EBV?

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EBV? I have never heard that it is connected, but it makes me wonder. I was diagnosed with it in 1994. Hospitalized with FUO (fevers of unknown origin at 106.9), severe headaches, terrible joint pain, rashes, etc. Deathly ill. All they could tell me was that I had EBV. They did tests for everything...AIDS, Lupus, etc.Now having had Castleman's Disease (7 benign nodes in neck), Graves and Hashi's, could EBV be connected?Would really like to hear thoughts on this!Thanks! in TNTo: Thyroiditis Sent: Sat, March 5, 2011 6:57:23 AMSubject: Re: new to the group

Hi Collen,

I also live in S. NJ. Who is your endo if you don't mind me asking? I am currently on the hunt for a new end since the two I have seen since my whole train wreck started seem to think my thyroid is "fine" and that my levels are off because I'm not taking my pills correctly. It is such an insult when you do take your pills like you should and when the tsh numbers come in at 9.8 and then go to normal and then jump again to 10.35 and then back to normal....all the while doing the same thing with the meds...clearly the thyroid is not "fine" So if you like your doctor, I would love to know. It is hard finding a good endo in this area, I have seen a few different endos of the years and finally found an endo I loved and then she got sick and left the practice and since I have not been able to find a good endo. Oh and for information on Hashi's you want to go to http://thyroid.about.com/cs/hypothyroidism/a/hashivshypo.htm. There is a ton of information on thyroid.about.com, but you may have to click around a lot to find it. Shomon has wrote a ton of stuff on thyroid problems she is an advocate. I found out about her and some of the stuff she explains when looking into hashimoto's encepholopathy. I hope things improve for you soon. Good luck

~Lyn

>

> Hello all,

> My name is Colleen--I live in South Jersey. I was diagnosed with

> Hashi's about a year ago. I've been sick since 2002 and have gone

> through what most of us have with doctors throwing anti-depressants

> my way or simply saying "you're a working mom--of course you are

> tired"...and all of that. I have a great doc now at the U of Penn

> (four doctors later). So, here are some of my concerns. First, I've

> gained a good amount of weight in the past three years (and I've had

> two pregnancies in that amount of time). So, weight is an issue.

> Since we finally knew about the Hashi's with my last pregnancy the

> doc monitored me really well and I actually felt great while pregnant

> and actually lost weight! After the baby was born things went

> downhill immediately. My arm started to get numb again, more weight

> gain, fatigue, plus I never stopped bleeding after having the baby

> which requied two weeks of straight progesteron, etc. I had

> bloodwork done at 6 weeks post-partum and it read that I was a bit

> hyper. I was shocked! So, doc had me skip one of my daily 1oo mcg

> Levoxyl pills in a week. I am now 6 months post partum and super

> fatigued, worse numbness, forgetfullness, fuzzy, sore throat, etc. I

> had my bloodwork done and my TSH is 9.921 (.350-5.50). I can't

> believe I went so far hypo so quickly. I also have Epstein-barr

> which no one has ever been able to tell me anything about--what role

> does it play? Can it be treated? etc. Always a mystery. Anyway,

> here are my EBV numbers: EBV Early Antigen 113 (0-99), EBV Ab VCA

> 792 (0-99), EBV Nuclear Antigen 647 (0-99). No clue what any of

> that means. Next...cholesterol. My overall cholesteral is now 212

> and my LDL is 141. I do not eat a lot of junk food at all. I eat

> balanced meals, fruits and veggies and take a multi-vitamin. I will

> work on my diet more and get more exercise but man, oh man, I am so

> frustrated!! I see my doc at Penn this Thursday. I'd love to hear

> your take on any of this.

>

> Also, I find it so hard to find information related to hashi's. Can

> anyone recommend a book or website?

>

> Colleen

>