Re: Helpless

[Guest guest]

hi

im just about to start on the path of DLA - ive got someone coming on

friday!!! i find it really hard and frustrating that no one knows

about this problem and no one can help - it seems so unfair! i have

no idea what friday will bring - i have no faith in the benfits

system - i cant go back to work becasue of this condition - i spend

my days in pain and so so tired - its no way to live really is it!

i understand how you must feel - dont gie up though. im actually ill

and dont want to be so i believe i should get extrra money to help

me - its not as though im pretending to be ill and just want extra

money so i can sit at home all day - id do anything to not have the

problems i do have and go back to work.....i never earned much money

but i was working and supporting myself and all that has been taken

away from me so i completely understand what you are going through -

dont give up though - fight them to get what you deserve!!!

>

> Hi all,

> Life is being particularly hard for me at the moment yet again (as

> you've probably heard from so many other sufferers, so many

times).

> Today I have been to the 'umpteenth' DLA tribunal (since 2004), to

> try and establish an appropriate level of disability benefit - to

> help pay for some much needed care (after paying into the system

for

> 30 years) - but yet again I've lost my appeal, due to medical

> ignorance - it's immoral! There's a distinct lack of knowledgable

> people in this country who can commit themselves to prescribe the

> right tests, let alone make a diagnosis. It's unfortunate that the

> benefit's system, despite it's proclamations of not basing it's

> decision on diagnosis, actually does require a diagnosis in order

to

> award the appropriate allowance. The 'disability handbook' upon

which

> the DLA decision makers base their conclusion doesn't even mention

> Chiari or Chiari related matters, so how on earth can we be getting

> a 'just and fair' deal ?

>