Would like all moms to answer

[Guest guest]

HI,

I've been posting on these boards and reading for quite a while. I

have a few question:

1. How long had/has your child been on Miralax?

2. When did the constipation begin?

3. Before you started all these remedies instead of MIralax, was your

child tested for GI issues, ex. rectal biopsy, colonoscopy, endoscopy?

4. Does your child ever have periods of pooping on potty normally every

day and then go backwards for no reason?

5. If you are seeing GI doc, what does he think?

Thanks,

[Guest guest]



18 Month Old with life threatening allergies to peanuts & eggs. No other health related issues.

1. She was on it for a month. I gave her 1/4 cap full daily instead of one cap as suggested.

2. Approx. 15 months. She used the bathroom every day but was having severe tummy cramping at night. Her GP said she was "fine." I didn't believe it, took her to the GI and she was entirely "backed up".

3. Yes, I had her tested before beginning any meds.

4. We are just beginning potty training. She turned 2 in December.

5. My daughters GI, a family GI, my GP, her pediatrician and two other GI doctors I spoke with over the phone all said Miralax was safe. One pediatrician in her practice said if the label says not safe for children under 17 then I would think it is not safe. I LOVE HIM. I tried to help my daughter without and she continued to be in pain. She also showed several symptoms/side effects that others on this site have described.

My responses are in your questions field:~ Tracie- HI,I've been posting on these boards and reading for quite a while. I have a few question:1. How long had/has your child been on Miralax?Our ds was on it 5 years.2. When did the constipation begin?Birth3. Before you started all these remedies instead of MIralax, was your child tested for GI issues, ex. rectal biopsy, colonoscopy, endoscopy?Yes. 4. Does your child ever have periods of pooping on potty normally every day and then go backwards for no reason?No.5. If you are seeing GI doc, what does he think?He thinks Miralax for life or until my son "decides to poop on his own" is the way to go. Thanks,

[Guest guest]

1. we took two 1/2 teaspoon doses a year ago when she was 3. and then had 4 - 6 weeks of side effects - was horrific. 2. constipated more or less since birth - but not nearly as bad as other kids on this board. was manageable until overexposure to antibiotics when she started preschool.

3. not tested. 4. yes, but since being on regimen she is on now and FINALLY using potty every day, hasn't had backward movement in about a month. (KNOCKING ON WOOD AS I TYPE!)5. GI thought daughter's problems attributable to antibiotic overexposure - thought her gut dehydrated and needed to be repopulated with good bacteria. thought she would start using potty when she forgot about the painful poops. also put us on very strict diet that still adhere to and likely will for a very long time to come. when we deviate we have problems. she is proponent of probiotics as well. but also had us on lactulose (small doses) for about 6 months.

HI,

I've been posting on these boards and reading for quite a while. I

have a few question:

1. How long had/has your child been on Miralax?

2. When did the constipation begin?

3. Before you started all these remedies instead of MIralax, was your

child tested for GI issues, ex. rectal biopsy, colonoscopy, endoscopy?

4. Does your child ever have periods of pooping on potty normally every

day and then go backwards for no reason?

5. If you are seeing GI doc, what does he think?

Thanks,

[Guest guest]

May I suggest that you move this to a survey instead. It's on the

menubar on your left -- polls. By answering polls we have a

historical record of all the questions. Additionally, they are

available for new members to see -- an immediate - " I'm not the only

one feeling! "

>

> HI,

>

> I've been posting on these boards and reading for quite a while. I

> have a few question:

>

> 1. How long had/has your child been on Miralax?

>

> 2. When did the constipation begin?

>

> 3. Before you started all these remedies instead of MIralax, was

your

> child tested for GI issues, ex. rectal biopsy, colonoscopy,

endoscopy?

>

> 4. Does your child ever have periods of pooping on potty normally

every

> day and then go backwards for no reason?

>

> 5. If you are seeing GI doc, what does he think?

>

> Thanks,

>

>

[Guest guest]

If you do a poll, can you add the question " Did you use fertility drug(s) within

2 years of conceiving your child who has constipation? " With a Yes or No

option.

Thank you.

---- mommtlc wrote:

May I suggest that you move this to a survey instead. It's on the

menubar on your left -- polls. By answering polls we have a

historical record of all the questions. Additionally, they are

available for new members to see -- an immediate - " I'm not the only

one feeling! "

>

> HI,

>

> I've been posting on these boards and reading for quite a while. I

> have a few question:

>

> 1. How long had/has your child been on Miralax?

>

> 2. When did the constipation begin?

>

> 3. Before you started all these remedies instead of MIralax, was

your

> child tested for GI issues, ex. rectal biopsy, colonoscopy,

endoscopy?

>

> 4. Does your child ever have periods of pooping on potty normally

every

> day and then go backwards for no reason?

>

> 5. If you are seeing GI doc, what does he think?

>

> Thanks,

>

>

[Guest guest]

> 1. How long had/has your child been on Miralax? Was on on and off

for 2 years

>

> 2. When did the constipation begin? We had bouts of it from 2 1/2

on.

>

> 3. Before you started all these remedies instead of MIralax, was

your

> child tested for GI issues, ex. rectal biopsy, colonoscopy,

endoscopy? No.

>

> 4. Does your child ever have periods of pooping on potty normally

every

> day and then go backwards for no reason? Yes, but we are on

Lactulose right now to keep her regular.

>

> 5. If you are seeing GI doc, what does he think? Thinks my

daughters long history of holding it in has stretched out her colon.

Now that she is old enough to know better, we need to use Lactulose

for a few months to heal the colon. Then we will begin to wean her

from it.

> >

> > HI,

> >

> > I've been posting on these boards and reading for quite a while.

I

> > have a few question:

> >

> > 1. How long had/has your child been on Miralax?

> >

> > 2. When did the constipation begin?

> >

> > 3. Before you started all these remedies instead of MIralax, was

> your

> > child tested for GI issues, ex. rectal biopsy, colonoscopy,

> endoscopy?

> >

> > 4. Does your child ever have periods of pooping on potty normally

> every

> > day and then go backwards for no reason?

> >

> > 5. If you are seeing GI doc, what does he think?

> >

> > Thanks,

> >

> >

>

[Guest guest]

1. How long had/has your child been on Miralax?2. When did the constipation begin?3. Before you started all these remedies instead of MIralax, was your child tested for GI issues, ex. rectal biopsy, colonoscopy, endoscopy?4. Does your child ever have periods of pooping on potty normally every day and then go backwards for no reason?

5. If you are seeing GI doc, what does he think?

Thanks,

My child was never continent of stool.

He seemed to do great at potty training for a few weeks then it devolved into power struggles and it was all downhill from there.

We did miralax off and on for a couple of years.

I never wanted to do it but since it was all the traditional medical community had to offer I felt I had no other choice.

The GI geniuses here at the local Children's Hospital chalk it all up to psychological origins.

We've since discovered through the school system that our child has sensory integration disorder, of which enteroception, the ability to sense the need to eliminate can be an issue.

I knew that my son was not doing this to acheive revenge- he has paid too dearly for this problem.

Had I understood what was going on earlier I could have been more matter of fact about the soiling and the need for pull ups.

I blame the overwhelming number of immunizations given to him from 0 to 2yo.

As a registered nurse I thought I was doing the right thing making sure he got all his immunizations on time, he never missed even a flu shot.

I thought he needed the flu shot to help ward off some of the many ear infections he kept getting.

Now I believe all those immunizations caused immune problems, which caused gut problems, which caused neurological problems.

Presently we see a homeopathic/ DAN doctor.

My son is OK taking nystatin for yeast, probiotics that keep his stool soft enough for him to eliminate it, and bunches of other supplements, mostly vitamins and minerals.

We also see an occupational therapist once a week and he receives OT in the school.

He has mild to moderate behavior problems.

His social skills are weak, he can't seem to keep his hands to himself, he has little impulse control, sometimes he does not manage his anger well or tries to use anger to get his way (unfortunately I have modeled that for him as my parents did for me. Only with me it worked.)

Probiotics have been a tremendous benefit. I use Nature's Way Optima becuase it has so many strains in it. I also take probiotics for my self.

My husband and I also went through Positive Child Interaction Therapy- that has also been a tremendous help. We were definitely struggling as parents and partners in parenting. We still don't agree 100% but what set of parents does.

[Guest guest]

Can you tell me what Lactulose is please? Im still learning!

Cayce

Subject: Re: Would like all moms to answerTo: miralax Date: Friday, January 16, 2009, 6:51 AM

> 1. How long had/has your child been on Miralax? Was on on and off for 2 years>> 2. When did the constipation begin? We had bouts of it from 2 1/2 on.>> 3. Before you started all these remedies instead of MIralax, wasyour> child tested for GI issues, ex. rectal biopsy, colonoscopy,endoscopy? No.>> 4. Does your child ever have periods of pooping on potty normallyevery> day and then go backwards for no reason? Yes, but we are on Lactulose right now to keep her regular.>> 5. If you are seeing GI doc, what does he think? Thinks my daughters long history of holding it in has stretched out her colon. Now that she is old enough to know better, we need to use Lactulose for a few months to heal the colon. Then we will begin to wean her from it.> >> > HI,> > > > I've been posting on these boards and reading for quite a while. I > > have a few question:> > > > 1. How long had/has your child been on Miralax?> > > > 2. When did the constipation begin?> > > > 3. Before you started all these remedies instead of MIralax, was > your > > child

tested for GI issues, ex. rectal biopsy, colonoscopy, > endoscopy?> > > > 4. Does your child ever have periods of pooping on potty normally > every > > day and then go backwards for no reason?> > > > 5. If you are seeing GI doc, what does he think?> > > > Thanks,> > > >>

[Guest guest]

1. How long had/has your child been on Miralax?

Probably about 4 years, since she was 2.

2. When did the constipation begin?

About age 1.

3. Before you started all these remedies instead of MIralax, was your

child tested for GI issues, ex. rectal biopsy, colonoscopy, endoscopy?

Yes. Every test under the sun. Even a 24 hour reflux monitoring.

Multiple x-rays as well.

4. Does your child ever have periods of pooping on potty normally

every day and then go backwards for no reason?

No, still not potty trained. She has Down syndrome and Autism, so

part of her trouble may be low tone.

5. If you are seeing GI doc, what does he think?

Our GI, who we've seen for years, has not given opinion yet. We

went back to see her, now we deal with a PA instead of doc. This

person looked at us as if we were insane to think Miralax did not

work and we must be lying. Everyone I speak to about it, rolls

their eyes and probably thinks I dig up stories off some " weird "

internet site. Its very disturbing.

>

> HI,

>

> I've been posting on these boards and reading for quite a while. I

> have a few question:

>

> 1. How long had/has your child been on Miralax?

>

> 2. When did the constipation begin?

>

> 3. Before you started all these remedies instead of MIralax, was

your

> child tested for GI issues, ex. rectal biopsy, colonoscopy,

endoscopy?

>

> 4. Does your child ever have periods of pooping on potty normally

every

> day and then go backwards for no reason?

>

> 5. If you are seeing GI doc, what does he think?

>

> Thanks,

>

>

[Guest guest]

1. How long had/has your child been on Miralax?

Just a matter of weeks> > 2. When did the constipation begin?

about age 2 (he is now 11)> > 3. Before you started all these remedies instead of MIralax, was your > child tested for GI issues, ex. rectal biopsy, colonoscopy, endoscopy?

No. It was originally given to him by his pedi who had been treating him for constipation for years, I had refused the miralax for years, then I finally gave in.> > 4. Does your child ever have periods of pooping on potty normally every > day and then go backwards for no reason?

No! Absolutly not. I have to work very hard to make sure he gets all foods, water, supplements, etc...that he needs just to make him go 3 times a week.> > 5. If you are seeing GI doc, what does he think?

The first one totally believes Miralax is the miracle drug. The current GI doc thinks Miralax works but does not push it, and she actually raises an eyebrow to the Miralax after some of his test results.> Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08), Epstein Barr Virus-Mono(6/08), Environmental Allergies (mountain cedar & cats)(3/08), Eczema (since birth).

To: miralax Sent: Tuesday, January 20, 2009 4:10:08 PMSubject: Re: Would like all moms to answer

[Guest guest]

Deanna,

What were the test results that she can't believe? Was something elevated? I know you've posted this before but I cannot remember now.............

Subject: Re: Re: Would like all moms to answerTo: miralax Date: Tuesday, January 20, 2009, 8:38 PM

1. How long had/has your child been on Miralax?

Just a matter of weeks> > 2. When did the constipation begin?

about age 2 (he is now 11)> > 3. Before you started all these remedies instead of MIralax, was your > child tested for GI issues, ex. rectal biopsy, colonoscopy, endoscopy?

No. It was originally given to him by his pedi who had been treating him for constipation for years, I had refused the miralax for years, then I finally gave in.> > 4. Does your child ever have periods of pooping on potty normally every > day and then go backwards for no reason?

No! Absolutly not. I have to work very hard to make sure he gets all foods, water, supplements, etc...that he needs just to make him go 3 times a week.> > 5. If you are seeing GI doc, what does he think?

The first one totally believes Miralax is the miracle drug. The current GI doc thinks Miralax works but does not push it, and she actually raises an eyebrow to the Miralax after some of his test results.> Deanna,Fort Worth, TexasMom to Cody age 10, Dx: EE (2/08), Guilliam Barre Syndrome(3/08) , Epstein Barr Virus-Mono(6/ 08), Environmental Allergies (mountain cedar & cats)(3/08), Eczema (since birth).

From: megsoracco <megsoraccogmail (DOT) com>To: miralax@yahoogroups .comSent: Tuesday, January 20, 2009 4:10:08 PMSubject: Re: Would like all moms to answer