Guest guest Posted February 10, 2008 Report Share Posted February 10, 2008 Hi June, You’re absolutely right – I’ve had 3x pneumonia since dx bronc – I guess I was referring to what a lot of info says that bronc is a result of damage to the lung, one of a number of poss causes being pneumonia. However, in 38 yrs I’ve had lots of bronchitis (used to start as a cold, eventually skipped the cold and went straight to bronchitis) 2-3 x year, w/out pneumonia, so it isn’t a given that a cold will end up as pneumonia. Resistance to infx is as much about a positive outlook, pushing yourself when you can, doing things you love (try not to worry about infx too much), knowing when to rest, too, and allow recovery after a stressful event or day... Do you know what was a poss cause of your bronc? (bearing in mind bronc is described as idiopathic = having no known cause). Cheers, joy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 15, 2008 Report Share Posted February 15, 2008 Joy-My Mom died 9 years ago at the age of 98. She was really something. Great except for her last three years when she got a stroke. However she did suffer all her life with bronchitis. She handed down bad lungs I think to all of us because I have bronc and my son has asthma and my girls have allergy problems and their children have asthma and allergies. I have been reading all the wonderful stories of the people on this forum and they are wonderful on how they are helping each other. What a wonderful group of people. Glad I found you all. I am probably one of he oldest in the group 82. Sorry to hear of 19 year olds suffering with this disease. Still going strong with my daily doses of sulfatrim. Have my fingers crossed and hoping not have resistance to the drug. Going on 8 months with this drug now and will see what the doctor says next month when I see him. I feel wonderful and have no side effects. Will take a blood test tho to see if anything is going wrong. My husband thinks its a miracle because I was a mess before this drug. I'm just really worried tho because this is too good to be true. June K Re: pneumonia June,From my reading it seems that bronc on its own isn’t so bad, and if not too many infx doesn’t deteriorate so fast. It seems somewhat a luck of the draw on the type of infx which becomes predominant, and luck as to how drs decide to treat – I feel that mine could be not as bad if I’d had better monitoring, testing whether or not abx still effective etc... Bronc is idiopathic = no known cause, some causes are hereditary, usually low immunoglobulin, which really wreaks havoc because treatment w abx etc is virtually impossible – as is the case for many on this site. If bronchitis is really frequent, she may have bronchiectasis – which means some degree of permanent irreparable damage. But hey, if she’s 98, not something too great a worry! Who wouldn’t have some deterioration of anywhere in the body by then!! She must be one remarkable lady,Cheers, Joy -- -- "Wealth is nothing, position is nothing, fame is nothing.Who you become inside is everything.What happens to you is not as important as how you react to what happens." Never miss a thing. Make Yahoo your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2008 Report Share Posted February 17, 2008 Dear June, It’s an inspiration to hear from someone 82 w/ bronc ....hard to know what your life-span expectancy is. When I was 20 (2 yrs after dx) I was told I’d be dead by 50yo, I’m soon to be 56, - so there!! But I have to honestly admit when I have infx, I don’t think I want to live too long, if they get worse and untreatable – a bridge far enough away, let’s hope... At least for the 19yo, there’s so much more info now... And yes, this forum is truly a modern wonder or our times... Joy -- -- " Wealth is nothing, position is nothing, fame is nothing. Who you become inside is everything. What happens to you is not as important as how you react to what happens. " Quote Link to comment Share on other sites More sharing options...
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