Re: Imogene /Is this normal for LBD?

[Guest guest]

I was not talking about tremors. That sounds plausible, but I was talking

about jolting in a deep sleep, and then settling down again. Have you ever been

asleep or nearly asleep and suddenly jerked because the bottom fell out?

That is how he does a lot.

Muscles jerk and bounce him, then he is quiet again for a minute. It is

bound to be exhausting, whether he is awake or asleep, because it is not a

sound

sleep.

He has been very confused today. Very.

Imogene

In a message dated 7/4/2006 6:07:43 PM Central Daylight Time,

sanclown@... writes:

Hi Imogene-

My dad didn't have tremors but 's mom does.

He would have to fill her cup/glass half full as she

would tremor so hard the liquid would spill out. Also,

while on a telephone she tremors so hard the phone

shakes and slips down. She doesn't always know to

move the phone back to her ear and mouth.

I know Sally's dad, in England, shook so violently

he would shake the bed he was in.

It seems tremors can be a symptom of LBD, but not

always a symptom. I feel fortunate my dad didn't

tremor. My dad, however, had huge, violent, and

disturbing behaviors. Broke my heart and left me

feeling helpless. It didn't matter to me when he

was acting out though, I always reached for his

hands and told him I was scared too, so lets get

through (whatever it was) together.

Oh, the memories...

Sandie

Des Moines, IA

dad, Merle, passed from LBD, 9-20-02, age 65

-- Is this normal for LBD?

My Gentleman love, was not always under sedation of course, when in the

hospital.

I sat and watched him for hours while he slept.

He jerked hard, and worked his hands almost constantly, as if he was doing

something with them. I've seen the hand activity years ago, but this

jerking

so hard

I have not seen.

He was confused a lot in the hospital. He called me two nights, Totally

lost

and afraid, but today when he was supposed to call after the Doctor saw him

he didn't. A half hour later I called him. He said he couldn't remember our

number, and couldn't make the phone work, and I hadn't left him any phone #

or addresses. Well, they were all on a pad right beside him, but when he

was

alone, he couldn't function. His room was empty, no other people, and he

went

into a panic. He saw a cat in the vent last night, and kept staring at it.

I

told him I would make the cat go away, and he should close his eyes when I

did.

I just wondered if his whole body jerking hard like he did many times is

normal for LBD? It nearly made him bounce out of bed it was so hard.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism.

[Non-text portions of this message have been removed]

[Guest guest]

Hi Imogene-

My dad didn't have tremors but 's mom does.

He would have to fill her cup/glass half full as she

would tremor so hard the liquid would spill out. Also,

while on a telephone she tremors so hard the phone

shakes and slips down. She doesn't always know to

move the phone back to her ear and mouth.

I know Sally's dad, in England, shook so violently

he would shake the bed he was in.

It seems tremors can be a symptom of LBD, but not

always a symptom. I feel fortunate my dad didn't

tremor. My dad, however, had huge, violent, and

disturbing behaviors. Broke my heart and left me

feeling helpless. It didn't matter to me when he

was acting out though, I always reached for his

hands and told him I was scared too, so lets get

through (whatever it was) together.

Oh, the memories...

Sandie

Des Moines, IA

dad, Merle, passed from LBD, 9-20-02, age 65

-- Is this normal for LBD?

My Gentleman love, was not always under sedation of course, when in the

hospital.

I sat and watched him for hours while he slept.

He jerked hard, and worked his hands almost constantly, as if he was doing

something with them. I've seen the hand activity years ago, but this

jerking

so hard

I have not seen.

He was confused a lot in the hospital. He called me two nights, Totally

lost

and afraid, but today when he was supposed to call after the Doctor saw him

he didn't. A half hour later I called him. He said he couldn't remember our

number, and couldn't make the phone work, and I hadn't left him any phone #

or addresses. Well, they were all on a pad right beside him, but when he

was

alone, he couldn't function. His room was empty, no other people, and he

went

into a panic. He saw a cat in the vent last night, and kept staring at it.

I

told him I would make the cat go away, and he should close his eyes when I

did.

I just wondered if his whole body jerking hard like he did many times is

normal for LBD? It nearly made him bounce out of bed it was so hard.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism.

[Guest guest]

>my husband also displays jolting movements at night...he also

sometimes sings,fights,punches,moves his legs in a running motion..he

fell out of bed again last night..he is also getting bad swelling in

one leg and having trouble walking because he feels dizzy..can not

walk far because he is in pain or exhausted...can not believe the

deterioration...meg

>

> I was not talking about tremors. That sounds plausible, but I was

talking

> about jolting in a deep sleep, and then settling down again. Have

you ever been

> asleep or nearly asleep and suddenly jerked because the bottom fell

out?

> That is how he does a lot.

> Muscles jerk and bounce him, then he is quiet again for a minute.

It is

> bound to be exhausting, whether he is awake or asleep, because it is

not a sound

> sleep.

>

> He has been very confused today. Very.

> Imogene

>

>

>

> In a message dated 7/4/2006 6:07:43 PM Central Daylight Time,

> sanclown@... writes:

>

> Hi Imogene-

>

> My dad didn't have tremors but 's mom does.

> He would have to fill her cup/glass half full as she

> would tremor so hard the liquid would spill out. Also,

> while on a telephone she tremors so hard the phone

> shakes and slips down. She doesn't always know to

> move the phone back to her ear and mouth.

>

> I know Sally's dad, in England, shook so violently

> he would shake the bed he was in.

>

> It seems tremors can be a symptom of LBD, but not

> always a symptom. I feel fortunate my dad didn't

> tremor. My dad, however, had huge, violent, and

> disturbing behaviors. Broke my heart and left me

> feeling helpless. It didn't matter to me when he

> was acting out though, I always reached for his

> hands and told him I was scared too, so lets get

> through (whatever it was) together.

>

> Oh, the memories...

>

> Sandie

> Des Moines, IA

> dad, Merle, passed from LBD, 9-20-02, age 65

>

> -- Is this normal for LBD?

>

> My Gentleman love, was not always under sedation of course, when in

the

> hospital.

> I sat and watched him for hours while he slept.

>

> He jerked hard, and worked his hands almost constantly, as if he

was doing

> something with them. I've seen the hand activity years ago, but this

> jerking

> so hard

> I have not seen.

>

> He was confused a lot in the hospital. He called me two nights,

Totally

> lost

> and afraid, but today when he was supposed to call after the

Doctor saw him

>

> he didn't. A half hour later I called him. He said he couldn't

remember our

> number, and couldn't make the phone work, and I hadn't left him any

phone #

> or addresses. Well, they were all on a pad right beside him, but

when he

> was

> alone, he couldn't function. His room was empty, no other people,

and he

> went

> into a panic. He saw a cat in the vent last night, and kept staring

at it.

> I

> told him I would make the cat go away, and he should close his

eyes when I

> did.

>

> I just wondered if his whole body jerking hard like he did many

times is

> normal for LBD? It nearly made him bounce out of bed it was so hard.

>

>

> Imogene

> Caregiver for my True Texas Gentleman husband of 35 years. He has

LBD with

> Parkinsonism.

>

>

>

> [Non-text portions of this message have been removed]

>

>

>

>

[Guest guest]

My husband jerked a lot in his sleep; it did not wake

him, but it did me! I told the doctor once, and he

said " Well, he didn't know what was causing it and it

probably doesn't hurt anything if he does. " And, I

said, " Well, it sure wakes me up out of a sound

sleep. " Then the doctor said " I really walked into

that one didn't I? " I'm sure it's part of the

disease, and in fact, if I remember correctly, in one

place I read, it is one of the distinctive symptoms of

LBD. It may be as a result of some meds, because my

husband started it after having broken his shoulder

and having pretty strong pain pills.

--- Iward27663@... wrote:

>

> I was not talking about tremors. That sounds

> plausible, but I was talking

> about jolting in a deep sleep, and then settling

> down again. Have you ever been

> asleep or nearly asleep and suddenly jerked because

> the bottom fell out?

> That is how he does a lot.

> Muscles jerk and bounce him, then he is quiet again

> for a minute. It is

> bound to be exhausting, whether he is awake or

> asleep, because it is not a sound

> sleep.

>

> He has been very confused today. Very.

> Imogene

>

>

>

> In a message dated 7/4/2006 6:07:43 PM Central

> Daylight Time,

> sanclown@... writes:

>

> Hi Imogene-

>

> My dad didn't have tremors but 's mom does.

> He would have to fill her cup/glass half full as

> she

> would tremor so hard the liquid would spill out.

> Also,

> while on a telephone she tremors so hard the phone

> shakes and slips down. She doesn't always know to

> move the phone back to her ear and mouth.

>

> I know Sally's dad, in England, shook so violently

> he would shake the bed he was in.

>

> It seems tremors can be a symptom of LBD, but not

> always a symptom. I feel fortunate my dad didn't

> tremor. My dad, however, had huge, violent, and

> disturbing behaviors. Broke my heart and left me

> feeling helpless. It didn't matter to me when he

> was acting out though, I always reached for his

> hands and told him I was scared too, so lets get

> through (whatever it was) together.

>

> Oh, the memories...

>

> Sandie

> Des Moines, IA

> dad, Merle, passed from LBD, 9-20-02, age 65

>

> -- Is this normal for LBD?

>

> My Gentleman love, was not always under sedation of

> course, when in the

> hospital.

> I sat and watched him for hours while he slept.

>

> He jerked hard, and worked his hands almost

> constantly, as if he was doing

> something with them. I've seen the hand activity

> years ago, but this

> jerking

> so hard

> I have not seen.

>

> He was confused a lot in the hospital. He called me

> two nights, Totally

> lost

> and afraid, but today when he was supposed to call

> after the Doctor saw him

>

> he didn't. A half hour later I called him. He said

> he couldn't remember our

> number, and couldn't make the phone work, and I

> hadn't left him any phone #

> or addresses. Well, they were all on a pad right

> beside him, but when he

> was

> alone, he couldn't function. His room was empty, no

> other people, and he

> went

> into a panic. He saw a cat in the vent last night,

> and kept staring at it.

> I

> told him I would make the cat go away, and he should

> close his eyes when I

> did.

>

> I just wondered if his whole body jerking hard like

> he did many times is

> normal for LBD? It nearly made him bounce out of

> bed it was so hard.

>

>

> Imogene

> Caregiver for my True Texas Gentleman husband of 35

> years. He has LBD with

> Parkinsonism.

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

[Guest guest]

Hi Imogene -- I've been reading just today the Linked documetn by

Bradley Boeve re: Dementia w/ Lewy Bodies . . . Don't know if your

gentleman was awake or asleep when he had the violent movements, but

they are VERY characteristic while LBD patients sleep. It talks a lot

about bed partners being injured by the violence. Often is action

mimicking what the person is dreaming about (running, jumping,

punching, etc.) If you've not downloaded that article, I'd suggest you

do that. When I printed it, I found the final 8 pages are a list of

references, so you might not need to print that part. I hope you both

are having a better day today. Susie1

[Guest guest]

Susie, thank you. It's a much better day. My gentleman is very confused, but

he actually went around the yard, and out by the street, and picked up

papers that have been blown on our place. He cleans regularly. There is a bus

stop

on our corner, and although there is a trash receptacle many people don't

know what it is for.

Yes, I was sick yesterday from being so tired, but today is much better. My

man heard his voice on our answering machine, and he sounded drunk, and

totally confused. He cried when he heard it. I assured him, " We all took good

care

of you, and love you dearly. I know you were afraid and lost. " He said

, " Honey you have no idea how lost I was. I was scared without you. If I look

around and see you then I feel safe again. " I couldn't always be there. He

would

call me on the phone when he remembered our number, and was out of it.

He was asleep with all the bouncing and jerking. I thought our appointment

to see the Geriatric/Psychiatrist was today, but it is next week. I have time

to mail him a

letter about all the things that happened.

Thank you for letting me know about the kicking and jerking, and slamming

his arms around as being part of LBD. I don't sleep with him, because I have

Chronic Eosenophilia Pneumonia, and cough a lot at night which wakes him. He

did poke me several times when we were still together in bed, but I didn't know

then that he had LBD. He is across the small hall, and I can just barely see

him at night with his night light. We have night lights all over the house.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism. He has a frontal lobe problem, but I don't know about it all for

sure at this time. The doctor did say he has Apathy from frontal lobe.

In a message dated 7/6/2006 2:34:25 AM Central Daylight Time,

gentlysm06@... writes:

Hi Imogene -- I've been reading just today the Linked documetn by

Bradley Boeve re: Dementia w/ Lewy Bodies . . . Don't know if your

gentleman was awake or asleep when he had the violent movements, but

they are VERY characteristic while LBD patients sleep. It talks a lot

about bed partners being injured by the violence. Often is action

mimicking what the person is dreaming about (running, jumping,

punching, etc.) If you've not downloaded that article, I'd suggest you

do that. When I printed it, I found the final 8 pages are a list of

references, so you might not need to print that part. I hope you both

are having a better day today. Susie1

[Guest guest]

Sandie, I know that Susie told me it was from LBD. I don't recall seeing a

post from Sally, at least not yet. I haven't seen all the mail today.

Love a bunch,

Imogene

In a message dated 7/6/2006 10:27:52 AM Central Daylight Time,

sanclown@... writes:

Hi Imogene-

Hopefully Sally, in England, will see this message

and reply. I know her dad has horrific jolting,

jerking, and also tremors. He used to rhythmically

rock the cot/bed he was in.

Hugs-

Sandie

[Guest guest]

Sandie, I know that Susie told me it was from LBD. I don't recall seeing a

post from Sally, at least not yet. I haven't seen all the mail today.

Love a bunch,

Imogene

In a message dated 7/6/2006 10:27:52 AM Central Daylight Time,

sanclown@... writes:

Hi Imogene-

Hopefully Sally, in England, will see this message

and reply. I know her dad has horrific jolting,

jerking, and also tremors. He used to rhythmically

rock the cot/bed he was in.

Hugs-

Sandie

[Guest guest]

Hi Imogene-

Hopefully Sally, in England, will see this message

and reply. I know her dad has horrific jolting,

jerking, and also tremors. He used to rhythmically

rock the cot/bed he was in.

Hugs-

Sandie

-- Is this normal for LBD?

My Gentleman love, was not always under sedation of course, when in the

hospital.

I sat and watched him for hours while he slept.

He jerked hard, and worked his hands almost constantly, as if he was doing

something with them. I've seen the hand activity years ago, but this

jerking

so hard

I have not seen.

He was confused a lot in the hospital. He called me two nights, Totally

lost

and afraid, but today when he was supposed to call after the Doctor saw

him

he didn't. A half hour later I called him. He said he couldn't remember

our

number, and couldn't make the phone work, and I hadn't left him any phone

#

or addresses. Well, they were all on a pad right beside him, but when he

was

alone, he couldn't function. His room was empty, no other people, and he

went

into a panic. He saw a cat in the vent last night, and kept staring at it

I

told him I would make the cat go away, and he should close his eyes when I

did.

I just wondered if his whole body jerking hard like he did many times is

normal for LBD? It nearly made him bounce out of bed it was so hard.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD

with

Parkinsonism.

[Non-text portions of this message have been removed]

[Guest guest]

, thank you I think, maybe. (grin with bouncing) The reason, is his

dependency on me, but then my sister is the same way with her daughter. Doesn't

want her out of her sight. My sister has Alzheimer's. When patients become

lost and

scared they do cling. Do you remember the movie " On golden Pond " He was

scared and leaned on his wife.

Imogene

In a message dated 7/6/2006 5:16:13 PM Central Daylight Time, stim@...

writes:

Imogene, how I love your sharings. You have a special way with words and a

love that is

transparent in what you write. Don is an incredibly lucky man to have such

a loving and

demonstrative wife. I do fear for his dependency on you though. I can see

why it is there,

hope you can deal with the responsibility as it grows.

>

>

> Susie, thank you. It's a much better day. My gentleman is very confused,

but

> he actually went around the yard, and out by the street, and picked up

> papers that have been blown on our place. He cleans regularly. There is a

bus stop

> on our corner, and although there is a trash receptacle many people don't

> know what it is for.

>

> Yes, I was sick yesterday from being so tired, but today is much better.

My

> man heard his voice on our answering machine, and he sounded drunk, and

> totally confused. He cried when he heard it. I assured him, " We all took

good care

> of you, and love you dearly. I know you were afraid and lost. " He said

> , " Honey you have no idea how lost I was. I was scared without you. If I

look

> around and see you then I feel safe again. " I couldn't always be there. He

would

> call me on the phone when he remembered our number, and was out of it.

>

> He was asleep with all the bouncing and jerking. I thought our

appointment

> to see the Geriatric/Psychiatrist was today, but it is next week. I have

time

> to mail him a

> letter about all the things that happened.

>

> Thank you for letting me know about the kicking and jerking, and slamming

> his arms around as being part of LBD. I don't sleep with him, because I

have

> Chronic Eosenophilia Pneumonia, and cough a lot at night which wakes

him. He

> did poke me several times when we were still together in bed, but I

didn't know

> then that he had LBD. He is across the small hall, and I can just barely

see

> him at night with his night light. We have night lights all over the

house.

>

>

> Imogene

> Caregiver for my True Texas Gentleman husband of 35 years. He has LBD

with

> Parkinsonism. He has a frontal lobe problem, but I don't know about it

all for

> sure at this time. The doctor did say he has Apathy from frontal lobe.

>

>

>

>

>

>

>

>

>

>

>

>

>

> In a message dated 7/6/2006 2:34:25 AM Central Daylight Time,

> gentlysm06@... writes:

>

> Hi Imogene -- I've been reading just today the Linked documetn by

> Bradley Boeve re: Dementia w/ Lewy Bodies . . . Don't know if your

> gentleman was awake or asleep when he had the violent movements, but

> they are VERY characteristic while LBD patients sleep. It talks a lot

> about bed partners being injured by the violence. Often is action

> mimicking what the person is dreaming about (running, jumping,

> punching, etc.) If you've not downloaded that article, I'd suggest you

> do that. When I printed it, I found the final 8 pages are a list of

> references, so you might not need to print that part. I hope you both

> are having a better day today. Susie1

>

>

>

>

>

>

>

>

>

> [Non-text portions of this message have been removed]

>

------------------------

[Guest guest]

Imogene, how I love your sharings. You have a special way with words and a love

that is

transparent in what you write. Don is an incredibly lucky man to have such a

loving and

demonstrative wife. I do fear for his dependency on you though. I can see why

it is there,

hope you can deal with the responsibility as it grows.

>

>

> Susie, thank you. It's a much better day. My gentleman is very confused, but

> he actually went around the yard, and out by the street, and picked up

> papers that have been blown on our place. He cleans regularly. There is a bus

stop

> on our corner, and although there is a trash receptacle many people don't

> know what it is for.

>

> Yes, I was sick yesterday from being so tired, but today is much better. My

> man heard his voice on our answering machine, and he sounded drunk, and

> totally confused. He cried when he heard it. I assured him, " We all took good

care

> of you, and love you dearly. I know you were afraid and lost. " He said

> , " Honey you have no idea how lost I was. I was scared without you. If I look

> around and see you then I feel safe again. " I couldn't always be there. He

would

> call me on the phone when he remembered our number, and was out of it.

>

> He was asleep with all the bouncing and jerking. I thought our appointment

> to see the Geriatric/Psychiatrist was today, but it is next week. I have time

> to mail him a

> letter about all the things that happened.

>

> Thank you for letting me know about the kicking and jerking, and slamming

> his arms around as being part of LBD. I don't sleep with him, because I have

> Chronic Eosenophilia Pneumonia, and cough a lot at night which wakes him. He

> did poke me several times when we were still together in bed, but I didn't

know

> then that he had LBD. He is across the small hall, and I can just barely see

> him at night with his night light. We have night lights all over the house.

>

>

> Imogene

> Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

> Parkinsonism. He has a frontal lobe problem, but I don't know about it all

for

> sure at this time. The doctor did say he has Apathy from frontal lobe.

>

>

>

>

>

>

>

>

>

>

>

>

>

> In a message dated 7/6/2006 2:34:25 AM Central Daylight Time,

> gentlysm06@... writes:

>

> Hi Imogene -- I've been reading just today the Linked documetn by

> Bradley Boeve re: Dementia w/ Lewy Bodies . . . Don't know if your

> gentleman was awake or asleep when he had the violent movements, but

> they are VERY characteristic while LBD patients sleep. It talks a lot

> about bed partners being injured by the violence. Often is action

> mimicking what the person is dreaming about (running, jumping,

> punching, etc.) If you've not downloaded that article, I'd suggest you

> do that. When I printed it, I found the final 8 pages are a list of

> references, so you might not need to print that part. I hope you both

> are having a better day today. Susie1

>

>

>

>

>

>

>

>

>

>

[Guest guest]

this jerking is called restless body syndrome/disease. rbs or rbd. often the

person may even yell out in thier sleep as well, dad yad this very bad, and

would holler out curses in teh middle o f the nite and scare the living

daylights outof me. hugs, sharon m

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall

7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- Iward27663@... wrote:

I was not talking about tremors. That sounds plausible, but I was talking

about jolting in a deep sleep, and then settling down again. Have you ever been

asleep or nearly asleep and suddenly jerked because the bottom fell out?

That is how he does a lot.

Muscles jerk and bounce him, then he is quiet again for a minute. It is

bound to be exhausting, whether he is awake or asleep, because it is not a

sound

sleep.

He has been very confused today. Very.

Imogene

In a message dated 7/4/2006 6:07:43 PM Central Daylight Time,

sanclown@... writes:

Hi Imogene-

My dad didn't have tremors but 's mom does.

He would have to fill her cup/glass half full as she

would tremor so hard the liquid would spill out. Also,

while on a telephone she tremors so hard the phone

shakes and slips down. She doesn't always know to

move the phone back to her ear and mouth.

I know Sally's dad, in England, shook so violently

he would shake the bed he was in.

It seems tremors can be a symptom of LBD, but not

always a symptom. I feel fortunate my dad didn't

tremor. My dad, however, had huge, violent, and

disturbing behaviors. Broke my heart and left me

feeling helpless. It didn't matter to me when he

was acting out though, I always reached for his

hands and told him I was scared too, so lets get

through (whatever it was) together.

Oh, the memories...

Sandie

Des Moines, IA

dad, Merle, passed from LBD, 9-20-02, age 65

-- Is this normal for LBD?

My Gentleman love, was not always under sedation of course, when in the

hospital.

I sat and watched him for hours while he slept.

He jerked hard, and worked his hands almost constantly, as if he was doing

something with them. I've seen the hand activity years ago, but this

jerking

so hard

I have not seen.

He was confused a lot in the hospital. He called me two nights, Totally

lost

and afraid, but today when he was supposed to call after the Doctor saw him

he didn't. A half hour later I called him. He said he couldn't remember our

number, and couldn't make the phone work, and I hadn't left him any phone #

or addresses. Well, they were all on a pad right beside him, but when he

was

alone, he couldn't function. His room was empty, no other people, and he

went

into a panic. He saw a cat in the vent last night, and kept staring at it.

I

told him I would make the cat go away, and he should close his eyes when I

did.

I just wondered if his whole body jerking hard like he did many times is

normal for LBD? It nearly made him bounce out of bed it was so hard.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD with

Parkinsonism.

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[Guest guest]

I have heard noises during the night several times, but, my hearing is so

bad that by the time I investigate it, it's well over and done with.

Imogene

In a message dated 7/7/2006 12:16:29 AM Central Daylight Time,

LadySmilingAtU2@... writes:

this jerking is called restless body syndrome/disease. rbs or rbd. often

the person may even yell out in thier sleep as well, dad yad this very bad,

and would holler out curses in teh middle o f the nite and scare the living

daylights outof me. hugs, sharon m

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from

fall 7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- Iward27663@... wrote:

I was not talking about tremors. That sounds plausible, but I was talking

about jolting in a deep sleep, and then settling down again. Have you ever

been

asleep or nearly asleep and suddenly jerked because the bottom fell out?

That is how he does a lot.

Muscles jerk and bounce him, then he is quiet again for a minute. It is

bound to be exhausting, whether he is awake or asleep, because it is not a

sound

sleep.

He has been very confused today. Very.

Imogene

In a message dated 7/4/2006 6:07:43 PM Central Daylight Time,

sanclown@... writes:

Hi Imogene-

My dad didn't have tremors but 's mom does.

He would have to fill her cup/glass half full as she

would tremor so hard the liquid would spill out. Also,

while on a telephone she tremors so hard the phone

shakes and slips down. She doesn't always know to

move the phone back to her ear and mouth.

I know Sally's dad, in England, shook so violently

he would shake the bed he was in.

It seems tremors can be a symptom of LBD, but not

always a symptom. I feel fortunate my dad didn't

tremor. My dad, however, had huge, violent, and

disturbing behaviors. Broke my heart and left me

feeling helpless. It didn't matter to me when he

was acting out though, I always reached for his

hands and told him I was scared too, so lets get

through (whatever it was) together.

Oh, the memories...

Sandie

Des Moines, IA

dad, Merle, passed from LBD, 9-20-02, age 65

-- Is this normal for LBD?

My Gentleman love, was not always under sedation of course, when in the

hospital.

I sat and watched him for hours while he slept.

He jerked hard, and worked his hands almost constantly, as if he was doing

something with them. I've seen the hand activity years ago, but this

jerking

so hard

I have not seen.

He was confused a lot in the hospital. He called me two nights, Totally

lost

and afraid, but today when he was supposed to call after the Doctor saw him

he didn't. A half hour later I called him. He said he couldn't remember

our

number, and couldn't make the phone work, and I hadn't left him any phone #

or addresses. Well, they were all on a pad right beside him, but when he

was

alone, he couldn't function. His room was empty, no other people, and he

went

into a panic. He saw a cat in the vent last night, and kept staring at

it.

I

told him I would make the cat go away, and he should close his eyes when I

did.

I just wondered if his whole body jerking hard like he did many times is

normal for LBD? It nearly made him bounce out of bed it was so hard.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has LBD

with

Parkinsonism.

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