Re: QUESTION ABOUT LBD AT THE END FROM MIDGE

[Guest guest]

here, for us this is what happened as the end neared although for some in

the group this may be different.

When my granda became like this this is when they introduced Oramorph before

finally introducing Morphine. The Morphine was boosted over several days via a

syringe driver in his tummy, the morphine slowly suppresses the breathing and

also induces a coma like state therefore making passing more peaceful( or so

they say).When someone can't move for themselves they do have to be turned to

prevent sores and we found that my granda would moan and cry because his bones

were sore as he'd also lost a lot of weight, this was due to his system shutting

down. We knew there would come a day when he would refuse all food and liquid

and again this happened near the end.

Don't know if this helps Midge.

.xx

QUESTION ABOUT LBD AT THE END FROM MIDGE

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

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starting at 1¢/min.

[Guest guest]

mdige, the put my dad on an air mattress which helped prevent bedsores from

starting or getting worse, they also turned dad as much as possible consider he

had a dislocated hip. you should request taht your mom be given pain meds on a

schedule, not as a patient to request it. my dad took 2 lortab 7.5 tablets at

noon, midnite, 6am and 6pm to keep him comfortable, they were crushed and put

in either pudding or applesauce so he could swallow them easily. i know this is

such a hard time, dad had cable tv in his room and we had the nh put it on

music channels esp a t night and that seemed to ease dad's restlessness a

little. i myself live in constant pain and pain meds, and i leave the tv on in

my room all nite long so that when i cant sleep or am in a light sleep my mind

will hear the tv and be distracted from the pain i am in .

also, an air mattress is great to prevent or ease bedsores. the air mattress

doesnt eliminate the needs to turn the patient but helps signifcaicnt ly ease

the pressure on the bones and the bedsores.

i will pray for peace for you and yoru family, this iss one of the hardest times

with lbd, you want your loved one to be comfortable and happyy again, yet you

know that means that they will be called to teh Lord.

do what you can to reassure and say it is ok to rest now, that they lived a long

and happy life and it is time for peace and relaxation. that will be so hard to

do, but reassuring that you will be fine adn that you want peace and happiness

and freedom for them again, is the best. hold hands, gently stroke arms, speak

softly and soothing, play soft music, maybe even read the bible or poetry,

anything soft and sotthing and reassuring. our loved ones worry about us when

their time is near they want to be sure we are ok so the hardest and best thing

to do, is tell them we love them, we will miss them but we will be ok and it is

ok for them to rest now. i always left dad with a kiss and a smile, and when i

got to the car i cried my eyes out, i didnt let dad hear/see/feel that . good

luck midge, and i am sending you prayers, strength and love to help you thru

this difficult time. hugs, sharon

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall

7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- MIDGE GREER wrote:

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

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starting at 1¢/min.

[Guest guest]

mama is not refusing food or losing weight at all if fact she eats more now than

3 months ago and has gained about 6 lbs in 3 months too. but she can't move and

she hurts somewhere..

daniel campbell wrote: here, for

us this is what happened as the end neared although for some in the group this

may be different.

When my granda became like this this is when they introduced Oramorph before

finally introducing Morphine. The Morphine was boosted over several days via a

syringe driver in his tummy, the morphine slowly suppresses the breathing and

also induces a coma like state therefore making passing more peaceful( or so

they say).When someone can't move for themselves they do have to be turned to

prevent sores and we found that my granda would moan and cry because his bones

were sore as he'd also lost a lot of weight, this was due to his system shutting

down. We knew there would come a day when he would refuse all food and liquid

and again this happened near the end.

Don't know if this helps Midge.

.xx

QUESTION ABOUT LBD AT THE END FROM MIDGE

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

thank you for the prayers and the air mattress advice where did you purchase the

air mattress??

LadySmilingAtU2@... wrote: mdige, the put my dad on an air mattress

which helped prevent bedsores from starting or getting worse, they also turned

dad as much as possible consider he had a dislocated hip. you should request

taht your mom be given pain meds on a schedule, not as a patient to request it.

my dad took 2 lortab 7.5 tablets at noon, midnite, 6am and 6pm to keep him

comfortable, they were crushed and put in either pudding or applesauce so he

could swallow them easily. i know this is such a hard time, dad had cable tv in

his room and we had the nh put it on music channels esp a t night and that

seemed to ease dad's restlessness a little. i myself live in constant pain and

pain meds, and i leave the tv on in my room all nite long so that when i cant

sleep or am in a light sleep my mind will hear the tv and be distracted from the

pain i am in .

also, an air mattress is great to prevent or ease bedsores. the air mattress

doesnt eliminate the needs to turn the patient but helps signifcaicnt ly ease

the pressure on the bones and the bedsores.

i will pray for peace for you and yoru family, this iss one of the hardest times

with lbd, you want your loved one to be comfortable and happyy again, yet you

know that means that they will be called to teh Lord.

do what you can to reassure and say it is ok to rest now, that they lived a long

and happy life and it is time for peace and relaxation. that will be so hard to

do, but reassuring that you will be fine adn that you want peace and happiness

and freedom for them again, is the best. hold hands, gently stroke arms, speak

softly and soothing, play soft music, maybe even read the bible or poetry,

anything soft and sotthing and reassuring. our loved ones worry about us when

their time is near they want to be sure we are ok so the hardest and best thing

to do, is tell them we love them, we will miss them but we will be ok and it is

ok for them to rest now. i always left dad with a kiss and a smile, and when i

got to the car i cried my eyes out, i didnt let dad hear/see/feel that . good

luck midge, and i am sending you prayers, strength and love to help you thru

this difficult time. hugs, sharon

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall

7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- MIDGE GREER wrote:

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

you can get the air mattress ordered thru your doctor, i am sorry i cant

remember if she is at home or in nh, the doctor on staff at teh facility can

order it for you, or if at home, hospice can order it, or your md can order it

and then medicare/insurance will help defray some of the cost of it. it isnt a

typical air mattress that you see advertised, it is ribbed like the old floats

we had years ago, and has a machine that monitors the air pressure and keeps it

at teh appropriate levels. they say not to cover it with sheets, but i did, a

soft 100% cotton sheet as dad sweated so much on teh vinyl mattress. hugs,

sharon

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall

7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- MIDGE GREER wrote:

thank you for the prayers and the air mattress advice where did you purchase the

air mattress??

LadySmilingAtU2@... wrote: mdige, the put my dad on an air mattress

which helped prevent bedsores from starting or getting worse, they also turned

dad as much as possible consider he had a dislocated hip. you should request

taht your mom be given pain meds on a schedule, not as a patient to request it.

my dad took 2 lortab 7.5 tablets at noon, midnite, 6am and 6pm to keep him

comfortable, they were crushed and put in either pudding or applesauce so he

could swallow them easily. i know this is such a hard time, dad had cable tv in

his room and we had the nh put it on music channels esp a t night and that

seemed to ease dad's restlessness a little. i myself live in constant pain and

pain meds, and i leave the tv on in my room all nite long so that when i cant

sleep or am in a light sleep my mind will hear the tv and be distracted from the

pain i am in .

also, an air mattress is great to prevent or ease bedsores. the air mattress

doesnt eliminate the needs to turn the patient but helps signifcaicnt ly ease

the pressure on the bones and the bedsores.

i will pray for peace for you and yoru family, this iss one of the hardest times

with lbd, you want your loved one to be comfortable and happyy again, yet you

know that means that they will be called to teh Lord.

do what you can to reassure and say it is ok to rest now, that they lived a long

and happy life and it is time for peace and relaxation. that will be so hard to

do, but reassuring that you will be fine adn that you want peace and happiness

and freedom for them again, is the best. hold hands, gently stroke arms, speak

softly and soothing, play soft music, maybe even read the bible or poetry,

anything soft and sotthing and reassuring. our loved ones worry about us when

their time is near they want to be sure we are ok so the hardest and best thing

to do, is tell them we love them, we will miss them but we will be ok and it is

ok for them to rest now. i always left dad with a kiss and a smile, and when i

got to the car i cried my eyes out, i didnt let dad hear/see/feel that . good

luck midge, and i am sending you prayers, strength and love to help you thru

this difficult time. hugs, sharon

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall

7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- MIDGE GREER wrote:

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

i am so glad to hear that she is eating and even putting on weihgt, as my dad

lost alot of weight, it was terrbile. i would defiinetely ask a doctor about

pain management, no reason for her to b e so uncomrfortable. good luck and

hugs, sharon m

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall

7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- MIDGE GREER wrote:

mama is not refusing food or losing weight at all if fact she eats more now than

3 months ago and has gained about 6 lbs in 3 months too. but she can't move and

she hurts somewhere..

daniel campbell wrote: here, for

us this is what happened as the end neared although for some in the group this

may be different.

When my granda became like this this is when they introduced Oramorph before

finally introducing Morphine. The Morphine was boosted over several days via a

syringe driver in his tummy, the morphine slowly suppresses the breathing and

also induces a coma like state therefore making passing more peaceful( or so

they say).When someone can't move for themselves they do have to be turned to

prevent sores and we found that my granda would moan and cry because his bones

were sore as he'd also lost a lot of weight, this was due to his system shutting

down. We knew there would come a day when he would refuse all food and liquid

and again this happened near the end.

Don't know if this helps Midge.

.xx

QUESTION ABOUT LBD AT THE END FROM MIDGE

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

Midge,if she is bedridden then I could be that her bones are sore all over as

opposed to one single area. Can she verbalise where she hurts?

.xx

QUESTION ABOUT LBD AT THE END FROM MIDGE

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1¢/min.

[Guest guest]

Hi Midge,

It sounds like your Mom may be at the end stage, but my MIL was at a

similar point and has bounced back. You can never tell with LBD. Have

you considered hospice? Your Mom should not be suffering in pain. With

hospice they will make sure she is comfortable and help you through

this difficult time. My thoughts and prayers are with you and your Mom.

Maureen

>

> CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN

STIFF, HAS TO BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT

STAGE IS THIS AND DOES ANYONE HAVE EXPERIENCE WITH THIS PART OF THE

DISEASE CAUSE I JUST DON'T KNOW WHAT I'M FACING AT THIS POINT??

>

> ---------------------------------

> Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great

rates starting at 1¢/min.

>

>

[Guest guest]

Hi and Midge,

My mom is nearing the end also. She has been in bed for over 3 weeks now but

today

they were going to try getting her up for lunch. With her recent complications

and need

for pain killer, she was started on Dilaudid, and on my questioning the nurse as

to

whether to go that route, she explained that there is now a theory out regarding

morphine

in that it does not actually cause cessation of breathing, but allows the

patient to relax

enough to let the dying process take over more readily. An interesting thought.

, Oakville Ont.

Mom 92, 13 years " Parkinsons "

3 1/2 years ago LBD diagnosis, evident much longer in hindsight.

Encouraged to give up her licence 6 years ago.

Eltroxin, Tylenol 1g 3 times a day, Dilaudid 2 mg. 4 times a day

Off Aricept since Feb./06

On " gentle care " June 30/06, spoon-fed pureed foods, swallowing very

compromised,

congested

>

> here, for us this is what happened as the end neared although for some

in the

group this may be different.

> When my granda became like this this is when they introduced Oramorph before

finally

introducing Morphine. The Morphine was boosted over several days via a syringe

driver in

his tummy, the morphine slowly suppresses the breathing and also induces a coma

like

state therefore making passing more peaceful( or so they say).When someone can't

move

for themselves they do have to be turned to prevent sores and we found that my

granda

would moan and cry because his bones were sore as he'd also lost a lot of

weight, this was

due to his system shutting down. We knew there would come a day when he would

refuse

all food and liquid and again this happened near the end.

> Don't know if this helps Midge.

> .xx

> QUESTION ABOUT LBD AT THE END FROM MIDGE

>

>

> CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS

TO BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND

DOES ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T

KNOW WHAT I'M FACING AT THIS POINT??

>

> ---------------------------------

> Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting

at 1¢/min.

>

>

[Guest guest]

For the last several months, we had one of those <memory - foam> mattress

things.. I think it was about 4 inches thick that went on top of mom's

" hospital " bed. Even with that, it was a struggle to keep her bottom's skin

free from sores. Her skin became so paper thin.

The county nurse and the home health aid tried to stagger their in-home days.

I helped the home health aid get mom into the bath chair, if mom was feeling up

to it, else she got a sponge bath. My wife and I did baths and clean ups as

necessary inbetween.

Mom spent a lot of her time in her lift chair, even parts of many nights,

because that semi sitting position seemed to make her breathing easier. I got

to love mom's loud snoring, because for me, that ment the world was well. When

things would get quiet, I woke with a start, or dropped what I was doing on the

computer. Usually I would make coffee for me about midnight, or 1 AM when she

would start into the restless period of her night. Then I would plan to stay

wide awake until after dawn, when she would usually sleep deeply for a whole

hour or two. I remember that her last night was pretty tough.. we went from

bed, to potty, to chair, and back, and again and again. I think that she had 3

or 4 complete changes of clothes / bed sheet / chair towels that night.

For all that she remained somewhat sharp. I was half dozing on the couch

next to her chair about about 8 AM when she started running the lift chair up

and down, up and down. I tried to give her an anti anxiety pill, but she

couldn't get it down, even with our old standby / applesauce. We told her her

that my brother, her youngest son would be there that afternoon. She couldn't

wait. The last thing she whispered was " I will be leaving you now " . About 15

minutes later she was gone.

Dann

LadySmilingAtU2@... wrote:

[Guest guest]

Midge, you've received some great advice. I only want to say that you

and your mama are in my thoughts and prayers. I believe you have

Hospice already - the air mattress is a great idea. The pain meds

sounds necessary too. Take care and God bless.

[Guest guest]

Midge,

Isn't Hospice helping you at all? If not, or if she isn't on hospice, please

call them and let them help. She can have hospice (and Medicare pays for it)

even if she is in the nh, and I don't remember if she is or not.

Hope you get some help. They should be bringing in the right mattress. You

shouldn't have to do this alone.

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year in

a nh.

She was almost 89 when she died in '02. No dx other than mine.

QUESTION ABOUT LBD AT THE END FROM MIDGE

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1/min.

[Guest guest]

SHE NOT IN THE NH SHE'S HOME BUT HOSPICE SAYS THE MATTRESS IS OK. THEY ARE A

LITTLE HELP BUT I'M NOT IMPRESSED. I LET THEM KNOW ABOUT IT THIS WEEK..I'M JUST

HAVING A DIFFICULT TIME DEALING...I FEEL SO HELPLESS...TRYING TO BE

SUPERWOMAN..THANKS MIDGE

Donna Mido wrote: Midge,

Isn't Hospice helping you at all? If not, or if she isn't on hospice, please

call them and let them help. She can have hospice (and Medicare pays for it)

even if she is in the nh, and I don't remember if she is or not.

Hope you get some help. They should be bringing in the right mattress. You

shouldn't have to do this alone.

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year

in a nh.

She was almost 89 when she died in '02. No dx other than mine.

QUESTION ABOUT LBD AT THE END FROM MIDGE

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1/min.

[Guest guest]

no she can't tell us where she hurts anymore and i feel very helples to know how

to help and hospice says they have to guess too..her knees are in her chin all

the time now she eats quiet a bit and still urinates good but #2 have to go

with suppositories and dig a lot sorry for being so grafic

daniel campbell wrote:

Midge,if she is bedridden then I could be that her bones are sore all over as

opposed to one single area. Can she verbalise where she hurts?

.xx

QUESTION ABOUT LBD AT THE END FROM MIDGE

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1�/min.

[Guest guest]

Midge,

Hospice brought one of those memory foam mattresses for my dad.

Dann

MIDGE GREER wrote: SHE

NOT IN THE NH SHE'S HOME BUT HOSPICE SAYS THE MATTRESS IS OK. THEY ARE A LITTLE

HELP BUT I'M NOT IMPRESSED. I LET THEM KNOW ABOUT IT THIS WEEK..I'M JUST HAVING

A DIFFICULT TIME DEALING...I FEEL SO HELPLESS...TRYING TO BE SUPERWOMAN..THANKS

MIDGE

Donna Mido wrote: Midge,

Isn't Hospice helping you at all? If not, or if she isn't on hospice, please

call them and let them help. She can have hospice (and Medicare pays for it)

even if she is in the nh, and I don't remember if she is or not.

Hope you get some help. They should be bringing in the right mattress. You

shouldn't have to do this alone.

Donna R

Caregave for Mom (after I brought her from WI to MI) for 3 years and 4th year

in a nh.

She was almost 89 when she died in '02. No dx other than mine.

QUESTION ABOUT LBD AT THE END FROM MIDGE

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1/min.

[Guest guest]

Hi Midge-

I am so sorry your Mom is having such a tough time. If you feel Hospice is not

helping, try another Hopsice Group. We had Hospice for my Dad. They tried and

tried and could never get him totally comfortable. They were very supportive of

Dad and family. Dad loved the Hospice staff and always brightened up when they

came for thier visits. To me the love and compassion they gave Dad was almost

as good as any medication

As far as working and trying to deal with your Mom, have you considered a Family

Medical Leave of Absence. I was on intermittent FMLA for 2 yrs. If Dad was

having a bad day, I would call in and despite the nursing shortage, there was

never a fuss. Review the FMLA online. There are stipulations.

I will keep you and your Mom in my prayers.

XOXOXO

Gerry

Daughter and caregiver for Dick Deverell, who died 9/11/05 after a more than 4

yr. battle with LBD.

QUESTION ABOUT LBD AT THE END FROM MIDGE

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

Talk is cheap. Use Yahoo! Messenger to make PC-to-Phone calls. Great rates

starting at 1/min.

[Guest guest]

midge,

hospice is a very wonderful group, if you arent happy with one, or someone in

the group, ask for someone else, or even change hospice companies. you have to

sign a revoking of contract with one before you can sign a contract iwth anohter

but it hsould be no problem. our hospice which was Hospice of Emerald Coast was

teh smaller hospice company around here, but almost everyone was very

personable, there were a few nurses that i didnt particularly care for, one was

too much a nurse, she wore teh traditional white nurse outift and cap and she

would tell you that i hate going to rita's patients as she is so friendly and

personable and i am so professional. she was very good, but very curt as well,

she didnt have the gift to gab. dad needed the gift to gab,the big smiles and

the honey how are you's to have a good day. one aide i wasnt impressed with

when our evelyn was off for a family emergency. i tried to tell her what was

easiest for dad and how to get to the bathroom and she point blank said, i have

my own way i dont do things like evelyn if you get out of my way i am sure i

will be fine. needless to say i made sure she didnt come back becuase dad

needed routine and she threw off his whole routine by having him walk holding on

to her instead of the rails and bars and he didnt feel secure, and she was short

with him when he had trouble getting in to the bathtub. my long winded point is

one you can change hospices if you need to , with no hard feelings, some people

just dont click same with staff, although it may take a day or 2 to accomplish

taht, everyone knows that some personalities just dont click, no biggie, do

what is best for you and your home PERIOD. hugs, sharon m

--

Daugher of Leonard, diag May 2004, had lbd since 1993, had hip surgery from fall

7/05, aspiration pneumonia 7/05 with pulmonary embolyis, had aspiration

pneumonia and uti 8/05, died of blood pressure drop on 9/25/05,

may he rest in peace with his mom and dad,

a smile a day keeps the meanies away

---- Gerry Deverell wrote:

Hi Midge-

I am so sorry your Mom is having such a tough time. If you feel Hospice is not

helping, try another Hopsice Group. We had Hospice for my Dad. They tried and

tried and could never get him totally comfortable. They were very supportive of

Dad and family. Dad loved the Hospice staff and always brightened up when they

came for thier visits. To me the love and compassion they gave Dad was almost

as good as any medication

As far as working and trying to deal with your Mom, have you considered a Family

Medical Leave of Absence. I was on intermittent FMLA for 2 yrs. If Dad was

having a bad day, I would call in and despite the nursing shortage, there was

never a fuss. Review the FMLA online. There are stipulations.

I will keep you and your Mom in my prayers.

XOXOXO

Gerry

Daughter and caregiver for Dick Deverell, who died 9/11/05 after a more than 4

yr. battle with LBD.

QUESTION ABOUT LBD AT THE END FROM MIDGE

CAN ANYONE TELL ME IF A PERSON WITH LBD WHEN THEY ARE BED RIIDEN STIFF, HAS TO

BE TURNED , BARELY UTTERS A WORD, AND MOANS IN PAIN. WHAT STAGE IS THIS AND DOES

ANYONE HAVE EXPERIENCE WITH THIS PART OF THE DISEASE CAUSE I JUST DON'T KNOW

WHAT I'M FACING AT THIS POINT??

---------------------------------

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