Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 Welcome back Judy! I remember Khia's picture! Glad you're back!! Angel Mom to 15 MDS/HD In a message dated 6/9/2008 9:48:10 A.M. Mountain Daylight Time, jmills@... writes: From: Judy Mills Date: 6/9/2008 10:44:52 AM To: mosaicds Subject: Introduction My name is Judy Mills and I am the grandmother of Khia Gray. She is now 12 Years old going on 25. Khia was diagnosed at age 7 and has made great Strides Since that time. Khia stays with me a lot so I am very in tune with her ups And downs. About 18 months ago we put her on meds for ADHD and have seen great success In that area as well. I had originally joined the group back 7 years ago, but am joining again. OK, that is my intro.     [Non-text portions of this message have been removed] ------------------------------------ Become a member of IMDSA today at http://www.imdsa.com ******************************************************* Purchase your MDS awareness bracelet today! http://www.imdsa.com/bracelets ************************************************************************** Contact IMDSA Today at: IMDSA~PO Box 1052~lin,TX~77856~USA~1-~1-888-MDS-LINK ********************************************************************* Share your story today! http://www.mosaicdownsyndrome.com ********************************************************* To unsubscribe from this list, send e-mail to: MosaicDS-unsubscribeegroups ************************************************* To visit the e-group website go to: http://groups.yahoo.com/group/MosaicDS/ *************************************************Yahoo! Groups Links **************Get trade secrets for amazing burgers. Watch " Cooking with Tyler Florence " on AOL Food. (http://food.aol.com/tyler-florence?video=4? & NCID=aolfod00030000000002) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 9, 2008 Report Share Posted June 9, 2008 From: Judy Mills Date: 6/9/2008 10:44:52 AM To: mosaicds Subject: Introduction My name is Judy Mills and I am the grandmother of Khia Gray. She is now 12 Years old going on 25. Khia was diagnosed at age 7 and has made great Strides Since that time. Khia stays with me a lot so I am very in tune with her ups And downs. About 18 months ago we put her on meds for ADHD and have seen great success In that area as well. I had originally joined the group back 7 years ago, but am joining again. OK, that is my intro.      Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 2, 2009 Report Share Posted January 2, 2009 Hi, I am new to the group. Mom to 2 sons, 4yr old ASD/SPD, and almost 3yr old SPD. My 4yr old was prescribed Miralax about 4 wks ago by GI doctor after Xray showed moderate backup. After reading the dr directions and the bottle's directions, I almost called the office to double check. 3 days on the full adult dosage (full cap) and then half a cap daily until follow up appt in 3 months. I went ahead and followed the dr directions (just under the full cap). Since starting, I got results back from a comprehensive stool analysis (done through a university research study), which seems to show, as I expected, leaky gut. Also high pH and inconclusive for yeast. I also found out about adverse reactions to Miralax and this group on the SPD group. My son has shown some regression in a couple of areas. Melting to the floor and going limp when asked to do something- used to do this often at 2 yrs, and crying easily. Also, pulling brother's hair and banging on patio doors to scare the dogs. He has also shown some good behaviors, wanting to clear his plate after meals and helping his brother when asked. Like always, its a guessing game to figure out what is going on- is it SPD cycle, being on break from preschool, holiday foods/ more sweets than usual, etc. Is there anything specific I should be looking out for- danger signs? I haven't given him any Miralax for two days, but will be giving him a 1/4 cap until next Thursday. That day is his endoscopy/biopsy. After that, I plan on stopping completely and will be starting enzymes, probiotics and possibley biotin. Thanks! Quote Link to comment Share on other sites More sharing options...
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