally for surgery, then cancel. This group has more members that have had bad luck after surgery. It's the nature of the beast. The ones that have surgery and get better go on to a normal life. The ones that don't feel well stick around for new approaches. You are starting out right, you are going to an expert. I didn't have those choices back in 1990 when I was diagnosed and told I needed surgery. My neurosurgeon had done 13 Chiari surgeries in his entire time of being a neurosurgeon, and he retired 3 years after he did mine. Surgical technique has changed drastically in the past 19 years. Experts are scattered across the US. These are huge strides for us. Take a deep breath, talk with your wife. If you feel like you can live with your pain, and symptoms, I wouldn't have surgery. Kathleen Diagnosed with CM/hydrocephalus 1990, decompression/shunt. Since diagnosed with craniocervical instability, Ehlers Danlos, and Tethered Cord Sydrome, surgery for everything but EDS since 1998. http://chiariconnectioninternational.com/ Hi all My name is rob. I have sm since 1985. I found out on October 2007 after an mva. I visited dr b 3 months after and long story short i am having my surgery next week. Starting to have cold feet. With all the emails that im reading i don't no if the surgery will help or make it worst. I feel that my body is so use to the pain. And im so not in the mood for hospital. the most im afraid of is for my wife, she is the one that will have to worry about me. I am not afraid. I just worry. I want to go to sleep and wake up next year. Quote Link to comment Share on other sites More sharing options...
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