Re: Hello to all

[Guest guest]

Jayn, I can't think of anything I could take better! I am so happy for you.

What a blessing indeed!

But, what a scare you have been through. Glad it is over, and you are on the

mend.

And, Glad you are back.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism, and Frontal Lobe Disease with Apathy, and possibly AD

In a message dated 6/9/2006 9:52:33 PM Central Daylight Time,

jja52538@... writes:

The doctor saw no cancer at the time of surgery and the pathology report

came back negative for cancer, so I am now 99% cured, I will take that.

[Guest guest]

I was asked the same thing one time after big time surgery. I wondered why

such a question? It was to make sure the bowel was working again. That is one

of the signs they look for besides the kidneys having been shut down during

surgery. And, that all vitals and enzymes are normal.

If the whole system is running smoothly, then a person is allowed to go home.

Imogene

In a message dated 6/10/2006 4:24:43 AM Central Daylight Time,

twomido@... writes:

Jayn,

It is good to hear that you are doing well and things are progressing? LOL

It is amazing what things we need to do that normally we frown on. F------

is not what we normally think of talking about until it is such a good thing

all of a sudden.

Keep up the good work and heal.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

[Guest guest]

Glad to hear you're on the mend. Great news! :)

>

> Just wanted to give all of you an update on my short journey with

cancer.

> Jayn in S GA

>

>

[Guest guest]

Jayn, that is fantastic news and long may it continue!!

your windy problem is not uncommon with gynie ops but your right it can get

embarrassing.

It's like I always say though 'wherever you may be let your wind blow free!!'

Love to you

.xx

Hello to all

Just wanted to give all of you an update on my short journey with cancer.

Yesterday I was one week post op with no problems!!!

The surgery went very well, standing 4 hours after surgery, with some help.

The doctor saw no cancer at the time of surgery and the pathology report

came back negative for cancer, so I am now 99% cured, I will take that.

I lived on ice chips for 5 days. Seems one can't have anything except that

until gas has been expelled! Now I ask you " who can do that on demand, except

a man " ? So nothing, no liquids of anykind, which after so long really

doesn't matter. It was such a big thing on the floor until everyone you saw

ask the

same question; " have you f------ yet? "

Oh well, if I have offended anyone I am sorry.

I just want those of you who prayed and I know there were many of you, to

please join me in Praising the One who deserves all the Glory. I know without

a

doubt that prayers were heard on my behalf and answered.

I don't know how people without Him every gets thru stuff. I serve a Great

and Wonderful God who loves His children and wants to be ask for what we need,

even wants sometimes. I can never Praise Him enough.

We have been back home since this past Tues. and everything is going very

well. Our youngest came up on Wed and is staying until tomorrow. A friend will

come in on Sunday and stay until Tues, then the oldest daughter will be here

until???? By then Wayne and I should be ok to do what ever is necessary.

Ruth did her usual stuff while we were gone. Gave the day sitter and my

sister at night a hard time, I think next time I will put her in a AL place

and

let them deal with it. It isn't fair for family members and friends to have to

put up with garbage.

Love in Christ to all of you

Jayn in S GA

[Guest guest]

Jayn, that is fantastic news and long may it continue!!

your windy problem is not uncommon with gynie ops but your right it can get

embarrassing.

It's like I always say though 'wherever you may be let your wind blow free!!'

Love to you

.xx

Hello to all

Just wanted to give all of you an update on my short journey with cancer.

Yesterday I was one week post op with no problems!!!

The surgery went very well, standing 4 hours after surgery, with some help.

The doctor saw no cancer at the time of surgery and the pathology report

came back negative for cancer, so I am now 99% cured, I will take that.

I lived on ice chips for 5 days. Seems one can't have anything except that

until gas has been expelled! Now I ask you " who can do that on demand, except

a man " ? So nothing, no liquids of anykind, which after so long really

doesn't matter. It was such a big thing on the floor until everyone you saw

ask the

same question; " have you f------ yet? "

Oh well, if I have offended anyone I am sorry.

I just want those of you who prayed and I know there were many of you, to

please join me in Praising the One who deserves all the Glory. I know without

a

doubt that prayers were heard on my behalf and answered.

I don't know how people without Him every gets thru stuff. I serve a Great

and Wonderful God who loves His children and wants to be ask for what we need,

even wants sometimes. I can never Praise Him enough.

We have been back home since this past Tues. and everything is going very

well. Our youngest came up on Wed and is staying until tomorrow. A friend will

come in on Sunday and stay until Tues, then the oldest daughter will be here

until???? By then Wayne and I should be ok to do what ever is necessary.

Ruth did her usual stuff while we were gone. Gave the day sitter and my

sister at night a hard time, I think next time I will put her in a AL place

and

let them deal with it. It isn't fair for family members and friends to have to

put up with garbage.

Love in Christ to all of you

Jayn in S GA

[Guest guest]

thank you Lord, our prayers have been answered, hugs sharon m

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall

7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- jja52538@... wrote:

Just wanted to give all of you an update on my short journey with cancer.

Yesterday I was one week post op with no problems!!!

The surgery went very well, standing 4 hours after surgery, with some help.

The doctor saw no cancer at the time of surgery and the pathology report

came back negative for cancer, so I am now 99% cured, I will take that.

I lived on ice chips for 5 days. Seems one can't have anything except that

until gas has been expelled! Now I ask you " who can do that on demand, except

a man " ? So nothing, no liquids of anykind, which after so long really

doesn't matter. It was such a big thing on the floor until everyone you saw ask

the

same question; " have you f------ yet? "

Oh well, if I have offended anyone I am sorry.

I just want those of you who prayed and I know there were many of you, to

please join me in Praising the One who deserves all the Glory. I know without a

doubt that prayers were heard on my behalf and answered.

I don't know how people without Him every gets thru stuff. I serve a Great

and Wonderful God who loves His children and wants to be ask for what we need,

even wants sometimes. I can never Praise Him enough.

We have been back home since this past Tues. and everything is going very

well. Our youngest came up on Wed and is staying until tomorrow. A friend will

come in on Sunday and stay until Tues, then the oldest daughter will be here

until???? By then Wayne and I should be ok to do what ever is necessary.

Ruth did her usual stuff while we were gone. Gave the day sitter and my

sister at night a hard time, I think next time I will put her in a AL place and

let them deal with it. It isn't fair for family members and friends to have to

put up with garbage.

Love in Christ to all of you

Jayn in S GA

[Guest guest]

Dear Sara,

Welcome to our group. I just want you to know that you made the right decision

by joining this group. You have been experiencing some rough times with the

death of your Dad and the illness of your stepmom. Please let us help support

you during these trying times.

Hugs,

Gerry

Wilmington, De.

Daughter and caregiver of Dick Deverll, who died 9/11/05 after a more than 4 yr.

battle withLBD.

Hello to all

My name is Sara and I take care of my stepmom. She's in a nursing home

now and I guess you could say she's in end stages of Lewys. Her new dr

doesn't know anything about Lewys and keeps asking me how I know!!! I

diagnosed her after much internet and book research. It's such a shame

my father wasn't able to get good drs for her when she needed them

most these past few years. He did the best he could...I took care of

him until he passed last January. He did himself in taking care of my

stepmom. It was a very hard, sad few months from November to February.

The hardest part awaits me, I'm remembering all the bad times....I'm

really going to DREAD these winter months especially if my stepmom

dies....I think it will be in the next six months.

But I'm glad I've found this group at least and knowing more about

Lewys REALLY is great. Sara

[Guest guest]

Sara, a warm hug, and be assured you are among friends. You are one smart

woman to have studied and learned about this Dementia, on your own, yet! Many

doctors don't know about it.

I too, am very thankful for this list. There is so much love and help. I

have learned a great deal already, and feel so accepted.

I am glad that you are with us, but not for the reason you have to be.

Please let us know what things you have observed in your Step-Mom for the

benefit

of those of us still in the early stage of the Dementia.

I for one, will appreciate it no end.

Love a bunch,

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism.

In a message dated 9/21/2006 1:33:47 AM Central Daylight Time,

cheeps4u@... writes:

My name is Sara and I take care of my stepmom. She's in a nursing home

now and I guess you could say she's in end stages of Lewys. Her new dr

doesn't know anything about Lewys and keeps asking me how I know!!! I

diagnosed her after much internet and book research. It's such a shame

my father wasn't able to get good drs for her when she needed them

most these past few years. He did the best he could...I took care of

him until he passed last January. He did himself in taking care of my

stepmom. It was a very hard, sad few months from November to February.

The hardest part awaits me, I'm remembering all the bad times....I'm

really going to DREAD these winter months especially if my stepmom

dies....I think it will be in the next six months.

But I'm glad I've found this group at least and knowing more about

Lewys REALLY is great. Sara

[Guest guest]

Welcome to the board Sara - be sure to view the Links section on the

website - it has tons of useful info (you can get there via the link in

my signature)... Sounds familiar - I " diagnosed " my mom -- as her

neurologist said to his students, " Dr. here thinks she has

Lewy Body Dementia " You've had some trying times for yourself -- I

hope that we can be of help to you -- this place is great to vent,

vent, vent.

; loving daughter of Maureen of Boston, MA; finally diagnosed

with LBD on 2/06 after also being diagnosed with everything from AD to

Vascular Dementia caused by mini strokes to Binswengers...; was victim

to rapid decline from Risperidone (or combination of Risperidone with

other drugs OR possibly received another " bad drug " when she was

observed/tested in a hospital in 10/05); in a NH since 11/05. Update:

on antidepressant Celexa, 20mg (still teary, but not as weepy); as of

4/21 on Exelon (a/o 6/28 began following the suggested dosage for LBD);

as of 7/1 went on ALA (200 mg) and B1.

Visit the LBDCaregivers board on the web:

http://groups.yahoo.com/group/LBDcaregivers/

(See files, suggested links, databases, photos of members, and search

previous posts)

[Guest guest]

Amen to the ocean!! I fished with my father for nearly 6 full years. He was

a commercial fisherman with thousands of yards of nets and several boats. It

was

a way of life I would have followed had I been a boy. That's life.

Have a wonderful time.

Imogene

In a message dated 9/21/2006 2:53:58 PM Central Daylight Time,

cheeps4u@... writes:

I love the ocean, the breeze and

the solitude. Thank You, Sara

[Guest guest]

Thanks for all the warm welcomes. My father kept a journal. I shall

post it and I will try to update it. That's hard....when we had to

move her out of the home she went down hill very quickly. I'm sure

that would have happened anyway. I'll work on this in the next week.

I'm going to The Outer Banks of NC this weekend with my son. I feel

like this will be a cleansing trip...I love the ocean, the breeze and

the solitude. Thank You, Sara