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Surgery rescheduled

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Hiyas meesa chiari amigos!

Well, my pfd & ccf has been moved up! I am now scheduled to arrive in NY @ LGA

on October 26th... My mom and I will be staying at the variety house and my

daddy is flying up on Tuesday night to be with my mom while I am in surgery

Wednesday... Monday I have pre-surgical testing, Tuesday I have invasive

cervical traction and then Wednesday is the decompression and fusion... Quite

frankly, I am terrified... Not so much terrified of the surgery, but of the pain

control afterwards... When I had my tethered cord released, I fought like cats

and dogs over my pain medication with them... I don't want to fight with them

again... I don't know how to get it through their heads the dilaudid does not

work on me, I am allergic to morphine and fetanyl is like sugar water... The

only thing that works is Demerol and it takes a very large dose of it to work!

So, how can I get it through their heads?? Any suggestions? I think I will write

Dr. b a note before I go up and talk to him because I don't deal well with

pain... I am a total wimp when it comes to pain!!!

Laters,

Holly

Acm 1

Syringomyelia

Tethered cord (released @ tci June 16, 2008)

EDS

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wrote to me this additional information:

--- " I am pretty sure that PM, after surgery, is handled by their PM

doctors. Yes, the PA's do help in this but ultimately if their are any

problems with not getting pain relief, etc. the PM docs do that. When

I was in for my 2 surgeries, did some PM but I always saw Vikas

Varma, M.D. He is listed on TCI's website as their PM doctor. "

Thanks, !!

V.

In I " think " the PA you will have will be the one working on

> PM for you, of course, not Dr. B, so perhaps you can send an email

to

> THAT PA. I see their emails on the TCI website. If you know which

PA

> you will have, then that is what I'd try as well.

>

>

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wrote to me this additional information:

--- " I am pretty sure that PM, after surgery, is handled by their PM

doctors. Yes, the PA's do help in this but ultimately if their are any

problems with not getting pain relief, etc. the PM docs do that. When

I was in for my 2 surgeries, did some PM but I always saw Vikas

Varma, M.D. He is listed on TCI's website as their PM doctor. "

Thanks, !!

V.

In I " think " the PA you will have will be the one working on

> PM for you, of course, not Dr. B, so perhaps you can send an email

to

> THAT PA. I see their emails on the TCI website. If you know which

PA

> you will have, then that is what I'd try as well.

>

>

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